Haemophilia in Aotearoa New Zealand

Haemophilia in Aotearoa New Zealand PDF Author: Julie Park
Publisher: Routledge
ISBN: 042964907X
Category : Social Science
Languages : en
Pages : 218

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Book Description
Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

Haemophilia in Aotearoa New Zealand

Haemophilia in Aotearoa New Zealand PDF Author: Julie Park
Publisher: Routledge
ISBN: 042964907X
Category : Social Science
Languages : en
Pages : 218

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Book Description
Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

A Bleeding Nuisance

A Bleeding Nuisance PDF Author: Julie Park
Publisher:
ISBN: 9780908689514
Category : Hemophiliacs
Languages : en
Pages : 228

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Book Description


The Social Ecology of New Technologies and Haemophilia in New Zealand

The Social Ecology of New Technologies and Haemophilia in New Zealand PDF Author: Julie Park
Publisher:
ISBN: 9780958368674
Category : Hemophilia
Languages : en
Pages : 69

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Book Description
This research builds on previous studies conducted by the "Living with haemophilia" researchers over the past decade in New Zealand. The current study investigates the implications of new treatments, new technologies, and changes in health care for people and families with haemophilia and those who care for them, in the context of everyday living with haemophilia. The research design used semi-structured face-to-face interviews and/ or telephone interviews with 37 people, and participant observation at a range of haemophilia gatherings. We asked people to share with us their perceptions and/ or experience of prenatal genetic diagnosis, preimplantation genetic diagnosis, gene therapy, and new treatments for hepatitis C, as well as their everyday experiences with haemophilia. The study design and the reasons we undertook it are described in the introduction. The first substantive section highlights the everyday issues of living with haemophilia as a bleeding disorder. The second discusses the organisational ecology of haemophilia. The third traverses issues concerning haemophilia as a genetic disorder, passed down the generations, and the final section explores the presence of hepatitis C in the haemophilia community. In the conclusions we note that there are still some difficulties around the timely diagnosis of haemophilia. However, treatment for many people has changed from on-demand to prophylaxis and from the provision of blood products to recombinant products. These technologies have had significant effects on perceptions of the seriousness of haemophilia, on the safety of products, on daily living, and on relationships with the treatment sources: from products made from donations, to those manufactured by multinational pharmaceutical companies. There was a high level of awareness of the costs of treatment, compared to the earlier studies. The formation of a National Haemophilia Management Group, which was a result of years of work between the Haemophilia Foundation of New Zealand (HFNZ), medical experts, and Ministry of Health officials, was a very welcome development in 2006. The HFNZ continues play an important part in many people's lives. Despite a continuing emphasis on women as carriers, there is a greater realisation that men, too, pass on haemophilia, and that women can suffer from bleeding problems. Parents were exercised by the timing of when to tell their daughters about their carrier status, but carrier testing very seldom incurs the long delays of earlier years. Issues around carrying haemophilia on and reproductive choice are handled with great care in this community. A wide range of views were encountered, tempered by respect for the positions of others. Discussion of gene therapy was a little passé in this community, as it had been on an ever-moving horizon for many years, and because new alternative treatments were seemingly offering considerable benefits. However, gene therapy was not dismissed as a future possibility. Hepatitis C has had important effects on this community and on the individuals within it: effectively there is a hep C generation and a post-hep C generation. It was heartening that those undergoing the most recent form of treatment appeared to be experiencing better outcomes, although the treatment itself was gruelling. At the end of this research period, a Government announcement of acknowledgement, compensation and treatment was made, fulfilling a decade and a half of struggle for recognition of harm.

A Companion to Medical Anthropology

A Companion to Medical Anthropology PDF Author: Merrill Singer
Publisher: John Wiley & Sons
ISBN: 1119718902
Category : Social Science
Languages : en
Pages : 500

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Book Description
The fully revised new edition of the defining reference work in the field of medical anthropology A Companion to Medical Anthropology, Second Edition provides the most complete account of the key issues and debates in this dynamic, rapidly growing field. Bringing together contributions by leading international authorities in medical anthropology, this comprehensive reference work presents critical assessments and interpretations of a wide range of topical themes, including global and environmental health, political violence and war, poverty, malnutrition, substance abuse, reproductive health, and infectious diseases. Throughout the text, readers explore the global, historical, and political factors that continue to influence how health and illness are experienced and understood. The second edition is fully updated to reflect current controversies and significant new developments in the anthropology of health and related fields. More than twenty new and revised articles address research areas including war and health, illicit drug abuse, climate change and health, colonialism and modern biomedicine, activist-led research, syndemics, ethnomedicines, biocommunicability, COVID-19, and many others. Highlighting the impact medical anthropologists have on global health care policy and practice, A Companion to Medical Anthropology, Second Edition: Features specially commissioned articles by medical anthropologists working in communities worldwide Discusses future trends and emerging research areas in the field Describes biocultural approaches to health and illness and research design and methods in applied medical anthropology Addresses topics including chronic diseases, rising levels of inequality, war and health, migration and health, nutritional health, self-medication, and end of life care Part of the acclaimed Wiley Blackwell Companions to Anthropology series, A Companion to Medical Anthropology, Second Edition, remains an indispensable resource for medical anthropologists, as well as an excellent textbook for courses in medical anthropology, ethnomedicine, global health care, and medical policy.

Intimate Details & Vital Statistics

Intimate Details & Vital Statistics PDF Author: Peter Davis
Publisher: Auckland University Press
ISBN: 9781869401399
Category : AIDS (Disease)
Languages : en
Pages : 258

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Book Description
It offers a history of AIDS in this country and presents important and interesting research into the disease and into areas of social life that have previously been obscured by myth, taboo and legal prohibition. Contributors discuss the epidemic from the perspective of the groups involved, and outline the unique response of the New Zealand government and the public - a panic-free response characterised by early mobilisation, a preventive approach, and substantial involvement of the gay community.

Mosby's Dictionary of Medicine, Nursing and Health Professions - Australian & New Zealand Edition - eBook

Mosby's Dictionary of Medicine, Nursing and Health Professions - Australian & New Zealand Edition - eBook PDF Author: Peter Harris
Publisher: Elsevier Health Sciences
ISBN: 0729581381
Category : Medical
Languages : en
Pages : 2100

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Book Description
Perfect for: Students of Nursing, Medicine and Health Professions. Clinicians in Nursing, Medicine and Health Professions. Educators in Nursing, Medicine and Health Professions. Benefits: The only Australian medical dictionary. Receive free access to the dictionary's online resources. Over 30 medical and health specialties covered. Over 39,000 entries, plus enyclopedic entries of significant terms. Over 50 new drug entries. High quality images and tables. Widely used by students, educators and professionals, Mosby’s Dictionary of Medicine, Nursing & Health Professions, 3rd Edition is the definitive reference text for Australian and New Zealand regions. Harris, Nagy and Vardaxis’ Mosby’s Dictionary, 3rd Edition delivers more than 1,100 new and revised definitions, more than 50 new drug entries, and a total of 74 new and updated tables for key reference information to complement definitions. As the only Australian medical dictionary, you also benefit from context-specific information written in local spelling conventions alongside phonetic pronunciation guides throughout Harris, Nagy and Vardaxis’ reference book. Enhance your knowledge base with an array of free online content, which supplements Mosby’s Dictionary of Medicine, Nursing & Health Professions, 3rd Edition. Make the most of the online regionalised spellchecker, five comprehensive appendices and an extensive image collection that can be viewed offline, including a printable colour atlas of human anatomy. over 39,000 clear, precise entries, plus encyclopaedic entries of significant terms over 2000 high quality images and the apt use of tables to demonstrate and clarify more than 30 medical and health specialties represented a detailed colour atlas of anatomy, enhancing the comprehension of anatomical terms local spelling conventions and phonetic pronunciation guides throughout fully revised etymologies comprehensive entries for numerous drugs valuable appendices, including normal laboratory values for adults and children, units of measurement, nutrition guidelines, assessment guides, immunisation schedules, infection control and herb-drug interactions Evolve Resources Online Features: free access to all online resources regionalised spellchecker printable colour atlas of human anatomy image collection offers all images for online viewing 5 comprehensive appendices over 50 new drug entries over 1,100 new and revised definitions a total of 74 new and updated tables providing key reference information to supplement definitions revised and updated materials throughout as well as many new terms, tables and illustrations to ensure currency and relevance updates of all appendices

Mosby's Dictionary of Medicine, Nursing and Health Professions - Australian & New Zealand Edition - E-Book

Mosby's Dictionary of Medicine, Nursing and Health Professions - Australian & New Zealand Edition - E-Book PDF Author: Peter Harris
Publisher: Elsevier Health Sciences
ISBN: 0729579093
Category : Medical
Languages : en
Pages : 7082

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Book Description
Mosby’s Dictionary of Medicine, Nursing & Health Professions has been acclaimed by students and educators for its clarity, comprehensiveness and currency. Now in its second edition, a thorough revision of this definitive reference for the ANZ region enhances the classic Mosby dictionary features and sees in its over 2000 pages: precise and clear entries, plus encyclopaedic entries of significant terms; generous illustrations and apt use of tables a detailed colour atlas of anatomy enhances the comprehension of anatomical terms local spelling conventions and phonetic pronunciation guides fully revised etymologies Online resources include a regional spellchecker, a printable colour atlas, all images from the text, and 18 valuable appendices, 9 of which appear in the main text. encyclopaedic definitions comprehensive entries for numerous fully updated drugs over 2400 high quality full-colour illustrations and photographs to enhance and clarify definitions of terms regionalised spellchecker over 300 new drug entries over 500 new images, including uniquely Australian sourced images for illustrating terms of particular local relevance a total of 73 new and updated tables to provide key reference information to supplement definitions revised to update and refine existing material and incorporate many new terms, tables and illustrations to ensure currency and relevance all appendices have been updated to include the latest information new terms include Swine influenza, Hendra disease, Nipah virus, Avian influenza, Multi-drug resistant TB and Vancomycin resistant enterococcus plus many, many more

Affective Health and Masculinities in South Africa

Affective Health and Masculinities in South Africa PDF Author: Hans Reihling
Publisher: Routledge
ISBN: 1000050548
Category : Social Science
Languages : en
Pages : 304

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Book Description
Affective Health and Masculinities in South Africa explores how different masculinities modulate substance use, interpersonal violence, suicidality, and AIDS as well as recovery cross-culturally. With a focus on three male protagonists living in very distinct urban areas of Cape Town, this comparative ethnography shows that men’s struggles to become invulnerable increase vulnerability. Through an analysis of masculinities as social assemblages, the study shows how affective health problems are tied to modern individualism rather than African ‘tradition’ that has become a cliché in Eurocentric gender studies. Affective health is conceptualized as a balancing act between autonomy and connectivity that after colonialism and apartheid has become compromised through the imperative of self-reliance. This book provides a rare perspective on young men’s vulnerability in everyday life that may affect the reader and spark discussion about how masculinities in relationships shape physical and psychological health. Moreover, it shows how men change in the face of distress in ways that may look different than global health and gender-transformative approaches envision. Thick descriptions of actual events over the life course make the study accessible to both graduate and undergraduate students in the social sciences. Contributing to current debates on mental health and masculinity, this volume will be of interest to scholars from various disciplines including anthropology, gender studies, African studies, psychology, and global health.

Locating Zika

Locating Zika PDF Author: Kevin Bardosh
Publisher: Routledge
ISBN: 042985207X
Category : Medical
Languages : en
Pages : 171

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Book Description
The emergence of Zika virus in 2015 challenged conventional ideas of mosquito-borne diseases, tested the resilience of health systems and embedded itself within local sociocultural worlds, with major implications for environmental, sexual, reproductive and paediatric health. This book explores this complex viral epidemic and situates it within its broader social, epidemiological and historical context in Latin America and the Caribbean. The chapters include a diverse set of case studies from scholars and health practitioners working across the region, from Brazil, Venezuela, Ecuador, Mexico, Colombia, the United States and Haiti. The book explores how mosquito-borne disease epidemics (not only Zika but also chikungunya, dengue and malaria) intersect with social change and health governance. By doing so, the authors reflect on the ways in which situated knowledge and social science approaches can contribute to more effective health policy and practice for mosquito-borne disease threats in a changing world. The Open Access version of this book, available at http://www.tandfebooks.com , has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.

The Anthropology of Epidemics

The Anthropology of Epidemics PDF Author: Ann H. Kelly
Publisher: Routledge
ISBN: 0429868073
Category : Social Science
Languages : en
Pages : 194

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Book Description
Over the past decades, infectious disease epidemics have come to increasingly pose major global health challenges to humanity. The Anthropology of Epidemics approaches epidemics as total social phenomena: processes and events which encompass and exercise a transformational impact on social life whilst at the same time functioning as catalysts of shifts and ruptures as regards human/non-human relations. Bearing a particular mark on subject areas and questions which have recently come to shape developments in anthropological thinking, the volume brings epidemics to the forefront of anthropological debate, as an exemplary arena for social scientific study and analysis.