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Author: Dr. Bryna Siegel
Publisher: Oxford University Press
ISBN: 0199361002
Category : Psychology
Languages : en
Pages : 353
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Book Description
The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have? Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines? Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.
Author: Dr. Bryna Siegel
Publisher: Oxford University Press
ISBN: 0199361002
Category : Psychology
Languages : en
Pages : 353
Get Book Here
Book Description
The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have? Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines? Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.
Author: Eric Garcia
Publisher: Harvest
ISBN: 1328587843
Category : Biography & Autobiography
Languages : en
Pages : 309
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Book Description
Garcia began writing about autism because he was frustrated by the media's coverage of the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. As a Latino, a graduate of the University of North Carolina, and working as a journalist covering politics in Washington D.C., Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity; they don't need to be fixed. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. -- adapted from jacket
Author: Amy S. F. Lutz
Publisher: Cornell University Press
ISBN: 1501751409
Category : Family & Relationships
Languages : en
Pages : 156
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Book Description
In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience—the positive and the negative—as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly—and humanly—examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.
Author: Steven K. Kapp
Publisher: Springer Nature
ISBN: 9811384371
Category : Social Science
Languages : en
Pages : 335
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Book Description
This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.
Author: Kristien Hens
Publisher: Open Book Publishers
ISBN: 1800642334
Category : Philosophy
Languages : en
Pages : 184
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Book Description
Kristien Hens succeeds in weaving together experiential expertise of both people with autism and their parents, scientific insights and ethics, and does so with great passion and affection for people with autism (with or without mental or other disabilities). In this book she not only asks pertinent questions, but also critically examines established claims that fail to take into account the criticism and experiences of people with autism. Sam Peeters, author of Autistic Gelukkig (Garant, 2018) and Gedurfde vragen (Garant, 2020); blog @ Tistje.com What does it mean to say that someone is autistic? Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtful, wide-ranging book, Kristien Hens examines a number of perspectives on autism, including psychiatric, biological, and philosophical, to consider different ways of thinking about autism, as well as its meanings to those who experience it, those who diagnose it, and those who research it. Hens delves into the history of autism and its roots in the work of Leo Kanner and Hans Asperger to inform a contemporary ethical analysis of the models we use to understand autism today. She explores the various impacts of a diagnosis on autistic people and their families, the relevance of disability studies, the need to include autistic people fully in discussions about (and research on) autism, and the significance of epigenetics to future work on autism. Hens weaves together a variety of perspectives that guide the reader in their own ethical reflections about autism. Rich, accessible, and multi-layered, this is essential reading for philosophers, educational scientists, and psychologists who are interested in philosophical-ethical questions related to autism, but it also has much to offer to teachers, allied health professionals, and autistic people themselves.
Author: Valerie Gilpeer
Publisher: HarperCollins
ISBN: 0062984365
Category : Family & Relationships
Languages : en
Pages : 241
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Book Description
A remarkable memoir by a mother and her autistic daughter who’d long been unable to communicate—until a miraculous breakthrough revealed a young woman with a rich and creative interior life, a poet, who’d been trapped inside for more than two decades. “I have been buried under years of dust and now I have so much to say.” These were the first words twenty-five-year-old Emily Grodin ever wrote. Born with nonverbal autism, Emily’s only means of communicating for a quarter of a century had been only one-word responses or physical gestures. That Emily was intelligent had never been in question—from an early age she’d shown clear signs that she understood what was going on though she could not express herself. Her parents, Valerie and Tom, sought every therapy possible in the hope that Emily would one day be able to reveal herself. When this miraculous breakthrough occurred, Emily was finally able to give insight into the life, frustrations, and joys of a person with autism. She could tell her parents what her younger years had been like and reveal all the emotions and intelligence residing within her; she became their guide into the autistic experience. Told by Valerie, with insights and stories and poetry from Emily, I Have Been Buried Under Years of Dust highlights key moments of Emily’s childhood that led to her communication awakening—and how her ability rapidly accelerated after she wrote that first sentence. As Valerie tells her family’s story, she shares the knowledge she’s gained from working as a legal advocate for families affected by autism and other neurological disorders. A story of unconditional love, faith in the face of difficulty, and the grace of perseverance and acceptance, I Have Been Buried Under Years of Dust is an evocative and affecting mother-daughter memoir of learning to see each other for who they are.
Author: John Donvan
Publisher: Crown
ISBN: 0307985687
Category : Psychology
Languages : en
Pages : 690
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Book Description
PULITZER PRIZE FINALIST • NEW YORK TIMES BESTSELLER • “Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism.”—Walter Isaacson, #1 New York Times bestselling author of The Code Breaker “Remarkable . . . A riveting tale about how a seemingly rare childhood disorder became a salient fixture in our cultural landscape.”—The Wall Street Journal (Ten Best Nonfiction Books of the Year) The inspiration for the PBS documentary, In a Different Key In 1938, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, from the civil rights battles waged by the families of those who have it to the fierce debates among scientists over how to define and treat it. Unfolding over decades, In a Different Key is a beautifully rendered history of people determined to secure a place in the world for those with autism—by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different. This is also a story of fierce controversies—from the question of whether there is truly an autism “epidemic,” and whether vaccines played a part in it; to scandals involving “facilitated communication,” one of many unsuccessful treatments; to stark disagreements about whether scientists should pursue a cure for autism; to compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death. By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.
Author: Ron Fournier
Publisher: Harmony
ISBN: 0804140502
Category : Family & Relationships
Languages : en
Pages : 242
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Book Description
"[A]n eloquent, brave, big-hearted book…about the timeless anxieties and emotions of parenthood, and the modern twists thereon.” —James Fallows, The Atlantic Love That Boy is a uniquely personal story about the causes and costs of outsized parental expectations. What we want for our children—popularity, normalcy, achievement, genius—and what they truly need—grit, empathy, character—are explored by National Journal’s Ron Fournier, who weaves his extraordinary journey to acceptance around the latest research on childhood development and stories of other loving-but-struggling parents.
Author: Shaina Rudolph
Publisher: American Psychological Association
ISBN: 143381918X
Category : Juvenile Fiction
Languages : en
Pages : 22
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Book Description
This is the story of Zane, a zebra with autism who worries that his differences make him stand out from his peers. With careful guidance from his mother, Zane learns that autism is only one of many qualities that make him special. Contains a “Note to Parents” by Drew Coman, PhD, and Ellen Braaten, PhD, as well as a Foreword by Alison Singer, President of the Autism Science Foundation.
Author: Sam Goldstein
Publisher: Guilford Publications
ISBN: 1462533175
Category : Psychology
Languages : en
Pages : 461
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Book Description
This authoritative resource, now thoroughly revised for DSM-5, has set the standard for the comprehensive assessment of autism spectrum disorder (ASD). Leading experts demonstrate how to craft a scientifically grounded profile of each child’s strengths and difficulties, make a formal diagnosis, and use assessment data to guide individualized intervention in clinical and school settings. Chapters review state-of-the-art instruments and approaches for evaluating specific areas of impairment in ASD and co-occurring emotional and behavioral disorders. Considerations in working with children of different ages are highlighted. With a primary focus on children, several chapters also address assessment of adolescents and adults. New to This Edition *Chapter on key implications of DSM-5 diagnostic criteria, plus related updates throughout the volume. *Chapter on advances in early identification (ages 0–3). *Chapter with in-depth case examples illustrating the evaluation decision-making process and common diagnostic challenges. *Chapters on pseudoscience (including strategies for advising parents) and future directions in the field. *Current assessment data, numerous new and revised measures, and cutting-edge screening approaches.
