The Narrative Approach to Informed Consent

The Narrative Approach to Informed Consent PDF Author: Fiona Mayne
Publisher: Routledge
ISBN: 1000456188
Category : Education
Languages : en
Pages : 182

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Book Description
The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide for researchers who want to engage young children in rights-based, participatory research. This book presents the Narrative Approach, an original and innovative method to help children understand their participation in research. This approach moves away from traditional paper-based consent to tailor the informed consent process to the specific needs of young children. Through the Informing Story, which employs a combination of interaction, information and narrative, this method enables children to comprehend concepts through storytelling. Researchers are stepped through the development of an Informing Story so that they can deliver accurate information to young children about what their participation in research is likely to involve. To further inform practice, the book documents the implementation of the Narrative Approach in four case studies demonstrating the variety of settings in which the method can be applied. The Narrative Approach to Informed Consent addresses the rights of young children to be properly researched, expands opportunities for their active and engaged research participation, and creates a unique conceptual ethical space within which meaningful informed consent can occur. This book will be an invaluable tool for novice and experienced researchers and is applicable to a wide range of education and non-education contexts.

The Narrative Approach to Informed Consent

The Narrative Approach to Informed Consent PDF Author: Fiona Mayne
Publisher: Routledge
ISBN: 1000456188
Category : Education
Languages : en
Pages : 182

Get Book Here

Book Description
The Narrative Approach to Informed Consent: Empowering Young Children’s Rights and Meaningful Participation is a practical guide for researchers who want to engage young children in rights-based, participatory research. This book presents the Narrative Approach, an original and innovative method to help children understand their participation in research. This approach moves away from traditional paper-based consent to tailor the informed consent process to the specific needs of young children. Through the Informing Story, which employs a combination of interaction, information and narrative, this method enables children to comprehend concepts through storytelling. Researchers are stepped through the development of an Informing Story so that they can deliver accurate information to young children about what their participation in research is likely to involve. To further inform practice, the book documents the implementation of the Narrative Approach in four case studies demonstrating the variety of settings in which the method can be applied. The Narrative Approach to Informed Consent addresses the rights of young children to be properly researched, expands opportunities for their active and engaged research participation, and creates a unique conceptual ethical space within which meaningful informed consent can occur. This book will be an invaluable tool for novice and experienced researchers and is applicable to a wide range of education and non-education contexts.

Narrative Research

Narrative Research PDF Author: Amia Lieblich
Publisher: SAGE
ISBN: 9780761910435
Category : Biography & Autobiography
Languages : en
Pages : 204

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Book Description
A concise volume aimed at researchers and academics in sociology, anthropology, psychology and interpersonal communication.

Using Narrative in Research

Using Narrative in Research PDF Author: Christine Bold
Publisher: SAGE
ISBN: 1848607199
Category : Reference
Languages : en
Pages : 202

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Book Description
Serving as an introduction to narrative methods and narrative analysis, Christine Bold's new book provides students, researchers, and other professionals with an introduction to the theory and practice of narrative approaches in research. This book does everything that a methods book needs to do. It is practical, yet sets out the theory and history behind the approach, and it looks explicitly at design, ethics, data gathering, data analysis and writing as an ongoing process of narrative research. Bold's text deals comprehensively with conceptual issues within narrative research and is driven throughout by a range of real research specific examples of narrative analysis in action.

Informed Consent

Informed Consent PDF Author: Deborah Bowman
Publisher: Cambridge University Press
ISBN: 113950570X
Category : Medical
Languages : en
Pages : 107

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Book Description
The literature on informed consent and its ethico-legal significance in clinical practice has grown rapidly in recent years. This unique book offers a practical description of the principles of informed consent and their application in daily clinical practice. Written by a team of experts in medical ethics and law, the chapters use a case-based approach to elucidate the essence of consent and highlight the ways in which individual patients and diverse situations can shape and even challenge the fundamental principles of informed consent. A range of situations in both primary and secondary care are covered and the content is arranged conceptually to help emphasise certain recurrent and related themes. An informative and rigorous yet accessible text, Informed Consent: A Primer for Clinical Practice is an essential resource for healthcare professionals working in all medical fields.

Qualitative Inquiry

Qualitative Inquiry PDF Author: Lynn Butler-Kisber
Publisher: SAGE
ISBN: 144620510X
Category : Social Science
Languages : en
Pages : 169

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Book Description
Qualitative Inquiry unites the basics of research design in qualitative research with the practice of analysing qualitative data. This textbook addresses the theory and practice of choosing and designing a qualitative approach and methodological and analytical ramifications that follow from making such choices. It aims to set out the theoretical underpinnings behind different methodological choices and to help students then follow up on (and interrogate) such approaches. Qualitative Inquiry is the ideal starting point for students on research training courses who have opted to develop a qualitative research project. In it, Butler-Kisber introduces students to theory and then demonstrates this theory in practice by showing how a project is actually designed and actually analysed. This book examines theory, method and interpretation in a way that is meaningful to students and new researchers, as well as discussing newer, more avant-garde, developments in qualitative research in arts-based inquiry. It is essential reading for students who are seeking to make sense of their research and their developing theoretical standpoints.

Self-Narratives

Self-Narratives PDF Author: Hubert J. M. Hermans
Publisher: Guilford Press
ISBN: 9781572307131
Category : Psychology
Languages : en
Pages : 324

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Book Description
Chapters describe how clinicians can work with what is openly discussed, and how to ascertain less conscious events and motives. A powerful clinical tool that enhances cooperation between the client and therapist, the model delineated in this volume can be used in a wide variety of settings and is easily integrated with a range of orientations. Providing complete guidelines for its clinical use, Self-Narratives is an ideal resource for psychotherapists and counselors alike. Teachers or trainers who want to educate students in self-knowledge and self-reflection will find here an ideal method for stimulating these processes.

Psychiatric Ethics

Psychiatric Ethics PDF Author: Sidney Bloch
Publisher: Oxford University Press
ISBN: 0192578820
Category : Medical
Languages : en
Pages : 661

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Book Description
Ethical issues inherent in psychiatric research and clinical practice are invariably complex and multi-faceted. Well-reasoned ethical decision-making is essential to deal effectively with patients and promote optimal patient care. Drawing on the positive reception of Psychiatric Ethics since its first publication in 1981, this highly anticipated 5th edition offers psychiatrists and other mental health professionals a coherent guide to dealing with the diverse ethical issues that challenge them. This edition has been substantially updated to reflect the many changes that have occurred in the field during the past decade. Its 25 chapters are grouped into three sections which cover: 1) clinical practice in child and adolescent psychiatry, consultation-liaison psychiatry, psychogeriatrics, community psychiatry and forensic psychiatry; 2) relevant basic sciences such as neuroethics and genetics; and 3) philosophical and social contexts including the history of ethics in psychiatry and the nature of professionalism. Principal aspects of clinical practice in general, such as confidentiality, boundary violations, and involuntary treatment, are covered comprehensively as is a new chapter on diagnosis. Given the contributors' expertise in their respective fields, Psychiatric Ethics will undoubtedly continue to serve as a significant resource for all mental health professionals, whatever the role they play in psychiatry. It will also benefit students of moral philosophy in their professional pursuits.

Stories and Their Limits

Stories and Their Limits PDF Author: Hilde Lindemann Nelson
Publisher: Routledge
ISBN: 1317828054
Category : Social Science
Languages : en
Pages : 305

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Book Description
Narratives have always played a prominent role in both bioethics and medicine; the fields have attracted much storytelling, ranging from great literature to humbler stories of sickness and personal histories. And all bioethicists work with cases--from court cases that shape policy matters to case studies that chronicle sickness. But how useful are these various narratives for sorting out moral matters? What kind of ethical work can stories do--and what are the limits to this work? The new essays in Stories and Their Limits offer insightful reflections on the relationship between narratives and ethics.

The Immortal Life of Henrietta Lacks

The Immortal Life of Henrietta Lacks PDF Author: Rebecca Skloot
Publisher: Crown
ISBN: 0307589382
Category : Science
Languages : en
Pages : 386

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Book Description
#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

The Handbook of Narrative and Psychotherapy

The Handbook of Narrative and Psychotherapy PDF Author: Lynne E. Angus
Publisher: SAGE
ISBN: 9780761926849
Category : Medical
Languages : en
Pages : 422

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Book Description
The narrative turn in psychotherapy entails practitioners seeing their work as appreciating client stories and helping clients re-author their life stories. Twenty-one chapters, presented by Angus (York U., UK) and McLeod (U. of Abertay Dundee, UK) bring together different strands of thinking ab