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Author: Gideon Koren
Publisher:
ISBN:
Category : Children
Languages : en
Pages : 360
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Book Description
This work covers various aspects of the research ethics area involving foetuses, infants and children. It discusses issues associated with conducting medical research, including consent and assent, definitions of risk and benefit, and a variety of specific paediatric problems.
Author: Gideon Koren
Publisher:
ISBN:
Category : Children
Languages : en
Pages : 360
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Book Description
This work covers various aspects of the research ethics area involving foetuses, infants and children. It discusses issues associated with conducting medical research, including consent and assent, definitions of risk and benefit, and a variety of specific paediatric problems.
Author: Eric Kodish
Publisher: Oxford University Press, USA
ISBN: 0190647256
Category : Medical
Languages : en
Pages : 345
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Book Description
Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research. Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential reading for those involved with pediatric research in any context.
Author: Ian Mitchell
Publisher: Springer Nature
ISBN: 3030226174
Category : Philosophy
Languages : en
Pages : 464
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Book Description
This book offers easy access to the everyday ethics problems that occur in the medical care of children. It contains practical guidance on how physicians and other healthcare practitioners may manage both straightforward and complex ethics problems. The book provides a readable and comprehensive introduction to ethics issues for beginners and is also extremely valuable to experienced practitioners.This work covers important "classical" ethical issues such as privacy, confidentiality, truth telling, and discusses the elements of the relationships that might exist between parents and healthcare providers. However, the book also provides a resource for new and emerging areas of bioethics. These include issues arising in the new population of children who are beginning to survive the neonatal and infant periods with a multitude of problems – “children with medical complexity". Finally, it also includes a section on the advantages and pitfalls of social media use.
Author: David Wendler
Publisher: Oxford University Press
ISBN: 9780199749508
Category : Medical
Languages : en
Pages : 352
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Book Description
Millions of children suffer from diseases and illnesses that do not have adequate treatment, and many other children are harmed by medicines intended to help them. In order to protect and help these children, society must conduct pediatric research to identify safer and more effective medical treatments. This research requires exposing some children to risks for the benefit of others. Yet, critics and courts have argued that it is unethical to expose children to research risks for the benefit of others, and this practice seems to violate our obligation to protect children from harm and exploitation. In this way, clinical research with children presents us with what appears to be an irresolvable dilemma: either we can protect pediatric subjects from exploitation, or we can protect pediatric patients from dangerous medicines, but not both. The Ethics of Pediatric Research is the first work to systematically evaluate this dilemma, and David Wendler offers an original justification for pediatric research based on an in-depth analysis of when it is in our interests to help others. It will be of interest primarily to scholars in pediatric ethics and clinical research ethics.
Author: Farrell, Ann
Publisher: McGraw-Hill Education (UK)
ISBN: 0335216501
Category : Education
Languages : en
Pages : 198
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Book Description
This book focuses on doing ethical research with children in today's climate of increased globalization, surveillance and awareness of children as competent research participants. It covers a range of conceptual, methodological and procedural issues, and provides a framework for doing ethical research with children.
Author: Nico Nortjé
Publisher: Springer Nature
ISBN: 3030861821
Category : Philosophy
Languages : en
Pages : 476
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Book Description
This book assists health care providers to understand the specific interplay of the roles and relationships currently forming the debates in pediatric clinical ethics. It builds on the fact that, unlike adult medical ethics, pediatric ethics begins within an acutely and powerfully experienced dynamic of patient-family-state-physician relationship. The book provides a unique perspective as it interacts with established approaches as well as recent developments in pediatric ethics theory, and then explores these developments further through cases. The book first focuses on setting the stage by introducing a theoretical framework and elaborating how pediatric ethics differ from non-pediatric ethics. It approaches different theoretical frameworks in a critical manner drawing on their strengths and weaknesses. It helps the reader in developing an ability to engage in ethical reasoning and moral deliberation in order to focus on the wellbeing of the child as the main participant in the ethical deliberation, as well as to be able to identify the child’s moral claims. The second section of the book focuses on the practical application of these theoretical frameworks and discusses specific areas pertaining to decision-making. These are: the critically ill child, new and enduring ethical controversies, and social justice at large, the latter of which includes looking at the child’s place in society, access to healthcare, social determinants of health, and vaccinations. With the dynamic changes and challenges pediatric care faces across the globe, as well as the changing face of new technologies, no professional working in the field of pediatrics can afford not to take due note of this resource.
Author: Douglas S. Diekema
Publisher: Cambridge University Press
ISBN: 1139501836
Category : Medical
Languages : en
Pages : 263
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Book Description
This volume provides a practical overview of the ethical issues arising in pediatric practice. The case-based approach grounds the bioethical concepts in real-life situations, covering a broad range of important and controversial topics, including informed consent, confidentiality, truthfulness and fidelity, ethical issues relating to perinatology and neonatology, end-of-life issues, new technologies, and problems of justice and public health in pediatrics. A dedicated section also addresses the topics of professionalism, including boundary issues, conflicts of interests and relationships with industry, ethical issues arising during training, and dealing with the impaired or unethical colleague. Each chapter contains a summary of the key issues covered and recommendations for approaching similar situations in other contexts. Clinical Ethics in Pediatrics: A Case-Based Textbook is an essential resource for all physicians who care for children, as well as medical educators, residents and scholars in clinical bioethics.
Author: Ezekiel J. Emanuel
Publisher: OUP USA
ISBN: 0199768633
Category : Medical
Languages : en
Pages : 848
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Book Description
The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.
Author: Priscilla Alderson
Publisher: SAGE Publications
ISBN: 0857021370
Category : Education
Languages : en
Pages : 177
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Book Description
Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.
Author: Harcourt, Deborah
Publisher: McGraw-Hill Education (UK)
ISBN: 0335246427
Category : Education
Languages : en
Pages : 138
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Book Description
"Doing Ethical Research with Children is an invaluable resource for all student and practitioner-researchers who wish to honour children as active agents and significant voices in research. The book guides the reader through the processes of ethical research with (not on!) children, positioning the child as competent and capable. It includes practical guidance and examples of research so that issues that may emerge during a research project can be anticipated. My advice is - do not embark on an Early Years research project before reading it!" Lyn Trodd, Chair of the National Sector-Endorsed Foundation Degree in Early Years Network (SEFDEY), University of Hertfordshire, UK "Doing Ethical Research with Children provides an invaluable guide to understanding and managing the ethical implications of research projects with children. The highly accessible format includes useful case-study examples, questions and checklists and the four-phased approach supports the reader to reflect on ethical considerations at every stage of the research process. This book is a welcome and essential resource that positions ethical perspectives at the heart of research activity with children." Shirley Allen, Senior Lecturer Early Childhood Studies, Middlesex University, UK "This is an admirably clear and well-structured book that will be invaluable for anyone serious about research with children. The authors write from long experience, and provide a very helpful 'step by step' guide that is always underpinned by deeply principled, insightful considerations that exemplify good practice and respect for children. The use of real examples along with the authors' questions, invite the reader to reflect on their own thinking and actions, and the extensive checklists and sample documentation provide clear guidance that will be a valuable support for students and their supervisors, researchers, and practitioners alike. I look forward to making good use of this book in my own work and in my work with students of early childhood." Sue Robson, Principal Lecturer, Subject Leader for Early Childhood Studies University of Roehampton, London, UK This book provides a step-by-step guide to approaching your research project and will support you in developing, conducting and disseminating research relating to children and childhood with an ethical imperative. Doing Ethical Research with Children will help you focus and identify many of the key issues surrounding research with children. The book presents an overview of both contemporary and traditional perspectives relating to child related research practices. The authors combine relevant theoretical and practical information, offering a guide to the essential elements for conducting ethical research with children. You are prompted to consider and systematically address these elements, with the help of: Real world 'points to ponder', offering unique insights 'Over to you' reflection activities Case studies considering ethical dilemmas Written specifically as a guide and reflection tool for beginning researchers studying early years and childhood, the book follows the research journey from conceptualisation to dissemination and looks at the unique considerations for research involving children.
