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Author: Melanie Panitch
Publisher: Routledge
ISBN: 1135903786
Category : Family & Relationships
Languages : en
Pages : 236
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Book Description
This book examines how and why mothers with disabled children became activists. Leading campaigns to close institutions and secure human rights, these women learned to mother as activists, struggling in their homes and communities against the debilitating and demoralizing effects of exclusion. Activist mothers recognized the importance of becoming advocates for change beyond their own families and contributed to building an organization to place their issues on a more public scale. In highlighting this under-examined movement, this book contributes to the scholarship on Disability Studies, Women's Students, Sociology, and Social Movement Studies.
Author: Melanie Panitch
Publisher: Routledge
ISBN: 1135903786
Category : Family & Relationships
Languages : en
Pages : 236
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Book Description
This book examines how and why mothers with disabled children became activists. Leading campaigns to close institutions and secure human rights, these women learned to mother as activists, struggling in their homes and communities against the debilitating and demoralizing effects of exclusion. Activist mothers recognized the importance of becoming advocates for change beyond their own families and contributed to building an organization to place their issues on a more public scale. In highlighting this under-examined movement, this book contributes to the scholarship on Disability Studies, Women's Students, Sociology, and Social Movement Studies.
Author: Luise Margolies
Publisher: Temple University Press
ISBN: 9781592132386
Category : Family & Relationships
Languages : en
Pages : 364
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Book Description
Some 400,000 hip fractures occur every year, the vast majority among the elderly; all too often these fractures are associated with death or severe disability. After her mother's double hip fracture, Luisa Margolies immersed herself in identifying and coordinating the services and professionals needed to provide critical care for an elderly person. She soon realized that the American medical system is ill prepared to deal with the long-term care needs of our graying society. The heart of My Mother's Hip is taken up with the author's day-to-day observations as her mother's condition worsened, then improved only to worsen again, while her father became increasingly anxious and disoriented. As both a devoted daughter and a skilled anthropologist, Margolies vividly renders her interactions with physicians, nurses, hospital workers, nursing home administrators, the Medicare bureaucracy, home care providers, and her parents. In the Lessons chapter that follows each episode, she discusses in a broader context the weighty decisions that adult children must make on their parents' behalf and the emotional toll their responsibility takes. Here she addresses the complex practical issues that commonly arise in such situations: understanding the consequences of hip fracture and its treatment, preparing health care proxies and advanced directives, enabling elders to remain at home, and the heartbreaking dilemma of prolonging life. Like many adult children, Margolies learned her lessons about eldercare in the midst of crises. This book is intended to ease the information-gathering and decision-making processes for others involved in eldercare.
Author: James I. Charlton
Publisher: Univ of California Press
ISBN: 0520925440
Category : Social Science
Languages : en
Pages : 215
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Book Description
James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
Author: Judith Heumann
Publisher: Beacon Press
ISBN: 080701950X
Category : Biography & Autobiography
Languages : en
Pages : 458
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Book Description
A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Author: Gwynnyth Llewellyn
Publisher: John Wiley & Sons
ISBN: 9780470660409
Category : Education
Languages : en
Pages : 290
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Book Description
The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter Presents a unique, pan-disciplinary overview of this growing field of study Offers a human rights approach to disability and family life Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability
Author: Kathie Snow
Publisher:
ISBN:
Category : Family & Relationships
Languages : en
Pages : 646
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Book Description
In this user-friendly book, parents learn revolutionary common sense techniques for raising successful children with disabilities. When we recognize that disability is a natural part of the human experience, new attitudes lead to new actions for successful lives at home, in school and in communities. When parents replace today's conventional wisdom with the common sense values and creative thinking detailed in this book, all children with disabilities (regardless of age or type of disability) can live the life of their dreams. Readers will learn how to define a child by his or her assets - instead of a disability-related "problem," and how to create new and improved partnerships with educators, health care professionals, family and friends
Author: Kelly Fritsch
Publisher: AK Press
ISBN: 1849354057
Category : Juvenile Nonfiction
Languages : en
Pages : 45
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Book Description
A bold and colorful exploration of all the ways that people navigate through the spaces around them and a celebration of the relationships we build along the way. We Move Together follows a mixed-ability group of kids as they creatively negotiate everyday barriers and find joy and connection in disability culture and community. A perfect tool for families, schools, and libraries to facilitate conversations about disability, accessibility, social justice and community building. Includes a kid-friendly glossary (for ages 3–10). This fully accessible ebook includes alt-text for image descriptions, a read aloud function, and a zoom-in function that allows readers to magnify the illustrations and be able to move around the page in zoom-in mode.
Author: Autistic Women and Nonbinary Network
Publisher: Beacon Press
ISBN: 0807025682
Category : Family & Relationships
Languages : en
Pages : 226
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Book Description
A diverse collection of autistic voices that highlights how parents can avoid common mistakes and misconceptions, and make their child feel truly accepted, valued, and celebrated for who they are. Most resources available for parents come from psychologists, educators, and doctors, offering parents a narrow and technical approach to autism. Sincerely, Your Autistic Child represents an authentic resource for parents written by autistic people themselves. From childhood and education to culture, gender identity, and sexuality, this anthology tackles the everyday joys and challenges of growing up while honestly addressing the emotional needs, sensitivity, and vibrancy of autistic kids, youth, and young adults. Contributors reflect on what they have learned while growing up on the autism spectrum and how parents can avoid common mistakes and overcome challenges while raising their child. Part memoir, part guide, and part love letter, Sincerely, Your Autistic Child is an indispensable collection that invites parents and allies into the unique and often unheard experiences of autistic children and teens.
Author: Richard Sandell
Publisher: Routledge
ISBN: 1136616489
Category : Business & Economics
Languages : en
Pages : 321
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Book Description
Re-Presenting Disability addresses issues surrounding disability representation in museums and galleries, a topic which is receiving much academic attention and is becoming an increasingly pressing issue for practitioners working in wide-ranging museums and related cultural organisations. This volume of provocative and timely contributions, brings together twenty researchers, practitioners and academics from different disciplinary, institutional and cultural contexts to explore issues surrounding the cultural representation of disabled people and, more particularly, the inclusion (as well as the marked absence) of disability-related narratives in museum and gallery displays. The diverse perspectives featured in the book offer fresh ways of interrogating and understanding contemporary representational practices as well as illuminating existing, related debates concerning identity politics, social agency and organisational purposes and responsibilities, which have considerable currency within museums and museum studies. Re-Presenting Disability explores such issues as: In what ways have disabled people and disability-related topics historically been represented in the collections and displays of museums and galleries? How can newly emerging representational forms and practices be viewed in relation to these historical approaches? How do emerging trends in museum practice – designed to counter prejudiced, stereotypical representations of disabled people – relate to broader developments in disability rights, debates in disability studies, as well as shifting interpretive practices in public history and mass media? What approaches can be deployed to mine and interrogate existing collections in order to investigate histories of disability and disabled people and to identify material evidence that might be marshalled to play a part in countering prejudice? What are the implications of these developments for contemporary collecting? How might such purposive displays be created and what dilemmas and challenges are curators, educators, designers and other actors in the exhibition-making process, likely to encounter along the way? How do audiences – disabled and non-disabled – respond to and engage with interpretive interventions designed to confront, undercut or reshape dominant regimes of representation that underpin and inform contemporary attitudes to disability?
Author: Katie Aubrecht
Publisher: UBC Press
ISBN: 0774863706
Category : Social Science
Languages : en
Pages : 297
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Book Description
As the global population ages, disability demographics are shifting. Societal transformation and global health inequities have changed who is likely to reach old age, who is likely to live with disability, and the relationship between aging and disability in various socio-cultural and geopolitical contexts. The Aging–Disability Nexus breaks new ground by bringing gerontology and disability studies into dialogue with each other through a variety of empirical, conceptual, and pedagogical approaches. Contributors explore the tensions that shape the way disability and aging are understood, experienced, and responded to at both individual and systemic levels, while avoiding the common tendency to conflate these overlapping elements and map them onto a normative, faulty notion of the human life trajectory. This perceptive work analyzes the distinction between aging with a disability and aging into disability, and reveals how multiple identities, socio-economic forces, culture, and community give form to our experiences.
