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Author: Victor Almon McKusick
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 552
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Book Description
Author: Victor Almon McKusick
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 552
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Book Description
Author: Clair A. Francomano
Publisher:
ISBN:
Category :
Languages : en
Pages : 83
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Author: Victor Almon McKusick
Publisher:
ISBN:
Category : Amish
Languages : en
Pages : 20
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Author: Sarah Miller-Fellows
Publisher:
ISBN:
Category : Amish
Languages : en
Pages : 323
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Book Description
Amish communities have a unique distribution of genetic disorders due to founder effect and endogamy. The aim of this research was to examine how Amish communities have responded to the presence of many rare inherited diseases. This research specifically focused on the role of genetic medicine clinics in Amish communities and how the presence of genetic diseases has shaped Amish reproduction. Through a 2-year ethnographic study, including 61 interviews, participant observation and text analysis, I explored a variety of Amish responses to genetic disorders and disability. I found that Amish communities largely accept those with disabilities as part of the fabric of God’s creation, using the emic category of special children to describe the particular role those with intellectual disabilities play in their communities. Amish communities have developed diverse social, financial, educational, vocational and medical support systems for those with disabilities. One such medical support is clinics for inherited disorders and other complex medical needs. These clinics hybridize biomedicine with Amish culture, emphasizing relationships, low cost care, Amish aesthetics and aiming to treat and manage disorders rather than prevent the births of those with disorders. Amish people’s widespread acceptance of disability has led women to use postnatal genetic testing through clinics rather than prenatal genetic testing. I argue that clinics and the practice of medicine within them provides a key example for how biomedicine becomes hybrid through its encounter with other cultures, forming in this case, a distinctly Amish medicine. This study expands previous anthropological literature by examining how hybridity can emerge as a response to issues of cultural competence and how cultural perspectives on disability can reshape medical practice.
Author: Harold E. Cross
Publisher:
ISBN:
Category : Amish
Languages : en
Pages :
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Author: Victor Almon McKusick
Publisher:
ISBN:
Category :
Languages : en
Pages : 525
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Author: Victor Almon McKusick
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 520
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Author: Margaret Andrews
Publisher: Lippincott Williams & Wilkins
ISBN: 1975110684
Category : Medical
Languages : en
Pages : 827
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Book Description
Ensure Culturally Competent, Contextually Meaningful Care for Every Patient Rooted in cultural assessment and trusted for its proven approach, Transcultural Concepts in Nursing Care is your key to ensuring safe, ethical and effective care to diverse cultures and populations. This comprehensive text helps you master transcultural theories, models and research studies while honing the communication and collaboration skills essential to success in today’s changing clinical nursing environment. Updated content familiarizes you with changes in the healthcare delivery system, new research studies and theoretical advances. Evidence-Based Practice boxes ground concepts in the latest research studies and highlight clinical implications for effective practice. Case Studies , based on the authors’ actual clinical experiences and research findings, help you translate concepts to clinical applications across diverse healthcare settings. Review questions and learning activities in each chapter inspire critical thinking and allow you to apply your knowledge. Chapter objectives and key terms keep you focused on each chapter’s most important concepts.
Author: M. Susan Lindee
Publisher: JHU Press
ISBN: 0801891019
Category : Medical
Languages : en
Pages : 283
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Book Description
Medical genetics.
Author: Charles E. Hurst
Publisher: JHU Press
ISBN: 0801897904
Category : Religion
Languages : en
Pages : 377
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Book Description
Winner, 2011 Dale Brown Book Award for Outstanding Scholarship in Anabaptist and Pietist Studies. Young Center for Anabaptist and Pietist Studies at Elizabethtown College Holmes County, Ohio, is home to the largest and most diverse Amish community in the world. Yet, surprisingly, it remains relatively unknown compared to its famous cousin in Lancaster, Pennsylvania. Charles E. Hurst and David L. McConnell conducted seven years of fieldwork, including interviews with over 200 residents, to understand the dynamism that drives social change and schism within the settlement, where Amish enterprises and nonfarming employment have prospered. The authors contend that the Holmes County Amish are experiencing an unprecedented and complex process of change as their increasing entanglement with the non-Amish market causes them to rethink their religious convictions, family practices, educational choices, occupational shifts, and health care options. The authors challenge the popular image of the Amish as a homogeneous, static, insulated society, showing how the Amish balance tensions between individual needs and community values. They find that self-made millionaires work alongside struggling dairy farmers; successful female entrepreneurs live next door to stay-at-home mothers; and teenagers both embrace and reject the coming-of-age ritual, rumspringa. An Amish Paradox captures the complexity and creativity of the Holmes County Amish, dispelling the image of the Amish as a vestige of a bygone era and showing how they reinterpret tradition as modernity encroaches on their distinct way of life.