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Author: Julie M. Hauer
Publisher: JHU Press
ISBN: 1421409380
Category : Health & Fitness
Languages : en
Pages : 479
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Book Description
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Author: Julie M. Hauer
Publisher: JHU Press
ISBN: 1421409380
Category : Health & Fitness
Languages : en
Pages : 479
Get Book Here
Book Description
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Author: Robert A. Cummins
Publisher: Routledge
ISBN: 0429954077
Category : Psychology
Languages : en
Pages : 311
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Book Description
For the 25 years before publication a form of therapy known as the ‘Doman-Delacato Techniques’ had been applied to children with disabilities. The therapy originated from the work of Glen Doman and Carl Delacato who established the Institutes for the Achievement of Human Potential in Philadelphia. The institutes claim to be able to treat a wide range of disabilities, and their best known technique is called ‘Patterning’ and is prescribed for children who have no capacity for voluntary movement. Yet many professional bodies and associations have denounced the approach as overly-expensive, ineffective, creating false hopes, being destructive to family life and based on false theoretical assumptions. Originally published in 1988, this book was the first to offer a detailed analysis and critique of the Doman-Delacato approach. The author draws on data from evolution, neuroanatomy and neurophysiology to challenge its theoretical assumptions. He shows that there is no sound scientific basis to the techniques. Any improvements in a child's condition can be attributed to the increased energy and attention given to that child, rather than the content of the programme. At the same time parents become emotionally ransomed and deluded by false expectations. Written in a style that will be accessible to non-specialists, the book is an important work for both parents and professionals concerned with the welfare of neurologically-impaired children.
Author:
Publisher:
ISBN:
Category : Anthropometry
Languages : en
Pages : 48
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Book Description
Author: Stefano Guandalini
Publisher: Springer
ISBN: 3319171690
Category : Medical
Languages : en
Pages : 889
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Book Description
This textbook provides a comprehensive and state-of-the-art overview of the major issues specific to the field of pediatric gastroenterology, hepatology, and nutrition. The first part of the book, Gastroenterology and Nutrition, presents in a systematic way the overall scope of issues encountered by children (newborn to teenagers) suffering from disorders of the gastrointestinal tract, pancreas and/or presenting nutritional issues. These chapters are structured in logical sections to facilitate consultation and include major topics ranging from congenital disorders to gastrointestinal problems of the newborn, infectious diseases of the gastrointestinal tract, and approach to nutritional problems in the various pediatric ages. The second part of the book, Hepatology, is articulated in a series of chapters which present a comprehensive review of congenital and acquired disorders of the biliary tract and liver. This section also includes a critical analysis of available diagnostic and therapeutic procedures and future perspectives. Written by experts in the field, Textbook of Pediatric Gastroenterology, Hepatology and Nutrition: A Comprehensive Guide to Practice constitutes a much needed, innovative resource combining updated, reliable and comprehensive information with agile consultation for a streamlined approach to the care of children with such disorders.
Author: Gordon Dutton
Publisher: John Wiley & Sons
ISBN: 1898683867
Category : Medical
Languages : en
Pages : 369
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Book Description
Clinics in Developmental Medicine No.186 The increased awareness of cerebral visual impairment in children, combined with improved recognition of its wide ranging manifestations, has led to its recognition as the most common cause of visual impairment in children in the developed world. Yet the subject is in its infancy, with very little published to date. Information on this complex topic has been needed by all disciplines working with disabled children for many years. This ambitious book links the work of authors from many of the major research teams in this field, who have made significant contributions to the literature on the subject of cerebral visual impairment and provide a structured amalgam of the viewpoints of different specialists. The book contains some very novel concepts, which will be of great practical value to those who care for children with visual impairment due to brain injury. Summaries of the more specialist chapters as well as clear diagrams and a glossary have been provided to increase the book’s accessibility to a broader readership. This is an exciting and important field, to which this book makes a major contribution.
Author: PETER. ANDERSON SULLIVAN (GURO. ANDREW, MORAG.)
Publisher:
ISBN: 9781911612285
Category : Children with disabilities
Languages : en
Pages : 209
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Book Description
This handbook provides easily accessible information on the aetiology, assessment and management of nutritional disorders in children with neurodisability.
Author: Robert Melillo
Publisher: Penguin
ISBN: 9780399534751
Category : Family & Relationships
Languages : en
Pages : 292
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Book Description
Offering a bold new understanding of the causes of such disorders as autism, ADHD, Asperger's, dyslexia, and OCD, an effective drug-free program addresses both the symptoms and causes of conditions involving a disconnection between the left and right sides of the developing brain, with customizable exercises, behavior modification advice, nutritional guidelines, and more.
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Publisher:
ISBN:
Category : Cerebral palsied children
Languages : en
Pages : 28
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Book Description
Author: Laurie Glader
Publisher: Mac Keith Press
ISBN: 9781909962989
Category : Medical
Languages : en
Pages : 0
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Book Description
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Author: Amanda Hall Lueck
Publisher: AFB Press
ISBN: 9780891286394
Category : Pediatric neuroophthalmology
Languages : en
Pages : 720
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Book Description
Cerebral visual impairment (also known as cortical visual impairment, or CVI) has become the most common cause of visual impairment in children in the United States and the developed world. Vision and the Brain is a unique and comprehensive sourcebook geared especially to professionals in the field of visual impairment, educators, and families who need to know more about the causes and types of CVI and the best practices for working with affected children. Expert contributors from many countries represent education, occupational therapy, orientation and mobility, ophthalmology, optometry, neuropsychology, psychology, and vision science, and include parents of children with CVI. The book provides an in-depth guide to current knowledge about brain-related vision loss in an accessible form to enable readers to recognize, understand, and assess the behavioral manifestations of damage to the visual brain and develop effective interventions based on identification of the spectrum of individual needs. Chapters are designed to help those working with children with CVI ascertain the nature and degree of visual impairment in each child, so that they can "see" and appreciate the world through the child's eyes and ensure that every child is served appropriately.
