Author: Daphne Joslin
Publisher: Columbia University Press
ISBN: 0231504586
Category : Social Science
Languages : en
Pages : 335
Get Book Here
Book Description
An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families. Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.
Author: Annalee Kruger
Publisher:
ISBN:
Category :
Languages : en
Pages : 255
Get Book Here
Book Description
How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.
Author: Daphne Joslin
Publisher: Columbia University Press
ISBN: 0231119372
Category : Family & Relationships
Languages : en
Pages : 335
Get Book Here
Book Description
This collection covers a variety of issues facing elder caregivers: community health, aging, HIV services, child welfare, education, public policy, and mental health.
Author: Kate Washington
Publisher: Beacon Press
ISBN: 0807011509
Category : Medical
Languages : en
Pages : 226
Get Book Here
Book Description
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Author: Clare L. Stacey
Publisher: Cornell University Press
ISBN: 0801476992
Category : Medical
Languages : en
Pages : 215
Get Book Here
Book Description
Stacey draws on observations of and interviews with aides working in Ohio and California to explore the physical and emotional labor associated with the care of others.
Author: Cecilia Sem Obeng
Publisher: Berghahn Books
ISBN: 178920934X
Category : Social Science
Languages : en
Pages : 157
Get Book Here
Book Description
No detailed description available for "Invisible Faces and Hidden Stories".
Author: Aaron Alterra
Publisher: Cornell University Press
ISBN: 9780801474347
Category : Biography & Autobiography
Languages : en
Pages : 236
Get Book Here
Book Description
Forgetting how things are done -- The new primary care physician -- Second opinions -- Giving up the keys -- The right to know -- The real and the unreal -- Another way -- Paying the bill -- I want to go home -- Coda.
Author: Anita Ilta Garey
Publisher: Rutgers University Press
ISBN: 0813549558
Category : Business & Economics
Languages : en
Pages : 301
Get Book Here
Book Description
At the Heart of Work and Family presents original research on work and family by scholars who engage and build on the conceptual framework developed by well-known sociologist Arlie Russell Hochschild. These concepts, such as "the second shift," "the economy of gratitude," "emotion work," "feeling rules," "gender strategies," and "the time bind," are basic to sociology and have shaped both popular discussions and academic study. The common thread in these essays covering the gender division of housework, childcare networks, families in the global economy, and children of consumers is the incorporation of emotion, feelings, and meaning into the study of working families. These examinations, like Hochschild's own work, connect micro-level interaction to larger social and economic forces and illustrate the continued relevance of linking economic relations to emotional ones for understanding contemporary work-family life.
Author: Sherry N. Mong
Publisher: Cornell University Press
ISBN: 1501751468
Category : Medical
Languages : en
Pages : 217
Get Book Here
Book Description
Mixing personal history, interviewee voices, and academic theory from the fields of care work, the sociology of work, medical sociology, and nursing, Taking Care of Our Own introduces us to the hidden world of family caregivers. Using a multidimensional approach, Sherry N. Mong seeks to understand and analyze the types of skilled work that family caregivers do, the processes through which they learn and negotiate new skills, and the meanings that both caregivers and nurses attach to their care work. Taking Care of Our Own is based on sixty-two in-depth interviews with family caregivers, home and community health care nurses, and other expert observers to provide a lens through which in-home care processes are analyzed, while also exploring how caregivers learn necessary procedures. Further, Mong examines the emotional labor of caregiving, as well as the identities of caregivers and nurses who are key players in the labor process, and gives attention to the ways in which the labor is transferred from medical professionals to family caregivers.
Author: Pat Armstrong
Publisher: Canadian Scholars’ Press
ISBN: 1551305402
Category : Medical
Languages : en
Pages : 260
Get Book Here
Book Description
How can we plan, organize, distribute, and offer care in ways that treat both those who need it and those who provide it with dignity and respect? Using the example of residential services, Troubling Care: Critical Perspectives on Research and Practices investigates the fractures in our care systems and challenges how caring work is understood in social policy, in academic theory, and among health care providers. In this era defined by government cutbacks and a narrowing sense of collective responsibility, long-term residential care for the elderly and disabled is being undervalued and undermined. A result of a seven-year interdisciplinary research project-in-progress, this book draws together the work of fourteen leading health researchers, including sociologists, medical practitioners, social workers, policy researchers, cultural theorists, and historians. Using a feminist political economy lens, these scholars explore and challenge the theories, work organization, practices, and state-society relations that have come to shape long-term care. Troubling Care offers critical perspectives on the often disquieting arena of care provision and proposes alternatives for thinking about and meeting the needs of some of our most vulnerable citizens in ways that go beyond residential care. This book seeks to bridge not only the gaps between disciplines, but also those between theory and practice. Features: takes an interdisciplinary approach, making this work appropriate for courses in a variety of disciplines including sociology, medicine, social work, health policy, cultural studies, and political economy includes the work of fourteen leading health researchers, including sociologists, medical practitioners, social workers, policy researchers, cultural theorists, and historians bridges the gap between theory and practice by incorporating both theoretical research and specific case examples
