Parents as Care Managers

Parents as Care Managers PDF Author: Gillian Bridge
Publisher: Routledge
ISBN: 0429813449
Category : Social Science
Languages : en
Pages : 472

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Book Description
First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children’s lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.

Parents as Care Managers

Parents as Care Managers PDF Author: Gillian Bridge
Publisher: Routledge
ISBN: 0429813449
Category : Social Science
Languages : en
Pages : 472

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Book Description
First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children’s lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.

Parents as care managers: the experiences of those caring for young children with cerebral palsy

Parents as care managers: the experiences of those caring for young children with cerebral palsy PDF Author: Gillian Ethel Marion Bridge
Publisher:
ISBN:
Category :
Languages : en
Pages : 792

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Book Description


Social Work Visions from Around the Globe

Social Work Visions from Around the Globe PDF Author: Anna Metten
Publisher: Routledge
ISBN: 1136421351
Category : Health & Fitness
Languages : en
Pages : 502

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Book Description
Increase the effectiveness of the services you provide to clients Social Work Visions from Around the Globe examines the fundamental principles and dilemmas of social work with people whose health is under threat. This valuable resource was compiled from material presented at the Third International Conference on Social Work in Health and Mental Health in Tampere, Finland. The book explores key issues in social work in health and mental health, from the early historical roots of social work in health to developing a human rights perspective on the lives of men who face capital punishment. Using tables, figures, case studies, and interviews, the text will help you provide holistic, client-based care to children, men, women, and families. Social Work Visions from Around the Globe is divided into two sections: the first half discusses the position of individuals and families as users of health and mental health care services. Specific cases in the book include social work situations for children with disabilities, the mentally ill, the elderly, cancer, and HIV/AIDS. This text includes research and findings on the challenges and solutions faced by social workers in North America, Australia, Europe, Asia, and Africa. In the second half, Social Work Visions from Around the Globe focuses on various approaches to social work in health and mental health that address: the diversity of societies strengthening the voice of the social worker and service user the expertise of service users development of methods family life and childhood in global comparison human rights issues in social work

Cerebral Palsy

Cerebral Palsy PDF Author: Freeman Miller
Publisher: JHU Press
ISBN: 0801883547
Category : Health & Fitness
Languages : en
Pages : 537

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Book Description
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

What Mothers Do Especially When It Looks Like Nothing

What Mothers Do Especially When It Looks Like Nothing PDF Author: Naomi Stadlen
Publisher: Penguin
ISBN: 9781585425914
Category : Family & Relationships
Languages : en
Pages : 340

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Book Description
Instead of preaching what mothers ought to do, psychotherapist Naomi Stadlen explains what mothers already do in the course of any exhausting day's work. Drawing from countless conversations with hundreds of mothers spanning more than a decade, What Mothers Do provides lucid insight into the true experience of motherhood and answers the perennial question common to mothers everywhere: What have I done all day? Stadlen's wise reflections, threaded throughout with the voices of real mothers, explore unsentimental reactions to motherhood-resentment, guilt, splintered identity, crippling inefficiency, and deadening fatigue. Yet the overriding sentiment is one of empowerment and wonder, as Stadlen illustrates how seemingly insignificant skills such as responding to a baby's colicky cry, being instantly interruptible, or soothing an overstimulated child to sleep profoundly contribute to an individual's socialization, self-worth, and curiosity. Remarkably perceptive and heartening, What Mothers Do will resonate with mothers everywhere in search of understanding and wisdom.

Ibss: Sociology: 1999

Ibss: Sociology: 1999 PDF Author: Compiled by the British Library of Polit
Publisher: Psychology Press
ISBN: 9780415240116
Category : Reference
Languages : en
Pages : 680

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Book Description
IBSS is the essential tool for librarians, university departments, research institutions and any public or private institution whose work requires access to up-to-date and comprehensive knowledge on the social sciences.

The Lived Experience of Mothers Caring for an Adolescent Or Young Adult with Severe Cerebral Palsy

The Lived Experience of Mothers Caring for an Adolescent Or Young Adult with Severe Cerebral Palsy PDF Author: Agnes M. Burkhard
Publisher:
ISBN:
Category : Cerebral palsied
Languages : en
Pages : 246

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Book Description
Cerebral palsy is one of the most common causes of childhood disability, and a major cause of severe disability in children. Mothers of adolescents and young adults with severe CP often assume a role exceeding the usual normative activities of parenting in relation to the intensity, complexity, and temporal nature of the family caregiving experience. The aim of this phenomenologic inquiry was to explore the lived experience of maternal caregiving as experienced by mothers caring for adolescents and young adults with severe CP. Furthermore, the study sought to examine the essential aspects of this human experience using the phenomenological contextual processing and analysis method proposed by van Manen (1990). Eleven mothers were interviewed using a semi-structured interview format. One overarching theme, A Different Life, and four inter-related essential themes emerged from the narratives. The overarching theme, A Different Life, was revealed in the mothers' stories of their unexpected roles as the parent of a child with severe disabilities. The first essential theme, Managing an Unexpected Life, was uncovered in the experiential descriptions of a maternal caregiver role that included elements that differed from mothers of typically developing children. The second essential theme, Finding My Own Way, was associated with mothers seeking and finding their own approaches to balancing the demands of caregiving and family life. The third essential theme, Serving as My Child's Voice, was revealed in the advocacy activities on behalf of their child and other community members with disabilities; and the fourth essential theme, Facing an Uncertain Future, was uncovered in experiential data suggesting uncertainty associated with their child's age-triggered transitions in the health care and educational settings, and with the prospect of maternal caregiving in the future. Future research is needed to gain a better understanding of the support needs of mothers caring for adolescents and young adults with severe physical disabilities. This study suggests the need for improvements in the delivery of family-centered health care services for adolescents and young adults with severe CP and their families, and the development of interventions to support and sustain family caregivers over the prolonged course of maternal caregiving.

Learning Disabilities

Learning Disabilities PDF Author: Bob Gates
Publisher: Elsevier Health Sciences
ISBN: 0443101981
Category : Medical
Languages : en
Pages : 746

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Book Description
This title is directed primarily towards health care professionals outside of the United States. It is the authoritative textbook for students of learning disabilities covering a wide variety of topics. It is relevant not only for nursing courses, but also for care workers, OTs, and other professional and non-professional carers. The new edition has been completely updated and includes the latest evidence for practice. There are new chapters which means the book provides comprehensive coverage of learning disablities throughout a person's life. There are also new contributors, including people with learning disabilities. Each chapter is supported by information on further reading and other resources.

Physiotherapy and Occupational Therapy for People with Cerebral Palsy

Physiotherapy and Occupational Therapy for People with Cerebral Palsy PDF Author: Karen Dodd
Publisher: John Wiley & Sons
ISBN: 1898683689
Category : Medical
Languages : en
Pages : 337

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Book Description
This book is a practical resource for physiotherapists and occupational therapists who support people with cerebral palsy, helping them to solve the problems with movement and other impairments that so often accompany cerebral palsy, so that they can be more active and better able to participate in roles such as study, work, recreation and relationships. The first chapters provide the background to the clinical reasoning approach that informs the whole text, as well as an overview of therapeutic interventions. The subsequent chapters present clinical situations that therapists will encounter in the course of their work with individuals with cerebral palsy across the lifespan. Each chapter describes a case in detail, including the reasoning behind assessment and treatment choices, interventions and outcomes. The themes emphasized throughout the book are the use of the clinical reasoning approach of the intervention process model, the International Classification of Functioning, Disability and Health as a framework to help therapists inform patient and family decision-making, family-centred approaches in developing and implementing therapeutic strategies, and multidisciplinary team work.

Social Work in Europe

Social Work in Europe PDF Author:
Publisher:
ISBN:
Category : Human services
Languages : en
Pages : 236

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Book Description