The Emotional Journey of the Alzheimer's Family

The Emotional Journey of the Alzheimer's Family PDF Author: Robert B. Santulli, MD
Publisher: Dartmouth College Press
ISBN: 1611687454
Category : Health & Fitness
Languages : en
Pages : 231

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Book Description
Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The Emotional Journey of the Alzheimer's Family

The Emotional Journey of the Alzheimer's Family PDF Author: Robert B. Santulli, MD
Publisher: Dartmouth College Press
ISBN: 1611687454
Category : Health & Fitness
Languages : en
Pages : 231

Get Book

Book Description
Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

H.O.P.E. for the Alzheimer's Journey

H.O.P.E. for the Alzheimer's Journey PDF Author: Carol B. Amos
Publisher: Morgan James Publishing
ISBN: 1683509048
Category : Health & Fitness
Languages : en
Pages : 149

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Book Description
“A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.

It's Not That Simple: Helping Families Navigate the Alzheimer's Journey

It's Not That Simple: Helping Families Navigate the Alzheimer's Journey PDF Author: Pam Ostrowski
Publisher: Alzheimer's Family Consulting
ISBN: 9781735709611
Category : Family & Relationships
Languages : en
Pages : 322

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Book Description
This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

Creating Moments of Joy Along the Alzheimer's Journey

Creating Moments of Joy Along the Alzheimer's Journey PDF Author: Jolene Brackey
Publisher: Purdue University Press
ISBN: 1612494838
Category : Family & Relationships
Languages : en
Pages : 298

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Book Description
The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.

When Someone You Know Is Living in a Dementia Care Community

When Someone You Know Is Living in a Dementia Care Community PDF Author: Rachael Wonderlin
Publisher: Johns Hopkins University Press
ISBN: 1421420651
Category : Health & Fitness
Languages : en
Pages : 220

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Book Description
"When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident?An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.

Alzheimer's Disease

Alzheimer's Disease PDF Author: Wayne A. Caron
Publisher:
ISBN: 9780962961427
Category : Health & Fitness
Languages : en
Pages : 244

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Book Description


Pathways

Pathways PDF Author: Kae Hammond
Publisher: Kae Hammond
ISBN: 1432781286
Category : Health & Fitness
Languages : en
Pages : 225

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Book Description
Possibly the best rescue plan you've ever read.If you are caring for someone with Alzheimers Disease or Related Dementias,PathwaysPathwaysPathways"You have straightened out the curves and turns and false roads of the family caregiver maze. Accurate, useful, dependable, relevant, and reliable. You have done a yeoman's job and all of us who care for a person with dementia will be better for your efforts. PathwaysContact Us:For more information or immediate assistance, contact us at (877) 699-3456 or visit www.dementiahelpcenter.com

Shared Stories from Daughters of Alzheimer's

Shared Stories from Daughters of Alzheimer's PDF Author: Kathleen Adams
Publisher: iUniverse
ISBN: 0595750516
Category : Family & Relationships
Languages : en
Pages : 164

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Book Description
Shared Stories from Daughters of Alzheimer's is a support group in print for those escorting a loved one on the Alzheimer's journey. Nine women map the passage of a parent through Alzheimer's disease, describing the evolution of their own emotional responses to the disease and the changes it effects in the patient and in her relationship with family members. The book invites the reader to take a first step in healing from Alzheimer's ripple effect by beginning to journal about the experience. "Use the stories here as tools to understand your own painful situation. Employ them to help you empower yourself, sort through your emotions and begin to heal. Seize upon that which makes sense to you and disregard that which seems irrelevant. Then, pick up your favorite pen and notebook and 'talk' about what is going on in your journey with Alzheimer's disease. We wish you well." -Persis Granger, Editor, Shared Stories from Daughters of Alzheimer's "An enthralling, ambitious and much-needed effort...most definitely the sort of work on Alzheimer's that needs to get public notice." -Karla Morales, People's Medical Society

The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's

The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's PDF Author: Shelly Calcagno
Publisher: Ambassador International
ISBN: 1649603371
Category : Religion
Languages : en
Pages : 91

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Book Description
Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.

I Love You Always

I Love You Always PDF Author: LaBena Fleming
Publisher: Independently Published
ISBN:
Category :
Languages : en
Pages : 243

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Book Description
Caring for someone who has Alzheimer's or other forms of dementia is a daunting task that can leave most caregivers drained, strained, and depressed. Many find comfort in knowing they are not alone and in being able to share their experiences with someone who understands what they are going through. They want assurance that it's normal to "lose it" occasionally and that feeling "less than" is common. Caregivers need all the support and tools they can garner to help them survive this experience. Such was the reason for writing "I Love You Always," which is an honest account of one family's experiences from diagnosis and beyond.Lottie has survived seemingly insurmountable tragedies in her life, emerging stronger after each one. When she is diagnosed with Alzheimer's and vascular dementia, at the age of eighty, she becomes determined to live until ninety, longer than anyone in her immediate family. Her children join forces to help Lottie reach her goal while ensuring she remains in her beloved home. I Love You Always is her daughter LaBena's account of their tumultuous journey, sharing practical tips for caregivers, as well as the lessons of love, laughter, and faith that were learned along the way.You are not alone and the more we share our stories, the more people will understand. May there soon be a cure!