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Author: Charlotte Raven
Publisher: Jonathan Cape
ISBN: 9781787332331
Category : Huntington's disease
Languages : en
Pages : 0
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Book Description
Charlotte Raven had never heard of Huntington's Disease when, in her mid-thirties, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again. Patient 1 is her brutally candid account of coming to terms with this inherited neurodegenerative disease, which can manifest at any time in life for people who carry the faulty gene. As the illness began to take hold of Raven's body, mind and memory, she began to write. She wrote like her life depended on it -- and in many ways she believed it did. Frank and fearless, Patient 1 is an act of self-preservation and a kind of reckoning -- with the illness, with the person she once was, with the person she is now. In an afterword, Raven's doctor Ed Wild explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether.
Author: Charlotte Raven
Publisher: Jonathan Cape
ISBN: 9781787332331
Category : Huntington's disease
Languages : en
Pages : 0
Get Book Here
Book Description
Charlotte Raven had never heard of Huntington's Disease when, in her mid-thirties, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again. Patient 1 is her brutally candid account of coming to terms with this inherited neurodegenerative disease, which can manifest at any time in life for people who carry the faulty gene. As the illness began to take hold of Raven's body, mind and memory, she began to write. She wrote like her life depended on it -- and in many ways she believed it did. Frank and fearless, Patient 1 is an act of self-preservation and a kind of reckoning -- with the illness, with the person she once was, with the person she is now. In an afterword, Raven's doctor Ed Wild explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether.
Author: Charlotte Raven
Publisher: Random House
ISBN: 1473577004
Category : Biography & Autobiography
Languages : en
Pages : 157
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Book Description
'Searingly honest and important' RACHEL CLARKE Honest, intelligent and unsentimental, Patient 1 is a startling self-portrait written with wit and vulnerability, and a unique testament to the power of hope in the face of illness. Charlotte Raven had never heard of Huntington's Disease when, in her mid-thirties, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again. Frank and fearless, this is her memoir of coming to terms with this inherited neurodegenerative disease and its impact on her body, mind and memory. It is at once an act of self-preservation and a kind of reckoning: with the illness, with the person she once was and with the person she is now. In an afterword, Raven's doctor Ed Wild - one of the country's leading experts in Huntington's - explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether. 'Insightful, frank and often moving...Raven writes with humour...and no small amount of courage' Guardian Shortlisted for the RSL Christopher Bland Prize 2022
Author: Nancy Tomes
Publisher: UNC Press Books
ISBN: 1469622785
Category : Medical
Languages : en
Pages : 560
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Book Description
In a work that spans the twentieth century, Nancy Tomes questions the popular — and largely unexamined — idea that in order to get good health care, people must learn to shop for it. Remaking the American Patient explores the consequences of the consumer economy and American medicine having come of age at exactly the same time. Tracing the robust development of advertising, marketing, and public relations within the medical profession and the vast realm we now think of as “health care,” Tomes considers what it means to be a “good” patient. As she shows, this history of the coevolution of medicine and consumer culture tells us much about our current predicament over health care in the United States. Understanding where the shopping model came from, why it was so long resisted in medicine, and why it finally triumphed in the late twentieth century helps explain why, despite striking changes that seem to empower patients, so many Americans remain unhappy and confused about their status as patients today.
Author: Shelley Shepard Gray
Publisher: Pocket Books
ISBN: 1982121815
Category : Fiction
Languages : en
Pages : 384
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Book Description
In this evocative and heartrending novel, New York Times bestselling author Shelley Shepard Gray “has created an endearing cast of characters...that both delights and surprises—and will keep you thinking about the story long after you turned the last page” (Leslie Gould, #1 bestselling author). Marie Hartman never thought she’d move back to Walnut Creek but, still reeling from a friend’s heartbreaking passing, she’s desperate for the comforts of home. And she’s determined to surround herself with people who care more about her heart than her striking looks. Vowing to reconnect with her childhood best friends and find a larger meaning in life, she’s also decided it’s finally time to summon the courage to see if there’s something more between her and longtime friend John Byler than just companionship. Marie’s homecoming forces John to reassess his life and his hopes for the future. Though he still lives at home with the rest of his old order Amish family, lately he’s been feeling that God intends for him to go another direction. But does He really want John to go against his faith and finally do something about his longtime crush on Marie? With her signature “taut writing” (RT Book Reviews), Shelley Shepard Gray delivers a lyrical and heartfelt tale of friendship and forgiveness.
Author: Rick Murdock
Publisher: Crown
ISBN:
Category : Business & Economics
Languages : en
Pages : 328
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Book Description
"In Great Dames, Marie Benner introduces us to a pantheon of women whose lives are both gloriously individual and yet somehow universal. Her subjects range from Jacqueline Kennedy Onassis, who found happiness in her last decade, to Constance Baker Motley, who argued Brown versus the Board of Education before the United States Supreme Court, to Luise Rainer, who won two Academy Awards by age thirty, then fled Hollywood for good. We meet Kitty Carlisle Hart, a professional charmer and tireless advocate of the arts, and Diana Trilling, the intellectual's intellectual, who published her final, splendid memoir at age ninety-one. There are even the Becky Sharps, who maneuvered powerful men to help them ascend: Marietta Tree, Pamela Harriman, and Clare Boothe Luce. And the wonderfully flamboyant Kay Thompson, whose pint-sized creation, Eloise, gave her a place in American cultural history. Finally, there is Thelma Brenner, who was the first great dame her daughter ever knew." "These are women who helped shape a century. Marie Brenner's portraits are intimate, vivid, and true, and full of subtle but important lessons. The way the great dames lived their lives - their rules, their codes, their insistence on certain fundamentals - are models that today's women should consider as they ascend to positions of leadership in a new millennium."--BOOK JACKET.Title Summary field provided by Blackwell North America, Inc. All Rights Reserved
Author: Nortin M. Hadler, M.D.
Publisher: UNC Press Books
ISBN: 1469607050
Category : Health & Fitness
Languages : en
Pages : 265
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Book Description
Conflicts of interest, misrepresentation of clinical trials, hospital price-fixing, and massive expenditures for procedures of dubious efficacy--these and other critical flaws leave little doubt that the current U.S. health-care system is in need of an overhaul. In this essential guide, preeminent physician Nortin Hadler urges American health-care consumers to take time to understand the existing system and to visualize what the outcome of successful reform might look like. Central to this vision is a shared understanding of the primacy of the relationship between doctor and patient. Hadler shows us that a new approach is necessary if we hope to improve the health of the populace. Rational health care, he argues, is far less expensive than the irrationality of the status quo. Taking a critical view of how medical treatment, health-care finance, and attitudes about health, medicine, and disease play out in broad social and political settings, Hadler applies his wealth of experience and insight to these pressing issues, answering important questions for Citizen Patients and policy makers alike.
Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
ISBN: 1587634333
Category : Medical
Languages : en
Pages : 385
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Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author: Jasper DeWitt
Publisher: William Morrow
ISBN: 0358181763
Category : Fiction
Languages : en
Pages : 223
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Book Description
The Silent Patient by way of Stephen King: Parker, a young, overconfident psychiatrist new to his job at a mental asylum, miscalculates catastrophically when he undertakes curing a mysterious and profoundly dangerous patient. In a series of online posts, Parker H., a young psychiatrist, chronicles the harrowing account of his time working at a dreary mental hospital in New England. Through this internet message board, Parker hopes to communicate with the world his effort to cure one bewildering patient. We learn, as Parker did on his first day at the hospital, of the facility's most difficult, profoundly dangerous case--a forty-year-old man who was originally admitted to the hospital at age six. This patient has no known diagnosis. His symptoms seem to evolve over time. Every person who has attempted to treat him has been driven to madness or suicide. Desperate and fearful, the hospital's directors keep him strictly confined and allow minimal contact with staff for their own safety, convinced that releasing him would unleash catastrophe on the outside world. Parker, brilliant and overconfident, takes it upon himself to discover what ails this mystery patient and finally cure him. But from his first encounter with the mystery patient, things spiral out of control, and, facing a possibility beyond his wildest imaginings, Parker is forced to question everything he thought he knew. Fans of Sarah Pinborough's Behind Her Eyes and Paul Tremblay's The Cabin at the End of the World will be riveted by Jasper DeWitt's astonishing debut.
Author: Eric Topol
Publisher: Basic Books
ISBN: 0465094473
Category : Medical
Languages : en
Pages : 386
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Book Description
The essential guide by one of America's leading doctors to how digital technology enables all of us to take charge of our health A trip to the doctor is almost a guarantee of misery. You'll make an appointment months in advance. You'll probably wait for several hours until you hear "the doctor will see you now"-but only for fifteen minutes! Then you'll wait even longer for lab tests, the results of which you'll likely never see, unless they indicate further (and more invasive) tests, most of which will probably prove unnecessary (much like physicals themselves). And your bill will be astronomical. In The Patient Will See You Now, Eric Topol, one of the nation's top physicians, shows why medicine does not have to be that way. Instead, you could use your smartphone to get rapid test results from one drop of blood, monitor your vital signs both day and night, and use an artificially intelligent algorithm to receive a diagnosis without having to see a doctor, all at a small fraction of the cost imposed by our modern healthcare system. The change is powered by what Topol calls medicine's "Gutenberg moment." Much as the printing press took learning out of the hands of a priestly class, the mobile internet is doing the same for medicine, giving us unprecedented control over our healthcare. With smartphones in hand, we are no longer beholden to an impersonal and paternalistic system in which "doctor knows best." Medicine has been digitized, Topol argues; now it will be democratized. Computers will replace physicians for many diagnostic tasks, citizen science will give rise to citizen medicine, and enormous data sets will give us new means to attack conditions that have long been incurable. Massive, open, online medicine, where diagnostics are done by Facebook-like comparisons of medical profiles, will enable real-time, real-world research on massive populations. There's no doubt the path forward will be complicated: the medical establishment will resist these changes, and digitized medicine inevitably raises serious issues surrounding privacy. Nevertheless, the result-better, cheaper, and more human health care-will be worth it. Provocative and engrossing, The Patient Will See You Now is essential reading for anyone who thinks they deserve better health care. That is, for all of us.
Author: John C. Goodman
Publisher: Cato Institute
ISBN: 1937184269
Category : Political Science
Languages : en
Pages : 699
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Book Description
Argues for a health care system that would restore power and responsibility to the individual consumer and taking it out of the hands of government and insurance companies
