Living with HHT

Living with HHT PDF Author: Sara Palmer
Publisher: JHU Press
ISBN: 1421423901
Category : Health & Fitness
Languages : en
Pages : 199

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Book Description
Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

Living with HHT

Living with HHT PDF Author: Sara Palmer
Publisher: JHU Press
ISBN: 1421423901
Category : Health & Fitness
Languages : en
Pages : 199

Get Book Here

Book Description
Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

Just One of the Kids

Just One of the Kids PDF Author: Kay Harris Kriegsman
Publisher: JHU Press
ISBN: 1421409321
Category : Health & Fitness
Languages : en
Pages : 241

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Book Description
Supporting and encouraging all members of the family when a child has a physical disability. If you have a child with a physical disability, how can you plan your family’s life in a way that is inclusive for everyone? What can you do to create a family where every member pulls his or her own weight (in appropriate measure), meets challenges, and has moments in the spotlight along the way? Most parents of a child who has a physical disability want their child to have fun, be responsible, make friends, and take acceptable risks—in short, to feel like “just one of the kids”—and they want to make sure that the needs of the whole family are met, too. Just One of the Kids is designed to help parents focus not on what could have been but instead on what can be, so that they, their children, and the grandparents thrive as individuals and as a family. The advice from psychologists Kay Harris Kriegsman and Sara Palmer is valuable for any family with children who have a physical disability, from any cause. Their warm and encouraging book is full of family stories, tips, and tools. Parents of children with physical disabilities can help them develop the skills needed to meet life’s challenges and launch into independence. Parents, building on that foundation and acknowledging each person’s contributions, interests, and aspirations, create an inclusive and resilient family.

Congenital Vascular Lesions of the Head and Neck, An Issue of Otolaryngologic Clinics of North America

Congenital Vascular Lesions of the Head and Neck, An Issue of Otolaryngologic Clinics of North America PDF Author: Teresa O
Publisher: Elsevier Health Sciences
ISBN: 0323552897
Category : Medical
Languages : en
Pages : 297

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Book Description
This issue of Otolaryngologic Clinics, guest edited by Drs. Teresa M. O and Milton Waner, is devoted to Congenital Vascular Lesions of the Head and Neck. Articles in this issue include: Classification and Pathology of Congenital Vascular Anomalies of the Head and Neck; Etiology and Genetics of Congenital Vascular Lesions; Radiological Evaluation of Congenital Vascular Anomalies; Congenital Vascular Tumors; The Role of Surgery in the Management of Infantile Hemangiomas; The Management of Airway Infantile Hemangiomas; Multidisciplinary Approach to the Management of Lymphatic Malformations of the Head and Neck; New Frontiers in Our Understanding of Lymphatic Malformations of the Head and Neck; Venous Malformations of the Head and Neck; Capillary Malformations of the Head and Neck; Arteriovenous Malformations of the Head and Neck; The Management of Vascular Malformations of the Airway; Role of Neurophysiological Monitoring in the Surgical Management of Congenital Vascular Lesions of the Head and Neck; Acquired Vascular Tumors of the Head and Neck; Orthognathic and Dental Considerations; Hereditary Hemorrhagic Telangiectasia; and Psychosocial Impact of Living with a Facial Vascular Lesion.

Spinal Cord Injury

Spinal Cord Injury PDF Author: Sara Palmer
Publisher:
ISBN: 9780801863530
Category : Adaptability (Psychology)
Languages : en
Pages : 0

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Book Description
"A comprehensive resource for coping with medical, emotional, and practical challenges."--Cover.

Sidewalk

Sidewalk PDF Author: Mitchell Duneier
Publisher: Farrar, Straus and Giroux
ISBN: 1466833033
Category : Social Science
Languages : en
Pages : 404

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Book Description
An exceptional ethnography marked by clarity and candor, Sidewalk takes us into the socio-cultural environment of those who, though often seen as threatening or unseemly, work day after day on "the blocks" of one of New York's most diverse neighborhoods. Sociologist Duneier, author of Slim's Table, offers an accessible and compelling group portrait of several poor black men who make their livelihoods on the sidewalks of Greenwich Village selling secondhand goods, panhandling, and scavenging books and magazines. Duneier spent five years with these individuals, and in Sidewalk he argues that, contrary to the opinion of various city officials, they actually contribute significantly to the order and well-being of the Village. An important study of the heart and mind of the street, Sidewalk also features an insightful afterword by longtime book vendor Hakim Hasan. This fascinating study reveals today's urban life in all its complexity: its vitality, its conflicts about class and race, and its surprising opportunities for empathy among strangers. Sidewalk is an excellent supplementary text for a range of courses: INTRODUCTION TO SOCIOLOGY: Shows how to make important links between micro and macro; how a research project works; how sociology can transform common sense. RACE AND ETHNIC RELATIONS: Untangles race, class, and gender as they work together on the street. URBAN STUDIES: Asks how public space is used and contested by men and women, blacks and whites, rich and poor, and how street life and political economy interact. DEVIANCE: Looks at labeling processes in treatment of the homeless; interrogates the "broken windows" theory of policing. LAW AND SOCIETY: Closely examines the connections between formal and informal systems of social control. METHODS: Shows how ethnography works; includes a detailed methodological appendix and an afterword by research subject Hakim Hasan. CULTURAL ANTHROPOLOGY: Sidewalk engages the rich terrain of recent developments regarding representation, writing, and authority; in the tradition of Elliot Liebow and Ulf Hannerz, it deals with age old problems of the social and cultural experience of inequality; this is a telling study of culture on the margins of American society. CULTURAL STUDIES: Breaking down disciplinary boundaries, Sidewalk shows how books and magazines are received and interpreted in discussions among working-class people on the sidewalk; it shows how cultural knowledge is deployed by vendors and scavengers to generate subsistence in public space. SOCIOLOGY OF CULTURE: Sidewalk demonstrates the connections between culture and human agency and innovation; it interrogates distinctions between legitimate subcultures and deviant collectivities; it illustrates conflicts over cultural diversity in public space; and, ultimately, it shows how conflicts over meaning are central to social life.

When Your Spouse Has a Stroke

When Your Spouse Has a Stroke PDF Author: Sara Palmer
Publisher: Johns Hopkins University Press
ISBN: 9780801898877
Category : Medical
Languages : en
Pages : 0

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Book Description
A stroke can alter two people's lives in an instant. For the person who has had a stroke, simple tasks suddenly become difficult or impossible. For that person's partner, life seems to revolve mostly around the stroke survivor's needs. Such a drastic change naturally requires making many, sometimes taxing, adjustments. In this book, two experts in stroke recovery help couples deal with the impact of stroke on their lives and their relationship. Drs. Sara and Jeffrey Palmer explain how to overcome three major challenges: • providing quality care for your partner • maintaining or rebuilding your relationship • caring for yourself as an individual The book invites you into the lives of real couples who are themselves coping with these challenges. Their experiences model how you can improve essential aspects of your relationship, including communication, roles and responsibilities, and sexuality. A list of practical tips summarizes each chapter, providing a handy reference guide to meeting each day's challenges. More than just a discussion of the medical and practical aspects of stroke and stroke recovery, this book focuses on the emotional, psychological, and social consequences of stroke and the deeply personal side of caregiving. When Your Spouse Has a Stroke will relieve your burden and strengthen your partnership.

Doormen

Doormen PDF Author: Peter Bearman
Publisher: University of Chicago Press
ISBN: 0226039714
Category : Social Science
Languages : en
Pages : 305

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Book Description
Little fascinates New Yorkers more than doormen, who know far more about tenants than tenants know about them. Doormen know what their tenants eat, what kind of movies they watch, whom they spend time with, whether they drink too much, and whether they have kinky sex. But if doormen are unusually familiar with their tenants, they are also socially very distant. In Doormen, Peter Bearman untangles this unusual dynamic to reveal the many ways that tenants and doormen negotiate their complex relationship. Combining observation, interviews, and survey information, Doormen provides a deep and enduring ethnography of the occupational role of doormen, the dynamics of the residential lobby, and the mundane features of highly consequential social exchanges between doormen and tenants. Here, Bearman explains why doormen find their jobs both boring and stressful, why tenants feel anxious about how much of a Christmas bonus their neighbors give, and how everyday transactions small and large affect tenants' professional and informal relationships with doormen. In the daily life of the doorman resides the profound, and this book provides a brilliant account of how tenants and doormen interact within the complex world of the lobby.

Grit

Grit PDF Author: Angela Duckworth
Publisher: Simon and Schuster
ISBN: 1501111124
Category : Self-Help
Languages : en
Pages : 350

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Book Description
In this instant New York Times bestseller, Angela Duckworth shows anyone striving to succeed that the secret to outstanding achievement is not talent, but a special blend of passion and persistence she calls “grit.” “Inspiration for non-geniuses everywhere” (People). The daughter of a scientist who frequently noted her lack of “genius,” Angela Duckworth is now a celebrated researcher and professor. It was her early eye-opening stints in teaching, business consulting, and neuroscience that led to her hypothesis about what really drives success: not genius, but a unique combination of passion and long-term perseverance. In Grit, she takes us into the field to visit cadets struggling through their first days at West Point, teachers working in some of the toughest schools, and young finalists in the National Spelling Bee. She also mines fascinating insights from history and shows what can be gleaned from modern experiments in peak performance. Finally, she shares what she’s learned from interviewing dozens of high achievers—from JP Morgan CEO Jamie Dimon to New Yorker cartoon editor Bob Mankoff to Seattle Seahawks Coach Pete Carroll. “Duckworth’s ideas about the cultivation of tenacity have clearly changed some lives for the better” (The New York Times Book Review). Among Grit’s most valuable insights: any effort you make ultimately counts twice toward your goal; grit can be learned, regardless of IQ or circumstances; when it comes to child-rearing, neither a warm embrace nor high standards will work by themselves; how to trigger lifelong interest; the magic of the Hard Thing Rule; and so much more. Winningly personal, insightful, and even life-changing, Grit is a book about what goes through your head when you fall down, and how that—not talent or luck—makes all the difference. This is “a fascinating tour of the psychological research on success” (The Wall Street Journal).

Living with HHT

Living with HHT PDF Author: Sara Palmer
Publisher: JHU Press
ISBN: 142142391X
Category : Health & Fitness
Languages : en
Pages : 199

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Book Description
Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT. Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess. Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible. Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

The Way of Kings

The Way of Kings PDF Author: Brandon Sanderson
Publisher: Macmillan
ISBN: 0765376679
Category : Fiction
Languages : en
Pages : 1013

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Book Description
A new epic fantasy series from the New York Times bestselling author chosen to complete Robert Jordan's The Wheel of Time® Series