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Author: David Clark
Publisher: Oxford University Press
ISBN: 0199325693
Category : Medical
Languages : en
Pages : 292
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Book Description
Over a period of almost 10 years, the work of the Project on Death in America (PDIA) played a formative role in the advancement of end of life care in the United States. The project concerned itself with adults and children, and with interests crossing boundaries between the clinical disciplines, the social sciences, arts and humanities. PDIA engaged with the problems of resources in poor communities and marginalized groups and settings, and it attempted to foster collaboration across a range of sectors and organizations. Authored by medical sociologist David Clark, whose research career has focused on mapping, archiving and analyzing the history and development of hospice, palliative care and related end of life issues, this book examines the broad, ambitious conception of PDIA - which sought to 'transform the culture of dying in America' - and assesses PDIA's contribution to the development of the palliative care field and to wider debates about end of life care within American society. Chapters consider key issues and topics tackled by PDIA grantees which include: explorations of the meanings of death in contemporary American culture; the varying experiences of care at the end of life (in different settings, among different social and ethnic groups); the innovations in service development and clinical practice that have occurred in the US in response to a growing awareness of and debate about end of life issues; the emerging evidence base for palliative and end of life care in the US; the maturation of a field of academic and clinical specialization; the policy and legal issues that have shaped development, including the ethical debate about assisted suicide and the Oregon experience; the opportunities and barriers that have been encountered; and the prospects for future development. A final chapter captures developments and milestones in the field since PDIA closed in 2003, and some of the challenges going forward.
Author: David Clark
Publisher: Oxford University Press
ISBN: 0199325693
Category : Medical
Languages : en
Pages : 292
Get Book
Book Description
Over a period of almost 10 years, the work of the Project on Death in America (PDIA) played a formative role in the advancement of end of life care in the United States. The project concerned itself with adults and children, and with interests crossing boundaries between the clinical disciplines, the social sciences, arts and humanities. PDIA engaged with the problems of resources in poor communities and marginalized groups and settings, and it attempted to foster collaboration across a range of sectors and organizations. Authored by medical sociologist David Clark, whose research career has focused on mapping, archiving and analyzing the history and development of hospice, palliative care and related end of life issues, this book examines the broad, ambitious conception of PDIA - which sought to 'transform the culture of dying in America' - and assesses PDIA's contribution to the development of the palliative care field and to wider debates about end of life care within American society. Chapters consider key issues and topics tackled by PDIA grantees which include: explorations of the meanings of death in contemporary American culture; the varying experiences of care at the end of life (in different settings, among different social and ethnic groups); the innovations in service development and clinical practice that have occurred in the US in response to a growing awareness of and debate about end of life issues; the emerging evidence base for palliative and end of life care in the US; the maturation of a field of academic and clinical specialization; the policy and legal issues that have shaped development, including the ethical debate about assisted suicide and the Oregon experience; the opportunities and barriers that have been encountered; and the prospects for future development. A final chapter captures developments and milestones in the field since PDIA closed in 2003, and some of the challenges going forward.
Author: Michael Hviid Jacobsen
Publisher:
ISBN: 9788776745950
Category : Family & Relationships
Languages : en
Pages : 336
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Book Description
Deconstructing Death deals with some of the most recent changes and transformations within the realms of death, dying, bereavement, and care in contemporary Nordic countries. The book deals with some of the major - as well as some of the less conspicuous - changes in the cultural and social engagement with the phenomenon of death. Among the themes touched upon are: organ transplantation, death education, communication with the dead, changes in commemorative rituals, mourning practices on the internet, parental responses to children's suicide, death control, the practice and ethics of end-of-life care, and the lonely death. Deconstructing Death contains contributions written by researchers and practitioners from Denmark, Sweden, Norway, and Finland, with professional and academic backgrounds within areas such as sociology, anthropology, religious studies, and palliative care.
Author: Helaine Selin
Publisher: Springer
ISBN: 3030188264
Category : Social Science
Languages : en
Pages : 396
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Book Description
Death Across Cultures: Death and Dying in Non-Western Cultures, explores death practices and beliefs, before and after death, around the non-Western world. It includes chapters on countries in Africa, Asia, South America, as well as indigenous people in Australia and North America. These chapters address changes in death rituals and beliefs, medicalization and the industry of death, and the different ways cultures mediate the impacts of modernity. Comparative studies with the west and among countries are included. This book brings together global research conducted by anthropologists, social scientists and scholars who work closely with individuals from the cultures they are writing about.
Author: Committee on Care at the End of Life
Publisher: National Academies Press
ISBN: 0309518253
Category : Medical
Languages : en
Pages : 457
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Book Description
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 638
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Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Author: Benjamin Wiker
Publisher: Ignatius Press
ISBN: 1681490439
Category : Religion
Languages : en
Pages : 412
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Book Description
The phrase, ""the Culture of Death"", is bandied about as a catch-all term that covers abortion, euthanasia and other attacks on the sanctity of life. In Architects of the Culture of Death, authors Donald DeMarco and Benjamin Wiker expose the Culture of Death as an intentional and malevolent ideology promoted by influential thinkers who specifically attack Christian morality's core belief in the sanctity of human life and the existence of man's immortal soul. In scholarly, yet reader-friendly prose, DeMarco and Wiker examine the roots of the Culture of Death by introducing 23 of its architects, including Ayn Rand, Charles Darwin, Karl Marx, Jean-Paul Sartre, Alfred Kinsey, Margaret Sanger, Jack Kevorkian, and Peter Singer. Still, this is not a book without hope. If the Culture of Death rests on a fragmented view of the person and an eclipse of God, the future of the Culture of Life relies on an understanding and restoration of the human being as a person, and the rediscovery of a benevolent God. The personalism of John Paul II is an illuminating thread that runs through Architects, serving as a hopeful antidote.
Author: Maria-José Blanco
Publisher: Berghahn Books
ISBN: 1782384340
Category : Social Science
Languages : en
Pages : 272
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Book Description
The social and cultural changes of the last century have transformed death from an everyday fact to something hidden from view. Shifting between the practical and the theoretical, the professional and the intimate, the real and the fictitious, this collection of essays explores the continued power of death over our lives. It examines the idea and experience of death from an interdisciplinary perspective, including studies of changing burial customs throughout Europe; an account of a“dying party” in the Netherlands; examinations of the fascination with violent death in crime fiction and the phenomenon of serial killer art; analyses of death and bereavement in poetry, fiction, and autobiography; and a look at audience reactions to depictions of death on screen. By studying and considering how death is thought about in the contemporary era, we might restore the natural place it has in our lives.
Author: Bronnie Ware
Publisher: Hay House, Inc
ISBN: 1401956009
Category : Self-Help
Languages : en
Pages : 322
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Book Description
Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.
Author: Jeffrey P. Bishop
Publisher: University of Notre Dame Pess
ISBN: 0268075859
Category : Religion
Languages : en
Pages : 432
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Book Description
In this original and compelling book, Jeffrey P. Bishop, a philosopher, ethicist, and physician, argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death, as shaped by our scientific successes and ongoing debates about euthanasia and the “right to die”—or to live. The Anticipatory Corpse: Medicine, Power, and the Care of the Dying, informed by Foucault’s genealogy of medicine and power as well as by a thorough grasp of current medical practices and medical ethics, argues that a view of people as machines in motion—people as, in effect, temporarily animated corpses with interchangeable parts—has become epistemologically normative for medicine. The dead body is subtly anticipated in our practices of exercising control over the suffering person, whether through technological mastery in the intensive care unit or through the impersonal, quasi-scientific assessments of psychological and spiritual “medicine.” The result is a kind of nihilistic attitude toward the dying, and troubling contradictions and absurdities in our practices. Wide-ranging in its examples, from organ donation rules in the United States, to ICU medicine, to “spiritual surveys,” to presidential bioethics commissions attempting to define death, and to high-profile cases such as Terri Schiavo’s, The Anticipatory Corpse explores the historical, political, and philosophical underpinnings of our care of the dying and, finally, the possibilities of change. This book is a ground-breaking work in bioethics. It will provoke thought and argument for all those engaged in medicine, philosophy, theology, and health policy.
Author: Elisabeth Kübler-Ross
Publisher:
ISBN: 9780020891307
Category : Death
Languages : en
Pages : 308
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Book Description
