Author: Kieron Smith
Publisher: John Hunt Publishing
ISBN: 1846946131
Category : Family & Relationships
Languages : en
Pages : 90
Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Down's Syndrome Screening and Reproductive Politics
Author: Gareth M. Thomas
Publisher: Routledge
ISBN: 1317338200
Category : Health & Fitness
Languages : en
Pages : 251
Book Description
Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
Publisher: Routledge
ISBN: 1317338200
Category : Health & Fitness
Languages : en
Pages : 251
Book Description
Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
The Politics of Down Syndrome
Author: Kieron Smith
Publisher: John Hunt Publishing
ISBN: 1846946131
Category : Family & Relationships
Languages : en
Pages : 90
Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Publisher: John Hunt Publishing
ISBN: 1846946131
Category : Family & Relationships
Languages : en
Pages : 90
Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Down Syndrome Culture
Author: Benjamin Fraser
Publisher: University of Michigan Press
ISBN: 0472904558
Category : Social Science
Languages : en
Pages : 204
Book Description
People with Down syndrome possess a culture. They are producers of culture. And in the 21st century, this culture is increasingly visible as a global phenomenon. Down Syndrome Culture examines Down syndrome alongside its social, cultural, and artistic representation. Author Benjamin Fraser draws upon neomaterialist and posthumanist approaches to disability as well as the work of disability theorists such as David Mitchell, Sharon Snyder, Susan Antebi, Tobin Siebers, and Stuart Murray. By particularly focusing on Down syndrome, he showcases the unique place that it holds as an intellectual and developmental disability—one that fits between the social and medical models of disability—within the disability studies field. Down Syndrome Culture also pushes the traditionally Anglophone borders of disability studies by examining examples in Spanish, Catalan, and Portuguese-language texts, and incorporating the work of thinkers in Iberian and Latin American studies. Through a close analysis of life writing, documentaries, and fiction films, the book emphasizes the central role of people with Down syndrome in contemporary cultural production. Chapters discuss the autobiography of Andy Trias Trueta, the social actors of the documentary Los niños [The Grown-Ups] (2016), dancers from Danza Mobile, and a variety of fiction films, challenging ableist understandings of disability in nuanced ways. Ultimately, this book reveals the lives, cultural work, and representations of people with trisomy 21 in an international context.
Publisher: University of Michigan Press
ISBN: 0472904558
Category : Social Science
Languages : en
Pages : 204
Book Description
People with Down syndrome possess a culture. They are producers of culture. And in the 21st century, this culture is increasingly visible as a global phenomenon. Down Syndrome Culture examines Down syndrome alongside its social, cultural, and artistic representation. Author Benjamin Fraser draws upon neomaterialist and posthumanist approaches to disability as well as the work of disability theorists such as David Mitchell, Sharon Snyder, Susan Antebi, Tobin Siebers, and Stuart Murray. By particularly focusing on Down syndrome, he showcases the unique place that it holds as an intellectual and developmental disability—one that fits between the social and medical models of disability—within the disability studies field. Down Syndrome Culture also pushes the traditionally Anglophone borders of disability studies by examining examples in Spanish, Catalan, and Portuguese-language texts, and incorporating the work of thinkers in Iberian and Latin American studies. Through a close analysis of life writing, documentaries, and fiction films, the book emphasizes the central role of people with Down syndrome in contemporary cultural production. Chapters discuss the autobiography of Andy Trias Trueta, the social actors of the documentary Los niños [The Grown-Ups] (2016), dancers from Danza Mobile, and a variety of fiction films, challenging ableist understandings of disability in nuanced ways. Ultimately, this book reveals the lives, cultural work, and representations of people with trisomy 21 in an international context.
Insecurity
Author: Jenn Stephenson
Publisher: University of Toronto Press
ISBN: 1487514107
Category : Drama
Languages : en
Pages : 295
Book Description
The early years of the twenty-first century have witnessed a proliferation of non-fiction, reality-based performance genres, including documentary and verbatim theatre, site-specific theatre, autobiographical theatre, and immersive theatre. Insecurity: Perils and Products of Theatres of the Real begins with the premise that although the inclusion of real objects and real words on the stage would ostensibly seem to increase the epistemological security and documentary truth-value of the presentation, in fact the opposite is the case. Contemporary audiences are caught between a desire for authenticity and immediacy of connection to a person, place, or experience, and the conditions of our postmodern world that render our lives insecure. The same conditions that underpin our yearning for authenticity thwart access to an impossible real. As a result of the instability of social reality, the audience, Jenn Stephenson explains, is unable to trust the mechanisms of theatricality. The by-product of theatres of the real in the age of post-reality is insecurity.
Publisher: University of Toronto Press
ISBN: 1487514107
Category : Drama
Languages : en
Pages : 295
Book Description
The early years of the twenty-first century have witnessed a proliferation of non-fiction, reality-based performance genres, including documentary and verbatim theatre, site-specific theatre, autobiographical theatre, and immersive theatre. Insecurity: Perils and Products of Theatres of the Real begins with the premise that although the inclusion of real objects and real words on the stage would ostensibly seem to increase the epistemological security and documentary truth-value of the presentation, in fact the opposite is the case. Contemporary audiences are caught between a desire for authenticity and immediacy of connection to a person, place, or experience, and the conditions of our postmodern world that render our lives insecure. The same conditions that underpin our yearning for authenticity thwart access to an impossible real. As a result of the instability of social reality, the audience, Jenn Stephenson explains, is unable to trust the mechanisms of theatricality. The by-product of theatres of the real in the age of post-reality is insecurity.
Comedy and the Politics of Representation
Author: Helen Davies
Publisher: Springer
ISBN: 3319905066
Category : Social Science
Languages : en
Pages : 268
Book Description
This edited collection explores the representations of identity in comedy and interrogates the ways in which “humorous” constructions of gender, sexuality, ethnicity, religion, class and disability raise serious issues about privilege, agency and oppression in popular culture. Should there be limits to free speech when humour is aimed at marginalised social groups? What are the limits of free speech when comedy pokes fun at those who hold social power? Can taboo joking be used towards politically progressive ends? Can stereotypes be mocked through their re-invocation? Comedy and the Politics of Representation: Mocking the Weak breaks new theoretical ground by demonstrating how the way people are represented mediates the triadic relationship set up in comedy between teller, audience and butt of the joke. By bringing together a selection of essays from international scholars, this study unpacks and examines the dynamic role that humour plays in making and remaking identity and power relations in culture and society.
Publisher: Springer
ISBN: 3319905066
Category : Social Science
Languages : en
Pages : 268
Book Description
This edited collection explores the representations of identity in comedy and interrogates the ways in which “humorous” constructions of gender, sexuality, ethnicity, religion, class and disability raise serious issues about privilege, agency and oppression in popular culture. Should there be limits to free speech when humour is aimed at marginalised social groups? What are the limits of free speech when comedy pokes fun at those who hold social power? Can taboo joking be used towards politically progressive ends? Can stereotypes be mocked through their re-invocation? Comedy and the Politics of Representation: Mocking the Weak breaks new theoretical ground by demonstrating how the way people are represented mediates the triadic relationship set up in comedy between teller, audience and butt of the joke. By bringing together a selection of essays from international scholars, this study unpacks and examines the dynamic role that humour plays in making and remaking identity and power relations in culture and society.
The Politics of Autism
Author: Dr. Bryna Siegel
Publisher: Oxford University Press
ISBN: 0199361002
Category : Psychology
Languages : en
Pages : 353
Book Description
The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have? Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines? Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.
Publisher: Oxford University Press
ISBN: 0199361002
Category : Psychology
Languages : en
Pages : 353
Book Description
The Politics of Autism investigates the truths and fictions of public understanding about autism, questioning apparent realities too sensitive or impolitic to challenge. Is there really more autism? How has the count expanded by diagnosing autism over other conditions? Have scientific methods in autism diagnosis gone hand-in-hand with autism increases? Are mild autism cases really a 'disorder,' rather than personality variant? Can autism be quiescent in childhood but truly first recognizable in adulthood? Why does popular media often portray people with autism as odd geniuses ignoring the kind of autism most have? Siegel tackles thorny issues and perennial questions: How do we weigh likely treatment gains with treatment costs? Why does our autism education persist in teaching academic subjects some never master? Why do we fail to plan realistically for autistic adulthood? Which parents get caught up in non-mainstream 'treatments' and fear of vaccines? Readers will see an insider's view of controversies in autism research. Siegel's views, sometimes iconoclastic, always frank and informed, challenge broad unexamined assumptions about our understanding of autism. Each chapter addresses different issues, data, and social policy recommendations. A chapter-by-chapter bibliography with URLs provides both popular media and scientific references.
Screening for Down's Syndrome
Author: J. G. Grudzinskas
Publisher: Cambridge University Press
ISBN: 9780521452717
Category : Medical
Languages : en
Pages : 364
Book Description
This important new publication summarises the recent exciting advances in screening for Down's syndrome. It addresses important clinical questions such as: risk assessment, who to screen, when to screen, which techniques to use, and the organisation of screening programmes nationally and internationally. An international and authoritative team of authors has been invited to assess the latest developments in this rapidly advancing area. The volume provides a critical and much needed evaluation of the potential and limitations of new and established techniques for screening for Down's syndrome. It will serve as an essential source of information for all those involved in pre-natal diagnosis and the provision of obstetric care.
Publisher: Cambridge University Press
ISBN: 9780521452717
Category : Medical
Languages : en
Pages : 364
Book Description
This important new publication summarises the recent exciting advances in screening for Down's syndrome. It addresses important clinical questions such as: risk assessment, who to screen, when to screen, which techniques to use, and the organisation of screening programmes nationally and internationally. An international and authoritative team of authors has been invited to assess the latest developments in this rapidly advancing area. The volume provides a critical and much needed evaluation of the potential and limitations of new and established techniques for screening for Down's syndrome. It will serve as an essential source of information for all those involved in pre-natal diagnosis and the provision of obstetric care.
Defending Freedom of Contract: Constitutional Solutions to Resolve the Political Divide
Author: Patrick Bohan
Publisher: Lulu.com
ISBN: 1684703298
Category : Law
Languages : en
Pages : 424
Book Description
The progressive movement that began in the late nineteenth century was a nonviolent coup d'état changing the United States of America from a republic that promoted equal rights for all to a democracy where the majority rules. As a result, moral and social justice was and is used by the federal government to protect the rights of some while mitigating the rights of others. Patrick Bohan, who has studied constitutional law in depth, examines the revolution in detail in this treatise, demonstrating how freedom of contract can be applied to protect the fundamental rights of each citizen equally. The author evaluates hundreds of laws, cases, and examples of justice gone wrong for issues such as slavery, abortion rights, elections, welfare rights, free speech, freedom of religion, civil rights, property rights, contract rights, gay rights, alien rights, and other important topics that polarize Americans.
Publisher: Lulu.com
ISBN: 1684703298
Category : Law
Languages : en
Pages : 424
Book Description
The progressive movement that began in the late nineteenth century was a nonviolent coup d'état changing the United States of America from a republic that promoted equal rights for all to a democracy where the majority rules. As a result, moral and social justice was and is used by the federal government to protect the rights of some while mitigating the rights of others. Patrick Bohan, who has studied constitutional law in depth, examines the revolution in detail in this treatise, demonstrating how freedom of contract can be applied to protect the fundamental rights of each citizen equally. The author evaluates hundreds of laws, cases, and examples of justice gone wrong for issues such as slavery, abortion rights, elections, welfare rights, free speech, freedom of religion, civil rights, property rights, contract rights, gay rights, alien rights, and other important topics that polarize Americans.
Encyclopedia of Aging and Public Health
Author: Sana Loue
Publisher: Springer Science & Business Media
ISBN: 0387337539
Category : Medical
Languages : en
Pages : 852
Book Description
Americans are living longer, and the elder population is growing larger. To meet the ongoing need for quality information on elder health, the Encyclopedia of Aging and Public Health combines multiple perspectives to offer readers a more accurate and complete picture of the aging process. The book takes a biopsychosocial approach to the complexities of its subject. In-depth introductory chapters include coverage on a historical and demographic overview of aging in America, a guide to biological changes accompanying aging, an analysis of the diversity of the U.S. elder population, legal issues commonly affecting older adults, and the ethics of using cognitively impaired elders in research. From there, over 425 entries cover the gamut of topics, trends, diseases, and phenomena: -Specific populations, including ethnic minorities, custodial grandparents, and centenarians -Core medical conditions associated with aging, from cardiac and pulmonary diseases to Parkinson’s and Alzheimer’s -Mental and emotional disorders -Drugs/vitamins/alternative medicine -Disorders of the eyes, feet, and skin -Insomnia and sleep disorders; malnutrition and eating disorders -Sexual and gender-related concerns -And a broad array of social and political issues, including access to care, abuse/neglect, veterans’ affairs, and assisted suicide Entries on not-quite-elders’ concerns (e.g., midlife crisis, menopause) are featured as well. And all chapters and entries include references and resource lists. The Encyclopedia has been developed for maximum utility to clinicians, social workers, researchers, and public health professionals working with older adults. Its multidisciplinary coverage and scope of topics make this volume an invaluable reference for academic and public libraries.
Publisher: Springer Science & Business Media
ISBN: 0387337539
Category : Medical
Languages : en
Pages : 852
Book Description
Americans are living longer, and the elder population is growing larger. To meet the ongoing need for quality information on elder health, the Encyclopedia of Aging and Public Health combines multiple perspectives to offer readers a more accurate and complete picture of the aging process. The book takes a biopsychosocial approach to the complexities of its subject. In-depth introductory chapters include coverage on a historical and demographic overview of aging in America, a guide to biological changes accompanying aging, an analysis of the diversity of the U.S. elder population, legal issues commonly affecting older adults, and the ethics of using cognitively impaired elders in research. From there, over 425 entries cover the gamut of topics, trends, diseases, and phenomena: -Specific populations, including ethnic minorities, custodial grandparents, and centenarians -Core medical conditions associated with aging, from cardiac and pulmonary diseases to Parkinson’s and Alzheimer’s -Mental and emotional disorders -Drugs/vitamins/alternative medicine -Disorders of the eyes, feet, and skin -Insomnia and sleep disorders; malnutrition and eating disorders -Sexual and gender-related concerns -And a broad array of social and political issues, including access to care, abuse/neglect, veterans’ affairs, and assisted suicide Entries on not-quite-elders’ concerns (e.g., midlife crisis, menopause) are featured as well. And all chapters and entries include references and resource lists. The Encyclopedia has been developed for maximum utility to clinicians, social workers, researchers, and public health professionals working with older adults. Its multidisciplinary coverage and scope of topics make this volume an invaluable reference for academic and public libraries.
Down Syndrome Across the Life Span
Author: Monica Cuskelly
Publisher: John Wiley & Sons
ISBN: 0470777982
Category : Psychology
Languages : en
Pages : 300
Book Description
This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.
Publisher: John Wiley & Sons
ISBN: 0470777982
Category : Psychology
Languages : en
Pages : 300
Book Description
This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.