Raising a Child with Hemophilia PDF Download
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Author: Laureen Kelley
Publisher:
ISBN: 9781938851056
Category :
Languages : en
Pages :
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Book Description
A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.
Author: Laureen Kelley
Publisher:
ISBN: 9781938851056
Category :
Languages : en
Pages :
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Book Description
A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.
Author: Laureen A. Kelley
Publisher:
ISBN:
Category : Hemophilia
Languages : en
Pages : 307
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Book Description
Author: Laureen A. Kelley
Publisher:
ISBN:
Category : Hemophilia
Languages : en
Pages :
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Book Description
Author: Laureen Kelley
Publisher:
ISBN: 9781938851094
Category :
Languages : en
Pages :
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Book Description
Through extensive interviews with children, author Laurie Kelley uncovers how children understand their bleeding disorder through stages of development as defined by Swiss psychologist Jean Piaget. With real examples, handy notes and ample description, Teach Your Child will help parents better educate their children, so they will be less afraid, more compliant and one day able to care for themselves.
Author: Laura Gray
Publisher: Createspace Independent Pub
ISBN: 9781502339959
Category : Medical
Languages : en
Pages : 262
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Book Description
The outlook for children with hemophilia keeps getting better. Treatments are safer, easier to administer and new, longer-acting products are becoming readily available. Specialists at comprehensive hemophilia centers all around the country offer innovative treatments while advancing national standards of care. Experts at these centers give patients and their families access to the latest clinical and research developments. By emphasizing the importance of early diagnosis and intervention to prevent complications, these specialists create an enormous impact on patients' health and long-term well-being. So it's safe to say that there is every reason in the world for parents of children who have been diagnosed with hemophilia to be hopeful about their child's future.Nevertheless, having a child with a chronic illness presents many challenges. There is much to learn, much to understand, a lot to teach and a new reality to adjust to. Concerns about bleeds, joint damage, inhibitors and pain are very real. We interviewed parents whose children are treated at the Boston Hemophilia Center about their experiences. In this book they share what it's been like to raise a child with hemophilia from birth to age 6.Through their stories, we appreciate that the journey from receiving an initial diagnosis to feeling capable and in control of the situation can take more than connecting with a team at a treatment center. Home care nurses, other families who have children with hemophilia and myriad of other resources all play important roles in a newly diagnosed family's capacity to cope. These families understand what it's like to have a child with hemophilia like no one else can. The guidance, understanding and practical tips they offer from their own experience are gifts to others who are embarking on this journey. In this book, you'll find excerpts of conversations with 19 parents (15 mothers and four fathers) of children with hemophilia A or B. The children have mild, moderate or severe hemophilia and come from a variety of backgrounds. Some parents knew that they might have an affected child, while it came as a complete surprise to others. Despite each family's particular challenges, they have all faced similar heartaches and struggles, made huge achievements and seen unanticipated rewards. This book is their gift to you.
Author: Margaret W. Hilgartner
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 234
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Book Description
Author: Beverly Britton
Publisher:
ISBN: 9781560069065
Category : Juvenile Nonfiction
Languages : en
Pages : 118
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Book Description
Discusses the history of the disease, how it is diagnosed, and the treatments available.
Author: Akbar Dorgalaleh
Publisher: Springer
ISBN: 3319767232
Category : Medical
Languages : en
Pages : 396
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Book Description
This book describes in detail the clinical presentation, diagnosis, and management of a wide range of congenital bleeding disorders. It will assist readers in overcoming the significant challenges involved in clinical and laboratory diagnosis and in providing effective clinical care that makes optimal use of new products, including recombinant factor concentrate. The coverage ranges from hemophilia A and B and von Willebrand disease to rare bleeding disorders such as congenital factor V, factor X, factor XI, and factor XIII deficiency and inherited platelet function disorders. The exceptional attention to rarer conditions is of particular importance given the considerable risk of overlooking them during diagnosis, with potential consequences for disease-related morbidity and mortality. The authors are acknowledged specialists in the field from across the world who have particular expertise in the disorder that they discuss. The book will be of value to hematologists, oncologists, pediatricians, laboratory specialists and technicians, general physicians, and trainees.
Author: Rose George
Publisher: Metropolitan Books
ISBN: 162779638X
Category : Science
Languages : en
Pages : 230
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Book Description
An eye-opening exploration of blood, the lifegiving substance with the power of taboo, the value of diamonds and the promise of breakthrough science Blood carries life, yet the sight of it makes people faint. It is a waste product and a commodity pricier than oil. It can save lives and transmit deadly infections. Each one of us has roughly nine pints of it, yet many don’t even know their own blood type. And for all its ubiquitousness, the few tablespoons of blood discharged by 800 million women are still regarded as taboo: menstruation is perhaps the single most demonized biological event. Rose George, author of The Big Necessity, is renowned for her intrepid work on topics that are invisible but vitally important. In Nine Pints, she takes us from ancient practices of bloodletting to the breakthough of the "liquid biopsy," which promises to diagnose cancer and other diseases with a simple blood test. She introduces Janet Vaughan, who set up the world’s first system of mass blood donation during the Blitz, and Arunachalam Muruganantham, known as “Menstrual Man” for his work on sanitary pads for developing countries. She probes the lucrative business of plasma transfusions, in which the US is known as the “OPEC of plasma.” And she looks to the future, as researchers seek to bring synthetic blood to a hospital near you. Spanning science and politics, stories and global epidemics, Nine Pints reveals our life's blood in an entirely new light. Nine Pints was named one of Bill Gates recommended summer reading titles for 2019.
Author: Foster Cline
Publisher:
ISBN:
Category : Child development deviations
Languages : en
Pages : 388
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Book Description
Does your child have a health condition which requires special medical or dietary care? Whatever the health issue, you will learn the essential parenting skills you need to help your child comply with medical requirements, cope well with health challenges, and live a hope-filled life. Get practical and compassionate answers to your toughest questions as you discover effective ways to communicate about medical issues with children of all ages. This book will teach you how to: . Encourage your child to love life despite health challenges. . Handle refusal to take medication and do medical treatments. . Skillfully respond to your child's special emotional needs. . Avoid power struggles and other common parenting traps. . Promote responsibility without nagging or lecturing. . Navigate sibling, family and couple relationship issues. . Enable your child to make good self-care decisions.
