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Author: Charlotte E. Thompson M.D.
Publisher: Oxford University Press
ISBN: 0198029462
Category : Family & Relationships
Languages : en
Pages : 288
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Book Description
Raising a child with a neuromuscular disorder can be a overwhelming experience for even the strongest parent or grandparent. Dr. Charlotte Thompson, a leading authority in pediatric neuromuscular disorders, draws on her 38 years of experience treating children with muscular dystrophy, spinal atrophy, congenital and mitochondrial myopathies, Charcot-Marie-Tooth, and all the childhood neuromuscular disorders. Her book provides not only medical facts but much practical advice on how to cope with the many challenges of day-to-day parenting a child with neuromuscular disease. Dr. Thompson discusses how to cope with the initial diagnosis of a neuromuscular disorder and then suggests ways to get beyond the shock, numbness, and anger that may occur. She describes each of the principal diseases giving the history, signs and symptoms, the usual course, outcome, genetics, and any possible treatments. Subsequent chapters offer advice on when to ask for a second opinion about the diagnosis, how to navigate the medical maze and work with a child's medical team. Tips on finding the most appropriate school placement and developing an individual education program (IEP) are invaluable. Dr. Thompson stresses the importance of taking one day at a time and insists that parents must care for themselves. She offers suggestions for developing family closeness and even how to make time for fun. Wise advice from parents of children with neuromuscular disease is inserted in boxes throughout the chapters. A large appendix gives resources state by state and country by country. There is no training that prepares you to be the parent of a child with a disability, but Raising a Child with a Neuromuscular Disorder should be a great help to parents, grandparents, and anyone who cares for a child or young person.
Author: Charlotte E. Thompson M.D.
Publisher: Oxford University Press
ISBN: 0198029462
Category : Family & Relationships
Languages : en
Pages : 288
Get Book Here
Book Description
Raising a child with a neuromuscular disorder can be a overwhelming experience for even the strongest parent or grandparent. Dr. Charlotte Thompson, a leading authority in pediatric neuromuscular disorders, draws on her 38 years of experience treating children with muscular dystrophy, spinal atrophy, congenital and mitochondrial myopathies, Charcot-Marie-Tooth, and all the childhood neuromuscular disorders. Her book provides not only medical facts but much practical advice on how to cope with the many challenges of day-to-day parenting a child with neuromuscular disease. Dr. Thompson discusses how to cope with the initial diagnosis of a neuromuscular disorder and then suggests ways to get beyond the shock, numbness, and anger that may occur. She describes each of the principal diseases giving the history, signs and symptoms, the usual course, outcome, genetics, and any possible treatments. Subsequent chapters offer advice on when to ask for a second opinion about the diagnosis, how to navigate the medical maze and work with a child's medical team. Tips on finding the most appropriate school placement and developing an individual education program (IEP) are invaluable. Dr. Thompson stresses the importance of taking one day at a time and insists that parents must care for themselves. She offers suggestions for developing family closeness and even how to make time for fun. Wise advice from parents of children with neuromuscular disease is inserted in boxes throughout the chapters. A large appendix gives resources state by state and country by country. There is no training that prepares you to be the parent of a child with a disability, but Raising a Child with a Neuromuscular Disorder should be a great help to parents, grandparents, and anyone who cares for a child or young person.
Author: Basil T. Darras
Publisher: Elsevier
ISBN: 0124171273
Category : Medical
Languages : en
Pages : 1156
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Book Description
Neuromuscular disorders are diagnosed across the lifespan and create many challenges especially with infants, children and adolescents. This new edition of the definitive reference, edited by the established world renowned authorities on the science, diagnosis and treatment of neuromuscular disorders in childhood is a timely and needed resource for all clinicians and researchers studying neuromuscular disorders, especially in childhood. The Second Edition is completely revised to remain current with advances in the field and to insure this remains the standard reference for clinical neurologists and clinical research neurologists. The Second Edition retains comprehensive coverage while shortening the total chapter count to be an even more manageable and effective reference. Carefully revised new edition of the classic reference on neuromuscular disorders in infancy, childhood and adolescence. Definitive coverage of the basic science of neuromuscular disease and the latest diagnosis and treatment best practices. Includes coverage of clinical phenomenology, electrophysiology, histopathology, molecular genetics and protein chemistry
Author: Michael K D Benson
Publisher:
ISBN: 9780857295538
Category :
Languages : en
Pages : 146
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Book Description
The newborn child 's immature nervous system makes early diagnosis of some neurological disorders difficult: it is often only the passage of time which clarifies the severity and pattern. Careful analysis of motor skills, vision, hearing and speech allows us to assess milestones. Progress from head control to sitting, standing and the maturation of gait should be orderly. Informed examination and the chapter on gait analysis highlight this development. Chapters in this book describe neural tube defects, the recognition and management of cerebral palsy and, lest we forget, poliomyelitis. The book is completed by considering the muscular dystrophies and arthrogryposis.
Author: Ian Mosby
Publisher:
ISBN:
Category : Caregivers
Languages : en
Pages :
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Book Description
Author: Sylvia E. McGriff
Publisher:
ISBN:
Category :
Languages : en
Pages : 9
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Book Description
Author: Charlotte E. Thompson
Publisher: Oxford University Press, USA
ISBN: 9780195132533
Category : Family & Relationships
Languages : en
Pages : 296
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Book Description
Still the only handbook of its kind to discuss both the emotional and physical problems of raising a child with a disability, this guide offers complete, practical, and reassuring advice for parents who care for these children.
Author: Kristine Elaine Strong
Publisher:
ISBN:
Category :
Languages : en
Pages : 198
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Book Description
Author: Ian Mosby
Publisher:
ISBN:
Category :
Languages : en
Pages : 24
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Book Description
Author: Julie M. Hauer
Publisher: JHU Press
ISBN: 1421409380
Category : Health & Fitness
Languages : en
Pages : 480
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Book Description
Hauer offers hope and practical coping strategies in equal measure.
Author: Donna G. Albrecht
Publisher: Wiley
ISBN: 9780471042402
Category : Family & Relationships
Languages : en
Pages : 246
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Book Description
Parenting a child who has a physical disability can be complicated. This book will make your job easier. Compassionate, helpful, and based on real-life experience, it will help you handle every facet of raising and loving your special child, including: * Finding the right physical and mental health professionals * Solving stressful situations within the family * Boosting your child's confidence and self-esteem * Developing a proper support team you can trust * Dealing with hospitalizations and emergencies * Handling medical equipment at home * Managing medications, special diets, and hygiene needs * Getting a reluctant school district to meet your child's educational needs * Selecting a guardian or arranging for long-term custodial care You'll also find information about school placement options, the Individualized Education Program (IEP) and lists of medical specialists, organizations, and government programs that offer help for children with physical needs.
