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Author: Marion E. Broome
Publisher:
ISBN:
Category :
Languages : en
Pages : 111
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Author: Marion E. Broome
Publisher:
ISBN:
Category :
Languages : en
Pages : 111
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Book Description
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309133386
Category : Medical
Languages : en
Pages : 445
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Book Description
In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.
Author: Priscilla Alderson
Publisher: Taylor & Francis
ISBN: 1000852911
Category : Family & Relationships
Languages : en
Pages : 232
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Book Description
One mother described part of the complications of consenting to her one-week-old child’s high-risk heart surgery. ‘I can’t imagine her being any more precious to me than she is now. I can hardly bear feeling so close to her as it is...I can’t wait until I see her again. It’s worse than being in love.’ Can emotional parents be rational enough to give informed proxy consent? Research observations and interviews with many parents and practitioners in the wards, clinics and medical meetings in two London hospitals show how parents’ moral emotions of fear and hope are central to their informed decision-making and voluntary consent. This record from the 1980s offers useful historical comparisons with today’s paediatric cardiac services in both the remarkable progress over nearly 40 years and the continuing concerns.
Author: Kimberly Hoagwood
Publisher: Routledge
ISBN: 1317824601
Category : Psychology
Languages : en
Pages : 334
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Book Description
Studies involving children with mental, emotional, or behavioral problems--or their families--have to meet certain standards of research ethics. This book contains chapters on the kinds of ethical dilemmas that typically occur in different types of studies of children, and then presents 65 real-world cases from experts who study children's mental health. These experts offer practical suggestions for how to handle these dilemmas. Chapters on the perspectives of parents, regulators, and bioethicists provide additional points of view on these issues. Written in down-to-earth language, this book will be useful for professionals who study children, for those who train students in research methods, and for parents who are thinking about participating in research studies. In attempting to bridge the apparent gap between ethics and science, the editors close this volume on a note commonly sounded by researchers: more research is needed. Yet in this area, a new kind of research is required. The science of scientific ethics must be developed and expanded, and better understanding of the determinants and circumstances under which children can comprehend and evaluate risks and benefits is needed. Likewise, fuller knowledge of the contextual factors affecting children's and families' consent to participate in research is essential. In particular, development of scales to assess children's ability to comprehend risk-benefit issues, studies of families' reactions to research procedures, and empirical data on the impact of various forms of participant reimbursement will advance both science and ethics. This volume should spur further research, serving as a guide for current investigators, participating families, institutional review boards, and policymakers who shape the research enterprise.
Author: Betty Ferrell
Publisher:
ISBN: 0190244186
Category : Family & Relationships
Languages : en
Pages : 161
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Book Description
Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
Author: Ruiping Fan
Publisher: Springer
ISBN: 3319121200
Category : Philosophy
Languages : en
Pages : 281
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Book Description
This volume addresses the proper character of patient informed consent to medical treatment and clinical research. The goal is critically to explore the current individually oriented approach to informed consent which grew out of the dominant bioethics movement that arose in the United States in the 1970s. In contrast to that individually oriented approach, this volume explores the importance of family-oriented approaches to informed consent for medical treatment and clinical research. It draws on both East Asian moral resources as well as a critical response to the ways in which the practice of informed consent has developed in the United States
Author: Gary B. Melton
Publisher: Springer Science & Business Media
ISBN: 1468442899
Category : Psychology
Languages : en
Pages : 364
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Author: Mary Fran Hazinski
Publisher: Elsevier Health Sciences
ISBN: 0323020402
Category : Medical
Languages : en
Pages : 1174
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Book Description
Now completely up to date to meet the needs of today's pediatric nurses, Mary Fran Hazinski's Nursing Care of the Critically Ill Child, 3rd Edition, remains the foundational text of pediatric critical care nursing. Known for its outstanding organization and clear descriptions, this comprehensive reference details the unique care required for critically ill children with thorough discussions of physiology, pathophysiology, pharmacology, collaborative management, and nursing management. Ten new chapters, new advanced practice content, and new nurse contributors and reviewers ensure that this classic text continues to be the essential resource for the care of critically ill children. Details differences in caring for critically ill children as compared with caring for adults: how to modify assessment procedures, consider aspects of psychosocial development, and examine developmental aspects of various body systems. Provides comprehensive coverage of physiology, pathophysiology, pharmacology, and nursing management related to care of the critically ill child. Includes detailed Nursing Care Plans for select disorders. Contains helpful appendices such as pediatric drug dosages, central venous catheter care, and pediatric fluid requirements. Features Evolve online resources with additional content for further study of related topics, including tables for ease of recollection of material and additional references. Contains 10 all-new chapters, including Pharmacokinetics and Pharmacodynamics; Shock, Cardiac Arrest, and Resuscitation; Mechanical Support of Cardiopulmonary Function; Fluid, Electrolyte, and Endocrine Problems; Immunology and Infectious Disorders; Transplantation and Organ Donation; Toxicology/Poisonings; Fundamentals of Quality Improvement and Patient Safety; Clinical Informatics; and Ethical Issues in Pediatric Critical Care Features nurse contributors and reviewers for every chapter, making this edition a truly collaborative text. Provides information vital to the advanced practice nurse, such as assessment tools and severity of illness management. Includes numerous Pearls that highlight practical wisdom from experts in pediatric critical care nursing.
Author: Charlotte Kenton
Publisher:
ISBN:
Category : Informed consent (Medical law)
Languages : en
Pages : 28
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Author: Willard Gaylin
Publisher: Springer Science & Business Media
ISBN: 9780306408601
Category : Law
Languages : en
Pages : 338
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