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Author: Robert Rummel-Hudson
Publisher: St. Martin's Press
ISBN: 1429946687
Category : Family & Relationships
Languages : en
Pages : 292
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Book Description
Schuyler's Monster is an honest, funny, and heart-wrenching story of a family, and particularly a little girl, who won't give up when faced with a monster that steals her voice but can't crush her spirit. When Schuyler was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with Bilateral perisylvian polymicrogyria (an extremely rare neurological disorder caused by a malformation of the brain.), her parents were given a name for the monster that had been stalking them from doctor visit to doctor visit and throughout the search for the correct answer to Schuyler's mystery. Once they knew why she couldn't speak, they needed to determine how to help her learn. They didn't know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy. Schuyler's Monster is more than the memoir of a parent dealing with a child's disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child's dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
Author: Robert Rummel-Hudson
Publisher: St. Martin's Press
ISBN: 1429946687
Category : Family & Relationships
Languages : en
Pages : 292
Get Book Here
Book Description
Schuyler's Monster is an honest, funny, and heart-wrenching story of a family, and particularly a little girl, who won't give up when faced with a monster that steals her voice but can't crush her spirit. When Schuyler was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with Bilateral perisylvian polymicrogyria (an extremely rare neurological disorder caused by a malformation of the brain.), her parents were given a name for the monster that had been stalking them from doctor visit to doctor visit and throughout the search for the correct answer to Schuyler's mystery. Once they knew why she couldn't speak, they needed to determine how to help her learn. They didn't know that Schuyler was going to teach them a thing or two about fearlessness, tenacity, and joy. Schuyler's Monster is more than the memoir of a parent dealing with a child's disability. It is the story of the relationship between a unique and ethereal little girl floating through the world without words, and her earthbound father who struggles with whether or not he is the right dad for the job. It is the story of a family seeking answers to a child's dilemma, but it is also a chronicle of their unique relationships, formed without traditional language against the expectations of a doubting world. It is a story that has equal measure of laughter and tears. Ultimately, it is the tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs. Schuyler can now communicate through assistive technology, and continues to be the source of her father's inspiration, literary and otherwise.
Author: Amanda Apgar
Publisher: University of Michigan Press
ISBN: 0472903039
Category : Social Science
Languages : en
Pages : 215
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Book Description
When children are born with disabilities or become disabled in childhood, parents often experience bewilderment: they find themselves unexpectedly in another world, without a roadmap, without community, and without narratives to make sense of their experiences. The Disabled Child: Memoirs of a Normal Future tracks the narratives that have emerged from the community of parent-memoirists who, since the 1980s, have written in resistance of their children’s exclusion from culture. Though the disabilities represented in the genre are diverse, the memoirs share a number of remarkable similarities; they are generally written by white, heterosexual, middle or upper-middle class, ablebodied parents, and they depict narratives in which the disabled child overcomes barriers to a normal childhood and adulthood. Apgar demonstrates that in the process of telling these stories, which recuperate their children as productive members of society, parental memoirists write their children into dominant cultural narratives about gender, race, and class. By reinforcing and buying into these norms, Apgar argues, “special needs” parental memoirs reinforce ableism at the same time that they’re writing against it.
Author: Arie Kaplan
Publisher: The Rosen Publishing Group, Inc
ISBN: 144885623X
Category : Juvenile Nonfiction
Languages : en
Pages : 72
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Book Description
Introduces weblogs, including the history of the blog, how to create an informative and insightful blog, and the proper Internet etiquette for writing and maintaining a weblog.
Author: Mary E. Williams
Publisher: Greenhaven Publishing LLC
ISBN: 0737766042
Category : Young Adult Nonfiction
Languages : en
Pages : 156
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Book Description
40 million Americans have communication disorders. Your readers are provided with essential information on speech disorders. This book also serves as a historical survey, by providing information on the controversies surrounding its causes. Compelling first-person narratives by people coping with speech disorders give readers a first-hand experience. Patients, family members, or caregivers explain the condition from their own experience. The symptoms, causes, treatments, and potential cures are explained in detail. Essential to anyone trying to learn about diseases and conditions, the alternative treatments are explored. Each essay is carefully edited and presented with an introduction, so that they are accessible for student researchers and readers.
Author: Kerry Cohen
Publisher: Seal Press
ISBN: 1580053696
Category : Family & Relationships
Languages : en
Pages : 290
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Book Description
Seeing Ezra is the soulful, beautifully written memoir of a mother’s fierce love for her autistic son, and a poignant examination of what it means to be “normal.” When Kerry Cohen’s son Ezra turns one, a babysitter suggests he may be “different,” setting her family on a path in which autism dominates their world. As he becomes a toddler and they navigate the often rigid and prescriptive world of therapy, Cohen is unsettled by the evaluations they undergo: At home, Ezra is playfully expressive, sharing profound, touching moments of connection and intimacy with his mother and other family members, but in therapy he is pathologized, prodded to behave in ways that undermine his unique expression of autism. It soon becomes clear that more is at stake than just Ezra’s well-being; Cohen and her marriage are suffering as well. Ezra’s differentness, and the strain of pursuing varied therapies, takes a toll on the family—Cohen’s husband grows depressed and she pursues an affair—all as she tries to help others recognize and embrace Ezra’s uniqueness rather than force him to behave outside his comfort level. It isn’t until they abandon the expected, prescriptive notions about love, marriage, and individuality that they are able to come back together as two parents who fiercely love their little boy. Powerful and eye-opening, Seeing Ezra is an inspirational chronicle of a mother’s struggle to protect her son from a system that seeks to compartmentalize and “fix” him, and of her journey toward accepting and valuing him for who he is—just as he is.
Author: Alison Piepmeier
Publisher: NYU Press
ISBN: 1479879959
Category : Social Science
Languages : en
Pages : 195
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Book Description
What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today’s world. Piepmeier takes us inside her own daughter’s life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.
Author: Kerry Cohen
Publisher: Penguin
ISBN: 1599637995
Category : Language Arts & Disciplines
Languages : en
Pages : 242
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Book Description
Baring the Truth in Your Memoir When you write a memoir or personal essay, you dare to reveal the truths of your experience: about yourself, and about others in your life. How do you expose long-guarded secrets and discuss bad behavior? How do you gracefully portray your family members, friends, spouses, exes, and children without damaging your relationships? How do you balance your respect for others with your desire to tell the truth? In The Truth of Memoir, best-selling memoirist Kerry Cohen provides insight and guidelines for depicting the characters who appear in your work with honesty and compassion. You'll learn how to choose which details to include and which secrets to tell, how to render the people in your life artfully and fully on the page, and what reactions you can expect from those you include in your work--as well as from readers and the media. Featuring over twenty candid essays from memoirists sharing their experiences and advice, as well as exercises for writing about others in your memoirs and essays, The Truth of Memoir will give you the courage and confidence to write your story--and all of its requisite characters--with truth and grace. "Kerry Cohen's The Truth of Memoir is a smart, soulful, psychologically astute guide to first-person writing. She reveals everything you want to know--but were afraid to ask--about telling your life story." --Susan Shapiro, author of eight books including Only As Good as Your Word, and co-author of The Bosnia List
Author: Martha Kimes
Publisher: Simon and Schuster
ISBN: 0743288394
Category : Biography & Autobiography
Languages : en
Pages : 290
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Book Description
"One L" meets "Legally Blonde" in this candid, funny, and true story about one woman's experiences at the Columbia University School of Law.
Author: Filip Loncke
Publisher: Plural Publishing
ISBN: 163550130X
Category : Medical
Languages : en
Pages : 342
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Book Description
Augmentative and Alternative Communication: Models and Applications, Second Edition describes augmentative and alternative communication (AAC) comprehensively and offers a framework for understanding how AAC intervention can be used in the process of communication. This textbook is intended to serve as the primary text for graduate-level courses in augmentative and alternative communication in speech-language pathology programs. It also serves as an essential resource for practicing clinicians. AAC is used by an ever-growing group of individuals of all ages, each with their own personal and communication needs. The book presents the various AAC interventions and teaches the prospective clinician which intervention may be effective depending on the needs, condition, and prognosis of the client. The text details how communication is shaped by internal and external factors and how communication affects social functioning. New to the Second Edition: * A revised introductory chapter reflecting recent changes in the field * Thoroughly updated chapters on technology, vocabulary, and assessment * Reorganization of the chapters for a more natural flow of information * New and revised artwork throughout including images, tables, and charts * New and expanded case studies covering different types of communicators, their needs, and AAC solutions Expanded coverage on the following topics: * The debate on core vocabulary and discussion of best practices * Perspectives and views from AAC users * Ethics in AAC service delivery * Research issues
Author: Danny Evans
Publisher: Penguin
ISBN: 1101108894
Category : Biography & Autobiography
Languages : en
Pages : 234
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Book Description
In his early thirties, Danny Evans had a smokin' hot wife, a new baby boy, and the highest paying job he'd ever had. Then, in the span of one week, a sudden layoff and the events of 9/11 plunged Evans into a crushing depression. At turns poignant and uproarious, Rage Against the Meshugenah vividly traces Evans' journey through the minefield of mental illness from a modern man's point-of-view, including his no-holds-barred confrontations with infuriating sexual side effects, self-medication with beer and porn, and a therapist named Neil Diamond. Danny Evans is here to tell readers the truth about depression, in his own unique style. Skillfully combining self-deprecating humor, absurdly ridiculous insights, and astute pop culture references, Evans reveals his universal struggle to make himself feel happy in a world gone mad, and he's willing to let readers in on his rollercoaster ride of laugher, tears and a whole lot of meshugenah.
