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Author: Nancy M. Schwartz
Publisher: Modern History Press
ISBN: 1615994629
Category : Medical
Languages : en
Pages : 126
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Book Description
Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first the loss seems impossible to overcome. Alex becomes the author's greatest teacher. Love is stronger than fear. Everyone has gifts. The book consists of three parts: the story, the lessons Alex taught the writer and Alex's perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy's journey gets to the core of what it is to be human: * Explore what it feels like to think life, as you know it, is over. * Discover the fierce love, joy and peace a baby diagnosed with Trisomy 21 (Down syndrome) brings. * Learn the lessons this child taught his mom. * Understand the gift this baby brings to our world. * Realize the depth of the love this family has for the child. "A beautiful, honest account of not just accepting--but embracing--the unknown. Nancy shows us the blessing of an unexpected gift and the enormity of love." --Sara Byala, Ph.D. "This is a wonderful book to remind you that the joy of love is possible in unexpected places when you open your heart to it." --Barbara Taylor Bowman, Irving B. Harris Professor of Child Development "A moving and wise story of how a family navigates through hope, loss, learning and, most of all, love." --Rabbi David Wolpe, author of David: The Divided Heart "The truth and beauty of Nancy Schwartz's words tell an ongoing story of love, learning and the power of acceptance. All can learn from this family's boundless hope and from their source of joy and strength: Alex." --April Beard, Music Educator and Cellist Learn more at www.UpNotDownBook.com From Modern History Press www.ModernHistoryPress.com
Author: Nancy M. Schwartz
Publisher: Modern History Press
ISBN: 1615994629
Category : Medical
Languages : en
Pages : 126
Get Book Here
Book Description
Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first the loss seems impossible to overcome. Alex becomes the author's greatest teacher. Love is stronger than fear. Everyone has gifts. The book consists of three parts: the story, the lessons Alex taught the writer and Alex's perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy's journey gets to the core of what it is to be human: * Explore what it feels like to think life, as you know it, is over. * Discover the fierce love, joy and peace a baby diagnosed with Trisomy 21 (Down syndrome) brings. * Learn the lessons this child taught his mom. * Understand the gift this baby brings to our world. * Realize the depth of the love this family has for the child. "A beautiful, honest account of not just accepting--but embracing--the unknown. Nancy shows us the blessing of an unexpected gift and the enormity of love." --Sara Byala, Ph.D. "This is a wonderful book to remind you that the joy of love is possible in unexpected places when you open your heart to it." --Barbara Taylor Bowman, Irving B. Harris Professor of Child Development "A moving and wise story of how a family navigates through hope, loss, learning and, most of all, love." --Rabbi David Wolpe, author of David: The Divided Heart "The truth and beauty of Nancy Schwartz's words tell an ongoing story of love, learning and the power of acceptance. All can learn from this family's boundless hope and from their source of joy and strength: Alex." --April Beard, Music Educator and Cellist Learn more at www.UpNotDownBook.com From Modern History Press www.ModernHistoryPress.com
Author: Melba Wilkat
Publisher: iUniverse
ISBN: 0595342280
Category : Biography & Autobiography
Languages : en
Pages : 166
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Book Description
The story of John Albert Wilkat, a young man with Down syndrome and cerebral palsy, as told by his mother who shares the joys and heartaches he brought to her life and the positive effect he had on others.
Author: Caroline Brandt
Publisher: Publishamerica Incorporated
ISBN: 9781413760415
Category : Family & Relationships
Languages : en
Pages : 62
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Book Description
This is a true story that will touch your heart in a way you have never before experienced. A grandmother, mother and daughter--these I had to be to tell this story of my Up Syndrome grandson and the tears, laughs and smiles that he has brought to the lives of many. It's about how my family overcame the obstacles they encountered with their gift of a wonderful child.
Author: Jason Kingsley
Publisher: HMH
ISBN: 0547350856
Category : Biography & Autobiography
Languages : en
Pages : 219
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Book Description
Award winner: “Hearing about Down syndrome directly from these young men has a good deal more impact than reading any guide from a professional.” —Booklist This book is in Mitchell and Jason’s own words. . . . We wanted readers to have a true-to-life sense of their charm, their directness, their humor and warmth, and, yes, their intelligence. At ages nineteen and twenty-two, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, dreams―and their experiences growing up with Down syndrome. Their frank discussion of what mattered most in their lives―careers, friendships, school, sex, marriage, finances, politics, and independence―earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made for a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. In this edition, with a new afterword, the authors also discuss their lives since then: milestones and challenges, and changes both expected and unexpected. “Their parents were told to expect nothing. But Jason Kingsley and Mitchell Levitz were lucky, because their parents didn’t listen. They gave their sons that chance to show how far they could go—and they’ve astounded everyone!” —Jane Pauley “This single volume will do more to change stereotypes about Down syndrome than any book I have read. These two young men steal our hearts and wash away generations of misconceptions.” —Mary L. Coleman, MD, Emeritus, Georgetown University “An excellent illustration of what it’s like to have Down syndrome . . . Most moving here are the portrayals of strong family relationships.” —Publishers Weekly “Will open eyes and touch the heart.” —Library Journal
Author: Vicki Nobel
Publisher: Harper San Francisco
ISBN: 9780062507372
Category : Biography & Autobiography
Languages : en
Pages : 212
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Book Description
An intimate, holistic perspective on raising differently abled children--from a noted healer and the devoted mother of a child with Down syndrome. Noble shows how Aaron's "abnormalities" allow him to embody the inner peace that many spend their lives trying to obtain. Photos.
Author: Kieron Smith
Publisher: John Hunt Publishing
ISBN: 1780990715
Category : Family & Relationships
Languages : en
Pages : 90
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Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Author: David Egan
Publisher: Rowman & Littlefield
ISBN: 1633886298
Category : Biography & Autobiography
Languages : en
Pages : 177
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Book Description
In this inspiring memoir, David Egan tells his own story, giving us a window into a life spent pushing boundaries. With a family undaunted by his diagnosis of Down syndrome, Egan learned early to speak up for himself. He has since become a powerful advocate for all people with disabilities. His optimistic perspective rejected the limits of stereotypes and the expectations of others. He shares how the support of loving family and friends led him to overcome challenges and blaze new trails. It started with swimming and baseball, when he earned places on his neighborhood teams, competing fiercely and as a fully accepted teammate. He writes firsthand of the empowering feeling of being fully included in elementary school and at work as an adult. Egan has earned positions at prestigious companies and a distinguished fellowship on Capitol Hill. He sits on the boards of influential advocacy organizations. He has addressed audiences worldwide and has played a powerful global advocacy role with Special Olympics. He allowed himself to dream big, and he encourages everyone to do the same. His lesson to all of us is to focus on our shared humanity despite our differences--and our diagnoses. This hopeful memoir will encourage everyone to make the most of their lives.
Author: Terri Couwenhoven
Publisher:
ISBN: 9781890627331
Category : Education
Languages : en
Pages : 331
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Book Description
Parents of children with Down syndrome and other intellectual disabilities are accustomed to paying close attention to their child's physical, cognitive, and emotional development. This proactive approach should also include their child's sexual development, which for many parents may not seem as obvious or urgent, especially to those with young children. Drawing on her unique background as both a sexual educator and mother of a child with Down syndrome, the author blends factual information and practical ideas for teaching children with Down syndrome about their bodies, puberty, and sexuality. This book gives parents the confidence to speak comfortably about these sometimes difficult subjects. In an easy-to-read, non-clinical style, the book covers relevant issues and concerns for children of all ages, such as: Labelling & explaining private body parts; Identifying & expressing emotions; Respecting personal space; Teaching self-care & hygiene; Understanding norms of privacy; Understanding gender identity; Showing appropriate levels of affection. It also covers later issues that affect teenagers and young adults, including: Anticipating and understanding puberty; Dealing with periods, bras for girls; Experiencing erections, wet dreams for boys; Relating to the opposite sex; Sharing parental values about sexuality; Explaining sexual relationships; Preventing sexual abuse; Understanding how Down syndrome affects puberty & fertility rates. Each chapter highlights important points with key messages, teaching activities, parental pauses, and anecdotes, all of which prompt readers to stop and consider concepts or values associated with a particular topic. The final chapter covers the special concerns of parents who are now teaching teenaged or adult children about sexuality for the first time. It concludes with extensive appendices containing invaluable teaching materials and illustrations of body parts and functions.
Author: Natalie Hale
Publisher:
ISBN: 9780970269881
Category :
Languages : en
Pages :
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Book Description
GUIDANCE FOR PARENTS OF CHILDREN WITH DOWN SYNDROME
Author: Amy Silverman
Publisher:
ISBN: 9781606132753
Category : Child rearing
Languages : en
Pages :
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Book Description
All parent stories about raising a child with Down syndrome are special and unique, but in the hands of a good writer, they can have the power to reach, change, and resonate far beyond family and friends. And that is the case with My Heart Can't Even Believe It, by journalist, blogger, and NPR contributor Amy Silverman. Amy bravely looks at her life, before and after her daughter Sophie was born, and reflects on her transformation from "a spoiled, self-centered brat," who used words like retard and switched lines at the Safeway to avoid a bagger with special needs, into the mother of a kid with Down syndrome and all that her new identity entails. She describes her evolution as gradual, one built by processing her fears and facing questions both big and small about Sophie, Down syndrome, and her place in the world. Funny, touching, and honest, this wonderful book looks at a daughter and her power to change minds and fill hearts with love so deep.
