Terry's Journey to Cf Land: Navigating the Adventures of Cystic Fibrosis PDF Download
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Author: Terry Gene Wright
Publisher: Clovercroft Publishing
ISBN: 9781950892778
Category : Juvenile Fiction
Languages : en
Pages : 32
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Book Description
TERRY'S JOURNEY TO CF LAND: Navigating the Adventures of Cystic Fibrosis is a children's story coloring book that follows and depicts the surreal journey of Terry Wright, a 58-year old African American male Cystic Fibrosis (CF) patient (born August 1962) who is not diagnosed until the age of 54, although he has been hospitalized, seen by an array of healthcare practitioners, and unknowingly dealing with the devastating consequences of CF throughout his entire life.
Author: Terry Gene Wright
Publisher: Clovercroft Publishing
ISBN: 9781950892778
Category : Juvenile Fiction
Languages : en
Pages : 32
Get Book Here
Book Description
TERRY'S JOURNEY TO CF LAND: Navigating the Adventures of Cystic Fibrosis is a children's story coloring book that follows and depicts the surreal journey of Terry Wright, a 58-year old African American male Cystic Fibrosis (CF) patient (born August 1962) who is not diagnosed until the age of 54, although he has been hospitalized, seen by an array of healthcare practitioners, and unknowingly dealing with the devastating consequences of CF throughout his entire life.
Author: Jay Lebow
Publisher: Springer
ISBN: 9783319494234
Category : Psychology
Languages : en
Pages : 0
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Book Description
This authoritative reference assembles prominent international experts from psychology, social work, and counseling to summarize the current state of couple and family therapy knowledge in a clear A-Z format. Its sweeping range of entries covers major concepts, theories, models, approaches, intervention strategies, and prominent contributors associated with couple and family therapy. The Encyclopedia provides family and couple context for treating varied problems and disorders, understanding special client populations, and approaching emerging issues in the field, consolidating this wide array of knowledge into a useful resource for clinicians and therapists across clinical settings, theoretical orientations, and specialties. A sampling of topics included in the Encyclopedia: Acceptance versus behavior change in couple and family therapy Collaborative and dialogic therapy with couples and families Integrative treatment for infidelity Live supervision in couple and family therapy Postmodern approaches in the use of genograms Split alliance in couple and family therapy Transgender couples and families The first comprehensive reference work of its kind, the Encyclopedia of Couple and Family Therapy incorporates seven decades of innovative developments in the fields of couple and family therapy into one convenient resource. It is a definitive reference for therapists, psychologists, psychiatrists, social workers, and counselors, whether couple and family therapy is their main field or one of many modalities used in practice.
Author: Terry Detrich
Publisher: Mind Matters
ISBN: 9780970193407
Category : Biography & Autobiography
Languages : en
Pages : 284
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Book Description
An ordinary family is faced with an extraordinary challenge a child with cystic fibrosis. This is their story, rich and moving, as they laugh and cry and learn and grow. Their love, faith and commitment to each other carry them through battles with depression, anger, despair, and the ravages of the disease as they join a race with death for a cure. What emerges is The Spirit of Lo, which enables the family and their community to face each new day of life's dance on the edge of mortality
Author: Katherine Hitch
Publisher: Coughing the Distance
ISBN: 9781442185012
Category : Charity sports events
Languages : en
Pages : 40
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Book Description
Walter van Praag cycled from Paris to Istanbul with a small support team, including young film maker Lucas Li to raise awareness of cystic fibrosis Their journey started on a rainy morning in Paris. It was Saturday July 28, 2007, and through the Paris traffic they left for Istanbul with 4395 kilometers of riding ahead of them. They travelled through France, Germany, Switzerland, Austria, Hungary, Croatia, Serbia, Romania and Bulgaria before reaching their goal of Istanbul in Turkey.
Author: Don Shewey
Publisher:
ISBN: 9781732134409
Category :
Languages : en
Pages :
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Book Description
Author: Nathaniel H. Robin
Publisher: Elsevier Health Sciences
ISBN: 0323495966
Category : Medical
Languages : en
Pages : 350
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Book Description
Get a quick, expert overview of the many key facets of pediatric cancer genetics with this concise, practical resource by Dr. Nathaniel H. Robin and Meagan Farmer, MS, CGC, MBA. Ideal for pediatric oncologists and all providers who care for children, this easy-to-read reference addresses the remarkable potential of genetic testing as well as the complexities of choosing the correct test, understanding the results, and counseling the family. Features a wealth of information on pediatric cancer genetics, including the epidemiology and biology of cancer and the genetic evaluation process and role of genetic counselors. Highlights examples of syndromes that present in childhood and increase susceptibility to cancer. Discusses the genetic evaluation process in context of the multidisciplinary care of children with cancer. Considers the ethical and legal issues of genetic testing in children and provides illustrative case examples. Consolidates today’s available information and guidance in this timely area into one convenient resource.
Author: Gerald D. Martin
Publisher:
ISBN:
Category : Damages
Languages : en
Pages :
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Book Description
Author: Andy C. Lipman
Publisher: Booklogix
ISBN: 9781665304030
Category : Biography & Autobiography
Languages : en
Pages : 0
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Book Description
The CF Warrior Project Volume 2: Celebrating Our Cystic Fibrosis Community is a first-of-its-kind, inspirational book that details the lives of both people who live with the life-changing diagnosis of cystic fibrosis along with those who have made a difference in the CF community by advocating for those who fight the disease.
Author: Matthew Connolly
Publisher: Rowman & Littlefield
ISBN: 1442276339
Category : Language Arts & Disciplines
Languages : en
Pages : 183
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Book Description
Personal data in the online world as become a commodity. Coveted by criminals, demanded by governments, and used for unsavory purposes by marketers and advertisers, your private information is at risk everywhere. For libraries and librarians, this poses a professional threat as well as a personal one. How can we protect the privacy of library patrons and users who browse our online catalogs, borrow sensitive materials, and use our public computers and networks? User Privacy: A Practical Guide for Librarians answers that question. Through simple explanations and detailed, step-by-step guides, library professionals will learn how to strengthen privacy protections for: Library policies Wired and wireless networks Public computers Web browsers Mobile devices Apps Cloud computing Each chapter begins with a "threat assessment" that provides an overview of the biggest security risks – and the steps that can be taken to deal with them. Also covered are techniques for preserving online anonymity, protecting activists and at-risk groups, and the current state of data encryption.
Author: Bijal P. Trivedi
Publisher: BenBella Books
ISBN: 1948836629
Category : Medical
Languages : en
Pages : 744
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Book Description
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
