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Author: Diane Shader Smith
Publisher:
ISBN: 9780970035301
Category : Cystic fibrosis
Languages : en
Pages : 24
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Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Diane Shader Smith
Publisher:
ISBN: 9780970035301
Category : Cystic fibrosis
Languages : en
Pages : 24
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Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Mallory Smith
Publisher: Random House
ISBN: 1984855433
Category : Biography & Autobiography
Languages : en
Pages : 336
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Book Description
The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.
Author: Wade Davis
Publisher: Vintage
ISBN: 0307700569
Category : Biography & Autobiography
Languages : en
Pages : 596
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Book Description
The definitive story of the British adventurers who survived the trenches of World War I and went on to risk their lives climbing Mount Everest. On June 6, 1924, two men set out from a camp perched at 23,000 feet on an ice ledge just below the lip of Everest’s North Col. George Mallory, thirty-seven, was Britain’s finest climber. Sandy Irvine was a twenty-two-year-old Oxford scholar with little previous mountaineering experience. Neither of them returned. Drawing on more than a decade of prodigious research, bestselling author and explorer Wade Davis vividly re-creates the heroic efforts of Mallory and his fellow climbers, setting their significant achievements in sweeping historical context: from Britain’s nineteen-century imperial ambitions to the war that shaped Mallory’s generation. Theirs was a country broken, and the Everest expeditions emerged as a powerful symbol of national redemption and hope. In Davis’s rich exploration, he creates a timeless portrait of these remarkable men and their extraordinary times.
Author: Cynthia S. Henry
Publisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
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Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Author: Laurie Friedman
Publisher: Darby Creek ™
ISBN: 1467727407
Category : Juvenile Fiction
Languages : en
Pages : 119
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Book Description
Mallory is turning 10, and she's planning a super sleepover! To celebrate her tenth birthday, Mallory wants to have the most super sleepover celebration ever! Mallory plans out everything to the last detail. As long as she promises not to let the fun get out of control, her parents agree to letting her friends sleep over. But Mallory’s best friend, Mary Ann, has her own ideas about what a super sleepover party should include. Before Mallory can put a stop to things, uninvited guests show up, a water balloon fight gets out of hand, and a good friend has her feelings hurt. How did a super sleepover turn into such a super mess?
Author: Bijal P. Trivedi
Publisher: BenBella Books
ISBN: 1948836629
Category : Medical
Languages : en
Pages : 744
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Book Description
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
Author: Thatcher Heldring
Publisher: Delacorte Press
ISBN: 0375987142
Category : Young Adult Fiction
Languages : en
Pages : 210
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Book Description
For every athlete or sports fanatic who knows she's just as good as the guys. This is for fans of The Running Dream by Wendelin Van Draanen, Grace, Gold, and Glory by Gabrielle Douglass and Breakaway: Beyond the Goal by Alex Morgan. The summer before Caleb and Tessa enter high school, friendship has blossomed into a relationship . . . and their playful sports days are coming to an end. Caleb is getting ready to try out for the football team, and Tessa is training for cross-country. But all their structured plans derail in the final flag game when they lose. Tessa doesn’t want to end her career as a loser. She really enjoys playing, and if she’s being honest, she likes it even more than running cross-country. So what if she decided to play football instead? What would happen between her and Caleb? Or between her two best friends, who are counting on her to try out for cross-country with them? And will her parents be upset that she’s decided to take her hobby to the next level? This summer Caleb and Tessa figure out just what it means to be a boyfriend, girlfriend, teammate, best friend, and someone worth cheering for. “A great next choice for readers who have enjoyed Catherine Gilbert Murdock’s Dairy Queen and Miranda Kenneally’s Catching Jordan.”—SLJ “Fast-paced football action, realistic family drama, and sweet romance…[will have] readers looking for girl-powered sports stories…find[ing] plenty to like.”—Booklist “Tessa's ferocious competitiveness is appealing.”—Kirkus Reviews “[The Football Girl] serve[s] to illuminate the appropriately complicated emotions both of a young romance and of pursuing a dream. Heldring writes with insight and restraint.”—The Horn Book
Author: Leila Meacham
Publisher: Grand Central Publishing
ISBN: 0446558109
Category : Fiction
Languages : en
Pages : 555
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Book Description
Two East Texas families must deal with the aftermath of a marriage that never happened leading to deceit, secrets, and tragedies in a sweeping multigenerational Southern saga "with echoes of Gone with the Wind" (Publishers Weekly). Spanning the 20th century, the story of Roses takes place in a small East Texas town against the backdrop of the powerful timber and cotton industries, controlled by the scions of the town's founding families. Cotton tycoon Mary Toliver and timber magnate Percy Warwick should have married but unwisely did not, and now must deal with consequences of their momentous choice and the loss of what might have been--not just for themselves but for their children, and their children's children. With expert, unabashed, big-canvas storytelling, Roses covers a hundred years, three generations of Texans, and the explosive combination of passion for work and longing for love.
Author: Diane Shader Smith
Publisher: Adams Media Corporation
ISBN: 9781593374815
Category : Family & Relationships
Languages : en
Pages : 272
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Book Description
Offers an inside look at the lives of married women involved in extramarital affairs.
Author: Rachel Macy Stafford
Publisher: Zondervan
ISBN: 031033814X
Category : Family & Relationships
Languages : en
Pages : 215
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Book Description
Discover the power, joy, and love of living a present, authentic, and intentional life despite a world full of distractions. If technology is the new addiction, then multitasking is the new marching order. We check our email while cooking dinner, send a text while bathing the kids, and spend more time looking into electronic screens than into the eyes of our loved ones. With our never-ending to-do lists and jam-packed schedules, it's no wonder we're distracted. But this isn't the way it has to be. Special education teacher, New York Times bestselling author, and mother Rachel Macy Stafford says enough is enough. Tired of losing track of what matters most in life, Rachel began practicing simple strategies that enabled her to momentarily let go of largely meaningless distractions and engage in meaningful soul-to-soul connections. Finding balance doesn't mean giving up all technology forever. And it doesn't mean forgoing our jobs and responsibilities. What it does mean is seizing the little moments that life offers us to engage in real and meaningful interaction. In these pages, Rachel guides you through how to: Acknowledge the cost of your distraction Make purposeful connection with your family Give your kids the gift of your undivided attention Silence your inner critic Let go of the guilt from past mistakes And move forward with compassion and gratefulness So join Rachel and go hands-free. Discover what happens when you choose to open your heart--and your hands--to the possibilities of each God-given moment.
