Young People's Perspectives on End-of-Life

Young People's Perspectives on End-of-Life PDF Author: Sarah Coombs
Publisher: Springer
ISBN: 3319536311
Category : Social Science
Languages : en
Pages : 211

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Book Description
This book challenges adult assumptions that young-people do not, cannot and should not think about death. The author uses everyday material objects in order to facilitate a range of conversations, revealing lively engagement with the topic. Cultural resources, such as literature and film, provide a rich variety of perspectives on and responses to death, whilst equally providing an opportunity to challenge many of these representations as unreal and unauthentic. The book contains personal narratives of loss and memories of loved ones, presenting a variety of encounters with significant deaths, the stories being told in an array of vibrant, amusing and emotive ways. Similarly, death is explored from a variety of religious and scientific frameworks, highlighting rich and changing perspectives. Such shifting and exciting vistas are a largely undiscovered part of young-people's lives and situate them in a landscape not often associated with childhood. Young-People's Perspectives on End-of-Life will be of interest to students and scholars across a range of disciplines, including Childhood and Youth Studies, Death Studies, Qualitative Research Methodologies, Sociology, Anthropology and Education.

Young People's Perspectives on End-of-Life

Young People's Perspectives on End-of-Life PDF Author: Sarah Coombs
Publisher: Springer
ISBN: 3319536311
Category : Social Science
Languages : en
Pages : 211

Get Book Here

Book Description
This book challenges adult assumptions that young-people do not, cannot and should not think about death. The author uses everyday material objects in order to facilitate a range of conversations, revealing lively engagement with the topic. Cultural resources, such as literature and film, provide a rich variety of perspectives on and responses to death, whilst equally providing an opportunity to challenge many of these representations as unreal and unauthentic. The book contains personal narratives of loss and memories of loved ones, presenting a variety of encounters with significant deaths, the stories being told in an array of vibrant, amusing and emotive ways. Similarly, death is explored from a variety of religious and scientific frameworks, highlighting rich and changing perspectives. Such shifting and exciting vistas are a largely undiscovered part of young-people's lives and situate them in a landscape not often associated with childhood. Young-People's Perspectives on End-of-Life will be of interest to students and scholars across a range of disciplines, including Childhood and Youth Studies, Death Studies, Qualitative Research Methodologies, Sociology, Anthropology and Education.

Approaching Death

Approaching Death PDF Author: Committee on Care at the End of Life
Publisher: National Academies Press
ISBN: 0309518253
Category : Medical
Languages : en
Pages : 457

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Book Description
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Pediatric Palliative Care

Pediatric Palliative Care PDF Author: Betty Ferrell
Publisher:
ISBN: 0190244186
Category : Family & Relationships
Languages : en
Pages : 161

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Book Description
Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Investing in the Health and Well-Being of Young Adults

Investing in the Health and Well-Being of Young Adults PDF Author: National Research Council
Publisher: National Academies Press
ISBN: 0309309980
Category : Medical
Languages : en
Pages : 431

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Book Description
Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.

Perspectives on Palliative Care for Children and Young People

Perspectives on Palliative Care for Children and Young People PDF Author: Rita Pfund
Publisher: CRC Press
ISBN: 1315346648
Category : Medical
Languages : en
Pages : 496

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Book Description
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.

The Private Worlds of Dying Children

The Private Worlds of Dying Children PDF Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691213089
Category : Social Science
Languages : en
Pages : 298

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Book Description
Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.

Psychosocial Aspects of Pediatric Oncology

Psychosocial Aspects of Pediatric Oncology PDF Author: Shulamith Kreitler
Publisher: John Wiley & Sons
ISBN: 9780471499398
Category : Medical
Languages : en
Pages : 474

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Book Description
Publisher description

Top Five Regrets of the Dying

Top Five Regrets of the Dying PDF Author: Bronnie Ware
Publisher: Hay House, Inc
ISBN: 1401956009
Category : Self-Help
Languages : en
Pages : 322

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Book Description
Revised edition of the best-selling memoir that has been read by over a million people worldwide with translations in 29 languages. After too many years of unfulfilling work, Bronnie Ware began searching for a job with heart. Despite having no formal qualifications or previous experience in the field, she found herself working in palliative care. During the time she spent tending to those who were dying, Bronnie's life was transformed. Later, she wrote an Internet blog post, outlining the most common regrets that the people she had cared for had expressed. The post gained so much momentum that it was viewed by more than three million readers worldwide in its first year. At the request of many, Bronnie subsequently wrote a book, The Top Five Regrets of the Dying, to share her story. Bronnie has had a colourful and diverse life. By applying the lessons of those nearing their death to her own life, she developed an understanding that it is possible for everyone, if we make the right choices, to die with peace of mind. In this revised edition of the best-selling memoir that has been read by over a million people worldwide, with translations in 29 languages, Bronnie expresses how significant these regrets are and how we can positively address these issues while we still have the time. The Top Five Regrets of the Dying gives hope for a better world. It is a courageous, life-changing book that will leave you feeling more compassionate and inspired to live the life you are truly here to live.

Dying Well

Dying Well PDF Author: Ira Byock
Publisher: Penguin
ISBN: 110150028X
Category : Medical
Languages : en
Pages : 321

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Book Description
From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

The Promise of Adolescence

The Promise of Adolescence PDF Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309490111
Category : Social Science
Languages : en
Pages : 493

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Book Description
Adolescenceâ€"beginning with the onset of puberty and ending in the mid-20sâ€"is a critical period of development during which key areas of the brain mature and develop. These changes in brain structure, function, and connectivity mark adolescence as a period of opportunity to discover new vistas, to form relationships with peers and adults, and to explore one's developing identity. It is also a period of resilience that can ameliorate childhood setbacks and set the stage for a thriving trajectory over the life course. Because adolescents comprise nearly one-fourth of the entire U.S. population, the nation needs policies and practices that will better leverage these developmental opportunities to harness the promise of adolescenceâ€"rather than focusing myopically on containing its risks. This report examines the neurobiological and socio-behavioral science of adolescent development and outlines how this knowledge can be applied, both to promote adolescent well-being, resilience, and development, and to rectify structural barriers and inequalities in opportunity, enabling all adolescents to flourish.