Author: Dirk Van Hulle
Publisher: Open Book Publishers
ISBN: 1805114026
Category : Literary Criticism
Languages : en
Pages : 281
Book Description
Genetic Narratology is the first full-length volume to merge genetic criticism with narratology, offering an innovative approach to understanding literature. By examining the creative process behind literary works through drafts, manuscripts and revisions, this book reveals how narratives are shaped in real time. Through diverse case studies—from Charlotte Brontë to Stephen King—this collection demonstrates how the material processes of writing influence narrative structure, pacing, and even the ‘untold’. By integrating genetic criticism with narratological methods, contributors explore how stories evolve, providing fresh insights into time, space, character, and suspense. Bridging the gap between the production and reception of texts, this volume makes a compelling case for incorporating genetic methods into broader narratological frameworks, enhancing not only our understanding of the genesis of literary works, ultimately enriching the reading experience, but also our awareness of the ways we narrativise this genesis. The book will be of interest to students and researchers alike, offering a new set of tools for analysing narrative across different versions.
Genetic Narratology
Author: Dirk Van Hulle
Publisher: Open Book Publishers
ISBN: 1805114026
Category : Literary Criticism
Languages : en
Pages : 281
Book Description
Genetic Narratology is the first full-length volume to merge genetic criticism with narratology, offering an innovative approach to understanding literature. By examining the creative process behind literary works through drafts, manuscripts and revisions, this book reveals how narratives are shaped in real time. Through diverse case studies—from Charlotte Brontë to Stephen King—this collection demonstrates how the material processes of writing influence narrative structure, pacing, and even the ‘untold’. By integrating genetic criticism with narratological methods, contributors explore how stories evolve, providing fresh insights into time, space, character, and suspense. Bridging the gap between the production and reception of texts, this volume makes a compelling case for incorporating genetic methods into broader narratological frameworks, enhancing not only our understanding of the genesis of literary works, ultimately enriching the reading experience, but also our awareness of the ways we narrativise this genesis. The book will be of interest to students and researchers alike, offering a new set of tools for analysing narrative across different versions.
Publisher: Open Book Publishers
ISBN: 1805114026
Category : Literary Criticism
Languages : en
Pages : 281
Book Description
Genetic Narratology is the first full-length volume to merge genetic criticism with narratology, offering an innovative approach to understanding literature. By examining the creative process behind literary works through drafts, manuscripts and revisions, this book reveals how narratives are shaped in real time. Through diverse case studies—from Charlotte Brontë to Stephen King—this collection demonstrates how the material processes of writing influence narrative structure, pacing, and even the ‘untold’. By integrating genetic criticism with narratological methods, contributors explore how stories evolve, providing fresh insights into time, space, character, and suspense. Bridging the gap between the production and reception of texts, this volume makes a compelling case for incorporating genetic methods into broader narratological frameworks, enhancing not only our understanding of the genesis of literary works, ultimately enriching the reading experience, but also our awareness of the ways we narrativise this genesis. The book will be of interest to students and researchers alike, offering a new set of tools for analysing narrative across different versions.
Genetic Criticism
Author: Dirk Van Hulle
Publisher: Oxford University Press
ISBN: 0192662236
Category : Literary Criticism
Languages : en
Pages : 339
Book Description
In Genetic Criticism, Dirk Van Hulle introduces the study of creative processes to an Anglophone audience. As a method in the study of literary writing processes, genetic criticism is also a reading strategy. The idea behind this book is to introduce this strategy to a broader audience, from interested readers and graduate students to early career researchers and literary critics. In literary studies, it is often obvious that a particular work somehow seems to hit a nerve, but more challenging to pinpoint exactly why it 'works'. This book therefore starts from a clear, basic assumption: knowing how something was made can help us understand how and why it works. This strategy is at the basis of many disciplines, including art history. By means of X-ray technology or hyperspectral imaging, it is possible to look at a painting as a multilayered object with not only spatial dimensions, but also a temporal one. This temporal dimension is the core of the reading strategy introduced in this book. Note books, marginalia, manuscripts, and typescripts (even if one works with scans) give a concrete dimension to literature, which is a helpful reading strategy for many students. On the one hand, this involves concrete, transferrable skills such as aspects of transcription and digital scholarly editing. On the other hand, it also involves more abstract theoretical issues relating to matters of authorship, collaboration, authority, agency, intention and intertextuality.
Publisher: Oxford University Press
ISBN: 0192662236
Category : Literary Criticism
Languages : en
Pages : 339
Book Description
In Genetic Criticism, Dirk Van Hulle introduces the study of creative processes to an Anglophone audience. As a method in the study of literary writing processes, genetic criticism is also a reading strategy. The idea behind this book is to introduce this strategy to a broader audience, from interested readers and graduate students to early career researchers and literary critics. In literary studies, it is often obvious that a particular work somehow seems to hit a nerve, but more challenging to pinpoint exactly why it 'works'. This book therefore starts from a clear, basic assumption: knowing how something was made can help us understand how and why it works. This strategy is at the basis of many disciplines, including art history. By means of X-ray technology or hyperspectral imaging, it is possible to look at a painting as a multilayered object with not only spatial dimensions, but also a temporal one. This temporal dimension is the core of the reading strategy introduced in this book. Note books, marginalia, manuscripts, and typescripts (even if one works with scans) give a concrete dimension to literature, which is a helpful reading strategy for many students. On the one hand, this involves concrete, transferrable skills such as aspects of transcription and digital scholarly editing. On the other hand, it also involves more abstract theoretical issues relating to matters of authorship, collaboration, authority, agency, intention and intertextuality.
Modernist Minds
Author: Emma-Louise Silva
Publisher: BRILL
ISBN: 9004681167
Category : Literary Criticism
Languages : en
Pages : 206
Book Description
James Joyce’s evocations of his characters’ thoughts are often inserted within a commonplace that regards the mind as an interior space, referred to as the ‘inward turn’ in literary scholarship since the mid-twentieth century. Emma-Louise Silva reassesses this vantage point by exploring Joyce’s modernist fiction through the prism of 4E – or embodied, embedded, extended, and enactive – cognition. By merging the 4E framework with cognitive-genetic narratology, an innovative form of inquiry that brings together the study of the dynamics of writing processes and the study of cognition in relation to narratives, Modernist Minds: Materialities of the Mental in the Works of James Joyce delves into the material stylistic choices through which Joyce’s approaches to mind depiction evolved.
Publisher: BRILL
ISBN: 9004681167
Category : Literary Criticism
Languages : en
Pages : 206
Book Description
James Joyce’s evocations of his characters’ thoughts are often inserted within a commonplace that regards the mind as an interior space, referred to as the ‘inward turn’ in literary scholarship since the mid-twentieth century. Emma-Louise Silva reassesses this vantage point by exploring Joyce’s modernist fiction through the prism of 4E – or embodied, embedded, extended, and enactive – cognition. By merging the 4E framework with cognitive-genetic narratology, an innovative form of inquiry that brings together the study of the dynamics of writing processes and the study of cognition in relation to narratives, Modernist Minds: Materialities of the Mental in the Works of James Joyce delves into the material stylistic choices through which Joyce’s approaches to mind depiction evolved.
PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR WILLIAMS SYNDROME
Author: Edenilson Brandl
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1548
Book Description
In a world where genetic disorders and their implications are increasingly understood, the need for effective psychological support for those affected has never been more pressing. Williams Syndrome, a rare genetic condition, presents a unique set of challenges and opportunities for individuals and families navigating its complexities. This book aims to provide a comprehensive understanding of Williams Syndrome, with a particular focus on the application of Cognitive Behavioral Therapy (CBT) as a crucial tool for psychological support. Drawing from a diverse array of topics—ranging from genetics and epigenetics to trauma and mental health—this book endeavors to create a holistic approach to the psychological well-being of individuals with Williams Syndrome. It serves not only as an informative resource for clinicians and therapists but also as a guide for families seeking to better understand and support their loved ones. Throughout these pages, readers will find a wealth of information on the biological and psychological aspects of Williams Syndrome, alongside practical tools and strategies derived from CBT. The inclusion of detailed discussions on pain management, emotional regulation, and personalized therapeutic approaches underscores the importance of addressing the unique needs of each individual. As you journey through this book, I encourage you to approach it with an open mind and a willingness to explore the intersections of genetics, behavior, and mental health. My hope is that this work will inspire further dialogue and research in the field of psychological support for genetic disorders, fostering a deeper understanding and appreciation for the resilience of those living with Williams Syndrome. I am grateful to everyone who contributed to the creation of this book, including the individuals and families affected by Williams Syndrome, whose experiences and insights have shaped this work. Together, we can continue to break down barriers, promote understanding, and support those on this journey toward empowerment and healing. Welcome to this exploration of psychological support through Cognitive Behavioral Therapy for Williams Syndrome.
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1548
Book Description
In a world where genetic disorders and their implications are increasingly understood, the need for effective psychological support for those affected has never been more pressing. Williams Syndrome, a rare genetic condition, presents a unique set of challenges and opportunities for individuals and families navigating its complexities. This book aims to provide a comprehensive understanding of Williams Syndrome, with a particular focus on the application of Cognitive Behavioral Therapy (CBT) as a crucial tool for psychological support. Drawing from a diverse array of topics—ranging from genetics and epigenetics to trauma and mental health—this book endeavors to create a holistic approach to the psychological well-being of individuals with Williams Syndrome. It serves not only as an informative resource for clinicians and therapists but also as a guide for families seeking to better understand and support their loved ones. Throughout these pages, readers will find a wealth of information on the biological and psychological aspects of Williams Syndrome, alongside practical tools and strategies derived from CBT. The inclusion of detailed discussions on pain management, emotional regulation, and personalized therapeutic approaches underscores the importance of addressing the unique needs of each individual. As you journey through this book, I encourage you to approach it with an open mind and a willingness to explore the intersections of genetics, behavior, and mental health. My hope is that this work will inspire further dialogue and research in the field of psychological support for genetic disorders, fostering a deeper understanding and appreciation for the resilience of those living with Williams Syndrome. I am grateful to everyone who contributed to the creation of this book, including the individuals and families affected by Williams Syndrome, whose experiences and insights have shaped this work. Together, we can continue to break down barriers, promote understanding, and support those on this journey toward empowerment and healing. Welcome to this exploration of psychological support through Cognitive Behavioral Therapy for Williams Syndrome.
PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR NEUROFIBROMATOSIS TYPE 1
Author: Edenilson Brandl
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1475
Book Description
Neurofibromatosis Type 1 (NF1) is a complex genetic disorder that affects various aspects of a person's physical, emotional, and psychological health. As a condition with visible and often life-altering manifestations, NF1 presents unique challenges that go beyond the physical symptoms. The emotional toll, the psychological burden, and the societal pressures faced by those living with NF1 require a holistic and compassionate approach to care. This is where Cognitive Behavioral Therapy (CBT) emerges as a powerful tool for managing the mental health challenges associated with this condition. In this book, "Psychological Support by Cognitive Behavioral Therapy for Neurofibromatosis Type 1," I aim to provide a comprehensive guide that bridges the gap between the medical and psychological aspects of living with NF1. The focus here is on utilizing CBT to address the mental health challenges faced by individuals with NF1 and their families. This book explores the intricacies of how trauma, anxiety, depression, and other mental health issues can manifest in those living with a chronic genetic disorder, and how CBT can be tailored to meet their specific needs. As someone deeply passionate about the intersection of genetics and psychology, I have structured this book to offer both scientific insights and practical therapeutic tools. The first section introduces the biological and genetic foundations of NF1, providing a clear understanding of how genetic mutations can influence both the body and the mind. This is followed by a detailed exploration of CBT techniques, strategies, and tools, designed to help individuals with NF1 cope with the emotional and psychological challenges of their condition. Special attention is given to pain management, identity struggles, and the daily stressors that accompany life with NF1. My hope is that this book will serve as a valuable resource for patients, families, caregivers, and mental health professionals alike. By combining the latest scientific knowledge with practical therapeutic approaches, I believe we can help individuals with NF1 not only manage their symptoms but also improve their overall quality of life. Cognitive Behavioral Therapy provides a structured, evidence-based approach to fostering resilience, building coping skills, and developing healthier patterns of thinking and behavior—essential tools for navigating the complexities of living with Neurofibromatosis Type 1. It is my belief that with the right psychological support, individuals with NF1 can live fulfilling lives despite the challenges they face. This book is dedicated to all those living with Neurofibromatosis Type 1, their loved ones, and the professionals who are committed to improving their mental and emotional well-being.
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1475
Book Description
Neurofibromatosis Type 1 (NF1) is a complex genetic disorder that affects various aspects of a person's physical, emotional, and psychological health. As a condition with visible and often life-altering manifestations, NF1 presents unique challenges that go beyond the physical symptoms. The emotional toll, the psychological burden, and the societal pressures faced by those living with NF1 require a holistic and compassionate approach to care. This is where Cognitive Behavioral Therapy (CBT) emerges as a powerful tool for managing the mental health challenges associated with this condition. In this book, "Psychological Support by Cognitive Behavioral Therapy for Neurofibromatosis Type 1," I aim to provide a comprehensive guide that bridges the gap between the medical and psychological aspects of living with NF1. The focus here is on utilizing CBT to address the mental health challenges faced by individuals with NF1 and their families. This book explores the intricacies of how trauma, anxiety, depression, and other mental health issues can manifest in those living with a chronic genetic disorder, and how CBT can be tailored to meet their specific needs. As someone deeply passionate about the intersection of genetics and psychology, I have structured this book to offer both scientific insights and practical therapeutic tools. The first section introduces the biological and genetic foundations of NF1, providing a clear understanding of how genetic mutations can influence both the body and the mind. This is followed by a detailed exploration of CBT techniques, strategies, and tools, designed to help individuals with NF1 cope with the emotional and psychological challenges of their condition. Special attention is given to pain management, identity struggles, and the daily stressors that accompany life with NF1. My hope is that this book will serve as a valuable resource for patients, families, caregivers, and mental health professionals alike. By combining the latest scientific knowledge with practical therapeutic approaches, I believe we can help individuals with NF1 not only manage their symptoms but also improve their overall quality of life. Cognitive Behavioral Therapy provides a structured, evidence-based approach to fostering resilience, building coping skills, and developing healthier patterns of thinking and behavior—essential tools for navigating the complexities of living with Neurofibromatosis Type 1. It is my belief that with the right psychological support, individuals with NF1 can live fulfilling lives despite the challenges they face. This book is dedicated to all those living with Neurofibromatosis Type 1, their loved ones, and the professionals who are committed to improving their mental and emotional well-being.
Genetic Explanations
Author: Sheldon Krimsky
Publisher: Harvard University Press
ISBN: 0674067762
Category : Science
Languages : en
Pages : 383
Book Description
No longer viewed by scientists as the cell’s fixed master molecule, DNA is a dynamic script that is ad-libbed at each stage of development. What our parents hand down to us is just the beginning. Genetic Explanations urges us to replace our faith in genetic determinism with scientific knowledge about genetic plasticity and epigenetic inheritance.
Publisher: Harvard University Press
ISBN: 0674067762
Category : Science
Languages : en
Pages : 383
Book Description
No longer viewed by scientists as the cell’s fixed master molecule, DNA is a dynamic script that is ad-libbed at each stage of development. What our parents hand down to us is just the beginning. Genetic Explanations urges us to replace our faith in genetic determinism with scientific knowledge about genetic plasticity and epigenetic inheritance.
PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR PYRUVATE DEHYDROGENASE DEFICIENCY
Author: Edenilson Brandl
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1479
Book Description
The journey of living with Pyruvate Dehydrogenase Deficiency (PDD) is complex and often isolating. Those affected by this rare, hereditary metabolic disorder face unique challenges, not only medically but emotionally and psychologically. As awareness grows about the impact of chronic and genetic conditions on mental health, it becomes clear that support must extend beyond physical treatment to address the holistic needs of patients and their families. This book seeks to bridge that gap by providing a comprehensive guide to managing PDD through the lens of Cognitive Behavioral Therapy (CBT). Drawing from the latest research in genetics, epigenetics, and behavioral therapy, this book aims to equip readers with knowledge and practical tools for coping with the daily challenges of PDD. The first sections introduce the fundamental biological concepts relevant to understanding PDD, including genetics, hereditary diseases, and congenital conditions. Understanding these aspects can empower individuals, helping them feel more informed and involved in their health journey. The second half of this book focuses on actionable CBT strategies designed to support mental well-being. CBT is a well-established therapeutic approach that has shown significant benefits in managing emotional distress, anxiety, and depression—common challenges among those with chronic illnesses. Through personalized therapeutic approaches and practical tools, this book offers readers a range of coping strategies to manage the psychological impact of PDD. From learning to navigate medical bureaucracy to addressing concerns about social relationships and personal identity, these strategies are intended to foster resilience, self-compassion, and an adaptive mindset. This book also includes guidance for clinicians and caregivers. Understanding the psychological needs of individuals with PDD can help caregivers and healthcare providers offer more empathetic and effective support. The included CBT tools have been selected for their applicability to common struggles faced by individuals with genetic conditions, such as grief, fear of stigma, and managing relationships in the face of chronic health concerns. Psychological Support by Cognitive Behavioral Therapy for Pyruvate Dehydrogenase Deficiency was inspired by the strength and resilience of individuals living with genetic conditions. It is our hope that this book serves as a source of comfort, empowerment, and practical help to anyone affected by PDD. Whether you are a patient, a family member, or a healthcare provider, this resource is dedicated to improving the quality of life for all those touched by this condition.
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1479
Book Description
The journey of living with Pyruvate Dehydrogenase Deficiency (PDD) is complex and often isolating. Those affected by this rare, hereditary metabolic disorder face unique challenges, not only medically but emotionally and psychologically. As awareness grows about the impact of chronic and genetic conditions on mental health, it becomes clear that support must extend beyond physical treatment to address the holistic needs of patients and their families. This book seeks to bridge that gap by providing a comprehensive guide to managing PDD through the lens of Cognitive Behavioral Therapy (CBT). Drawing from the latest research in genetics, epigenetics, and behavioral therapy, this book aims to equip readers with knowledge and practical tools for coping with the daily challenges of PDD. The first sections introduce the fundamental biological concepts relevant to understanding PDD, including genetics, hereditary diseases, and congenital conditions. Understanding these aspects can empower individuals, helping them feel more informed and involved in their health journey. The second half of this book focuses on actionable CBT strategies designed to support mental well-being. CBT is a well-established therapeutic approach that has shown significant benefits in managing emotional distress, anxiety, and depression—common challenges among those with chronic illnesses. Through personalized therapeutic approaches and practical tools, this book offers readers a range of coping strategies to manage the psychological impact of PDD. From learning to navigate medical bureaucracy to addressing concerns about social relationships and personal identity, these strategies are intended to foster resilience, self-compassion, and an adaptive mindset. This book also includes guidance for clinicians and caregivers. Understanding the psychological needs of individuals with PDD can help caregivers and healthcare providers offer more empathetic and effective support. The included CBT tools have been selected for their applicability to common struggles faced by individuals with genetic conditions, such as grief, fear of stigma, and managing relationships in the face of chronic health concerns. Psychological Support by Cognitive Behavioral Therapy for Pyruvate Dehydrogenase Deficiency was inspired by the strength and resilience of individuals living with genetic conditions. It is our hope that this book serves as a source of comfort, empowerment, and practical help to anyone affected by PDD. Whether you are a patient, a family member, or a healthcare provider, this resource is dedicated to improving the quality of life for all those touched by this condition.
PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR ATAXIA TELANGIECTASIA
Author: Edenilson Brandl
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1476
Book Description
Ataxia Telangiectasia (A-T) is a rare, progressive genetic disorder that affects numerous systems in the body, most notably the neurological and immune systems. The profound impact of this condition extends beyond physical health, presenting significant psychological challenges that often remain inadequately addressed. Individuals with A-T and their families face not only the complexities of managing physical symptoms but also the emotional and mental toll associated with living with a degenerative disease. As a mental health professional, I have observed how critical it is for those with chronic conditions like Ataxia Telangiectasia to receive psychological support that is tailored to their specific needs. Cognitive Behavioral Therapy (CBT) has emerged as one of the most effective tools in providing this support, helping individuals manage emotional distress, develop coping strategies, and improve their overall quality of life. However, CBT for individuals with genetic and degenerative conditions requires unique considerations that go beyond standard therapeutic models. This book aims to bridge the gap between the physical and psychological aspects of Ataxia Telangiectasia by providing a comprehensive guide to the use of CBT in supporting individuals with A-T. It explores not only the biological foundations of the disorder but also delves deeply into the cognitive and emotional challenges it presents. Psychological Support by Cognitive Behavioral Therapy for Ataxia Telangiectasia is designed for mental health professionals, caregivers, and those personally affected by A-T. By integrating the latest findings in genetics, behavioral science, and therapeutic techniques, this book offers a multi-faceted approach to psychological care, focusing on practical tools that can be implemented in daily life. As you read through these pages, my hope is that you will gain not only a deeper understanding of Ataxia Telangiectasia but also feel equipped to support the mental well-being of those navigating this challenging journey. Through personalized therapy and resilience-building strategies, we can offer a more holistic approach to care—one that addresses both the mind and body. This book is written with the belief that individuals with A-T, like all of us, deserve the best support possible for their mental health, empowering them to lead fulfilling lives despite the challenges they face.
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1476
Book Description
Ataxia Telangiectasia (A-T) is a rare, progressive genetic disorder that affects numerous systems in the body, most notably the neurological and immune systems. The profound impact of this condition extends beyond physical health, presenting significant psychological challenges that often remain inadequately addressed. Individuals with A-T and their families face not only the complexities of managing physical symptoms but also the emotional and mental toll associated with living with a degenerative disease. As a mental health professional, I have observed how critical it is for those with chronic conditions like Ataxia Telangiectasia to receive psychological support that is tailored to their specific needs. Cognitive Behavioral Therapy (CBT) has emerged as one of the most effective tools in providing this support, helping individuals manage emotional distress, develop coping strategies, and improve their overall quality of life. However, CBT for individuals with genetic and degenerative conditions requires unique considerations that go beyond standard therapeutic models. This book aims to bridge the gap between the physical and psychological aspects of Ataxia Telangiectasia by providing a comprehensive guide to the use of CBT in supporting individuals with A-T. It explores not only the biological foundations of the disorder but also delves deeply into the cognitive and emotional challenges it presents. Psychological Support by Cognitive Behavioral Therapy for Ataxia Telangiectasia is designed for mental health professionals, caregivers, and those personally affected by A-T. By integrating the latest findings in genetics, behavioral science, and therapeutic techniques, this book offers a multi-faceted approach to psychological care, focusing on practical tools that can be implemented in daily life. As you read through these pages, my hope is that you will gain not only a deeper understanding of Ataxia Telangiectasia but also feel equipped to support the mental well-being of those navigating this challenging journey. Through personalized therapy and resilience-building strategies, we can offer a more holistic approach to care—one that addresses both the mind and body. This book is written with the belief that individuals with A-T, like all of us, deserve the best support possible for their mental health, empowering them to lead fulfilling lives despite the challenges they face.
PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR MARFAN SYNDROME
Author: Edenilson Brandl
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1268
Book Description
Marfan syndrome is a complex genetic disorder that affects the body’s connective tissues, leading to a wide range of physical and emotional challenges. As individuals navigate the intricacies of living with this condition, they often encounter not only physical symptoms but also psychological hurdles that can impact their overall quality of life. This book aims to provide a comprehensive understanding of Marfan syndrome, coupled with effective psychological strategies rooted in Cognitive Behavioral Therapy (CBT). Drawing on the latest research in genetics, psychology, and therapy, this text serves as a guide for individuals with Marfan syndrome, their families, and healthcare professionals. In my years of practice, I have witnessed firsthand the profound effects of psychological support on individuals coping with chronic conditions. It is my belief that by integrating the principles of CBT into the management of Marfan syndrome, we can empower individuals to take charge of their mental health and cultivate resilience in the face of adversity. This book is structured to first provide a solid foundation of knowledge regarding Marfan syndrome, covering its biological, genetic, and psychological aspects. From there, we will delve into the core principles and techniques of CBT, offering practical tools and strategies to help individuals manage not only the psychological impact of their condition but also the pain and challenges that arise. Each chapter is designed to be accessible, with a focus on actionable insights that readers can apply in their daily lives. Whether you are a person living with Marfan syndrome, a caregiver, or a mental health professional, this book is intended to equip you with the knowledge and skills needed to navigate the complexities of this condition. I hope this book serves as a beacon of support, providing guidance and encouragement on your journey. Remember, while Marfan syndrome may present unique challenges, it does not define you. With the right tools and support, it is possible to thrive and lead a fulfilling life. Thank you for joining me on this journey toward understanding and healing.
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1268
Book Description
Marfan syndrome is a complex genetic disorder that affects the body’s connective tissues, leading to a wide range of physical and emotional challenges. As individuals navigate the intricacies of living with this condition, they often encounter not only physical symptoms but also psychological hurdles that can impact their overall quality of life. This book aims to provide a comprehensive understanding of Marfan syndrome, coupled with effective psychological strategies rooted in Cognitive Behavioral Therapy (CBT). Drawing on the latest research in genetics, psychology, and therapy, this text serves as a guide for individuals with Marfan syndrome, their families, and healthcare professionals. In my years of practice, I have witnessed firsthand the profound effects of psychological support on individuals coping with chronic conditions. It is my belief that by integrating the principles of CBT into the management of Marfan syndrome, we can empower individuals to take charge of their mental health and cultivate resilience in the face of adversity. This book is structured to first provide a solid foundation of knowledge regarding Marfan syndrome, covering its biological, genetic, and psychological aspects. From there, we will delve into the core principles and techniques of CBT, offering practical tools and strategies to help individuals manage not only the psychological impact of their condition but also the pain and challenges that arise. Each chapter is designed to be accessible, with a focus on actionable insights that readers can apply in their daily lives. Whether you are a person living with Marfan syndrome, a caregiver, or a mental health professional, this book is intended to equip you with the knowledge and skills needed to navigate the complexities of this condition. I hope this book serves as a beacon of support, providing guidance and encouragement on your journey. Remember, while Marfan syndrome may present unique challenges, it does not define you. With the right tools and support, it is possible to thrive and lead a fulfilling life. Thank you for joining me on this journey toward understanding and healing.
PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR LYSOSOMAL STORAGE DISORDERS
Author: Edenilson Brandl
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1269
Book Description
The complex and multifaceted experience of living with lysosomal storage disorders (LSDs) demands not only a deep understanding of the medical and genetic aspects but also a comprehensive approach to psychological support. This book, Psychological Support by Cognitive Behavioral Therapy for Lysosomal Storage Disorders, aims to bridge these two domains—medical science and psychological resilience—to provide individuals affected by LSDs and their support systems with tools and techniques rooted in Cognitive Behavioral Therapy (CBT). Lysosomal storage disorders are a group of rare, inherited diseases marked by an inability to break down certain complex molecules due to deficiencies in lysosomal enzymes. These disorders can impact numerous aspects of physical health, from joint pain to cognitive challenges, leading to a broad spectrum of life adjustments. For those navigating these conditions, both the emotional weight of the diagnosis and the lifelong management demands can be overwhelming. By addressing these challenges with structured psychological support, individuals may find improved ways to cope, adapt, and thrive despite the physical and emotional tolls. CBT, a well-established and evidence-based therapy, is designed to help individuals recognize and reframe negative thought patterns, develop healthier behaviors, and foster resilience. In the context of LSDs, CBT can be particularly valuable in managing feelings of trauma, grief, and identity challenges, as well as chronic pain and other physical symptoms. This book not only introduces CBT principles and techniques but also tailors these approaches to the specific needs of individuals affected by LSDs, providing actionable tools for improving mental health and overall quality of life. In addition to the CBT framework, this book includes foundational insights into genetics, epigenetics, and the biology behind LSDs. These topics serve as essential knowledge for both individuals with LSDs and those around them, fostering a greater understanding of the genetic journey and the implications of these conditions. By connecting this biological foundation to the emotional experience, we seek to create a holistic resource that supports readers' personal journeys with insight and compassion. We hope this book serves as a supportive guide for patients, families, and healthcare professionals alike, offering an integrative approach to managing lysosomal storage disorders through the power of psychological resilience.
Publisher: Edenilson Brandl
ISBN:
Category : Psychology
Languages : en
Pages : 1269
Book Description
The complex and multifaceted experience of living with lysosomal storage disorders (LSDs) demands not only a deep understanding of the medical and genetic aspects but also a comprehensive approach to psychological support. This book, Psychological Support by Cognitive Behavioral Therapy for Lysosomal Storage Disorders, aims to bridge these two domains—medical science and psychological resilience—to provide individuals affected by LSDs and their support systems with tools and techniques rooted in Cognitive Behavioral Therapy (CBT). Lysosomal storage disorders are a group of rare, inherited diseases marked by an inability to break down certain complex molecules due to deficiencies in lysosomal enzymes. These disorders can impact numerous aspects of physical health, from joint pain to cognitive challenges, leading to a broad spectrum of life adjustments. For those navigating these conditions, both the emotional weight of the diagnosis and the lifelong management demands can be overwhelming. By addressing these challenges with structured psychological support, individuals may find improved ways to cope, adapt, and thrive despite the physical and emotional tolls. CBT, a well-established and evidence-based therapy, is designed to help individuals recognize and reframe negative thought patterns, develop healthier behaviors, and foster resilience. In the context of LSDs, CBT can be particularly valuable in managing feelings of trauma, grief, and identity challenges, as well as chronic pain and other physical symptoms. This book not only introduces CBT principles and techniques but also tailors these approaches to the specific needs of individuals affected by LSDs, providing actionable tools for improving mental health and overall quality of life. In addition to the CBT framework, this book includes foundational insights into genetics, epigenetics, and the biology behind LSDs. These topics serve as essential knowledge for both individuals with LSDs and those around them, fostering a greater understanding of the genetic journey and the implications of these conditions. By connecting this biological foundation to the emotional experience, we seek to create a holistic resource that supports readers' personal journeys with insight and compassion. We hope this book serves as a supportive guide for patients, families, and healthcare professionals alike, offering an integrative approach to managing lysosomal storage disorders through the power of psychological resilience.