Raising a Child with Hemophilia

Raising a Child with Hemophilia PDF Author: Laureen Kelley
Publisher:
ISBN: 9781938851056
Category :
Languages : en
Pages :

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Book Description
A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.

Raising a Child with Hemophilia

Raising a Child with Hemophilia PDF Author: Laureen Kelley
Publisher:
ISBN: 9781938851056
Category :
Languages : en
Pages :

Get Book Here

Book Description
A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.

Queen Victoria's Gene

Queen Victoria's Gene PDF Author: D. M. Potts
Publisher: Sutton Publishing
ISBN: 9780750911993
Category : Biography & Autobiography
Languages : en
Pages : 183

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Book Description
The only book to investigate the sudden appearance of the haemophilia gene in the Royal Family.

Congenital Bleeding Disorders

Congenital Bleeding Disorders PDF Author: Akbar Dorgalaleh
Publisher: Springer
ISBN: 3319767232
Category : Medical
Languages : en
Pages : 397

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Book Description
This book describes in detail the clinical presentation, diagnosis, and management of a wide range of congenital bleeding disorders. It will assist readers in overcoming the significant challenges involved in clinical and laboratory diagnosis and in providing effective clinical care that makes optimal use of new products, including recombinant factor concentrate. The coverage ranges from hemophilia A and B and von Willebrand disease to rare bleeding disorders such as congenital factor V, factor X, factor XI, and factor XIII deficiency and inherited platelet function disorders. The exceptional attention to rarer conditions is of particular importance given the considerable risk of overlooking them during diagnosis, with potential consequences for disease-related morbidity and mortality. The authors are acknowledged specialists in the field from across the world who have particular expertise in the disorder that they discuss. The book will be of value to hematologists, oncologists, pediatricians, laboratory specialists and technicians, general physicians, and trainees.

A Journey of the Heart

A Journey of the Heart PDF Author: Dana Francis
Publisher: Park Place Publications
ISBN: 9781935530800
Category :
Languages : en
Pages : 112

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Book Description
A collection of true stories of hemophilia social workers and their patients.

A Guide to Living with Von Willebrand Disease

A Guide to Living with Von Willebrand Disease PDF Author: Laureen Kelley
Publisher:
ISBN: 9781938851100
Category :
Languages : en
Pages :

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Book Description
The world's first book on the world's most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical system, treatment, women's issues, health insurance. Complete resource guide and real-life stories.

Arthrogryposis

Arthrogryposis PDF Author: Lynn T. Staheli
Publisher: Cambridge University Press
ISBN: 9780521571067
Category : Medical
Languages : en
Pages : 298

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Book Description
The term arthrogryposis describes a range of congenital contractures that lead to childhood deformities. It encompasses a number of syndromes and sporadic deformities that are rare individually but collectively are not uncommon. Yet, the existing medical literature on arthrogryposis is sparse and often confusing. The aim of this book is to provide individuals affected with arthrogryposis, their families, and health care professionals with a helpful guide to better understand the condition and its therapy. With this goal in mind, the editors have taken great care to ensure that the presentation of complex clinical information is at once scientifically accurate, patient oriented, and accessible to readers without a medical background. The book is authored primarily by members of the medical staff of the Arthrogryposis Clinic at Children's Hospital and Medical Center in Seattle, Washington, one of the leading teams in the management of the condition, and will be an invaluable resource for both health care professionals and families of affected individuals.

Nursing Care of Children

Nursing Care of Children PDF Author: Jean Weiler Ashwill
Publisher: W.B. Saunders Company
ISBN:
Category : Medical
Languages : en
Pages : 1496

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Book Description
This paediatric nursing text discusses the disorders most commonly encountered in both hospital and community care settings. It discusses anatomy, physiology, paediatric differences and common diagnostic tests and medications, enabling readers to associate systems and diseases with appropriate tests and medications. It provides nursing care plans for key disorders, a unit on growth and development, a summary of growth and development, and special considerations for caring for children.

Parenting Children with Health Issues

Parenting Children with Health Issues PDF Author: Foster Cline
Publisher:
ISBN:
Category : Family & Relationships
Languages : en
Pages : 388

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Book Description
Does your child have a health condition which requires special medical or dietary care? Whatever the health issue, you will learn the essential parenting skills you need to help your child comply with medical requirements, cope well with health challenges, and live a hope-filled life. Get practical and compassionate answers to your toughest questions as you discover effective ways to communicate about medical issues with children of all ages. This book will teach you how to: . Encourage your child to love life despite health challenges. . Handle refusal to take medication and do medical treatments. . Skillfully respond to your child's special emotional needs. . Avoid power struggles and other common parenting traps. . Promote responsibility without nagging or lecturing. . Navigate sibling, family and couple relationship issues. . Enable your child to make good self-care decisions.

Textbook of Hemophilia

Textbook of Hemophilia PDF Author: Christine A. Lee
Publisher: John Wiley & Sons
ISBN: 140514386X
Category : Medical
Languages : en
Pages : 416

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Book Description
The only up-to-date definitive reference source onhemophilia This book is an invaluable resource that provides an overview ofall aspects of the care of patients with haemophilia. Covering how to assess both bleeding children and adults,Haemophilia A and B, molecular basis of the disease, the role offactors in coagulation, epidemiology, pharmacokinetics, andtreatment of inhibitors. There will also be a section onmusculoskeletal aspects of haemophilia as well as newerdevelopments such as gene therapy and rare bleedingdisorders. Textbook of Hemophilia is ideal for: Trainees and residents in hematology Hematologists in practice Specialists working in thrombosis and hemostasis as well astransfusion medicine Why Buy This Book? The only up-to-date definitive reference source onhemophilia Essential for all those managing hemophilia patients Detailed guidance on assessment, diagnosis, management andtreatment Advice for everyday clinical questions Edited by three of the world’s leading experts onhemophilia

Family-centered Care for Children Needing Specialized Health and Developmental Services

Family-centered Care for Children Needing Specialized Health and Developmental Services PDF Author: Terri L. Shelton
Publisher:
ISBN: 9780937821879
Category : Child health services
Languages : en
Pages : 120

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Book Description
This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)