Learning to Live with Huntington's Disease PDF Download
Are you looking for read ebook online? Search for your book and save it on your Kindle device, PC, phones or tablets. Download Learning to Live with Huntington's Disease PDF full book. Access full book title Learning to Live with Huntington's Disease by Sandy Sulaiman. Download full books in PDF and EPUB format.
Author: Sandy Sulaiman
Publisher: Jessica Kingsley Publishers
ISBN: 1843104873
Category : Family & Relationships
Languages : en
Pages : 178
Get Book Here
Book Description
Huntington's Disease (HD), is a hereditary illness passed on via a defective gene. This book offers one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. It also presents the struggles and strengths of the whole family when one member loses their future to a terminal illness.
Author: Sandy Sulaiman
Publisher: Jessica Kingsley Publishers
ISBN: 1843104873
Category : Family & Relationships
Languages : en
Pages : 178
Get Book Here
Book Description
Huntington's Disease (HD), is a hereditary illness passed on via a defective gene. This book offers one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. It also presents the struggles and strengths of the whole family when one member loses their future to a terminal illness.
Author: Sandy Sulaiman
Publisher: Jessica Kingsley Publishers
ISBN: 1846426308
Category : Health & Fitness
Languages : en
Pages : 178
Get Book Here
Book Description
Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.
Author: Adam Rosenblatt
Publisher:
ISBN: 9780963773029
Category : Huntington's chorea
Languages : en
Pages : 85
Get Book Here
Book Description
Author: Thomas D. Bird
Publisher:
ISBN: 0190684224
Category : Medical
Languages : en
Pages : 289
Get Book Here
Book Description
Can You Help Me?: Living in the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it. With a brief history of Huntington Disease and the occasional scientific detail, the true heart of the book is the human experience of the disorder: � The man who cannot stay out of prison because he is addicted to being a burglar. � Another man shoots and kills his roommate while watching television and cannot explain why he did it. � The woman with Huntington Disease copes with her depression by using Texas line dancing. � A twelve year old girl with juvenile Huntington Disease who can barely walk and talk, but her classmates rally around with touching and heartfelt support. � And the 72 year old man with late onset Huntington Disease and severe depression is made worse by ECT, but improved (for a while) with Transcranial Magnetic Stimulation. These are just some of the compelling stories of people of all ages and in all walks of life who feel trapped by a progressive degenerative brain disease from which there is no escape.
Author: Jane S. Paulsen
Publisher:
ISBN: 9780963773043
Category : Huntington's chorea
Languages : en
Pages : 46
Get Book Here
Book Description
Author: Lisa Genova
Publisher: Simon and Schuster
ISBN: 1476717834
Category : Fiction
Languages : en
Pages : 368
Get Book Here
Book Description
A New York Times bestseller ▪ A Library Journal Best Books of 2015 Pick ▪ A St. Louis Post-Dispatch Best Books of 2015 Pick ▪A GoodReads Top Ten Fiction Book of 2015 ▪ A People Magazine Great Read From New York Times bestselling author and neuroscientist Lisa Genova comes a “heartbreaking…very human novel” (Matthew Thomas, author of We Are Not Ourselves) that does for Huntington’s disease what her debut novel Still Alice did for Alzheimer’s. Joe O’Brien is a forty-three-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their twenties, and respected officer, Joe begins experiencing bouts of disorganized thinking, uncharacteristic temper outbursts, and strange, involuntary movements. He initially attributes these episodes to the stress of his job, but as these symptoms worsen, he agrees to see a neurologist and is handed a diagnosis that will change his and his family’s lives forever: Huntington’s disease. Huntington’s is a lethal neurodegenerative disease with no treatment and no cure, and each of Joe’s four children has a 50 percent chance of inheriting their father’s disease. While watching her potential future in her father’s escalating symptoms, twenty-one-year-old daughter Katie struggles with the questions this test imposes on her young adult life. As Joe’s symptoms worsen and he’s eventually stripped of his badge and more, Joe struggles to maintain hope and a sense of purpose, while Katie and her siblings must find the courage to either live a life “at risk” or learn their fate. Praised for writing that “explores the resilience of the human spirit” (San Francisco Chronicle), Lisa Genova has once again delivered a novel as powerful and unforgettable as the human insights at its core.
Author: Alice Wexler
Publisher: Yale University Press
ISBN: 0300151772
Category : Medical
Languages : en
Pages : 277
Get Book Here
Book Description
A groundbreaking medical and social history of a devastating hereditary neurological disorder once demonized as “the witchcraft disease” When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington’s as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to “belong to the disease”; the emergence of Huntington’s chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease.
Author: Brian O'Neill
Publisher: Psychology Press
ISBN: 1317698479
Category : Psychology
Languages : en
Pages : 197
Get Book Here
Book Description
Assistive technology for cognition is technology which can be used to enable, enhance, or extend cognitive function. This book systematically examines how cutting-edge digital technologies can assist the cognitive function of people with cognitive impairments, with the potential to revolutionize rehabilitation. Technologies are reviewed which direct attention, remind, recognize, prompt, and generally guide people through activities of daily living. Written by experts in neuropsychology and technology development, Assistive Technology for Cognition provides a comprehensive overview of the efficacy of technologies to assist people with brain impairments. Based on the list provided by the International Classification of Function, each chapter covers a different cognitive function; namely, attention, memory, affect, perception, executive function, language, numeracy, sequencing, and navigation onto which existing and future assistive technologies for cognition are mapped. This structure provides in-depth research in an accessible way, and will allow practitioners to move from an assessment of cognitive deficits to the prescription of an appropriate assistive technology for cognition. The chapters also make suggestions for future developments. Assistive Technology for Cognition will be of great interest to clinicians and researchers working in brain injury rehabilitation, technology developers, and also to students in clinical psychology, neuropsychology, and allied health disciplines.
Author: Kate McGovern
Publisher: Farrar, Straus and Giroux (BYR)
ISBN: 0374301603
Category : Young Adult Fiction
Languages : en
Pages : 351
Get Book Here
Book Description
Seventeen-year-old Rose Levenson has a decision to make: Does she want to know how she's going to die? Because when Rose turns eighteen, she can take the test that tells her if she carries the genetic mutation for Huntington's disease, the degenerative condition that is slowly killing her mother. With a fifty-fifty shot at inheriting her family's genetic curse, Rose is skeptical about pursuing anything that presumes she'll live to be a healthy adult-including her dream career in ballet and the possibility of falling in love. But when she meets a boy from a similarly flawed genetic pool and gets an audition for a dance scholarship across the country, Rose begins to question her carefully laid rules.
Author: Alice Wexler
Publisher: Univ of California Press
ISBN: 9780520207417
Category : Biography & Autobiography
Languages : en
Pages : 354
Get Book Here
Book Description
Wexler tells the story of a family at risk for Huntington's disease, a hereditary, incurable, fatal disorder from which her own mother died. This graceful and eloquent account goes beyond the specifics of the disease to explore the dynamics of family secrets, of living at risk, and the drama and limits of biomedical research. Photos.
