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Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691213089
Category : Social Science
Languages : en
Pages : 298
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Book Description
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691213089
Category : Social Science
Languages : en
Pages : 298
Get Book Here
Book Description
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691214700
Category : Medical
Languages : en
Pages : 321
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Book Description
A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Author: Judith Bertoia
Publisher: Routledge
ISBN: 1317649982
Category : Psychology
Languages : en
Pages : 161
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Book Description
Does a dying child understand death? How can we help children who are dying? Originally published in 1993, this book concerns a young girl, Rachel, terminally ill with leukaemia. The book describes a series of drawings she made and shows how they reveal her inner experience, how she became fully aware that she was dying and even came to accept death. The result is a moving and informative story that will be invaluable to caregivers and families with a dying child. It provides new understanding of the experience of a dying child and suggests practical strategies for coping.
Author: Alison M. Rodriguez
Publisher: Taylor & Francis
ISBN: 1000865657
Category : Health & Fitness
Languages : en
Pages : 215
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Book Description
Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.
Author: John Swinton
Publisher: Wm. B. Eerdmans Publishing
ISBN: 1467441341
Category : Religion
Languages : en
Pages : 313
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Book Description
Living Well and Dying Faithfully explores how Christian practices — love, prayer, lament, compassion, and so on — can contribute to the process of dying well. Working on the premise that one dies the way one lives, the book is unique in its constructive dialogue between theology and medicine as offering two complementary modes of care.
Author: Dietrich Niethammer
Publisher: JHU Press
ISBN: 1421404567
Category : Medical
Languages : en
Pages : 236
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Book Description
Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.
Author: Richard Louv
Publisher: Algonquin Books
ISBN: 156512586X
Category : Family & Relationships
Languages : en
Pages : 414
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Book Description
The Book That Launched an International Movement Fans of The Anxious Generation will adore Last Child in the Woods, Richard Louv's groundbreaking New York Times bestseller. “An absolute must-read for parents.” —The Boston Globe “It rivals Rachel Carson’s Silent Spring.” —The Cincinnati Enquirer “I like to play indoors better ’cause that’s where all the electrical outlets are,” reports a fourth grader. But it’s not only computers, television, and video games that are keeping kids inside. It’s also their parents’ fears of traffic, strangers, Lyme disease, and West Nile virus; their schools’ emphasis on more and more homework; their structured schedules; and their lack of access to natural areas. Local governments, neighborhood associations, and even organizations devoted to the outdoors are placing legal and regulatory constraints on many wild spaces, sometimes making natural play a crime. As children’s connections to nature diminish and the social, psychological, and spiritual implications become apparent, new research shows that nature can offer powerful therapy for such maladies as depression, obesity, and attention deficit disorder. Environment-based education dramatically improves standardized test scores and grade-point averages and develops skills in problem solving, critical thinking, and decision making. Anecdotal evidence strongly suggests that childhood experiences in nature stimulate creativity. In Last Child in the Woods, Louv talks with parents, children, teachers, scientists, religious leaders, child-development researchers, and environmentalists who recognize the threat and offer solutions. Louv shows us an alternative future, one in which parents help their kids experience the natural world more deeply—and find the joy of family connectedness in the process. Included in this edition: A Field Guide with 100 Practical Actions We Can Take Discussion Points for Book Groups, Classrooms, and Communities Additional Notes by the Author New and Updated Research from the U.S. and Abroad
Author: Christina Stead
Publisher: Open Road Media
ISBN: 1453265252
Category : Fiction
Languages : en
Pages : 733
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Book Description
“This crazy, gorgeous family novel” written at the end of the Great Depression “is one of the great literary achievements of the twentieth century” (Jonathan Franzen, The New York Times). First published in 1940, The Man Who Loved Children was rediscovered in 1965 thanks to the poet Randall Jarrell’s eloquent introduction (included in this ebook edition), which compares Christina Stead to Leo Tolstoy. Today, it stands as a masterpiece of dysfunctional family life. In a country crippled by the Great Depression, Sam and Henny Pollit have too much—too much contempt for one another, too many children, too much strain under endless obligation. Flush with ego and chilling charisma, Sam torments and manipulates his children in an esoteric world of his own imagining. Henny looks on desperately, all too aware of the madness at the root of her husband’s behavior. And Louie, the damaged, precocious adolescent girl at the center of their clashes, is the “ugly duckling” whose struggle will transfix contemporary readers. Named one of the best novels of the twentieth century by Newsweek, Stead’s semiautobiographical work reads like a Depression-era The Glass Castle. In the New York Times, Jonathan Franzen wrote of this classic, “I carry it in my head the way I carry childhood memories; the scenes are of such precise horror and comedy that I feel I didn’t read the book so much as live it.”
Author: Michael Freeman
Publisher: BRILL
ISBN: 9004219102
Category : Law
Languages : en
Pages : 306
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Book Description
For decades, Professor Michael Freeman has without doubt been one of the world's most infuential scholars in international children's rights. His scholarship has been at the forefront of the field and has helped shape many of the developments within it. This collection offers the reader a thought-provoking snapshot of some of his most seminal essays, written and/or published over the past 30 years. Together they highlight above all the interdisciplinary nature of the issues he discusses. Legal doctrinal questions that make the case for recognising that children have rights are of course discussed. But aspects of moral and political philosophy are dealt with as well, in addition to, among other other disciplines, history, theology, psychology and antropology.
Author: Drew Gilpin Faust
Publisher: Vintage
ISBN: 0375703837
Category : History
Languages : en
Pages : 385
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Book Description
NATIONAL BESTSELLER • NATIONAL BOOK AWARD FINALIST • An "extraordinary ... profoundly moving" history (The New York Times Book Review) of the American Civil War that reveals the ways that death on such a scale changed not only individual lives but the life of the nation. An estiated 750,000 soldiers lost their lives in the American Civil War. An equivalent proportion of today's population would be seven and a half million. In This Republic of Suffering, Drew Gilpin Faust describes how the survivors managed on a practical level and how a deeply religious culture struggled to reconcile the unprecedented carnage with its belief in a benevolent God. Throughout, the voices of soldiers and their families, of statesmen, generals, preachers, poets, surgeons, nurses, northerners and southerners come together to give us a vivid understanding of the Civil War's most fundamental and widely shared reality. With a new introduction by the author, and a new foreword by Mike Mullen, 17th Chairman of the Joint Chiefs of Staff.
