Dying and Disabled Children

Dying and Disabled Children PDF Author: Harold M. Dick
Publisher: Routledge
ISBN: 1317773713
Category : Medical
Languages : en
Pages : 170

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Book Description
In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.

Dying and Disabled Children

Dying and Disabled Children PDF Author: Harold M. Dick
Publisher: Routledge
ISBN: 1317773713
Category : Medical
Languages : en
Pages : 170

Get Book Here

Book Description
In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.

Death Or Disability?

Death Or Disability? PDF Author: Dominic Wilkinson
Publisher:
ISBN: 9780198799054
Category : Philosophy
Languages : en
Pages : 0

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Book Description
In ancient Rome parents would consult the priestess Carmentis shortly after birth to obtain prophecies of the future of their newborn infant. Today, parents and doctors of critically ill children consult a different oracle. Neuroimaging provides a vision of the child's future, particularly of the nature and severity of any disability. Based on the results of brain scans and other tests doctors and parents face heart-breaking decisions about whether or not to continue intensive treatment or to allow the child to die. Paediatrician and ethicist Dominic Wilkinson looks at the profound and contentious ethical issues facing those who work in intensive care caring for critically ill children and infants. When should infants or children be allowed to die? How accurate are predictions of future quality of life? How much say should parents have in these decisions? How should they deal with uncertainty about the future? He combines philosophy, medicine and science to shed light on current and future dilemmas.

I Have a Question about Death

I Have a Question about Death PDF Author: Arlen Grad Gaines
Publisher: Jessica Kingsley Publishers
ISBN: 1784505455
Category : Juvenile Nonfiction
Languages : en
Pages : 40

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Book Description
Winner of a Moonbeam Children's Book Award 2017 I Have a Question about... is a 2018 Winner of the Moonbeam Children's Book Award Silver Medal for Best Book Series - Non-Fiction Death is a difficult topic for any parent or educator to explain to a child, perhaps even more so when they are autistic or have other special needs. This book is designed specifically to help children with these additional needs to understand what happens when someone dies. The first book of its kind, I Have a Question about Death uses straightforward text and images to walk children through what it means when someone dies, as well as ways they might want to react or to think about the person. Using clear illustrations throughout and with information for parents and guardians, this book is essential for families who need to talk about death with any child aged 5-11.

What Do We Tell the Children?

What Do We Tell the Children? PDF Author: Joseph M. Primo
Publisher: Abingdon Press
ISBN: 1426775156
Category : Religion
Languages : en
Pages : 123

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Book Description
One out of seven children will lose a parent before they are 20. The statistics are sobering, but they are also a call for preparedness. However, pastors and counselors of all types are often at a loss when dealing with a grieving child. Talking to adults about death and grief is difficult; it's all the more challenging to talk to children and teens. The stakes are high: grieving children are high-risk for substance abuse, promiscuity, depression, isolation, and suicide. Yet, despite this, most of these kids grow up to be normal or exceptional adults. But their chance to become healthy adults increases with the support of a loving community. Supporting grieving children requires intentionality, open communication, and patience. Rather than avoid all conversations on death or pretend like it never happened, normalizing grief and offering support requires us to be in-tune with kids through dialogue as they grapple with questions of “how” and “why.” When listening to children in grief, we often have to embrace the mystery, offer love and compassion, and stick with the basics. The author says, "We don’t have to answer the why and how for them, but we can assure our children that God is with us as we suffer. We can do so by doing good for others and pointing out all of those moments when someone has done something good for us. I believe that most of the time that’s as far as we will get, and that is okay."

Helping People with Developmental Disabilities Mourn

Helping People with Developmental Disabilities Mourn PDF Author: Marc A. Markell
Publisher: Companion Press
ISBN: 1617220949
Category : Family & Relationships
Languages : en
Pages : 98

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Book Description
Frequently, people with developmental disabilities are excluded from bereavement ceremonies when a loved one or friend dies, therefore not receiving the special care needed for comprehending their own feelings of loss. Focusing on creating mourning rituals for special needs people, this guide offers specific rituals and techniques for caregivers to use while helping explain death and dying. With more than 20 examples such as the use of pictures and storytelling or drawing and music, these practical tools can substantially lend to the understanding of grief and sadness for intellectually and developmentally disabled adults and adolescents.

Dying in America

Dying in America PDF Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 470

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Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Why Did You Die?

Why Did You Die? PDF Author: Erika Leeuwenburgh
Publisher: New Harbinger Publications
ISBN: 1572246049
Category : Juvenile Nonfiction
Languages : en
Pages : 134

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Book Description
When a loved one dies, children are faced with a kaleidoscope of feelings, thoughts, and questions. Struggling with these issues can be overwhelming without guidance, support, and creative forms of expression. This bereavement book contains simple, effective activities to help children and parents communicate about death and the grieving process. Through these activities, children will learn how to grow and thrive after the loss of a loved one.

Lifetimes

Lifetimes PDF Author: Bryan Mellonie
Publisher: Bantam
ISBN: 0307569683
Category : Family & Relationships
Languages : en
Pages : 42

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Book Description
When the death of a relative, a friend, or a pet happens or is about to happen . . . how can we help a child to understand? Lifetimes is a moving book for children of all ages, even parents too. It lets us explain life and death in a sensitive, caring, beautiful way. Lifetimes tells us about beginnings. And about endings. And about living in between. With large, wonderful illustrations, it tells about plants. About animals. About people. It tells that dying is as much a part of living as being born. It helps us to remember. It helps us to understand. Lifetimes . . . a very special, very important book for you and your child. The book that explains—beautifully—that all living things have their own special Lifetimes.

Open to Hope

Open to Hope PDF Author: Gloria Horsley
Publisher: Open to Hope
ISBN: 9781945549106
Category : Body, Mind & Spirit
Languages : en
Pages : 416

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Book Description
Whether a death is sudden or anticipated, losing a loved one shakes us to our very core, destroying our belief in a just, safe, and predictable world. Grief often changes us quickly both physically and mentally. It is like being kidnapped and suddenly transported to a foreign land without luggage, a passport, or the language to make sense of what's happening. Even if you have a road map for getting through the pain and anguish, you still have to take the trip. The purpose of this book is to help you find threads of hope that will assist your recovery and help you carry on. By sharing inspirational stories, personal experiences, and professional advice from contributors to theOpen to Hope website, we trust that you will be comforted and inspired by learning how others dealt with their losses, what they saw as roadblocks, and how they handled them as well as what it has taken for them to not only survive, but thrive. We want to help you resume leading the life that you were meant to live--a life of satisfaction and one driven by a belief in your own personal power for change.

Autism and Loss

Autism and Loss PDF Author: Sarah Broadhurst
Publisher: Jessica Kingsley Publishers
ISBN: 1846427150
Category : Psychology
Languages : en
Pages : 211

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Book Description
People with autism often experience difficulty in understanding and expressing their emotions and react to losses in different ways or in ways that carers do not understand. In order to provide effective support, carers need to have the understanding, the skills and appropriate resources to work through these emotional reactions with them. Autism and Loss is a complete resource that covers a variety of kinds of loss, including bereavement, loss of friends or staff, loss of home or possessions and loss of health. Rooted in the latest research on loss and autism, yet written in an accessible style, the resource includes a wealth of factsheets and practical tools that provide formal and informal carers with authoritative, tried and tested guidance. This is an essential resource for professional and informal carers working with people with autism who are coping with any kind of loss.