Barriers to and Motivations for Referral to Cancer Genetics Clinics PDF Download
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Author: Carolyn F. Prochniak
Publisher:
ISBN:
Category :
Languages : en
Pages : 30
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Book Description
Although it is well known that under-referral of colon cancer patients to cancer genetics clinics has been a chronic problem, no study has yet to examine why physicians may be ordering testing independently over referring to cancer genetics clinics. The current study explored variables which may impact a physician's preference to order testing independently or refer to genetics services. A self-designed online questionnaire was distributed to the membership of the American College of Gastroenterology and the American Society of Colorectal Surgeons. Motivators to refer to cancer genetics clinics rather than order testing in their own office included fear of genetic discrimination issues and the belief that patients benefit from genetic counseling about the risks, benefits and consequences of testing. These results suggest that in order to increase referrals, genetic counselors need to embrace a marketing strategy that delineates the unique psychosocial benefits patients receive from participating in genetic counseling.
Author: Carolyn F. Prochniak
Publisher:
ISBN:
Category :
Languages : en
Pages : 30
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Book Description
Although it is well known that under-referral of colon cancer patients to cancer genetics clinics has been a chronic problem, no study has yet to examine why physicians may be ordering testing independently over referring to cancer genetics clinics. The current study explored variables which may impact a physician's preference to order testing independently or refer to genetics services. A self-designed online questionnaire was distributed to the membership of the American College of Gastroenterology and the American Society of Colorectal Surgeons. Motivators to refer to cancer genetics clinics rather than order testing in their own office included fear of genetic discrimination issues and the belief that patients benefit from genetic counseling about the risks, benefits and consequences of testing. These results suggest that in order to increase referrals, genetic counselors need to embrace a marketing strategy that delineates the unique psychosocial benefits patients receive from participating in genetic counseling.
Author:
Publisher: ScholarlyEditions
ISBN: 1490109560
Category : Medical
Languages : en
Pages : 1159
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Book Description
Issues in Genetic Medicine / 2013 Edition is a ScholarlyEditions™ book that delivers timely, authoritative, and comprehensive information about Human Genomics. The editors have built Issues in Genetic Medicine: 2013 Edition on the vast information databases of ScholarlyNews.™ You can expect the information about Human Genomics in this book to be deeper than what you can access anywhere else, as well as consistently reliable, authoritative, informed, and relevant. The content of Issues in Genetic Medicine / 2013 Edition has been produced by the world’s leading scientists, engineers, analysts, research institutions, and companies. All of the content is from peer-reviewed sources, and all of it is written, assembled, and edited by the editors at ScholarlyEditions™ and available exclusively from us. You now have a source you can cite with authority, confidence, and credibility. More information is available at http://www.ScholarlyEditions.com/.
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309047986
Category : Medical
Languages : en
Pages : 353
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Book Description
Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.
Author: Aamir Ahmad
Publisher: Springer Nature
ISBN: 3030203018
Category : Medical
Languages : en
Pages : 427
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Book Description
Resistance to therapies, both targeted and systemic, and metastases to distant organs are the underlying causes of breast cancer-associated mortality. The second edition of Breast Cancer Metastasis and Drug Resistance brings together some of the leading experts to comprehensively understand breast cancer: the factors that make it lethal, and current research and clinical progress. This volume covers the following core topics: basic understanding of breast cancer (statistics, epidemiology, racial disparity and heterogeneity), metastasis and drug resistance (bone metastasis, trastuzumab resistance, tamoxifen resistance and novel therapeutic targets, including non-coding RNAs, inflammatory cytokines, cancer stem cells, ubiquitin ligases, tumor microenvironment and signaling pathways such as TRAIL, JAK-STAT and mTOR) and recent developments in the field (epigenetic regulation, microRNAs-mediated regulation, novel therapies and the clinically relevant 3D models). Experts also discuss the advances in laboratory research along with their translational and clinical implications with an overarching goal to improve the diagnosis and prognosis, particularly that of breast cancer patients with advanced disease.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309380499
Category : Medical
Languages : en
Pages : 397
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Book Description
In an era of promising advances in cancer research, there are considerable and even alarming gaps in the fundamental knowledge and understanding of ovarian cancer. Researchers now know that ovarian cancer is not a single disease-several distinct subtypes exist with different origins, risk factors, genetic mutations, biological behaviors, and prognoses. However, persistent questions have impeded progress toward improving the prevention, early detection, treatment, and management of ovarian cancers. Failure to significantly improve morbidity and mortality during the past several decades is likely due to several factors, including the lack of research being performed by specific disease subtype, lack of definitive knowledge of the cell of origin and disease progression, and incomplete understanding of genetic and non-genetic risk factors. Ovarian Cancers examines the state of the science in ovarian cancer research, identifies key gaps in the evidence base and the challenges to addressing those gaps, considers opportunities for advancing ovarian cancer research, and examines avenues for translation and dissemination of new findings and communication of new information to patients and others. This study makes recommendations for public- and private-sector efforts that could facilitate progress in reducing the incidence of morbidity and mortality from ovarian cancers.
Author:
Publisher:
ISBN: 9781900640473
Category : Electronic books
Languages : en
Pages : 281
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Book Description
For adults. There is a pressing need for methodologically sound RCTs to confirm whether such interventions are helpful and, if so, for whom.
Author: Clara L. Gaff
Publisher:
ISBN: 0195369823
Category : Medical
Languages : en
Pages : 312
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Book Description
Genetics is in all senses a family affair. The diagnosis of a genetic condition affects not only the patient and biological family members who may themselves be at risk, but also "family" more generally as support may be sought from those considered kin and who may or may not be at risk themselves. It is considered best practice in genetic consultations to explore who will be informed within the family when a genetic condition or risk is diagnosed, particularly when the health of other family members is at risk. There is little guidance or consensus on how to achieve the implicit goal of informed family members while respecting patient confidentiality, however. There is a need for practitioners to be aware of the dynamics of family communication and to have guidance about how they may sensitively facilitate communication about genetics within families. This handbook facilitates the development of clinical practices relating to family communication about genetics. Relevant theories of family communication are summarized and related to a clinical genetics milieu and, from this, frameworks for practitioners are presented. A book of this nature is particularly timely as the completion of the Human Genome Project will result in an unprecedented amount of information about genetic constitution and health risks becoming available to individuals and their families. The presence of a potentially genetic condition in a family is not a new phenomenon. However, the growth in testing for genetic conditions, common complex conditions and variants that may influence health as well as drug metabolism means that a greater number of individuals will face decisions about communicating this information to their relatives. Many health professionals in all levels of health care will be confronted with issues of responsibility and practice in family communication about genetic information as they become providers of this testing.
Author: Elaine Hsieh
Publisher: John Wiley & Sons
ISBN: 1119496101
Category : Language Arts & Disciplines
Languages : en
Pages : 468
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Book Description
Rethinking Culture in Health Communication An interdisciplinary overview of health communication using a cultural lens—uniquely focused on social interactions in health contexts Patients, health professionals, and policymakers embody cultural constructs that impact healthcare processes. Rethinking Culture in Health Communication explores the ways in which culture influences healthcare, introducing new approaches to understanding social relationships and health policies as a dynamic process involving cultural values, expectations, motivations, and behavioral patterns. This innovative textbook integrates theories and practices in health communication, public health, and medicine to help students relate fundamental concepts to their personal experiences and develop an awareness of how all individuals and groups are shaped by culture. The authors present a foundational framework explaining how cultures can be understood from four perspectives—Magic Consciousness, Mythic Connection, Perspectival Thinking, and Integral Fusion—to examine existing theories, social norms, and clinical practices in health-related contexts. Detailed yet accessible chapters discuss culture and health behaviors, interpersonal communication, minority health and healthcare delivery, cultural consciousness, social interactions, sociopolitical structure, and more. The text features examples of how culture can create challenges in access, process, and outcomes of healthcare services and includes scenarios in which individuals and institutions hold different or incompatible ethical views. The text also illustrates how cultural perspectives can shape the theoretical concepts emerged in caregiver-patient communication, provider-patient interactions, social policies, public health interventions, and other real-life settings. Written by two leading health communication scholars, this textbook: Highlights the sociocultural, interprofessional, clinical, and ethical aspects of health communication Explores the intersections of social relationships, cultural tendencies, and health theories and behaviors Examines the various forms, functions, and meanings of health, illness, and healthcare in a range of cultural contexts Discusses how cultural elements in social interactions are essential to successful health interventions Includes foundational overviews of health communication and of culture in health-related fields Discusses culture in health administration, moral values in social policies, and ethics in medical development Incorporates various aspects and impacts of the COVID-19 pandemic as a cultural phenomenon through the lens of health communication Rethinking Culture in Health Communication is an ideal textbook for courses in health communication, particularly those focused on interpersonal communication, as well as in cross-cultural communication, cultural phenomenology, medical sociology, social work, public health, and other health-related fields.
Author: Sue Friedman
Publisher: JHU Press
ISBN: 1421404451
Category : Health & Fitness
Languages : en
Pages : 320
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Book Description
"Be informed. Be empowered. Be well." If you are concerned that the cancer in your family is hereditary, you face difficult choices. Should you have a blood test that may reveal whether you have a high likelihood of disease? Do you preemptively treat a disease that may never develop? How do you make decisions now that will affect the rest of your life? This helpful, informative guide answers your questions as you confront hereditary breast and ovarian cancer. Developed by Facing Our Risk of Cancer Empowered (FORCE), the nation’s only nonprofit organization dedicated to supporting families affected by hereditary breast and ovarian cancer, this book stands alone among breast and ovarian cancer resources. Equal parts health guide and memoir, it defines complex issues facing previvors and survivors and provides solutions with a fresh, authoritative voice. Written by three passionate advocates for the hereditary cancer community who are themselves breast cancer survivors, Confronting Hereditary Breast and Ovarian Cancer dispels myths and misinformation and presents practical risk-reducing alternatives and decision-making tools. Including information about genetic counseling and testing, preventive surgery, and fertility and family planning, as well as explanations of health insurance coverage and laws protecting genetic privacy, this resource tackles head-on the challenges of living in a high-risk body. Confronting hereditary cancer is a complex, confusing, and highly individual journey. With its unique combination of the latest research, expert advice, and compelling personal stories, this book gives previvors, survivors, and their family members the guidance they need to face the unique challenges of hereditary cancer.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 030946921X
Category : Medical
Languages : en
Pages : 161
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Book Description
The Social Security Administration (SSA) administers two programs that provide benefits based on disability: the Social Security Disability Insurance (SSDI) program and the Supplemental Security Income (SSI) program. This report analyzes health care utilizations as they relate to impairment severity and SSA's definition of disability. Health Care Utilization as a Proxy in Disability Determination identifies types of utilizations that might be good proxies for "listing-level" severity; that is, what represents an impairment, or combination of impairments, that are severe enough to prevent a person from doing any gainful activity, regardless of age, education, or work experience.
