Author: Frank J. Sileo
Publisher: American Psychological Association (APA)
ISBN: 9781433833816
Category : Family & Relationships
Languages : en
Pages : 419
Book Description
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
When Your Child Has a Chronic Medical Illness
Author: Frank J. Sileo
Publisher: American Psychological Association (APA)
ISBN: 9781433833816
Category : Family & Relationships
Languages : en
Pages : 419
Book Description
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
Publisher: American Psychological Association (APA)
ISBN: 9781433833816
Category : Family & Relationships
Languages : en
Pages : 419
Book Description
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
In the Shadow of Illness
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
ISBN: 0691214700
Category : Medical
Languages : en
Pages : 321
Book Description
A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Publisher: Princeton University Press
ISBN: 0691214700
Category : Medical
Languages : en
Pages : 321
Book Description
A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.
Extreme Parenting
Author: Sharon Dempsey
Publisher: Jessica Kingsley Publishers
ISBN: 184642772X
Category : Family & Relationships
Languages : en
Pages : 211
Book Description
[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.
Publisher: Jessica Kingsley Publishers
ISBN: 184642772X
Category : Family & Relationships
Languages : en
Pages : 211
Book Description
[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.
How Do Families Cope With Chronic Illness?
Author: Robert E. Cole
Publisher: Routledge
ISBN: 113476930X
Category : Psychology
Languages : en
Pages : 238
Book Description
Because chronic disorder is becoming an ordinary feature of family life and development, understanding its impact has become critical. This volume, and the conference proceedings it reports, represents a major effort to examine the family's response to chronic physical or psychopathological illness in one or more of its members. Recent data are revising our notions of chronic illness. Evidence is mounting that chronic psychiatric disorders reflect, in part, abnormalities of brain structure and function. In this sense, they are, in part, medical disorders. On the other hand, a number of traditionally labeled medical disorders produce a broad range of psychological symptoms and are exquisitely sensitive to psychosocial influences. Families undergo a complex process of adaptation during which their response to stress and their fundamental beliefs about learning and parenting change. These beliefs endure and are difficult to alter. By examining the processes in a wide range of chronic conditions, this volume helps to identify the common, underlying processes of adaptation. The first three chapters concern the families' responses to disorders that are distinctly medical; the next three focus on families' responses to "grey zone" disorders or anomalies that appear early in life, minor physical anomalies, and communication handicaps; and one chapter focuses exclusively on schizophrenia. The last chapter reflects an effort to develop a model based on the experience of researchers with both psychiatric and medical illness.
Publisher: Routledge
ISBN: 113476930X
Category : Psychology
Languages : en
Pages : 238
Book Description
Because chronic disorder is becoming an ordinary feature of family life and development, understanding its impact has become critical. This volume, and the conference proceedings it reports, represents a major effort to examine the family's response to chronic physical or psychopathological illness in one or more of its members. Recent data are revising our notions of chronic illness. Evidence is mounting that chronic psychiatric disorders reflect, in part, abnormalities of brain structure and function. In this sense, they are, in part, medical disorders. On the other hand, a number of traditionally labeled medical disorders produce a broad range of psychological symptoms and are exquisitely sensitive to psychosocial influences. Families undergo a complex process of adaptation during which their response to stress and their fundamental beliefs about learning and parenting change. These beliefs endure and are difficult to alter. By examining the processes in a wide range of chronic conditions, this volume helps to identify the common, underlying processes of adaptation. The first three chapters concern the families' responses to disorders that are distinctly medical; the next three focus on families' responses to "grey zone" disorders or anomalies that appear early in life, minor physical anomalies, and communication handicaps; and one chapter focuses exclusively on schizophrenia. The last chapter reflects an effort to develop a model based on the experience of researchers with both psychiatric and medical illness.
Counselling Parents of Children with Chronic Illness or Disability
Author: Hilton Davis
Publisher: Wiley-Blackwell
ISBN: 9781854330901
Category : Psychology
Languages : en
Pages : 144
Book Description
This book aims to help medical staff and carers relate to parents in ways that facilitate their adaptation to their child's illness. The key to this is in effective communication.
Publisher: Wiley-Blackwell
ISBN: 9781854330901
Category : Psychology
Languages : en
Pages : 144
Book Description
This book aims to help medical staff and carers relate to parents in ways that facilitate their adaptation to their child's illness. The key to this is in effective communication.
Coping with Your Child's Chronic Illness
Author: Alesia T. Barrett Singer M.a.
Publisher: Robert Reed Publishers
ISBN: 9781885003140
Category : Family & Relationships
Languages : en
Pages : 92
Book Description
A practical guide for parents who need support, ideas and resources for dealing with their child's chronic illness. Covers communicating with your child's doctor, educating yourself about your child's illness, talking to your child, schooling, and avoiding burn-out and depression.
Publisher: Robert Reed Publishers
ISBN: 9781885003140
Category : Family & Relationships
Languages : en
Pages : 92
Book Description
A practical guide for parents who need support, ideas and resources for dealing with their child's chronic illness. Covers communicating with your child's doctor, educating yourself about your child's illness, talking to your child, schooling, and avoiding burn-out and depression.
A Compromised Generation
Author: Beth Lambert
Publisher: Sentient Publications
ISBN: 1591810965
Category : Health & Fitness
Languages : en
Pages : 376
Book Description
The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.
Publisher: Sentient Publications
ISBN: 1591810965
Category : Health & Fitness
Languages : en
Pages : 376
Book Description
The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.
Tackling Chronic Disease in Europe
Author: Reinhard Busse
Publisher: WHO Regional Office Europe
ISBN: 9289041927
Category : Medical
Languages : en
Pages : 127
Book Description
Chronic conditions and diseases are the leading cause of mortality and morbidity in Europe, accounting for 86% of total premature deaths, and research suggests that complex conditions such as diabetes and depression will impose an even greater health burden in the future - and not only for the rich and elderly in high-income countries, but increasingly for the poor as well as low- and middle-income countries. The epidemiologic and economic analyses in the first part of the book suggest that policy-makers should make chronic disease a priority. This book highlights the issues and focuses on the strategies and interventions that policy-makers have at their disposal to tackle this increasing challenge. Strategic discussed in the second part of this volume include (1) prevention and early detection, (2) new provider qualifications (e.g. nurse practitioners) and settings, (3) disease management programmes and (4) integrated care models. But choosing the right strategies will be difficult, particularly given the limited evidence on effectiveness and cost-effectiveness. In the third part, the book therefore outlines and discusses institutional and organizational challenges for policy-makers and managers: (1) stimulating the development of new effective pharmaceuticals and medical devices, (2) designing appropriate financial incentives, (3) improving coordination, (4) using information and communication technology, and (5) ensuring evaluation. To tackle these challenges successfully, key policy recommendations are made.
Publisher: WHO Regional Office Europe
ISBN: 9289041927
Category : Medical
Languages : en
Pages : 127
Book Description
Chronic conditions and diseases are the leading cause of mortality and morbidity in Europe, accounting for 86% of total premature deaths, and research suggests that complex conditions such as diabetes and depression will impose an even greater health burden in the future - and not only for the rich and elderly in high-income countries, but increasingly for the poor as well as low- and middle-income countries. The epidemiologic and economic analyses in the first part of the book suggest that policy-makers should make chronic disease a priority. This book highlights the issues and focuses on the strategies and interventions that policy-makers have at their disposal to tackle this increasing challenge. Strategic discussed in the second part of this volume include (1) prevention and early detection, (2) new provider qualifications (e.g. nurse practitioners) and settings, (3) disease management programmes and (4) integrated care models. But choosing the right strategies will be difficult, particularly given the limited evidence on effectiveness and cost-effectiveness. In the third part, the book therefore outlines and discusses institutional and organizational challenges for policy-makers and managers: (1) stimulating the development of new effective pharmaceuticals and medical devices, (2) designing appropriate financial incentives, (3) improving coordination, (4) using information and communication technology, and (5) ensuring evaluation. To tackle these challenges successfully, key policy recommendations are made.
When Pete's Dad Got Sick
Author: Kathleen Long Bostrom
Publisher: Zondervan
ISBN: 9780310706557
Category : Juvenile Fiction
Languages : en
Pages : 32
Book Description
Pete is both angry and sad when his father becomes sick and can no longer race and play with him, but his father explains that, while he will probably never have fast legs again, he can still teach Pete about running. Includes note to parents.
Publisher: Zondervan
ISBN: 9780310706557
Category : Juvenile Fiction
Languages : en
Pages : 32
Book Description
Pete is both angry and sad when his father becomes sick and can no longer race and play with him, but his father explains that, while he will probably never have fast legs again, he can still teach Pete about running. Includes note to parents.
Primary Care of the Child with a Chronic Condition
Author: Patricia Jackson Allen
Publisher:
ISBN:
Category : Health & Fitness
Languages : en
Pages : 904
Book Description
PRIMARY CARE OF THE CHILD WITH A CHRONIC CONDITION provides pediatric health care professionals with the knowledge necessary to give comprehensive primary care to children with special needs and their families. Part I addresses the major issues common to care of all children with chronic conditions: the role of the primary care provider, the impact of a chronic condition on the childs development; the impact on the family; school issues; ethical and cultural concerns; and the financial resources needed to support the care of a child with a chronic condition. Part II identifies specific chronic conditions and the alterations in standard primary care practices needed to promote optimum health. expert contributors to provide the most accurate and current information available. Includes boxes on Clinical Manifestations, Diagnostic Criteria, Differential Diagnosis, and Treatment to highlight these important features and make it easy for the reader to access this information in the Chronic Conditions chapters. Provides comprehensive summary boxes at the end of the chronic condition chapter. Presents all conditions in a consistent format, using the following organizion: Etiology Incidence Clinical Manifestations Treatment Associated Problems Prognosis Primary Care Management: Health Care Maintenance and Common Illness Management Developmental Issues Family Concerns and Resources Provides the latest treatment information available with thoroughly revised andupdated content. Includes thorough revisions to Chapter 7, Financing Health Care for Children With Chronic Conditions, to reflect the many changes in the health care industry, including managed care. Features a new chapter on Transition into Adulthood, Chapter 8, to address this important phase of adolescent development. The chapter addresses the difficulties encountered by children with chronic conditions and coverstransition in health care, transition to independent living, transition to secondary education or vocation, laws regarding transition planning, and the role of primary care providers. Includes a new chapter on Autism, Chapter 10, to focus on the large number of children being diagnosed with autism, and includes information on mainstreaming children with autism, and how this practise is increasing. Provides pertinent web site addresses in the resource lists at the end of each chapter for additional sources of information.
Publisher:
ISBN:
Category : Health & Fitness
Languages : en
Pages : 904
Book Description
PRIMARY CARE OF THE CHILD WITH A CHRONIC CONDITION provides pediatric health care professionals with the knowledge necessary to give comprehensive primary care to children with special needs and their families. Part I addresses the major issues common to care of all children with chronic conditions: the role of the primary care provider, the impact of a chronic condition on the childs development; the impact on the family; school issues; ethical and cultural concerns; and the financial resources needed to support the care of a child with a chronic condition. Part II identifies specific chronic conditions and the alterations in standard primary care practices needed to promote optimum health. expert contributors to provide the most accurate and current information available. Includes boxes on Clinical Manifestations, Diagnostic Criteria, Differential Diagnosis, and Treatment to highlight these important features and make it easy for the reader to access this information in the Chronic Conditions chapters. Provides comprehensive summary boxes at the end of the chronic condition chapter. Presents all conditions in a consistent format, using the following organizion: Etiology Incidence Clinical Manifestations Treatment Associated Problems Prognosis Primary Care Management: Health Care Maintenance and Common Illness Management Developmental Issues Family Concerns and Resources Provides the latest treatment information available with thoroughly revised andupdated content. Includes thorough revisions to Chapter 7, Financing Health Care for Children With Chronic Conditions, to reflect the many changes in the health care industry, including managed care. Features a new chapter on Transition into Adulthood, Chapter 8, to address this important phase of adolescent development. The chapter addresses the difficulties encountered by children with chronic conditions and coverstransition in health care, transition to independent living, transition to secondary education or vocation, laws regarding transition planning, and the role of primary care providers. Includes a new chapter on Autism, Chapter 10, to focus on the large number of children being diagnosed with autism, and includes information on mainstreaming children with autism, and how this practise is increasing. Provides pertinent web site addresses in the resource lists at the end of each chapter for additional sources of information.