Normes en matière de soins palliatifs pédiatriques

Normes en matière de soins palliatifs pédiatriques PDF Author: Québec (Province). Groupe de travail sur les normes en matière de soins palliatifs pédiatriques
Publisher:
ISBN: 9782550476429
Category : Children
Languages : fr
Pages : 86

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Book Description
Le document " Normes en matière de soins palliatifs pédiatriques " découle de la " Politique en soins palliatifs de fin de vie " qui déterminait que les enfants, les adolescents et leurs familles méritent une attention particulière. Ce groupe dʹexperts propose ces normes qui servent de points de repère et correspondent au niveau dʹexcellence à atteindre en matière de soins palliatifs pédiatriques. Ces normes sʹadressent à toutes les équipes qui soignent des enfants en phase palliative et qui offrent des services à leur famille. Elles sʹadressent aussi aux responsables de lʹorganisation des services et de la formation en soins palliatifs pédiatriques.

Normes en matière de soins palliatifs pédiatriques

Normes en matière de soins palliatifs pédiatriques PDF Author: Québec (Province). Groupe de travail sur les normes en matière de soins palliatifs pédiatriques
Publisher:
ISBN: 9782550476429
Category : Children
Languages : fr
Pages : 86

Get Book Here

Book Description
Le document " Normes en matière de soins palliatifs pédiatriques " découle de la " Politique en soins palliatifs de fin de vie " qui déterminait que les enfants, les adolescents et leurs familles méritent une attention particulière. Ce groupe dʹexperts propose ces normes qui servent de points de repère et correspondent au niveau dʹexcellence à atteindre en matière de soins palliatifs pédiatriques. Ces normes sʹadressent à toutes les équipes qui soignent des enfants en phase palliative et qui offrent des services à leur famille. Elles sʹadressent aussi aux responsables de lʹorganisation des services et de la formation en soins palliatifs pédiatriques.

Normes en matière de soins palliatifs pédiatriques

Normes en matière de soins palliatifs pédiatriques PDF Author: Québec (Province). Groupe de travail sur les normes en matière de soins palliatifs pédiatriques
Publisher:
ISBN: 9782550476412
Category :
Languages : fr
Pages : 86

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Book Description


Le soutien aux familles d’enfants gravement malades

Le soutien aux familles d’enfants gravement malades PDF Author: Manon Champagne
Publisher: PUQ
ISBN: 2760537862
Category : Social Science
Languages : fr
Pages : 199

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Book Description
Les enfants gravement malades, grâce aux progrès biomédicaux, survivent aujour­d’hui plus longtemps qu’auparavant. Bien qu’heureuse, cette situation complexifie le quotidien des familles, qui subissent un alourdissement des soins.S’intéressant aux conditions de vie des familles d’enfants gravement malades en contexte québécois, cet ouvrage présente les résultats de recherches portant sur différentes mesures de soutien mises en place par Le Phare Enfants et Familles. Cet organisme sans but lucratif, actif depuis plus de dix ans au Québec, contribue au mieux-être des enfants dont la vie est menacée par une maladie nécessitant des soins complexes, afin d’apporter répit et soutien à leurs familles. Parmi les pratiques novatrices qu’il a mises en place et dont traite ce livre, on retrouve notamment le répit offert à la Maison André-Gratton, première maison de soins palliatifs pédiatriques au Québec, les ateliers de soutien à la prise de décision pour les parents et l’accompagnement par l’art.Rédigé tant par des chercheurs que par des intervenants du Phare Enfants et Familles, et combinant savoirs théoriques et savoirs pratiques, cet ouvrage s’adresse à la fois aux étudiants, aux chercheurs et aux intervenants professionnels et bénévoles. Il intéressera également les parents ayant à relever le défi de vivre avec un enfant gravement malade.

Ethical Dilemmas for Critically Ill Babies

Ethical Dilemmas for Critically Ill Babies PDF Author: Eduard Verhagen
Publisher: Springer
ISBN: 9401773602
Category : Philosophy
Languages : en
Pages : 98

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Book Description
Most neonates who now survive intensive care would have died 50 years ago, and “nature” would have decided the outcomes, making ethical discussions about initiating or withholding resuscitation irrelevant. Medical developments in neonatology have changed the way we respond to diseases of neonates, to their illness, and to their parents. Not only as physicians, but also as a society. Decisions on when to start, withhold, or withdraw life-saving interventions in critically ill neonates are among the most difficult decisions in pediatric practice. These decisions are fraught with ethical dilemmas, for example deciding whether withholding intensive care –leading to death- is superior to uncertain survival with a risk of disability and the additional burden of intensive care. This book covers important ethical questions that arise in neonatal intensive care units. Questions such as, whether to intervene medically and whether we are good at predicting the outcome of fragile neonates; whether a medical intervention should be withheld or withdrawn, and who should be primarily responsible for these decisions and how?

Oxford Textbook of Palliative Medicine

Oxford Textbook of Palliative Medicine PDF Author: Nathan I. Cherny
Publisher: Oxford University Press, USA
ISBN: 0199656096
Category : Medical
Languages : en
Pages : 1281

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Book Description
Emphasising the multi-disciplinary nature of palliative care the fourth edition of this text also looks at the individual professional roles that contribute to the best-quality palliative care.

The Cambridge Textbook of Bioethics

The Cambridge Textbook of Bioethics PDF Author: Peter A. Singer
Publisher: Cambridge University Press
ISBN: 1139468219
Category : Medical
Languages : en
Pages : 477

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Book Description
Medicine and health care generate many bioethical problems and dilemmas that are of great academic, professional and public interest. This comprehensive resource is designed as a succinct yet authoritative text and reference for clinicians, bioethicists, and advanced students seeking a better understanding of ethics problems in the clinical setting. Each chapter illustrates an ethical problem that might be encountered in everyday practice; defines the concepts at issue; examines their implications from the perspectives of ethics, law and policy; and then provides a practical resolution. There are 10 key sections presenting the most vital topics and clinically relevant areas of modern bioethics. International, interdisciplinary authorship and cross-cultural orientation ensure suitability for a worldwide audience. This book will assist all clinicians in making well-reasoned and defensible decisions by developing their awareness of ethical considerations and teaching the analytical skills to deal with them effectively.

Oxford Textbook of Palliative Care for Children

Oxford Textbook of Palliative Care for Children PDF Author: Richard Hain
Publisher: Oxford University Press
ISBN: 019882131X
Category : Medical
Languages : en
Pages : 535

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Book Description
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cultural care for the sick child or young person, and their family. These chapters cover the time course of the illness, around the time of death and support for the bereaved family. 'Symptom Care' focuses on the uses of medication, specific symptoms, and their management. Finally, 'Delivery of Care' examines practical approaches to care in different environments and the needs of clinicians. Two new editors join the team from Canada and South Africa, reflecting our aims to contribute towards the development of care for children across the world, and to be a resource for both experienced clinicians and those new to the field. Comprehensive in scope, exhaustive in detail, and definitive in authority, this third edition has been thoroughly updated to cover new practices, current epidemiological data, and the evolving models that support the delivery of palliative medicine to children. This includes two new chapters, looking in detail at 'Decision Making' and 'Perinatal Care', and a new section highlighting the emerging importance of 'Palliative Care for Children in Humanitarian Crises'. This book is an essential resource for anyone who works with children worldwide.

Canadian Health Law and Policy

Canadian Health Law and Policy PDF Author:
Publisher:
ISBN: 9780433465249
Category : Medical laws and legislation
Languages : en
Pages : 670

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Book Description


Clinical Management of Patients with Viral Haemorrhagic Fever

Clinical Management of Patients with Viral Haemorrhagic Fever PDF Author: World Health Organization
Publisher: World Health Organization
ISBN: 9241549602
Category : Medical
Languages : en
Pages : 203

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Book Description
First published in March 2014 under the title "Clinical management of patients with viral haemorrhagic fever: a pocket guide for front-line health workers: interim emergency guidance for West Africa".

"Save My Kid"

Author: Amanda M. Gengler
Publisher: NYU Press
ISBN: 1479834327
Category : Social Science
Languages : en
Pages : 255

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Book Description
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In “Save My Kid,” Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children’s critical illnesses. She also uncovers the role that emotional goals—deeply rooted in the culture of illness and medicine—play in medical decision-making, healthcare interactions, and the end of children’s lives. A deeply compassionate read, “Save My Kid” is an inside look at inequality in healthcare among those with the most at stake.