Activism and Marginalization in the AIDS Crisis

Activism and Marginalization in the AIDS Crisis PDF Author: Michael A Hallett
Publisher: Routledge
ISBN: 131795792X
Category : Health & Fitness
Languages : en
Pages : 226

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Book Description
Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of “activism” as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the “successful activism” of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively “handled” and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality. Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent “bio-politics” of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV disease Institutional structures are defined in this book as groups engaged in and defined by the production of various “truths” which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of “truth.” Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various “truths” about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination. HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the “truth.”

Activism and Marginalization in the AIDS Crisis

Activism and Marginalization in the AIDS Crisis PDF Author: Michael A Hallett
Publisher: Routledge
ISBN: 1317957938
Category : Health & Fitness
Languages : en
Pages : 219

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Book Description
Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of “activism” as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the “successful activism” of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively “handled” and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality.Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent “bio-politics” of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV diseaseInstitutional structures are defined in this book as groups engaged in and defined by the production of various “truths” which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of “truth.” Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various “truths” about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination.HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the “truth.”

To Make the Wounded Whole

To Make the Wounded Whole PDF Author: Dan Royles
Publisher: UNC Press Books
ISBN: 1469659514
Category : Social Science
Languages : en
Pages : 332

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Book Description
In the decades since it was identified in 1981, HIV/AIDS has devastated African American communities. Members of those communities mobilized to fight the epidemic and its consequences from the beginning of the AIDS activist movement. They struggled not only to overcome the stigma and denial surrounding a "white gay disease" in Black America, but also to bring resources to struggling communities that were often dismissed as too "hard to reach." To Make the Wounded Whole offers the first history of African American AIDS activism in all of its depth and breadth. Dan Royles introduces a diverse constellation of activists, including medical professionals, Black gay intellectuals, church pastors, Nation of Islam leaders, recovering drug users, and Black feminists who pursued a wide array of grassroots approaches to slow the epidemic's spread and address its impacts. Through interlinked stories from Philadelphia and Atlanta to South Africa and back again, Royles documents the diverse, creative, and global work of African American activists in the decades-long battle against HIV/AIDS.

Remaking a Life

Remaking a Life PDF Author: Celeste Watkins-Hayes
Publisher: Univ of California Press
ISBN: 0520968735
Category : Social Science
Languages : en
Pages : 335

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Book Description
In the face of life-threatening news, how does our view of life change—and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women’s transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of “dying from” AIDS to “living with” it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.

Evidence of Being

Evidence of Being PDF Author: Darius Bost
Publisher: University of Chicago Press
ISBN: 022658982X
Category : Social Science
Languages : en
Pages : 188

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Book Description
Evidence of Being opens on a grim scene: Washington DC’s gay black community in the 1980s, ravaged by AIDS, the crack epidemic, and a series of unsolved murders, seemingly abandoned by the government and mainstream culture. Yet in this darkest of moments, a new vision of community and hope managed to emerge. Darius Bost’s account of the media, poetry, and performance of this time and place reveals a stunning confluence of activism and the arts. In Washington and New York during the 1980s and ’90s, gay black men banded together, using creative expression as a tool to challenge the widespread views that marked them as unworthy of grief. They created art that enriched and reimagined their lives in the face of pain and neglect, while at the same time forging a path toward bold new modes of existence. At once a corrective to the predominantly white male accounts of the AIDS crisis and an openhearted depiction of the possibilities of black gay life, Evidence of Being above all insists on the primacy of community over loneliness, and hope over despair.

A Fraught Embrace

A Fraught Embrace PDF Author: Ann Swidler
Publisher: Princeton University Press
ISBN: 0691183201
Category : Social Science
Languages : en
Pages : 298

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Book Description
In the wake of the AIDS pandemic, legions of organizations and compassionate individuals from faraway places descended on Africa to offer help and save lives. Ann Swidler and Susan Cotts Watkins vividly describe the often mismatched expectations and fantasies of altruists who dream of transforming lives, of the villagers who desperately seek help, and of the brokers on whom both Western altruists and impoverished villagers must rely. Based on years of fieldwork in the heavily AIDS-affected country of Malawi, this incisive, irreverent book digs into the sprawling AIDS enterprise and unravels the paradoxes of policy and practice. All who want to do good—from idealistic volunteers to world-weary development professionals—depend on brokers as guides, fixers, and cultural translators. The mutual misunderstandings among these players create all the drama of a romance: longing, exhilaration, disappointment, heartache, and sometimes an enduring connection. A Fraught Embrace unveils the tangled relations of those involved in the collective struggle to contain an epidemic.

The Gentrification of the Mind

The Gentrification of the Mind PDF Author: Sarah Schulman
Publisher: Univ of California Press
ISBN: 0520280067
Category : Health & Fitness
Languages : en
Pages : 190

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Book Description
In this gripping memoir of the AIDS years (1981–1996), Sarah Schulman recalls how much of the rebellious queer culture, cheap rents, and a vibrant downtown arts movement vanished almost overnight to be replaced by gay conservative spokespeople and mainstream consumerism. Schulman takes us back to her Lower East Side and brings it to life, filling these pages with vivid memories of her avant-garde queer friends and dramatically recreating the early years of the AIDS crisis as experienced by a political insider. Interweaving personal reminiscence with cogent analysis, Schulman details her experience as a witness to the loss of a generation’s imagination and the consequences of that loss.

Birth in the Age of AIDS

Birth in the Age of AIDS PDF Author: Cecilia Van Hollen
Publisher: Stanford University Press
ISBN: 0804786143
Category : Social Science
Languages : en
Pages : 289

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Book Description
Birth in the Age of AIDS is a vivid and poignant portrayal of the experiences of HIV-positive women in India during pregnancy, birth, and motherhood at the beginning of the 21st century. The government of India, together with global health organizations, established an important public health initiative to prevent HIV transmission from mother to child. While this program, which targets poor women attending public maternity hospitals, has improved health outcomes for infants, it has resulted in sometimes devastatingly negative consequences for poor, young mothers because these women are being tested for HIV in far greater numbers than their male spouses and are often blamed for bringing this highly stigmatized disease into the family. Based on research conducted by the author in India, this book chronicles the experiences of women from the point of their decisions about whether to accept HIV testing, through their decisions about whether or not to continue with the birth if they test HIV-positive, their birthing experiences in hospitals, decisions and practices surrounding breast-feeding vs. bottle-feeding, and their hopes and fears for the future of their children.

The Life and Death of ACT UP/LA

The Life and Death of ACT UP/LA PDF Author: Benita Roth
Publisher: Cambridge University Press
ISBN: 1108165826
Category : Social Science
Languages : en
Pages : 273

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Book Description
The Life and Death of ACT UP/LA explores the history of the AIDS Coalition to Unleash Power, Los Angeles, part of the militant anti-AIDS movement of the 1980s and 1990s. ACT UP/LA battled government, medical, and institutional neglect of the AIDS epidemic, engaging in multi-targeted protest in Los Angeles and nationally. The book shows how appealing the direct action anti-AIDS activism was for people across the United States; as well as arguing the need to understand how the politics of place affect organizing, and how the particular features of the Los Angeles cityscape shaped possibilities for activists. A feminist lens is used, seeing social inequalities as mutually reinforcing and interdependent, to examine the interaction of activists and the outcomes of their actions. Their struggle against AIDS and homophobia, and to have a voice in their healthcare, presaged the progressive, multi-issue, anti-corporate, confrontational organizing of the late twentieth century, and deserves to be part of that history.

The AIDS Generation

The AIDS Generation PDF Author: Perry N. Halkitis
Publisher:
ISBN: 0199944970
Category : History
Languages : en
Pages : 266

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Book Description
The AIDS Generation: Stories of Survival and Resilience takes readers on the real-life journeys of gay men who were infected with HIV as young men and have survived to enter middle age. The book examines the tumultuous life paths of these men and the strategies they used to survive the epidemic.