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Author: Narelle Warren
Publisher: Springer Science & Business Media
ISBN: 9400730187
Category : Social Science
Languages : en
Pages : 253
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Book Description
This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people’s quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. ‘Quality of life’ is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery – for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good ‘quality of life’ and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.
Author: Narelle Warren
Publisher: Springer Science & Business Media
ISBN: 9400730187
Category : Social Science
Languages : en
Pages : 253
Get Book
Book Description
This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people’s quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. ‘Quality of life’ is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery – for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good ‘quality of life’ and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.
Author: Ronald E. Anderson
Publisher: Springer
ISBN: 940179670X
Category : Social Science
Languages : en
Pages : 447
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Book Description
This is the first book tackling the topic of world suffering. It compiles in one place the ideas, perspectives, and findings of researchers from around the world who pioneered research-based understanding of human suffering. Some chapters use the paradigm of ‘quality of life’ to explore ways to enhance knowledge on suffering. Other chapters show how concepts and knowledge from suffering research can benefit studies on quality of life. By bringing together in one volume, ideas and research experience from the best minds and leading researchers in the fields of pain, suffering, poverty, deprivation, disability and quality of life (including well-being and happiness), this volume advances social science solutions to a number of major threads of research, most notably suffering. As a whole, the volume advances the fields of suffering and deprivation by suggesting a working typology of suffering and by pointing out the major paradigms for relief of suffering, such as humanitarianism, human rights, caring, and healing. This volume provides a wealth of insights about the interaction between suffering and quality of life, the most up-to-date characterization of worldwide suffering, and a grasp of the implications of these data for local and global policy on health and social well-being.
Author: Robert L. Schalock
Publisher: American Association
ISBN: 9780940898967
Category : Developmentally disabled
Languages : en
Pages : 0
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Book Description
The concepts of quality of life and personal outcomes -- Quality domains and indicators -- Measuring personal outcomes: an information collection process -- Managerial strategies: opening the doors inward -- Personal outcome measures: values and metrics for an integrated management system -- Rationale for systems-level performance indicators that reflect personal outcomes -- Considerations in developing performance indicators at the macro level -- How do I use performance indicator data? -- Reframing quality and rethinking quality improvement -- Emerging challenges and opportunities.
Author: David M. Romney
Publisher: Springer Science & Business Media
ISBN: 940110171X
Category : Social Science
Languages : en
Pages : 286
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Book Description
The book is unique in two distinct ways. First, it focuses on improving quality of life in contrast to other books that have tended to focus more on its conceptualization and assessment. Second, it deals with improving quality of life in a variety of disabled populations, not just one, and includes chapters on people with chronic mental or physical conditions and those without disabilities at all (i.e. so-called normal people). The book outlines some of the challenges and controversies in the quality-of-life domain and attempts to synthesize the key issue and to draw generalizable conclusions. The book is mainly for university students and faculty and practitioners from various disciplines working in the field. It will also interest those members of the general public who wish to improve their own quality of life or that of their relatives or friends.
Author: Daniel Jackson
Publisher: Routledge
ISBN: 1317632702
Category : Sports & Recreation
Languages : en
Pages : 283
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Book Description
The London 2012 Paralympic Games - the biggest, most accessible and best-attended games in the Paralympics' 64-year history - came with an explicit aim to "transform the perception of disabled people in society," and use sport to contribute to "a better world for all people with a disability." This social agenda offered the potential to re-frame disability; to symbolically challenge "ableist" ideology and to offer a reinvention of the (dis)abled body and a redefinition of the possible. This edited collection investigates what has and is happening in relation to these ambitions. The book is structured around three key questions: 1. What were the predominant mediated narratives surrounding the Paralympics, and what are the associated meanings attached to them? 2. How were the Paralympics experienced by media audiences (both disabled and non-disabled)? 3. To what extent did the 2012 Paralympics inspire social change? Each section of this book is interspersed with authentic "voices" from outside academia: broadcasters, athletes and disabled schoolchildren.
Author: Jeffrey J. Martin
Publisher: Oxford University Press
ISBN: 0190638052
Category : Psychology
Languages : en
Pages : 481
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Book Description
Historically, very few sport and exercise psychologists and professionals from related fields such as disability and rehabilitation have conducted thorough research on individuals with disabilities engaged in sport and exercise. The tide is turning, however, as growing media attention and familiarity with the Paralympics and the Wounded Warrior Project begins capturing the attention of researchers everywhere. By addressing this gap, Jeffrey J. Martin's compelling Handbook of Disability Sport and Exercise Psychology is one of the first comprehensive overviews of this important and emerging field of study. In this volume, Martin, an accomplished professor of sport and exercise psychology, shines a light on a variety of topics ranging from philosophy, athletic identity, participation motivation, quality of life, social and environmental barriers, body image, and intellectual impairments among many other issues. Based on the author's own experience and insight, a majority of these topic discussions in this volume are accompanied by thoughtful directions for future research and exploration. Designed to spark conversation and initiate new avenues of research, the Handbook of Disability Sport and Exercise Psychology will allow for readers to look outside the traditional literature focusing largely on able-bodied individuals and, instead, develop a much greater perspective on sport and exercise psychology today.
Author: Yoshiko Okuyama
Publisher: University of Hawaii Press
ISBN: 0824882369
Category : Literary Criticism
Languages : en
Pages : 241
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Book Description
Reframing Disability in Manga analyzes popular Japanese manga published from the 1990s to the present that portray the everyday lives of adults and children with disabilities in an ableist society. It focuses on five representative conditions currently classified as shōgai (disabilities) in Japan—deafness, blindness, paraplegia, autism, and gender identity disorder—and explores the complexities and sociocultural issues surrounding each. Author Yoshiko Okuyama begins by looking at preindustrial understandings of difference in Japanese myths and legends before moving on to an overview of contemporary representations of disability in popular culture, uncovering sociohistorical attitudes toward the physically, neurologically, or intellectually marked Other. She critiques how characters with disabilities have been represented in mass media, which has reinforced ableism in society and negatively influenced our understanding of human diversity in the past. Okuyama then presents fifteen case studies, each centered on a manga or manga series, that showcase how careful depictions of such characters as differently abled, rather than disabled or impaired, can influence cultural constructions of shōgai and promote social change. Informed by numerous interviews with manga authors and disability activists, Okuyama reveals positive messages of diversity embedded in manga and argues that greater awareness of disability in Japan in the last two decades is due in part to the popularity of these works, the accessibility of the medium, and the authentic stories they tell. Scholars and students in disability studies will find this book an invaluable resource as well as those with interests in Japanese cultural and media studies in general and manga and queer narrative and anti-normative discourse in Japan in particular.
Author: Emma Garnett
Publisher: Springer
ISBN: 3319893963
Category : Social Science
Languages : en
Pages : 275
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Book Description
This edited collection explores the multiple ways in which ethnography and health emerge and take form through the research process. There is now a plethora of disciplinary engagements with ethnography around the topic of health, including anthropology, sociology, geography, science and technology studies, and in health care professions such as nursing and occupational therapy. This dynamic and evolving landscape means ethnography and health are entangled in new and different ways, providing a timely opportunity to explore what these entanglements do and affect in the social production of knowledge. Rather than discussing the strengths (and limitations) of ethnography for engaging with health, the book asks: what does ethnography enable, make visible and possible for knowing and doing health in contemporary research settings and beyond?
Author: Gareth M. Thomas
Publisher: Routledge
ISBN: 1315446421
Category : Social Science
Languages : en
Pages : 333
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Book Description
Many critical analyses of disability address important ‘macro’ concerns, but are often far removed from an interactional and micro-level focus. Written by leading scholars in the field, and containing a range of theoretical and empirical contributions from around the world, this book focuses on the taken-for-granted, mundane human activities at the heart of how social life is reproduced, and how this impacts on the lives of those with a disability, family members, and other allies. It departs from earlier accounts by making sense of how disability is lived, mobilised, and enacted in everyday lives. Although broad in focus and navigating diverse social contexts, chapters are united by a concern with foregrounding micro, mundane moments for making sense of powerful discourses, practices, affects, relations, and world-making for disabled people and their allies. Using different examples – including learning disabilities, cerebral palsy, dementia, polio, and Parkinson’s disease – contributions move beyond a simplified narrow classification of disability which creates rigid categories of existence and denies bodily variation. Disability, Normalcy, and the Everyday should be considered essential reading for disability studies students and academics, as well as professionals involved in health and social care. With contributions located within new and familiar debates around embodiment, stigma, gender, identity, inequality, care, ethics, choice, materiality, youth, and representation, this book will be of interest to academics from different disciplinary backgrounds including sociology, anthropology, humanities, public health, allied health professions, science and technology studies, social work, and social policy.
Author: D. Hunter
Publisher: IOS Press
ISBN: 1614993130
Category : Business & Economics
Languages : en
Pages : 320
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Book Description
Successful transition from school to adult life has always been difficult for people with disabilities, especially in the area of employment. The vast majority of people with disabilities are either unemployed or underemployed with low wages and few benefits, and many governments are struggling to find a way of providing employment and benefits to people with disabilities without creating disincentives to work. This book provides strategies and ideas for improving the lives of people with disabilities, exploring new ways of enabling a successful transition to an integrated adult working life by providing effective instruction and support. Following an introduction which outlines the importance of transition services and meaningful outcomes, topics covered in the remaining chapters include: Person Centered Transition Planning; Enhancing Competence and Independence; Employment Assessment and Career Development; Collaboration between Agencies for a Seamless Transition; Independent Living and Supported Living; and Community Functioning Skills. The book will be of interest to all those who work with transition age students as well as those who work with adults with disabilities and want to enable them to have the best life possible. To paraphrase Helen Keller "people with disabilities not only need to be given lives, they need to be given lives worth living."
