Patient Reported Outcome Measures in Rheumatic Diseases

Patient Reported Outcome Measures in Rheumatic Diseases PDF Author: Yasser El Miedany
Publisher: Springer
ISBN: 3319328514
Category : Medical
Languages : en
Pages : 450

Get Book Here

Book Description
This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.

Patient Reported Outcome Measures in Rheumatic Diseases

Patient Reported Outcome Measures in Rheumatic Diseases PDF Author: Yasser El Miedany
Publisher: Springer
ISBN: 3319328514
Category : Medical
Languages : en
Pages : 450

Get Book Here

Book Description
This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.

Getting the Most Out of PROMs

Getting the Most Out of PROMs PDF Author: N. J. Devlin
Publisher:
ISBN: 9781857175912
Category : Health services administration
Languages : en
Pages : 83

Get Book Here

Book Description
Patient-reported outcome measures (PROMs) use a series of structured questions that ask patients about their health from their point of view, with the aim of improving decision-making at all levels of the NHS. This report looks at the ways in which PROMs data can be used.

Rheumatology E-Book

Rheumatology E-Book PDF Author: Krysia Dziedzic
Publisher: Elsevier Health Sciences
ISBN: 0702050652
Category : Medical
Languages : en
Pages : 379

Get Book Here

Book Description
Rheumatology is an indispensable resource for physiotherapists, occupational therapists and other health professionals, offering practical approaches to the treatment and management of rheumatic musculoskeletal conditions. The text focuses on applying evidence-based understanding of these conditions to clinical context. The specific disease chapters cover: incidence and prevalence of the condition; clinical presentation and diagnosis; red flags; clinical assessment; important first treatments, early intermediate and long term management; prognosis and long term outcomes. Supporting case histories of increasing complexity and study activities illustrate the clinical relevance of the treatment and management approaches. • Multidisciplinary team approach • Practical solutions to management of conditions supported by the latest research • Case histories of increasing complexity consolidate understanding and develop clinical reasoning • Highlighted boxes throughout contain study tasks and key messages

Patient-Reported Outcomes in Performance Measurement

Patient-Reported Outcomes in Performance Measurement PDF Author: David Cella
Publisher: RTI Press
ISBN: 193483114X
Category : Medical
Languages : en
Pages : 106

Get Book Here

Book Description
Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.

Outcome Measures and Metrics in Systemic Lupus Erythematosus

Outcome Measures and Metrics in Systemic Lupus Erythematosus PDF Author: Zahi Touma
Publisher: Springer Nature
ISBN: 3030733033
Category : Medical
Languages : en
Pages : 418

Get Book Here

Book Description
Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.

Implementation Science

Implementation Science PDF Author: Frances Rapport
Publisher: Taylor & Francis
ISBN: 1000583457
Category : Medical
Languages : en
Pages : 343

Get Book Here

Book Description
This accessible textbook introduces a wide spectrum of ideas, approaches, and examples that make up the emerging field of implementation science, including implementation theory, processes and methods, data collection and analysis, brokering interest on the ground, and sustainable implementation. Containing over 60 concise essays, each addressing the thorny problem of how we can make care more evidence-informed, this book looks at how implementation science should be defined, how it can be conducted, and how it is assessed. It offers vital insight into how research findings that are derived from healthcare contexts can help make sense of service delivery and patient encounters. Each entry concentrates on an important concept and examines the idea’s evidence base, root causes and effects, ideas and applications, and methodologies and methods. Revealing a very human side to caregiving, but also tackling its more complex and technological aspects, the contributors draw on real-life healthcare examples to look both at why things go right in introducing a new intervention and at what can go wrong. Implementation Science: The Key Concepts provides a toolbox of rich, contemporary thought from leading international thinkers, clearly and succinctly delivered. This comprehensive and enlightening range of ideas and examples brought together in one place is essential reading for all students, researchers, and practitioners with an interest in translating knowledge into practice in healthcare.

Registries for Evaluating Patient Outcomes

Registries for Evaluating Patient Outcomes PDF Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
ISBN: 1587634333
Category : Medical
Languages : en
Pages : 385

Get Book Here

Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Changing Health Care Systems and Rheumatic Disease

Changing Health Care Systems and Rheumatic Disease PDF Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309056837
Category : Medical
Languages : en
Pages : 253

Get Book Here

Book Description
Market forces are driving a radical restructuring of health care delivery in the United States. At the same time, more and more people are living comparatively long lives with a variety of severe chronic health conditions. Many such people are concerned about the trend toward the creation of managed care systems because their need for frequent, often complex, medical services conflicts with managed care's desires to contain costs. The fear is that people with serious chronic disorders will be excluded from or underserved by the integrated health care delivery networks now emerging. Responding to a request from the National Institute of Arthritis and Musculoskeletal and Skin Diseases, this book reflects the results of a workshop that focused on the following questions: Does the model of managed care or an integrated delivery system influence the types of interventions provided to patients with chronic conditions and the clinical and health status outcomes resulting from those interventions? If so, are these effects quantitatively and clinically significant, as compared to the effects that other variables (e.g., income, education, ethnicity) have on patient outcomes? If the type of health care delivery system appears to be related to patient care and outcomes, can specific organizational, financial, or other variables be identified that account for the relationships? If not, what type of research should be pursued to provide the information needed about the relationship between types of health care systems and the processes and outcomes of care provided to people with serious chronic conditions?

Measuring Health

Measuring Health PDF Author: Pilar Garcia
Publisher:
ISBN: 9788798578826
Category :
Languages : en
Pages : 68

Get Book Here

Book Description


Goal Attainment Scaling

Goal Attainment Scaling PDF Author: Thomas J. Kiresuk
Publisher: Psychology Press
ISBN: 1317767039
Category : Psychology
Languages : en
Pages : 327

Get Book Here

Book Description
There is an extensive literature on Goal Attainment Scaling (GAS), but the publications are widely scattered and often inaccessible, covering several foreign countries and many professional disciplines and fields of application. This book provides both a user manual and a complete reference work on GAS, including a comprehensive account of what the method is, what its strengths and limitations are, how it can be used, and what it can offer. The book is designed to be of interest to service providers, program directors and administrators, service and business organizations, program evaluators, researchers, and students in a variety of fields. No previous account of GAS has provided an up-to-date, comprehensive description and explanation of the technique. The chapters include a basic "how to do it" handbook, step-by-step implementation instructions, frequently occurring problems and what should be done about them, methods for monitoring the quality of the goal setting process, and a discussion of policy and administration issues. There are many illustrations from actual applications including examples of goals scaled for the individual, the specific program, the agency, or the total system. Procedures for training and estimates of training costs are also provided.