Author: Lindy Burton
Publisher: Taylor & Francis
ISBN: 1000580113
Category : Social Science
Languages : en
Pages : 279
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Book Description
Originally published in 1975, this book traces the problems which arise for families coping with a chronic childhood disease – cystic fibrosis. The discussion of these problems is important for the families of other seriously ill or disabled children, all of whom are faced with similar implications of their situation. The book looks at the stressful situations which face them: mastering the child’s treatment technique, assisting them to come to terms with their disease. It deals with the practical problems which arise for the parents and siblings of a sick child and explores the profound repercussions of the loss of a child on the entire family, considering the ways in which many of these families managed to transcend their problems.
Author: Lindy Burton
Publisher: Routledge
ISBN: 1000580202
Category : Social Science
Languages : en
Pages : 229
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Book Description
Originally published in 1975, this book traces the problems which arise for families coping with a chronic childhood disease – cystic fibrosis. The discussion of these problems is important for the families of other seriously ill or disabled children, all of whom are faced with similar implications of their situation. The book looks at the stressful situations which face them: mastering the child’s treatment technique, assisting them to come to terms with their disease. It deals with the practical problems which arise for the parents and siblings of a sick child and explores the profound repercussions of the loss of a child on the entire family, considering the ways in which many of these families managed to transcend their problems.
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691214700
Category : Medical
Languages : en
Pages : 321
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Book Description
A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Author: Joanna Breyer
Publisher: Hachette UK
ISBN: 1529340306
Category : Health & Fitness
Languages : en
Pages : 341
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Book Description
'Warm, wise and practical' Cressida Cowell, MBE An invaluable reference for parents of sick or hospitalised children by an experienced and eminent psychologist. To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalised, severely sick, or terminally ill. In When Your Child is Sick, psychologist Joanna Breyer distils decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes. Breyer's actionable techniques and direct advice will help parents feel more in-control of a circumstance that has upended their life. She alerts parents to key personnel in the hospital, gives dialogue prompts to help parents ask for the help they need, addresses the needs of their other children at home, offers advice on how to best utilise friends and family who want to help, includes stories from other families who have been there, and teaches coping techniques to help both parents and children weather the stress of prolonged illness and even death. When Your Child is Sick is a valuable guide to managing the myriad practical and emotional complications of an impossible situation.
Author: Hannah Newton
Publisher: Oxford University Press, USA
ISBN: 0199650497
Category : Health & Fitness
Languages : en
Pages : 262
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Book Description
Illness in childhood was common in early modern England. Hannah Newton asks how sick children were perceived and treated by doctors and laypeople, examines the family's experience, and takes the original perspective of sick children themselves. She provides rare and intimate insights into the experiences of sickness, pain, and death.
Author: Heather Harpham
Publisher: Henry Holt and Company
ISBN: 125013157X
Category : Biography & Autobiography
Languages : en
Pages : 318
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Book Description
Reese’s Book Club x Hello Sunshine’s April 2018 book pick A shirt-grabbing, page-turning love story that follows a one-of-a-kind family through twists of fate that require nearly unimaginable choices. Happiness begins with a charming courtship between hopelessly attracted opposites: Heather, a world-roaming California girl, and Brian, an intellectual, homebody writer, kind and slyly funny, but loath to leave his Upper West Side studio. Their magical interlude ends, full stop, when Heather becomes pregnant—Brian is sure he loves her, only he doesn't want kids. Heather returns to California to deliver their daughter alone, buoyed by family and friends. Mere hours after Gracie's arrival, Heather's bliss is interrupted when a nurse wakes her, "Get dressed, your baby is in trouble." This is not how Heather had imagined new motherhood – alone, heartsick, an unexpectedly solo caretaker of a baby who smelled "like sliced apples and salted pretzels" but might be perilously ill. Brian reappears as Gracie's condition grows dire; together Heather and Brian have to decide what they are willing to risk to ensure their girl sees adulthood. The grace and humor that ripple through Harpham's writing transform the dross of heartbreak and parental fears into a clear-eyed, warm-hearted view of the world. Profoundly moving and subtly written, Happiness radiates in many directions--new, romantic love; gratitude for a beautiful, inscrutable world; deep, abiding friendship; the passion a parent has for a child; and the many unlikely ways to build a family. Ultimately it's a story about love and happiness, in their many crooked configurations.
Author: World Health Organization
Publisher: World Health Organization
ISBN: 9241548371
Category : Business & Economics
Languages : en
Pages : 442
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Book Description
The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.
Author: Frank Deford
Publisher: Open Road Media
ISBN: 1504007336
Category : Biography & Autobiography
Languages : en
Pages : 115
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Book Description
A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
Author: Gilman D. Grave
Publisher:
ISBN:
Category : Child health services
Languages : en
Pages : 252
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Book Description
Contains the proceedings of three separate conferences held in 1973 and 1974.
Author: Edward Alan Glasper
Publisher: Oxford University Press
ISBN: 0191059315
Category : Medical
Languages : en
Pages : 872
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Book Description
Enabling nurses to deliver safe and effective care and to achieve the best possible results for their patients, the Oxford Handbook of Children's and Young People's Nursing, 2nd edition is a concise and practical guide to all aspects of the nurse's role. Covering assessment and management, right through to advice for the family, the expert authors provide information on a wide range of topics, including normal growth and development, pain, palliative care, religion and culture, and professional issues. In addition there is also a separate section on paediatric emergencies and coverage of recognising deviations from the norm as well as interpreting clinical findings and investigations, and measures to promote successful care practice. Fully updated and revised for this new edition, it is now packed full of even more clinical information and practical advice, including a wealth of guidance and recommendations that have been gleaned from the authors' many years of experience. The most up-to- date legislation, policy and practice is now covered, including significant changes in child safeguarding, immunisation, medicines, resuscitation protocols and the common assessment framework. The chapter on neonatal care has also been expanded and now contains information on care and breastfeeding of the pre-term infant, as well as developmental and kangaroo care. Cochlea implants, intussusception and professional issues - such as working with diverse communities, and involving young people in health services have also been included. Written by practising nurses and subject experts, the Oxford Handbook of Children's and Young People's Nursing, 2nd edition continues to be a unique and invaluable companion to practising and student nurses, and to all who need to understand the special issues associated with children's and young people's nursing.
