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Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691028206
Category : Family & Relationships
Languages : en
Pages : 298
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Book Description
"The death of a child," writes Myra Bluebond-Langner, "poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die." In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child's impending death.
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691028206
Category : Family & Relationships
Languages : en
Pages : 298
Get Book Here
Book Description
"The death of a child," writes Myra Bluebond-Langner, "poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die." In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child's impending death.
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691213089
Category : Social Science
Languages : en
Pages : 298
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Book Description
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691214700
Category : Medical
Languages : en
Pages : 321
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Book Description
A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Author: Judith Bertoia
Publisher: Routledge
ISBN: 1317649982
Category : Psychology
Languages : en
Pages : 161
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Book Description
Does a dying child understand death? How can we help children who are dying? Originally published in 1993, this book concerns a young girl, Rachel, terminally ill with leukaemia. The book describes a series of drawings she made and shows how they reveal her inner experience, how she became fully aware that she was dying and even came to accept death. The result is a moving and informative story that will be invaluable to caregivers and families with a dying child. It provides new understanding of the experience of a dying child and suggests practical strategies for coping.
Author: Cynthia Comacchio
Publisher: McGill-Queen's Press - MQUP
ISBN: 077357767X
Category : Medical
Languages : en
Pages : 573
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Book Description
Essays range from historical overviews and historiographic surveys of children's health in various regions of the world, to disability and affliction narratives - from polio in North American to AIDS orphans in post-Apartheid South Africa - to interpretations of artistic renderings of sick children that tell us much about medicine, family, and society at specific times in history.
Author: Justin Amery
Publisher:
ISBN: 0199567964
Category : Family & Relationships
Languages : en
Pages : 448
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Book Description
Childen's palliative care has developed rapidly as a discipline, as health care professionals recognize that the principles of adult palliative care may not always be applicable to children at the end of life. The unique needs of dying children are particularly evident across Africa, where the scale of the problem is overwhelming, and the figures so enormous that they are barely comprehensible: over 400,000 children in Africa died from AIDS in 2003, and out of the 166,000 children a year diagnosed with cancer, 85% of these are in the developing world. Despite the enormous need, provision of children's palliative care in Africa is almost non-existent, with very few health workers trained and confident to provide care for dying children. The challenges of providing palliative care in this setting are different to those in more developed countries, contending with the shortage of physical and human resources in addition to the vast scope of the care needed. Written by a group with wide experience of caring for dying children in Africa, this book provides practical, realistic guidance by improving access to, and delivery of, palliative care in this demanding setting. It looks at the themes common to palliative care--including communication, assessment, symptom management, psychosocial issues, ethical dilemmas, end of life care, and tips for the professional on compassion and conservation of energy--but always retains the focus on the particular needs of the health care professional in Africa. While containing some theory, the emphasis is on practical action throughout the book. Children's Palliative Care in Africa provides health care professionals working in Africa, and other resource-poor settings, with the confidence, knowledge, and capacity to improve care for the terminally ill child in constrained and demanding environments.
Author: Jessica Bratt Carle
Publisher: Lexington Books
ISBN: 1666952621
Category : Religion
Languages : en
Pages : 219
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Book Description
Children remain at the periphery when bioethics envisions autonomous adults as normative human beings. Children, Theology, and Bioethics: Beyond Autonomy explores the full humanity of children, inviting greater recognition of their place in the moral landscape of healthcare. Theological insights into vulnerability, dependence, and agency summon appreciation for the experiences of pediatric patients and reveal what it means to be human at every age. Interdisciplinary dialogue between bioethics, childhood studies, and pastoral theology is woven throughout with illustrative clinical vignettes from Bratt Carle’s experience as a pediatric chaplain and clinical ethicist.
Author: Robyn Boeré
Publisher: Augsburg Fortress Publishers
ISBN: 1506481833
Category : Children and death
Languages : en
Pages : 244
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Book Description
Befriending the North Wind is about the moral lives of children and their agency in decisions about death. It examines the dimensions of human meaning children reveal and the new horizons they open to us. It asserts that children can die a good death and that they can and should have a voice in their end-of-life care.
Author: Michael Freeman
Publisher: BRILL
ISBN: 9004219102
Category : Law
Languages : en
Pages : 306
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Book Description
For decades, Professor Michael Freeman has without doubt been one of the world's most infuential scholars in international children's rights. His scholarship has been at the forefront of the field and has helped shape many of the developments within it. This collection offers the reader a thought-provoking snapshot of some of his most seminal essays, written and/or published over the past 30 years. Together they highlight above all the interdisciplinary nature of the issues he discusses. Legal doctrinal questions that make the case for recognising that children have rights are of course discussed. But aspects of moral and political philosophy are dealt with as well, in addition to, among other other disciplines, history, theology, psychology and antropology.
Author: David Kinchin
Publisher: Routledge
ISBN: 1136627480
Category : Education
Languages : en
Pages : 113
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Book Description
It is estimated that at any one time around 135,000 school children are suffering from post-traumatic stress disorder (PTSD). They may be survivors of abuse (physical, emotional or sexual) or bullying. Some may have been involved in a road accident, an accident at home or any other traumatic event. This book provides teachers, support staff and other educational professionals with the information they need to, really understand the implications of PTSD, ably and effectively support and educate a traumatized child, address questions such as what can cause PTSD in young people? and understand how PTSD might affect the education of children at school.
