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Author: Special Stars Publishing
Publisher: Fuzionpress
ISBN: 9781946195029
Category :
Languages : en
Pages :
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Book Description
The Many Faces of Down Syndrome, Stories of Inspiration, Hope, and Laughter is a collection of stories from families caring for people with Down syndrome. Having had some of the same experiences as many of the contributors of the book of course made me identify with the stories, but it was more than that. I felt connected with them as a parent, as a caregiver, and more simply as a human. This book will help and inspire so many more than the people I originally intended it to reach. Whether you have a person with Down syndrome in your life or not, this book will enhance your understanding and deepen your empathy for families who are blessed to have someone with Down syndrome in their midst. Follow these 15 amazing people with Down syndrome on their life journey. From a year old to sixty the families share their stories of inspiration, hope, and laughter.
Author: Special Stars Publishing
Publisher: Fuzionpress
ISBN: 9781946195029
Category :
Languages : en
Pages :
Get Book Here
Book Description
The Many Faces of Down Syndrome, Stories of Inspiration, Hope, and Laughter is a collection of stories from families caring for people with Down syndrome. Having had some of the same experiences as many of the contributors of the book of course made me identify with the stories, but it was more than that. I felt connected with them as a parent, as a caregiver, and more simply as a human. This book will help and inspire so many more than the people I originally intended it to reach. Whether you have a person with Down syndrome in your life or not, this book will enhance your understanding and deepen your empathy for families who are blessed to have someone with Down syndrome in their midst. Follow these 15 amazing people with Down syndrome on their life journey. From a year old to sixty the families share their stories of inspiration, hope, and laughter.
Author: Jason Kingsley
Publisher: HMH
ISBN: 0547350856
Category : Biography & Autobiography
Languages : en
Pages : 219
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Book Description
Award winner: “Hearing about Down syndrome directly from these young men has a good deal more impact than reading any guide from a professional.” —Booklist This book is in Mitchell and Jason’s own words. . . . We wanted readers to have a true-to-life sense of their charm, their directness, their humor and warmth, and, yes, their intelligence. At ages nineteen and twenty-two, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, dreams―and their experiences growing up with Down syndrome. Their frank discussion of what mattered most in their lives―careers, friendships, school, sex, marriage, finances, politics, and independence―earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made for a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. In this edition, with a new afterword, the authors also discuss their lives since then: milestones and challenges, and changes both expected and unexpected. “Their parents were told to expect nothing. But Jason Kingsley and Mitchell Levitz were lucky, because their parents didn’t listen. They gave their sons that chance to show how far they could go—and they’ve astounded everyone!” —Jane Pauley “This single volume will do more to change stereotypes about Down syndrome than any book I have read. These two young men steal our hearts and wash away generations of misconceptions.” —Mary L. Coleman, MD, Emeritus, Georgetown University “An excellent illustration of what it’s like to have Down syndrome . . . Most moving here are the portrayals of strong family relationships.” —Publishers Weekly “Will open eyes and touch the heart.” —Library Journal
Author:
Publisher:
ISBN:
Category : Down syndrome
Languages : en
Pages : 20
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Book Description
Author: Ellen Yack
Publisher: Future Horizons
ISBN: 1932565450
Category : Family & Relationships
Languages : en
Pages : 211
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Book Description
A useful practical guide for professionals, parents, teachers and other caregivers. It presents detailed assessment tools as well as consistent strategies for managing challenging behavior. Successful sensory integration techniques include ... advice for a wide range of specific problems ... for adapting home, school, and childcare environments ... [and] creative suggestions for activities, equipment, and resources.
Author: William I. Cohen
Publisher: John Wiley & Sons
ISBN: 0471461229
Category : Health & Fitness
Languages : en
Pages : 493
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Book Description
Der Band bietet einen aktuellen Überblick über klinische, entwicklungsbezogene, psychosoziale, erziehungs- und berufsbezogene Fragen bei Patienten mit Down Syndrom. Er diskutiert auch die Konsequenzen des Human-Genom-Projektes und die Sequenzierung des Chromosom 21. Erörtert aktuellste Entwicklungen, u.a. zum Thema Sexualität, Einbeziehung, Übergang ins Erwachsenenalter und Rechtsprechung. Behandelt die aktuellsten Neuerungen der "Health Care Guidelines for Individuals with Down Syndrome". Enthält auch Material zu mitunter kontrovers diskutierten alternativen und unkonventionellen Therapieansätzen.
Author: Dennis McGuire
Publisher:
ISBN: 9781606132852
Category : Family & Relationships
Languages : en
Pages : 466
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Book Description
This thoroughly updated second edition of MENTAL WELLNESS IN ADULTS WITH DOWN SYNDROME is upbeat and accessible in tone, yet encyclopedic in scope. The size of the book reflects both the breadth of the authors' knowledge--acquired as cofounders of the first medical clinic dedicated solely to the care of adults with Down syndrome--and the number of psychosocial issues and mental disorders that can affect people with Down syndrome. It's the go-to guide for parents, health practitioners, and caregivers who support teens and adults with Down syndrome. MENTAL WELLNESS emphasizes that understanding and appreciating both the strengths and challenges of people with Down syndrome is the key to promoting good mental health. It shows readers how to distinguish between bona fide mental health issues and common characteristics of Down syndrome--quirks or coping strategies. For example, although talking to oneself can be a sign of psychosis, many adults with Down syndrome use self-talk as an effective problem-solving strategy. The second edition includes new chapters on sensory issues (written by Dr. Katie Frank) and regression, expanded and now separate chapters on communication, concrete thinking, and visual memory, and an extensively updated chapter on Alzheimer's disease citing abundant new research. Other chapters cover a range of conditions and assessment and treatment options: What Is Normal? Self-Esteem & Self-Image Self-Talk Grooves & Flexibility Life-Span Issues Social Skills Mood & Anxiety Disorders Obsessive-Compulsive Disorder Psychotic Disorders Eating Refusal Challenging Behavior Self-Injurious Behavior Autism Tics, Tourette Syndrome & Stereotypies While it's not inevitable that people with Down syndrome will experience mental health problems, certain biological differences and environmental stressors can create greater susceptibility. Assessment and treatment options are detailed for each condition. With this guide, caregivers will be able to foster good mental health and troubleshoot challenging mental health issues.
Author: Tiziana Vazquez
Publisher: AuthorHouse
ISBN: 1477291881
Category : Family & Relationships
Languages : en
Pages : 111
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Book Description
Mika is a nine-year-old girl that sees the world differently than anyone else. Even though she is going through what every girl may one-day face, fighting with her best friend and feeling like an outcast, she is not like every other girl. Her mother, Ava and brother, Javi stand by her side while Mika struggles endlessly to feel normal, when instead she must embrace her uniqueness. Children with Down syndrome, like Mika, are angels that help us see the world with our hearts, instead of our eyes.
Author: David Egan
Publisher: Rowman & Littlefield
ISBN: 1633886298
Category : Biography & Autobiography
Languages : en
Pages : 177
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Book Description
In this inspiring memoir, David Egan tells his own story, giving us a window into a life spent pushing boundaries. With a family undaunted by his diagnosis of Down syndrome, Egan learned early to speak up for himself. He has since become a powerful advocate for all people with disabilities. His optimistic perspective rejected the limits of stereotypes and the expectations of others. He shares how the support of loving family and friends led him to overcome challenges and blaze new trails. It started with swimming and baseball, when he earned places on his neighborhood teams, competing fiercely and as a fully accepted teammate. He writes firsthand of the empowering feeling of being fully included in elementary school and at work as an adult. Egan has earned positions at prestigious companies and a distinguished fellowship on Capitol Hill. He sits on the boards of influential advocacy organizations. He has addressed audiences worldwide and has played a powerful global advocacy role with Special Olympics. He allowed himself to dream big, and he encourages everyone to do the same. His lesson to all of us is to focus on our shared humanity despite our differences--and our diagnoses. This hopeful memoir will encourage everyone to make the most of their lives.
Author: Alison Piepmeier
Publisher: NYU Press
ISBN: 147986546X
Category : Social Science
Languages : en
Pages : 195
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Book Description
What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today’s world. Piepmeier takes us inside her own daughter’s life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.
Author: Marie-Claude Potier
Publisher: Frontiers Media SA
ISBN: 2889450457
Category :
Languages : en
Pages : 183
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Book Description
Research on the multiple aspects of cognitive impairment in Down syndrome (DS), from genes to behavior to treatment, has made tremendous progress in the last decade. The study of congenital intellectual disabilities such as DS is challenging since they originate from the earliest stages of development and both the acquisition of cognitive skills and neurodegenerative pathologies are cumulative. Comorbidities such as cardiac malformations, sleep apnea, diabetes and dementia are frequent in the DS population, as well, and their increased risk provides a means of assessing early stages of these pathologies that is relevant to the general population. Notably, persons with DS will develop the histopathology of Alzheimer’s disease (formation of neuritic plaques and tangles) and are at high risk for dementia, something that cannot be predicted in the population at large. Identification of the gene encoding the amyloid precursor protein, its localization to chromosome 21 in the 90’s and realization that all persons with DS develop pathology identified this as an important piece of the amyloid cascade hypothesis in Alzheimer’s disease. Awareness of the potential role of people with DS in understanding progression and treatment as well as identification of genetic risk factors and also protective factors for AD is reawakening. For the first time since DS was recognized, major pharmaceutical companies have entered the search for ameliorative treatments, and phase II clinical trials to improve learning and memory are in progress. Enriched environment, brain stimulation and alternative therapies are being tested while clinical assessment is improving, thus increasing the chances of success for therapeutic interventions. Researchers and clinicians are actively pursuing the possibility of prenatal treatments for many conditions, an area with a huge potential impact for developmental disorders such as DS. Our goal here is to present an overview of recent advances with an emphasis on behavioral and cognitive deficits and how these issues change through life in DS. The relevance of comorbidities to the end phenotypes described and relevance of pharmacological targets and possible treatments will be considerations throughout.
