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Author: J. M. Hockley
Publisher: Oxford University Press
ISBN: 0199644152
Category : Medical
Languages : en
Pages : 209
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Book Description
Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
Author: J. M. Hockley
Publisher: Oxford University Press
ISBN: 0199644152
Category : Medical
Languages : en
Pages : 209
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Book Description
Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
Author: Judy Gould
Publisher: University of Toronto Press
ISBN: 1442691344
Category : Medical
Languages : en
Pages : 313
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Book Description
Cancer on the Margins presents the findings of the Ontario Breast Cancer Community Research Iniative, an organization created to investigate the experiences of women with breast cancer from marginalized and underrepresented groups. The authors examine the psychosocial needs of women living with breast cancer, while investigating differences in treatment, care, and survivorship amongst Aboriginal women, women of colour, francophone women, lesbians, as well as young women, lower-income women, and women in rural areas. Structured as a guide for similar research, Cancer on the Margins provides a "start to finish" format that reveals the complexities of doing such work at each stage of research, beginning with the study design and ending with the dissemination of results. The authors address the challenges of working with and speaking for these groups of women, the tension between description and interpretation, and the challenge for qualitative work to present findings that positively influence the circumstances of research participants. With a strong commitment to social justice, this volume also shows how participatory research can lead to social change, and indicates effective ways to ensure that research not only reaches, but is also employed in, the communities it intends to serve. Bridging the gap between a wide range of audiences, this vitally important work will be of interest to health professionals, new researchers, policy makers, new researchers, and experienced investigators, as well as the public.
Author: Jo Hockley
Publisher: OUP Oxford
ISBN: 0191651990
Category : Medical
Languages : en
Pages : 208
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Book Description
Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration, empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not only reducing costs but at the same time improving quality of care. While palliative care puts the patient and family at the centre, Participatory Research in Palliative Care discusses a new research methodology that puts practitioners at the heart of the research process as collaborators who work together with researchers to resolve problems in practice. Divided into three sections, it provides theoretical groundings of action research, a greater focus on exemplars from studies within palliative care, and discusses prominent issues when using such a methodology. All three sections are illustrated by an action research study undertaken by the author within a palliative care setting. Participatory Research in Palliative Care is written by international, multi-disciplinary authors who explore a collaborative approach to embark on research. It will appeal to health and social care professionals, academics undertaking research within palliative care, and the management of organisations where people with end of life care needs are cared for, including long-term care homes.
Author: Joachim Cohen
Publisher: Oxford University Press
ISBN: 0191628581
Category : Medical
Languages : en
Pages : 270
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Book Description
Worldwide, more than 50 million people die each year and it is estimated on the basis of the conditions leading to death that up to 60% of them could benefit from some form of palliative care. It is a public health challenge to ensure that these people can access good palliative or end-of-life care. Pursuing good population health essentially also implies striving for a 'good enough death' and a good quality of care at the end of life. Safeguarding a good quality of the end of life for patient populations for whom it is appropriate requires a public health approach. In most developed countries ageing populations that increasingly die from chronic diseases after a prolonged -often degenerative- dying trajectory make up the public health challenges for palliative care. The very large baby boom generation will soon reach old age and can be expected to pose strong demands regarding the circumstances and care at their end of life. Only by applying a public health approach to palliative care (instead of individual patient perspectives), can societies successfully help to organize and plan end-of-life care in accordance with these aspirations. A Public Health Perspective on End of Life Care presents a synthesis and overview of relevant research and empirical data on the end of life that can bear a basis for a more systematic 'public health of the end of life'. The book focuses on population health, rather than clinical interventions or other aspects of individual health, and discusses studies using different methodologies (not only epidemiological research). The focus is on the quality of the end-of-life of populations, in particular from social sciences, environmental sciences, and humanities perspectives.
Author: Michael T. Wright
Publisher: Springer
ISBN: 3319921770
Category : Medical
Languages : en
Pages : 279
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Book Description
This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.
Author: Allan Kellehear
Publisher: Routledge
ISBN: 1134209193
Category : Medical
Languages : en
Pages : 187
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Book Description
Once it was difficult to see end of life care beyond conventional medical intervention, but hospice and palliative care introduced a more holistic approach, providing quality of life for the dying and their families. This ground-breaking work takes end-of-life care beyond these palliative boundaries, describing a public health vision that involves whole communities adopting a compassionate approach to dying, death and loss. Written by a leading academic in the field of death and bereavement, this text outlines the historical, political and conceptual basis of compassionate cities, providing a community development model for end-of-life care. Moving away from infection control and health promotion Allan Kellehear invites us to think of a third wave movement of public health, joining empathy, equality and action together as practical policies. Presenting a radical new perspective to death, ageing and public health, Compassionate Cities is essential reading for academics and professionals alike.
Author: Dirk Schubotz
Publisher: SAGE
ISBN: 1526421836
Category : Social Science
Languages : en
Pages : 325
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Book Description
Going beyond a general introduction to offer a hands-on guide, Participatory Research empowers students to feel confident understanding and applying participatory methods to their research projects. It takes an accessible approach to explaining the theory that grounds participatory research and offers students practical strategies for how and when to choose and apply a wide range of these methods. Comprehensive yet easy to understand, this book: · Gives students a thorough grounding in the history and theoretical issues surrounding each method · Showcases participatory research in action through extensive on-the-ground case studies · Highlights the importance of ethics in research design, offering guidance on dealing with sensitive considerations in participatory research With a sustained focus on the impact of digital technologies, this book tackles head-on the need to re-assess the way we involve people in contemporary research. It is an essential guide to better research practice for students and researchers across the social sciences.
Author: Allan Kellehear
Publisher: Oxford University Press, USA
ISBN: 9780195507850
Category : Health promotion
Languages : en
Pages : 0
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Book Description
Health promotion has traditionally focused on illness prevention, targeting the fit and well. But what about those who live with life-threatening or terminal illness? Health -Promoting Palliative Care proposes a model of care that goes beyond simply providing care in the final stages of lifeand draws on critical and participatory principles from both palliative care and health promotion. Emphasising early intervention and a social approach to the problems and experiences of dying, it encourages service providers, family members, and the dying themselves to seek ways to promoteemotional, social, and spiritual well-being, as well as physical health. The book begins by looking at the ways in which health promotion can be introduced to palliative care. It goes on to outline the goals and practice principles of a health promoting palliative care. Later chapters addresspractice strategies relevant to health and death education, social supports, interpersonal reorientation, and environmental and policy development. Health Promoting Palliative Care is a valuable, practical, and accessible resource for practitioners working alone or in health care institutions, forstudents of the health sciences, social work, or pastoral care, and for those working in policy areas.
Author: Tina Koch
Publisher: John Wiley & Sons
ISBN: 1405172959
Category : Medical
Languages : en
Pages : 192
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Book Description
Participatory Action Research in Healthcare provides a guide toparticipatory action research in the community health setting. Itdraws upon the authors' experiences working, researching andengaging with people utilising collaborative, participatoryapproaches. The authors position participatory action research as avital, dynamic and relevant approach that can be engaged bypractitioners and health service providers. It is argued thatparticipating with people is the way to move forward towardsustainable services that evoke human flourishing. Participatory Action Research in Healthcare explores the key issuessurrounding participatory action research, and examines thebenefits of this approach for community development and healthpromotion. It includes detailed guidelines on data generation andanalysis.
Author: Danny Burns
Publisher: SAGE
ISBN: 1529765382
Category : Social Science
Languages : en
Pages : 1077
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Book Description
This SAGE Handbook presents contemporary, cutting-edge approaches to participatory research and inquiry. It has been designed for the community of researchers, professionals and activists engaged in interventions and action for social transformation, and for readers interested in understanding the state of the art in this domain. The Handbook offers an overview of different influences on participatory research, explores in detail how to address critical issues and design effective participatory research processes, and provides detailed accounts of how to use a wide range of participatory research methods. Chapters cover pioneering new participatory research techniques including methods that can be operationalised at scale, approaches to engaging the poorest and most marginalised, and ways of harnessing technologies to increase the scope of participation, amongst others. Drawing upon a wide range of disciplines, and bringing together contributing authors from across the globe, this Handbook will be of interest to an international readership from across the broad spectrum of social sciences, including social policy, development studies, geography, sociology, criminology, political science, health and social care, education, psychology, business & management. It will also be an insightful and practical resource for facilitators, community workers, and activists for social change. Part 1: Introduction Part 2: Key Influences and Foundations of Participatory Research Part 3: Critical Issues in the Practice of Participatory Research Part 4: Methods and Tools Part 4.1: Dialogic and Deliberative Processes Part 4.2: Digital Technologies in Participatory Research Part 4.3: Participatory Forms of Action Orientated Research Part 4.4: Visual and Performative Methods Part 4.5: Participatory Monitoring, Evaluation and Learning Part 4.6: Mixing and Mashing Participatory and Formal Research Part 5: Final Reflections
