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Author: Eric Lindner
Publisher: Rowman & Littlefield Publishers
ISBN: 1442220600
Category : Medical
Languages : en
Pages : 235
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Book Description
As a part-time hospice volunteer, Eric Lindner provides “companion care” to dying strangers. They’re chatterboxes and recluses, religious and irreligious; battered by cancer, congestive heart failure, Alzheimer’s, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he’s not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lives and the prospect of their last days. Lindner captures it all in his lively storytelling. Anyone who knows or loves someone working through end of life issues, living in hospice or other end of life facilities, or dealing with terminal or chronic illnesses, will find in these pages the wisdom of those who are working through their own end of life issues, tackling life’s big questions, and boiling them down into lessons for anyone as they age or face illness. And those who may feel compelled to volunteer to serve as companions will find motivation, inspiration, and encouragement. Rather than sink under the weight of depression, pity, or sorrow, Lindner celebrates the lives of those who choose to live even as they die.
Author: Eric Lindner
Publisher: Rowman & Littlefield Publishers
ISBN: 1442220600
Category : Medical
Languages : en
Pages : 235
Get Book Here
Book Description
As a part-time hospice volunteer, Eric Lindner provides “companion care” to dying strangers. They’re chatterboxes and recluses, religious and irreligious; battered by cancer, congestive heart failure, Alzheimer’s, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he’s not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lives and the prospect of their last days. Lindner captures it all in his lively storytelling. Anyone who knows or loves someone working through end of life issues, living in hospice or other end of life facilities, or dealing with terminal or chronic illnesses, will find in these pages the wisdom of those who are working through their own end of life issues, tackling life’s big questions, and boiling them down into lessons for anyone as they age or face illness. And those who may feel compelled to volunteer to serve as companions will find motivation, inspiration, and encouragement. Rather than sink under the weight of depression, pity, or sorrow, Lindner celebrates the lives of those who choose to live even as they die.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 030946031X
Category : Medical
Languages : en
Pages : 101
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Book Description
Millions of peopleâ€"infants, children, adults, and their familiesâ€"are currently coping with serious illness in the United States. Efforts are intensifying to improve overall care quality through the delivery of person-centered and family-oriented services, for patients of all ages and across disease stages, care settings, and specialties. While aging Baby Boomers are increasing the proportion of patients in the Medicare population over time, the sickest and most vulnerable patients needing health system support and other services to meet their complex needs can be found across the age spectrum and in a broad range of care settings, from perinatal care to geriatric care. Recognizing the need to thoughtfully consider and address the challenges and opportunities in efforts to improve care quality and value, the Roundtable on Quality Care for People with Serious Illness of the National Academies of Sciences, Engineering, and Medicine held the public workshop Integrating the Patient and Caregiver Voice into Serious Illness Care, on December 15, 2016, in Washington, DC. This workshop was the first in a series planned by the roundtable, and was designed specifically to bring together diverse personal perspectives and experiences about priorities and values that are important to patients and families coping with serious illness, and to consider solutions that support integration of these priorities and values in practice. This publication summarizes the presentations and discussions from the workshop.
Author: United States. Congress
Publisher:
ISBN:
Category : Law
Languages : en
Pages : 2008
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Book Description
Author: Lucinda Jarrett
Publisher: Radcliffe Publishing
ISBN: 1846191580
Category : Arts
Languages : en
Pages : 208
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Book Description
This book offers an extensive range of ideas and practical developing service users' creativity including songmaking, drama, dance, creative writing, music, video and visual arts. It promotes innovation and encourages a fresh and enthusiastic approach to care that will appeal to anyone with a love of creative arts as a means of expression. The wide-ranging approach encompasses many different voices from patients, artists and healthcare professionals. "Creative Engagement in Palliative Care" is highly recommended for all palliative health and social care professionals and volunteers, including occupational therapists, and art and music therapists. It is a wonderful resource for health and social care educators, teachers and trainers and will be a immense source of inspiration for patients and their families.'This book is about user involvement. It is concerned with sharing knowledge and experience about user involvement in palliative care and making it more real for the future. In modern times, the importance of 'end of life care' was highlighted by the pioneers of the voluntary hospice movement. They emphasised the importance of palliative care being based on an holistic approach that took account of all aspects of people's lives and deaths; medical, social, spiritual and material. More recently the work of the independent hospice movement has been complemented by the development and expansion of specialist palliative care in state provision. The aim has been to enable people to be able to 'do it their way' with a real sense of control and to be able to communicate their unique words, voices and experience. This is and will always be a key potential of user involvement.' - Suzy Croft and Peter Beresford, in the Preface.
Author: Michèle Catherine Gantois Chaban
Publisher: Edwin Mellen Press
ISBN:
Category : Biography & Autobiography
Languages : en
Pages : 402
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Book Description
Ontario-based clinical thanatologist Chaban traces Kubler-Ross' influence on the field and health science education over the past quarter century. She argues that her paradigms, which have dominated care of the dying in North America's health care system, may work in a general way to deal with most situations of loss, but may not be effective and specific enough to care for the dying or the bereaved or to provide occupational support for professional caregivers. Rather, she contends, thanatology must begin to distinguish itself within palliative or hospice care with specific clinical, educational, and research considerations. The treatise seems to have been a doctoral dissertation for the University of Wales. The text is double spaced. The computer-generated index is fairly useless. Annotation copyrighted by Book News, Inc., Portland, OR
Author: United States. Congress. House. Committee on Veterans' Affairs
Publisher:
ISBN:
Category :
Languages : en
Pages : 200
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Book Description
Author: Maggie Callanan
Publisher: Simon and Schuster
ISBN: 1451677294
Category : Self-Help
Languages : en
Pages : 218
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Book Description
In this moving and compassionate classic—now updated with new material from the authors—hospice nurses Maggie Callanan and Patricia Kelley share their intimate experiences with patients at the end of life, drawn from more than twenty years’ experience tending the terminally ill. Through their stories we come to appreciate the near-miraculous ways in which the dying communicate their needs, reveal their feelings, and even choreograph their own final moments; we also discover the gifts—of wisdom, faith, and love—that the dying leave for the living to share. Filled with practical advice on responding to the requests of the dying and helping them prepare emotionally and spiritually for death, Final Gifts shows how we can help the dying person live fully to the very end.
Author: Jane Marie Kirschling
Publisher: Routledge
ISBN: 1317739639
Category : Medical
Languages : en
Pages : 130
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Book Description
Learn to interact with families in ways that promote family functioning when a family member is dying. Family-Based Palliative Care is an insightful book that aims to increase professionals’understanding of the family as client. Authoritative contributors who are experienced in working with the terminally ill present the most current theory, practice, and research related to family-based care of hospice patients. Each readable chapter includes a wealth of information that can be applied to health care settings in which holistic care is a priority. The first chapter presents a conceptual framework for caring for families of the terminally ill as well as clinical examples that are used to illustrate the application of the framework in practice. Experts describe four research studies--two qualitative studies that examine sources of stress for caregivers and identify the resources used by families to manage at home; a methodological study that explores the positive and negative aspects of family caregiving; and a case study that evaluates a hospice staff’s efforts in providing family- based care. Because little research has been done with family caregivers of terminally ill hospice patients, Family-Based Palliative Care will be essential reading for nurses, social workers, hospice staff, and other professionals whose job it is to care for the dying and their families.
Author: United States. Public Health Service. Commissioned Corps
Publisher:
ISBN:
Category : Public health personnel
Languages : en
Pages : 180
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Book Description
Author: Allan Kellehear
Publisher: Columbia University Press
ISBN: 0231544022
Category : Social Science
Languages : en
Pages : 129
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Book Description
About 30 percent of hospice patients report a “visitation” by someone who is not there, a phenomenon known in end-of-life care as a deathbed vision. These visions can be of dead friends or family members and occur on average three days before death. Strikingly, individuals from wildly diverse geographic regions and religions—from New York to Japan to Moldova to Papua New Guinea—report similar visions. Appearances of our dead during serious illness, crises, or bereavement are as old as the historical record. But in recent years, we have tended to explain them in either the fantastical terms of the supernatural or the reductive terms of neuroscience. This book is about how, when, and why our dead visit us. Allan Kellehear—a medical sociologist and expert on death, dying, and palliative care—has gathered data and conducted studies on these experiences across cultures. He also draws on the long-neglected work of early anthropologists who developed cultural explanations about why the dead visit. Deathbed visions conform to the rituals that underpin basic social relations and expectations—customs of greeting, support, exchange, gift-giving, and vigils—because the dead must communicate with us in a social language that we recognize. Kellehear emphasizes the personal consequences for those who encounter these visions, revealing their significance for how the dying person makes meaning of their experiences. Providing vital understanding of a widespread yet mysterious phenomenon, Visitors at the End of Life offers insights for palliative care professionals, researchers, and the bereaved.
