Lessons from a Disabled Caregiver

Lessons from a Disabled Caregiver PDF Author: William G. Reed
Publisher: McFarland
ISBN: 1476645213
Category : Medical
Languages : en
Pages : 262

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Book Description
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.

Lessons from a Disabled Caregiver

Lessons from a Disabled Caregiver PDF Author: William G. Reed
Publisher: McFarland
ISBN: 1476645213
Category : Medical
Languages : en
Pages : 262

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Book Description
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.

Families Caring for an Aging America

Families Caring for an Aging America PDF Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
ISBN: 0309448093
Category : Medical
Languages : en
Pages : 367

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Book Description
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

Patient Safety and Quality

Patient Safety and Quality PDF Author: Ronda Hughes
Publisher: Department of Health and Human Services
ISBN:
Category : Medical
Languages : en
Pages : 592

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Book Description
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

Cerebral Palsy

Cerebral Palsy PDF Author: Freeman Miller
Publisher: JHU Press
ISBN: 0801883547
Category : Health & Fitness
Languages : en
Pages : 548

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Book Description
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

Learning from My Daughter

Learning from My Daughter PDF Author: Eva Feder Kittay
Publisher: Oxford University Press
ISBN: 0190844620
Category : Philosophy
Languages : en
Pages : 435

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Book Description
Does life have meaning? What is flourishing? How do we attain the good life? Philosophers, and many others of us, have explored these questions for centuries. As Eva Feder Kittay points out, however, there is a flaw in the essential premise of these questions: they seem oblivious to the very nature of the ways in which humans live, omitting a world of co-dependency, and of the fact that we live in and through our bodies, whether they are fully abled or disabled. Our dependent, vulnerable, messy, changeable, and embodied experience colors everything about our lives both on the surface and when it comes to deeper concepts, but we tend to leave aside the body for the mind when it comes to philosophical matters. Disability offers a powerful challenge to long-held philosophical views about the nature of the good life, what provides meaning in our lives, and the centrality of reason, as well as questions of justice, dignity, and personhood. These concepts need not be distant and idealized; the answers are right before us, in the way humans interact with one another, care for one another, and need one another--whether they possess full mental capacities or have cognitive limitations. We need to revise our concepts of things like dignity and personhood in light of this important correction, Kittay argues. This is the first of two books in which Kittay will grapple with just how we need to revisit core philosophical ideas in light of disabled people's experience and way of being in the world. Kittay, an award-winning philosopher who is also the mother to a multiply-disabled daughter, interweaves the personal voice with the philosophical as a critical method of philosophical investigation. Here, she addresses why cognitive disability can reorient us to what truly matters, and questions the centrality of normalcy as part of a good life. With profound sensitivity and insight, Kittay examines other difficult topics: How can we look at the ethical questions regarding prenatal testing in light of a new appreciation of the personhood of disabled people? What do new possibilities in genetic testing imply for understanding disability, the family, and bioethics? How can we reconsider the importance of care, and how does it work best? In the process of pursuing these questions, Kittay articulates an ethic of care, which is the ethical theory most useful for claiming full rights for disabled people and providing the opportunities for everyone to live joyful and fulfilling lives. She applies the lessons of care to the controversial alteration of severely cognitively disabled children known as the Ashley Treatment, whereby a child's growth is halted with extensive estrogen treatment and related bodily interventions are justified. This book both imparts lessons that advocate on behalf of those with significant disabilities, and constructs a moral theory grounded on our ability to give, receive, and share care and love. Above all, it aims to adjust social attitudes and misconceptions about life with disability.

Hope for the Caregiver

Hope for the Caregiver PDF Author: Peter Rosenberger
Publisher: Worthy Inspired
ISBN: 161795750X
Category : Religion
Languages : en
Pages : 202

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Book Description
There are 65.7 million caregivers in America, making up 29 percent of the U.S. adult population. Where does the caregiver turn when dealing with their own need for encouragement and renewal?

The Caregiver Helpbook

The Caregiver Helpbook PDF Author: Vicki L. Schmall
Publisher:
ISBN:
Category : Aging
Languages : en
Pages : 328

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Book Description


AARP Meditations for Caregivers

AARP Meditations for Caregivers PDF Author: Barry J. Jacobs
Publisher: Da Capo Lifelong Books
ISBN: 0738219037
Category : Self-Help
Languages : en
Pages : 242

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Book Description
An AARP book for caregivers combining day-to-day advice and uplifting guidance in a daily meditations format. Family care giving has its challenges: emotional overload, time constraints, anxiety, burnout, missed work, adult sibling conflicts, and marital issues. AARP Meditations for Caregivers blends emotional and spiritual motivation to minimize the strains while helping caregivers view their work as a mission from the heart. Chapters are organized by theme, including topics such as accepting your feelings, knowing your limits, seeking support, and managing stress. Each reading offers a poignant meditation, an anecdote drawn from the author's personal or clinical experience, and hands-on or psychological advice to foster coping skills and a sense of fulfillment. The meditations in this dispensable book will provide you with solutions to typical care giving challenges, offer relief and renewal through mindfulness, and inspire you to find meaning and value in the work you do. /DIV

AARP Love and Meaning after 50

AARP Love and Meaning after 50 PDF Author: Julia L. Mayer
Publisher: Hachette Go
ISBN: 0738286176
Category : Family & Relationships
Languages : en
Pages : 256

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Book Description
Sustain loving relationships and set yourself up for emotional wellness in your fifties, sixties, and beyond with this valuable collection of advice from two psychology experts. "Drs. Mayer and Jacobs use their clinical wisdom and story-telling abilities to bring to life the challenges for couples as they age. Their advice will help strengthen long-term relationships to combat the rising trend of Gray Divorce."--Janis Abrahms Spring, PhD, author of After the Affair and Life with Pop With couples divorcing at higher rates than any generation before, and longer lifespans leaving people unwilling to settle for an unsatisfying partner, it's more important than ever to refocus and strengthen your relationship. The only question is: how? In AARP Love and Meaning after 50, husband-wife psychologist team Julia Mayer and Barry Jacobs -- with 50+ years of experience between them -- identify the 10 most common challenges to sustain loving relationships: The Empty Nest * Extended Family * Finances * InfidelityRetirement * Downsizing and Relocating * SexHealth Concerns * Caregiving * Loss of Loved Ones AARP Love and Meaning after 50 offers insights and anecdotes, do it yourself assessments and follow-up exercises, and tips for connecting through the difficult times. With this book, you'll find deeper meaning and greater satisfaction for the decades ahead--together.

Positioning in a Wheelchair

Positioning in a Wheelchair PDF Author: Jan K. Mayall
Publisher: Slack
ISBN:
Category : Health & Fitness
Languages : en
Pages : 180

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Book Description
This manual helps the therapist to identify a positioning problem and perform a thorough assessment of the client to determine the cause of the problem. It also enables the therapist to assess available appliances and techniques to determine the most effective solution. It is intended to assist with clients who have mild to moderate positioning problems. A listing of manufacturers and distributors of existing and new equipment is included. This second edition assures optimal quality of life for the disabled adult by meeting the following objectives: Maximization of participation and independence in performing activities of daily living. Promoting the ability to interact with the environment. Prevention of pressure sores and alleviation of pain. Prevention of deformities. Provision of comfort. Facilitation of transfers and mobility. Assurance of safety.