Raising a Child with a Neuromuscular Disorder PDF Download
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Author: Charlotte E. Thompson
Publisher: Oxford University Press, USA
ISBN: 0195128435
Category : Children
Languages : en
Pages : 288
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Book Description
A compassionate and comprehensive guide for parents and others who care for children and teenagers with neuromuscular disorders. A large appendix offers resources state by state and country by country.
Author: Charlotte E. Thompson
Publisher: Oxford University Press, USA
ISBN: 0195128435
Category : Children
Languages : en
Pages : 288
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Book Description
A compassionate and comprehensive guide for parents and others who care for children and teenagers with neuromuscular disorders. A large appendix offers resources state by state and country by country.
Author: Julie M. Hauer
Publisher: JHU Press
ISBN: 1421409380
Category : Health & Fitness
Languages : en
Pages : 479
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Book Description
An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.
Author: Charlotte E. Thompson
Publisher:
ISBN: 9780195132533
Category : Family & Relationships
Languages : en
Pages : 296
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Book Description
Still the only handbook of its kind to discuss both the emotional and physical problems of raising a child with a disability, this guide offers complete, practical, and reassuring advice for parents who care for these children.
Author: Aziz Shaibani
Publisher: Oxford University Press
ISBN: 0197632580
Category : Education
Languages : en
Pages : 785
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Book Description
A Video Atlas of Neuromuscular Disorders is the essential reference on adult neuromuscular disorders and their diagnosis and treatment. Perfect for preparing for the neurology and neuromuscular boards, this book and accompanying videos have become an invaluable resource for neurology and neuromuscular training programs, while catering to the too-busy and often-overwhelmed modern doctor with its straightforward structure and language.
Author: Alan E. H. Emery
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 338
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Book Description
The muscular dystrophies are an important group of inherited disorders. They are characterized by muscle wasting and weakness, but vary considerably in their clinical manifestations and severity. This text reviews our understanding of the most important of these disorders. In many instances, the genes and protein products responsible for the dystrophies have been identified and it is now possible to establish a precise diagnosis, detect preclinical cases, identify carriers and offer prenatal dianostic testing. The book goes on to describe the opportunities for management of the symptoms through respiratory care, physiotherapy and surgical correction of contracture, and examines the potential, in the future, for effective treatment utilizing the new techniques of gene and cell therapy. Professor Emery has invited chapters from the leading international experts in the field providing a unique insight into the current situation and the hopes for the future.
Author: Girija Prasad Rath
Publisher: Springer Nature
ISBN: 9811633762
Category : Medical
Languages : en
Pages : 710
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Book Description
The book provides an excellent review of all the clinical aspects of neuroanesthesia in children, including neurosurgeries during fetal state to neonatal, infancy, toddler, and school-going age groups. To provide optimal anesthetic care in children undergoing neurosurgery, the care provider must have adequate knowledge on the developing brain and spinal cord, and the effect of anesthetics on the neuronal tissue, and the inherent issues pertaining to neurologic lesions. This book covers the diagnostic, imaging, surgical as well as anesthetic managements of all the neurosurgical problems in children. The chapters include a wide range of topics from basic neurophysiology to general concerns for pediatric neuroanesthesia, including fluid management, blood transfusion, temperature regulation, and surgical positioning, as well as specific issues such as anesthesia for brain tumor surgery, hydrocephalus, neural tube defects, cerebrovascular surgeries such as aneurysmal surgery, arteriovenous malformations (AVMs), Moyamoya disease, and vein of Galen malformation, functional neurosurgery, epilepsy surgery, neuroendoscopy, craniovertebral junction anomalies, spinal surgeries, neurotrauma, and brain abscess with congenital heart diseases. Interesting topics like neuroanesthesia in remote locations, regional anesthesia during neurosurgery, and anesthesia for children with neuromuscular disease are also discussed. Moreover, the book elaborates on advanced neuroanesthesia techniques during fetal neurosurgery and craniopagus separation surgery; and the postoperative intensive care management aspects in each chapter. It is supplemented with figures depicting surgical procedures and positioning, neuroimages, tables and illustrations for easy understanding. This book caters to neuroanesthesiologists, pediatric anesthesiologists, residents, and fellows of anesthesia or neuroanesthesia, practicing anesthesiologists, pediatric neurointensivists, nurse anesthetists, neurosurgeons, and pediatric neurosurgeons. It also serves as a reference book for the DM (neuroanesthesiology and neurocritical care), DNB-SS (neuroanesthesiology), and MD (anesthesiology) curriculums apart from anesthesia residency and pediatric anesthesia/ neurosurgery fellowship programs offered at various Institutions worldwide.
Author: David Sugden
Publisher: John Wiley & Sons
ISBN:
Category : Education
Languages : en
Pages : 338
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Book Description
The term Developmental Coordination Disorder (DCD) is used to describe a group of children who have difficulty. with tasks involving movement such that it interferes with their daily living or academic progress. As with other developmental disorders such as autistic spectrum disorder, attention deficit disorder and dyslexia, DCD is now a prominent concern of both researchers and practitioners. This text is aimed at both researchers and professionals who work in a practical manner with the condition and includes professionals in health, occupational therapists, physiotherapists, health visitors, paediatricians, and - in the educational field - teachers and others who are in daily contact with the children - their parents. The essence of the text is that work with children should be guided by research evidence driving the clinical practice which in turn raisies more questions for research. The authors in this text have both experience in research and are engaged in the day-to-day clinical work with children and bring both of these to bear in the chapters they have written.
Author: Sally Patton
Publisher: Unitarian Universalist Association of Congregations
ISBN: 9781558964792
Category : Religion
Languages : en
Pages : 308
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Book Description
Author: Charlotte E. Thompson, M.D.
Publisher: Atlantic Publishing Company
ISBN: 1620230356
Category : Family & Relationships
Languages : en
Pages : 146
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Book Description
“As parents you will and must quickly become the experts with your baby.” — Charlotte E. Thompson, M.D. Charlotte E. Thompson, M.D. has been a practicing pediatrician for fifty years. She holds a B.A. and M.D. from Stanford University, is a Fellow of the American Academy of Pediatrics and an Assistant Clinical Professor of Pediatrics at U C San Diego Medical School. In 2005 and 2007, she was named as one of the Top Pediatricians in the United States by the Consumer’s Research Council of America. Dr. Thompson is a mother, a grandmother, and the author of eight books including Raising a Handicapped Child published in 1986, and now in its fifth edition.
Author: John R. Bach
Publisher:
ISBN:
Category : Medical
Languages : en
Pages : 436
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Book Description
This book offers the interventions that the researchers and clinicians of the UMDNH-NJMS Center for Ventilator Management Alternatives and Pulmonary Rehabilitation have found most effective as well as the interventions offered by other investigators so that the clinician can choose among all available options. It is designed to be a comprehensive guide for the day-to-day management of these conditions.
