Author: Carolyn Adams
Publisher: Cambridge University Press
ISBN: 1108619916
Category : Law
Languages : en
Pages : 279
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Book Description
Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address “wicked problems” in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
Author: Carolyn Adams
Publisher:
ISBN: 9781108445368
Category : Data protection
Languages : en
Pages : 0
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Book Description
Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "wicked problems" in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.
Author: Carolyn Adams
Publisher:
ISBN: 9781108675789
Category : Data protection
Languages : en
Pages :
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Book Description
"The genesis of this project was the experience of the authors working with researchers, data custodians, ethics committees, and linkage units over the past decade or more managing access to government administrative data for research. Our individual backgrounds, experience, and expertise meant that we brought a diverse, interdisciplinary approach to the table. We started to identify the problems: we heard from researchers that there were concerns with unjustified delay and lack of access to data for research that was in the public interest; we heard from data custodians that they found the decision-making process difficult because they did not have sufficient resources or guidance; we heard from ethics committees that they found data linkage projects complex and difficult to assess; and we heard from consumer representatives that there were concerns about privacy, transparency, community awareness, and consultation"--
Author: Steph Jowett
Publisher: Cambridge University Press
ISBN: 131651420X
Category : Law
Languages : en
Pages : 229
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Book Description
Examines the law governing consent to medical treatment for trans youth in Australia, England and Wales.
Author: Matthew Hodes
Publisher: Academic Press
ISBN: 0323917100
Category : Psychology
Languages : en
Pages : 402
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Book Description
Shaping the Future of Child and Adolescent Mental Health: Towards Technological Advances and Service Innovations coincides with the 25th International Association for Child and Adolescent Psychiatry and Allied Professions (IACAPAP) Congress in Dubai from December 5–9, 2022. There are three overarching themes of this book. Firstly, the impact of the Internet and digital technologies on the mental health and well-being of children and adolescents, including computerized therapies, and the fundamental role of technologies to advance knowledge in the field. Secondly, a theme on harnessing the expansion of knowledge on psychiatric disorders and their treatment for children and adolescents, exemplified by chapters on different kinds of adversity in child and adolescent mental health and a chapter on precision therapeutics. Given the location of the IACAPAP Congress, the third theme focuses on aspects of child and adolescent mental health in the Eastern Mediterranean Region. Chapters provide insights into a broad range of contemporary technology- and service innovation–related topics in child and adolescent psychiatry and mental health. These include growing up in the digital age, cyberbullying, clinical applications of big data and machine learning, computerized cognitive behavioral therapy, technology- enhanced learning, lessons from COVID-19, new understanding of the consequences of psychological trauma, autoimmune encephalitis, and precision therapeutics in depression. Acknowledging the global challenge of child and adolescent psychiatry and mental health, readers will find an emphasis on contextual challenges in the field, including innovations for scaling up of mental health intervention in low- and middle-income countries, and research and training in the Eastern Mediterranean Region. - Emphasizes digital influences and applications in child and adolescent mental health research, psychiatric treatments, and training - Highlights children and adolescents in adversity including COVID-19 and psychological trauma - Appraises new approaches to understanding selected psychiatric disorders in children and adolescents - Addresses the research in child and adolescent psychiatry and mental health across the Eastern Mediterranean Region and training in the Gulf Region
Author: Marcelo Corrales Compagnucci
Publisher: Cambridge University Press
ISBN: 110883096X
Category : Law
Languages : en
Pages : 493
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Book Description
The emergence of digital platforms and the new application economy are transforming healthcare and creating new opportunities and risks for all stakeholders in the medical ecosystem. Many of these developments rely heavily on data and AI algorithms to prevent, diagnose, treat, and monitor diseases and other health conditions. A broad range of medical, ethical and legal knowledge is now required to navigate this highly complex and fast-changing space. This collection brings together scholars from medicine and law, but also ethics, management, philosophy, and computer science, to examine current and future technological, policy and regulatory issues. In particular, the book addresses the challenge of integrating data protection and privacy concerns into the design of emerging healthcare products and services. With a number of comparative case studies, the book offers a high-level, global, and interdisciplinary perspective on the normative and policy dilemmas raised by the proliferation of information technologies in a healthcare context.
Author: OECD
Publisher: OECD Publishing
ISBN: 9264244565
Category :
Languages : en
Pages : 202
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Book Description
This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.
Author: Julia Duffy
Publisher: Cambridge University Press
ISBN: 100930450X
Category : Law
Languages : en
Pages : 299
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Book Description
Personhood, in liberal philosophical and legal traditions, has long been grounded in the idea of autonomy and the right to legal capacity. However, in this book, Julia Duffy questions these assumptions and shows how such beliefs exclude and undermine the rights of adults with cognitive disability. Instead, she reinterprets the right to legal capacity through the principle of the interdependence and indivisibility of human rights. In doing so, she compellingly argues that dignity and not autonomy ought to be the basis of personhood. Using illustrative case studies, Duffy demonstrates that the key human rights values of autonomy, dignity and equality can only be achieved by fulfilling a range of interdependent human rights. With this innovative book challenging common assumptions about human rights and personhood, Duffy leads the way in ensuring civil, economic, political, social, and cultural inclusion for adults with cognitive disabilities.
Author: Louise Corti
Publisher: SAGE
ISBN: 152648238X
Category : Social Science
Languages : en
Pages : 368
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Book Description
Written by experts at the UK Data Archive, with over thirty years of experience in working with and teaching people to work with data, this book is the globally-reaching guide for any postgraduate student or researcher looking to build their data management skills. Focused on both primary and secondary data and packed with checklists and templates, it contains everything readers need to know for managing all types data before, during, and after the research process. Building on foundational data management techniques, it offers practical advice and insight into the unique skills needed to work with newer forms of data, like social media and big data. It also demonstrates how to: - Identify quality data that is credible, ethically-sound, and available for use - Choose and collect data suitable for particular research questions and project scopes - Work with personal, communal, administrative, and other sensitive and public data - Make the most of metadata - Visualise and share data using innovative platforms like blogs, infographics, and podcasts.
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309370884
Category : Science
Languages : en
Pages : 115
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Book Description
On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.
