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Author: Morgane Dufosset
Publisher:
ISBN:
Category :
Languages : fr
Pages : 0
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Book Description
Introduction : les maladies rares, malgré leurs faibles prévalences individuelles, touchent au total un grand nombre de malades et concernent particulièrement la population pédiatrique. Leur prise en charge s'est considérablement améliorée ces dernières années avec l'arrivée de nouveaux traitements, modifiant leur évolution sans être totalement curatifs. Comme cela soulève de nombreuses questions et dilemmes d'ordre éthique, nous avons réalisé une étude sur le respect des principes fondamentaux de l'éthique médicale dans la prise en charge des maladies rares en pédiatrie. Matériel et méthodes : nous avons réalisé une étude qualitative dans un service de Neurologie pédiatrique français. Nous avons inclus des soignants et des parents d'enfants suivis pour maladies rares et bénéficiant d'une thérapeutique innovante. Nous avons réalisé des entretiens semi dirigés et, après transcription, nous avons procédé à une analyse informatisée et manuelle. Résultats : 26 participants ont été inclus. Six grands thèmes ont été abordés : les maladies rares, la recherche scientifique et médicale, la prise en charge générale, les traitements spécifiques innovants, le dépistage néonatal et le coût de ces traitements. Dans les discours, l'enfant occupait une place centrale. Une importance particulière était donnée aux notions de connaissance, à l'information et à la relation médecin/famille. Une place importante était accordée aux objectifs des traitements avec en premier lieu l'amélioration de la qualité de vie. Il apparaissait également une notion de satisfaction concernant la prise en charge globale actuelle de ces maladies. Conclusion : notre étude suggère que nos prises en charge actuelles, incluant les thérapeutiques innovantes, respectent les quatre principes éthiques fondamentaux et ce, à la fois dans le discours des soignants et dans celui des parents.
Author: Morgane Dufosset
Publisher:
ISBN:
Category :
Languages : fr
Pages : 0
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Book Description
Introduction : les maladies rares, malgré leurs faibles prévalences individuelles, touchent au total un grand nombre de malades et concernent particulièrement la population pédiatrique. Leur prise en charge s'est considérablement améliorée ces dernières années avec l'arrivée de nouveaux traitements, modifiant leur évolution sans être totalement curatifs. Comme cela soulève de nombreuses questions et dilemmes d'ordre éthique, nous avons réalisé une étude sur le respect des principes fondamentaux de l'éthique médicale dans la prise en charge des maladies rares en pédiatrie. Matériel et méthodes : nous avons réalisé une étude qualitative dans un service de Neurologie pédiatrique français. Nous avons inclus des soignants et des parents d'enfants suivis pour maladies rares et bénéficiant d'une thérapeutique innovante. Nous avons réalisé des entretiens semi dirigés et, après transcription, nous avons procédé à une analyse informatisée et manuelle. Résultats : 26 participants ont été inclus. Six grands thèmes ont été abordés : les maladies rares, la recherche scientifique et médicale, la prise en charge générale, les traitements spécifiques innovants, le dépistage néonatal et le coût de ces traitements. Dans les discours, l'enfant occupait une place centrale. Une importance particulière était donnée aux notions de connaissance, à l'information et à la relation médecin/famille. Une place importante était accordée aux objectifs des traitements avec en premier lieu l'amélioration de la qualité de vie. Il apparaissait également une notion de satisfaction concernant la prise en charge globale actuelle de ces maladies. Conclusion : notre étude suggère que nos prises en charge actuelles, incluant les thérapeutiques innovantes, respectent les quatre principes éthiques fondamentaux et ce, à la fois dans le discours des soignants et dans celui des parents.
Author: Max Scheler
Publisher: Routledge
ISBN: 1351478869
Category : Philosophy
Languages : en
Pages : 280
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Book Description
The Nature of Sympathy explores, at different levels, the social emotions of fellow-feeling, the sense of identity, love and hatred, and traces their relationship to one another and to the values with which they are associated. Scheler criticizes other writers, from Adam Smith to Freud, who have argued that the sympathetic emotions derive from self-interested feelings or instincts. He reviews the evaluations of love and sympathy current in different historical periods and in different social and religious environments, and concludes by outlining a theory of fellow-feeling as the primary source of our knowledge of one another.A prolific writer and a stimulating thinker, Max Scheler ranks second only to Husserl as a leading member of the German phenomenological school. Scheler's work lies mostly in the fields of ethics, politics, sociology, and religion. He looked to the emotions, believing them capable, in their own quality, of revealing the nature of the objects, and more especially the values, to which they are in principle directed.
Author: World Health Organization
Publisher: World Health Organization
ISBN: 9241547006
Category : Health & Fitness
Languages : en
Pages : 284
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Book Description
Most women who die from cervical cancer, particularly in developing countries, are in the prime of their life. They may be raising children, caring for their family, and contributing to the social and economic life of their town or village. Their death is both a personal tragedy, and a sad and unnecessary loss to their family and their community. Unnecessary, because there is compelling evidence, as this Guide makes clear, that cervical cancer is one of the most preventable and treatable forms of cancer, as long as it is detected early and managed effectively. Unfortunately, the majority of women in developing countries still do not have access to cervical cancer prevention programmes. The consequence is that, often, cervical cancer is not detected until it is too late to be cured. An urgent effort is required if this situation is to be corrected. This Guide is intended to help those responsible for providing services aimed at reducing the burden posed by cervical cancer for women, communities and health systems. It focuses on the knowledge and skills needed by health care providers, at different levels of care.
Author: Alan D. Lopez
Publisher: World Bank Publications
ISBN: 0821362631
Category : Medical
Languages : en
Pages : 511
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Book Description
Strategic health planning, the cornerstone of initiatives designed to achieve health improvement goals around the world, requires an understanding of the comparative burden of diseases and injuries, their corresponding risk factors and the likely effects of invervention options. The Global Burden of Disease framework, originally published in 1990, has been widely adopted as the preferred method for health accounting and has become the standard to guide the setting of health research priorities. This publication sets out an updated assessment of the situation, with an analysis of trends observed since 1990 and a chapter on the sensitivity of GBD estimates to various sources of uncertainty in methods and data.
Author: Nathan I. Cherny
Publisher: Oxford University Press, USA
ISBN: 0199656096
Category : Medical
Languages : en
Pages : 1281
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Book Description
Emphasising the multi-disciplinary nature of palliative care the fourth edition of this text also looks at the individual professional roles that contribute to the best-quality palliative care.
Author: Alice Villalobos
Publisher: John Wiley & Sons
ISBN: 0470344075
Category : Medical
Languages : en
Pages : 402
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Book Description
Half the population of dogs and cats aged 10 and over will die of neoplasia. The bonds that clients have developed with their older pets are especially strong and drive the increasing demand for more proficient and highly compassionate medical treatment of companion animals diagnosed with cancer. This book offers more than just a competent clinical approach to the most common tumors in dogs and cats. This book also offers a focus on the special needs of geriatric pets and their owners. Amply illustrated with dozens of case studies representative of those regularly encountered in practice, Canine and Feline Geriatric Oncology will provide readers with the tools needed to diagnose and treat aging pets with cancer, and to help clients make the best decisions for themselves and for the animals with whom they share their lives. Canine and Feline Geriatric Oncology is a unique resource. It is a useful oncology reference for specialists, veterinarians in general practice, veterinary technicians, and clinic staff. The many "what ifs" that the practitioner inevitably faces in interactions with clients and their aging pets with cancer are presented and discussed. Special Features: * Focuses on the special needs of geriatric pets and their caregivers; * Offers direction in the diagnosis and treatment of aging pets with cancer; * Addresses many of the "what ifs" that arise in interactions with clients and aging pets with cancer; * Amply illustrated with full color throughout; * A valuable reference for practicing veterinarians, technicians, hospital staff, and professionals involved in supportive counseling for pet caregivers.
Author: World Health Organization
Publisher:
ISBN: 9789241548120
Category : Medical
Languages : en
Pages : 166
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Book Description
These guidelines have been developed to support countries to relieve pain in their paediatric populations. These guidelines address persisting pain in children caused by conditions such as cancer, HIV/AIDS, sickle-cell disease, burns, trauma, and phantom limb pain. Recommendations -- developed following a careful and transparent appraisal of available evidence -- are presented for the pharmacological treatment of mild, moderate and severe pain. The guidelines include chapters on the various systems used to classify pain and on the evaluation of pain, which reviews the available tools for routine pain measurement in children. Provision of sustainable pain relief within health care systems is covered in a separate chapter. Since morphine and other opioid analgesics -- required for the relief of moderate-to-severe pain in children -- are listed under the 1961 UN Single Convention on Narcotic Drugs, the new guidelines include an annex explaining the Convention's requirements for the handling and procurement of opioid analgesics for the relief of pain.
Author: Gary Francione
Publisher: Temple University Press
ISBN: 1439905126
Category : Law
Languages : en
Pages : 276
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Book Description
Argues that the way humans treat animals results from the contradiction between the ideas that animals have some rights, but that they are also property, and offers ways to resolve the conflict.
Author: World Health Organization
Publisher: World Health Organization
ISBN: 9789241544825
Category : Analgesia
Languages : en
Pages : 74
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Book Description
The second edition of a guide, which introduced a simple, yet highly effective method for the relief of cancer pain. Thoroughly revised and updated, the new edition further refines the WHO method, which advocates the use of a small number of relatively inexpensive drugs, including morphine. Revisions draw on experiences with millions of patients around the world as well as new knowledge about the specific pain syndromes unique to cancer. Completely new are chapters describing the international system by which morphine and other opioids are made available for medical purposes. The book has two parts. Part one provides a practical guide to the relief of cancer pain, concentrating on drug treatment as the mainstay of pain management. The most extensive section sets out detailed guidelines for the selection and prescribing of non-opioid analgesics, opioid analgesics, drugs for neuropathic pain, and adjuvant drugs for the treatment of adverse effects, the enhancement of pain relief and the management of concomitant psychological disturbances. Information ranges from explanations of how specific drugs work, through the precautions to take in the presence of certain disorders, to a list of factors that influence the effectiveness of opioids. Concerning the use of opioids, readers are reminded that psychological dependence does not occur in cancer patients and that the only correct dose of morphine is the one that relieves the pain. Part two provides a guide to opioid availability. A discussion of the reasons why opioids continue to be underprescribed or difficult to obtain is followed by an explanation of the Single Convention on Narcotic Drugs.
Author: Richard Hain
Publisher: Oxford University Press
ISBN: 019882131X
Category : Medical
Languages : en
Pages : 535
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Book Description
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.
