Living with Osteogenesis Imperfecta PDF Download
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Author: Heidi C. Glauser
Publisher:
ISBN:
Category : Health & Fitness
Languages : en
Pages : 312
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Book Description
Author: Heidi C. Glauser
Publisher:
ISBN:
Category : Health & Fitness
Languages : en
Pages : 312
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Book Description
Author: Javaid Kassim
Publisher: Academic Press
ISBN: 0123977894
Category : Medical
Languages : en
Pages : 578
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Book Description
Osteogenesis Imperfecta is the first translational reference professionals can turn to for a source of comprehensive information on this disorder. Although several reviews of the field have been published in various journals, there is no other single source for a compendium of current information. Separate chapters discuss each of the several clinical features of OI. Ethical issues related to OI are discussed, as is the importance of nutrition in managing the OI child and the OI adult. The role of physical medicine and rehabilitation for OI patients is also presented, along with the current status of OI medical treatment and the prospects for genetic engineering in the future. The text also provides the orthopedic surgeon with an advanced discussion of surgical techniques applicable to OI. - Incorporates chapters and information on the ethical issues related to osteogenesis imperfecta (OI) as will the importance of nutrition in managing the OI child and the OI adult - Offers new insights into the underlying mechanisms of collagen biochemistry as related to OI as well as a presentation of intracellular collagen processing and the expanded role of protein chaperones in OI - Discusses the role of physical medicine and rehabilitation for OI patients and the current status of OI medical treatment as well as prospects for genetic engineering in the future - Provides a unique overview for the orthopedic surgeon with an advanced discussion of surgical techniques applicable to OI
Author: Association Of Genetic Support Of Australasia Inc Staff
Publisher:
ISBN: 9780957901001
Category : Children
Languages : en
Pages : 14
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Book Description
Author: Joan Ablon
Publisher: Jones & Bartlett Publishers
ISBN: 1449618138
Category : Health & Fitness
Languages : en
Pages : 273
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Book Description
Brittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI.
Author: Jodi Picoult
Publisher: Simon and Schuster
ISBN: 0743296419
Category : Fiction
Languages : en
Pages : 498
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Book Description
C.1 ST. AID. AMAZON. 03-11-2009. $27.95.
Author: Francis H. Glorieux
Publisher: Academic Press
ISBN: 0123820405
Category : Medical
Languages : en
Pages : 885
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Book Description
Pediatric osteology, a medical specialty that has come of age, has contributed to the understanding of adult bone diseases as well. This second edition reference updates the 2003 edition with more emphasis on management as well as new and revised contributions. Thirty chapters present basic information regarding bone development, tools and techniques for evaluation (including a new chapter on radiographic imaging), and the specifics of various diseases. The three editors are affiliated as follows: Francis H. Glorieux (McGill U., Canada), John M. Pettifor (Chir Hani Baragwanath Hospital, South Africa), and Harald Juppner (Harvard Medical School, US). Academic Press is an imprint of Elsevier. Annotation ©2012 Book News, Inc., Portland, OR (booknews.com).
Author: Olivia Shin
Publisher:
ISBN: 9781087800035
Category :
Languages : en
Pages : 38
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Book Description
Meet Naomi. She is 8 years old and has a mom, a dad, and a baby brother named Johnny. Naomi was born with Osteogenesis Imperfecta (OI), and that makes her bones as fragile as glass. This can make life difficult for Naomi when it comes to participating in activities or fitting in with others. But don't take my word for it. Let her tel you in her own words.
Author: Sattar Alshryda
Publisher: Springer
ISBN: 3030120031
Category : Medical
Languages : en
Pages : 888
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Book Description
This book provides an evidence-based approach to treating the increasing number of children and adolescents presenting with hip disorders. It integrates the most up-to-date data with essential knowledge, gleaned from decades of previous research and practice. Each chapter provides a comprehensive text which integrates relevant pathophysiology, clinical assessment, and imaging, with an evidence-based approach to non-operative and operative management, authored by globally recognized experts in the field of pediatric hip surgery. Detailed surgical techniques, illustrated with original medical drawings and accompanied by their respective indications, anticipated outcomes, and potential complications, are also featured, in this first orthopedic text dedicated solely to the pediatric and adolescent hip. The Paediatric and Adolescent Hip: Essentials and Evidence will be an indispensable resource for wide spectrum of audience including paediatric orthopaedic surgeons, general practitioners, general orthopaedic surgeons, trauma surgeons, orthopaedic residents, emergency department doctors, and physiotherapists seeking a clear and consistent evidence-based guide to treating the paediatric hip.
Author: Ellen Painter Dollar
Publisher: Presbyterian Publishing Corp
ISBN: 1611641551
Category : Religion
Languages : en
Pages : 207
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Book Description
In No Easy Choice, Ellen Painter Dollar tells her gut-wrenching story of living with osteogenesis imperfecta (OI)a disabling genetic bone disorder that was passed down to her first childand deciding whether to conceive a second child who would not have OI using assisted reproduction. Her story brings to light the ethical dilemmas surrounding advanced reproductive technologies. What do procedures such as in vitro fertilization (IVF) and preimplantation genetic diagnosis (PGD) say about how we define human worth? If we avoid such procedures, are we permitting the suffering of our children? How do we identify a "good life" in a consumer society that values appearance, success, health, and perfection? Dollar considers multiple sides of the debate, refusing to accept the matter as simply black and white. Her book will help parents who want to understand and make good decisions about assisted reproduction, as well as those who support and counsel them, including pastors and medical professionals.
Author: Tony Jacobsen
Publisher: Egg Sandwich
ISBN:
Category : Self-Help
Languages : en
Pages : 249
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Book Description
In Disable Your Disability, • Learn about Osteogenesis Imperfecta (brittle bones) and find out how Tony embraced it to save his life. • Learn how to take action towards living the healthy, high-powered, happy life you deserve! • Uncover and tackle mindset issues that hold you back. • Get sure-fire methods to make the changes necessary in your life to start living a healthy lifestyle. • Discover easy to implement eating and exercise techniques to start right now! Disable Your Disability is a journey into self-discovery, a look into the gift of embracing circumstances that hold us back, and powerful concepts with sure-fire methods for taking action toward living the healthy life we deserve. If you live with a physical disability, limited mobility, or something else that is holding you back from living a healthy lifestyle, Tony's personal story, coupled with his clear and concise methodology, will help you gain insight and confidence, and get you clear on what it will take for you to achieve your health and fitness goals. Because he was born with a rare bone disorder, Osteogenesis Imperfecta (brittle bones), Tony used a wheelchair and crutches through his childhood and into his early 20's. When he was 24 years old, he finally took his first unassisted steps and started walking. Because he was scared of breaking more bones and had always been told to 'be careful', Tony remained inactive through his 20's and 30's and his overall health suffered. At age 42, he found himself overweight, dealing with pain in his legs, hips, and back, and using medications to suppress daily heartburn. After a visit to the doctor, he knew something had to change. Tony finally embraced his disability and transformed his entire life! Within 8 months, he began doing things physically that he, and many others, never thought possible. Now, through his dedication to helping others, Tony is coaching, speaking, and building an unstoppable online presence to spread the word that everyone deserves to live a healthy and happy life!
