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Author: Anne Good
Publisher: Emerald Group Publishing
ISBN: 1787693112
Category : Social Science
Languages : en
Pages : 190
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Book Description
Considering important aspects of general ethical research principles, this volume establishes an inspiring vision for both present and future improvements across all levels of disability research.
Author: Anne Good
Publisher: Emerald Group Publishing
ISBN: 1787693112
Category : Social Science
Languages : en
Pages : 190
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Book Description
Considering important aspects of general ethical research principles, this volume establishes an inspiring vision for both present and future improvements across all levels of disability research.
Author: Anne Good
Publisher: Emerald Group Publishing
ISBN: 1787693139
Category : Social Science
Languages : en
Pages : 212
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Book Description
Considering important aspects of general ethical research principles, this volume establishes an inspiring vision for both present and future improvements across all levels of disability research.
Author: M. Ariel Cascio
Publisher: Oxford University Press
ISBN: 0192557696
Category : Psychology
Languages : en
Pages : 304
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Book Description
Research participants who have cognitive disabilities and differences may be considered a vulnerable population. At the same time, they should also be empowered to participate in research in order to foster the growth of knowledge and the improvement of practices. For research participants with cognitive disabilities or differences, participating in research that concerns them follows the Disability Rights Movement's call " and is a vital component of the principle of justice. However, cognitive disabilities and differences may pose challenges to ethical research, particularly with respect to the research ethics principle of autonomy, for a variety of reasons. Several alternative or modified strategies, for example when obtaining informed consent, have been used by researchers. This volume provides timely, multidisciplinary insights into the ethical aspects of research that includes participants with cognitive disability and differences. These include conditions such as intellectual disability, autism, mild cognitive impairment (MCI), and psychiatric diagnoses. The chapters in this volume describe situations where difficulties arise, explore strategies for empowerment and inclusion, drawing on both empirical and normative research to offer suggestions for research design, research ethics, and best practices that empower people with cognitive disabilities and differences to participate in research while respecting and managing potential coercion or undue influence. The book includes contributions from scholars in anthropology, sociology, ethics, child studies, health and rehabilitation sciences, philosophy, and law who address these issues in both clinical and social/behavioural research. The book will be valuable for anyone performing research involving these populations - from the fields of neuropsychology, neurology, psychiatry, and neuroscience.
Author: Ron Iphofen
Publisher: Springer
ISBN: 9783030167585
Category : Philosophy
Languages : en
Pages : 0
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Book Description
This handbook is a ‘one-stop shop’ for current information, issues and challenges in the fields of research ethics and scientific integrity. It provides a comprehensive coverage of research and integrity issues, both within researchers’ ‘home’ discipline and in relation to similar concerns in other disciplines. The handbook covers common elements shared by disciplines and research professions, such as consent, privacy, data management, fraud, and plagiarism. The handbook also includes contributions and perspectives from academics from various disciplines, treating issues specific to their fields. Readers are able to quickly source the most comprehensive and up-to-date information, protagonists, issues and challenges in the field. Experienced researchers keen to assess their own perspectives, as well as novice researchers aiming to establish the field, will equally find the handbook of interest and practical benefit. It saves them a great deal of time in sourcing the disparate available material in these fields and it is the first ‘port of call’ for a wide range of researchers, research advisors, funding agencies and research reviewers.The most important feature is the handbook’s ability to provide practical advice and guidance to researchers in a wide range of disciplines and professions to help them ‘think through’ their approach to difficult questions related to the principles, values and standards they need to bring to their research practice.
Author: Chrissie Rogers
Publisher: Routledge
ISBN: 1317271858
Category : Medical
Languages : en
Pages : 283
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Book Description
Intellectual disability is often overlooked within mainstream disability studies, and theories developed about disability and physical impairment may not always be appropriate when thinking about intellectual (or learning) disability. This pioneering book, in considering intellectually disabled people's lives, sets out a care ethics model of disability that outlines the emotional caring sphere, where love and care are psycho-socially questioned, the practical caring sphere, where day-to-day care is carried out, and the socio-political caring sphere, where social intolerance and aversion to difficult differences are addressed. It does so by discussing issue-based everyday life, such as family, relationships, media representations and education, in an evocative and creative manner. This book draws from an understanding of how intellectual disability is represented in all forms of media, a feminist ethics of care, and capabilities, as well as other theories, to provide a critique and alternative to the social model of disability as well as illuminate care-less spaces that inhabit all the caring spheres. The first two chapters of the book provide an overview of intellectual disability, the debates surrounding disability, and outline the model. Having begun to develop an innovative theoretical framework for understanding intellectual disability and being human, the book then moves onto empirical and narrative driven issue-based chapters. The following chapters build on the emergent framework and discuss the application of particular theories in three different substantive areas: education, mothering and sexual politics. The concluding remarks draw together the common themes across the applied chapters and link them to the overarching theoretical framework. An important read for all those studying and researching intellectual or learning disability, this book will be an essential resource in sociology, philosophy, criminology (law), social work, education and nursing in particular.
Author: Donald J. Lollar
Publisher: Springer Science & Business Media
ISBN: 1441973419
Category : Medical
Languages : en
Pages : 292
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Book Description
Traditionally, the public health viewpoint on disability was geared toward primary prevention of disabling conditions or events. More recently, with the movement for disability rights and the emergence of disability studies, the challenge to the field has been to promote positive health outcomes in this underserved community. Such a change in public health culture must start at the educational level, yet training programs have generally been slow in integrating this perspective—with its potential for enriching the field—into their curricula. Public Health Perspectives on Disability meets this challenge with an educational framework for rethinking disability in public health study and practice, and for attaining the competencies that should accompany this knowledge. This reference balances history and epidemiology, scientific advances, advocacy and policy issues, real-world insights, and progressive recommendations, suiting it especially to disability-focused courses, or to add disability-related content to existing public health programs. Each chapter applies awareness and understanding of disabled persons’ experience to one of the core curriculum areas, including: Health services administration, Environmental health science and occupational health, Health law and ethics, The school as physical setting, Maternal, child, and family health, Disasters and disability. In Public Health Perspectives on Disability, faculty, researchers, administrators, and students in graduate schools of public health throughout the U.S. will find a worthy classroom text and a robust source of welcome—and much needed—change.
Author: Donna M. Mertens
Publisher: SAGE
ISBN: 1412949181
Category : Business & Economics
Languages : en
Pages : 689
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Book Description
Brings together international scholars across the social and behavioural sciences and education to address those ethical issues that arise in the theory and practice of research within the technologically advancing and culturally complex world in which we live.
Author: Joel Michael Reynolds
Publisher: Taylor & Francis
ISBN: 1000587215
Category : Philosophy
Languages : en
Pages : 543
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Book Description
The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.
Author: D. Christopher Ralston
Publisher: Springer Science & Business Media
ISBN: 9048124778
Category : Social Science
Languages : en
Pages : 268
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Book Description
This project draws together the diverse strands of the debate regarding disability in a way never before combined in a single volume. After providing a representative sampling of competing philosophical approaches to the conceptualization of disability as such, the volume goes on to address such themes as the complex interplay between disability and quality of life, questions of social justice as it relates to disability, and the personal dimensions of the disability experience. By explicitly locating the discussion of various applied ethical questions within the broader theoretical context of how disability is best conceptualized, the volume seeks to bridge the gap between abstract philosophical musings about the nature of disease, illness and disability found in much of the philosophy of medicine literature, on the one hand, and the comparatively concrete but less philosophical discourse frequently encountered in much of the disability studies literature. It also critically examines various claims advanced by disability advocates, as well as those of their critics. In bringing together leading scholars in the fields of moral theory, bioethics, and disability studies, this volume makes a unique contribution to the scholarly literature, while also offering a valuable resource to instructors and students interested in a text that critically examines and assesses various approaches to some of the most vexing problems in contemporary social and political philosophy.
Author: I. Glenn Cohen
Publisher: Cambridge University Press
ISBN: 1108485979
Category : Law
Languages : en
Pages : 313
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Book Description
Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.
