Living with and Surviving Sickle Cell Disease PDF Download
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Author: Juanita McClain
Publisher: Xlibris Corporation
ISBN: 1543432476
Category : Biography & Autobiography
Languages : en
Pages : 30
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Book Description
Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.
Author: Juanita McClain
Publisher: Xlibris Corporation
ISBN: 1543432476
Category : Biography & Autobiography
Languages : en
Pages : 30
Get Book Here
Book Description
Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.
Author: Judy Gray Johnson
Publisher:
ISBN: 9781105581991
Category : Sickle cell anemia
Languages : en
Pages : 146
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Book Description
Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.
Author: Juanita McClain
Publisher: Xlibris Corporation
ISBN: 1543483658
Category : Biography & Autobiography
Languages : en
Pages : 23
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Book Description
The Monster Within Me is about a child who is born with a genetic blood disorder called sickle cell disease. She fears the disease because of the pain and other effects it causes her. And even though this monster will always live inside of her, she doesnt let it stop her from living a fulfilling life.
Author: Judy Gray Johnson
Publisher:
ISBN: 9780996716208
Category :
Languages : en
Pages : 150
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Book Description
Sickle Cell is often thought of as the "invisible disease." It affects every organ in the body, yet no one would ever know unless there is a crisis. Living with Sickle Cell: The Inside Story will help you understand the struggle of surviving with this disease. This book is the "heart and soul' story of a woman who has beaten the odds of not only surviving with this inherited chronic illness, but she has surpassed the average lifespan of 45 years of age. Judy G. Johnson budgeted her energy and sustained the pain to educate herself and retired as a school teacher. As a single parent, she orchestrated her daughter's career and today her daughter is a clinical therapist with a PhD in private practice. In Living with Sickle Cell: The Inside Story you will discover that: It's a war cry to bring awareness to the disease Looks can be deceiving, pain is not visual It dispels the myth of laziness Majority of Sickle Cell survivors are not "drug addicts" Sickle Cell Disease (Disorder) is not just an African American disease (every ethnic group can be a carrier) Regardless of your ethnicity, everyone should have a Hemoglobin Electrophoresis blood test
Author: Kalysia Johnson
Publisher: AuthorHouse
ISBN: 1665504099
Category : Biography & Autobiography
Languages : en
Pages : 126
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Book Description
Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!
Author: Ebun Ekunwe
Publisher:
ISBN: 9780998323312
Category :
Languages : en
Pages : 216
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Book Description
To look at me, you cannot tell that I was born with sickle cell anemia. At 70 years of age, I am living healthy and pain-free in spite of having grown up with severe debilitation.What is my secret? There is a body of scientific knowledge on how nutrition impacts our genetic code. With my insight as a medical doctor, I have discovered the secret of living well with hereditary diseases, with special reference to sickle cell disorders. In the past decade, I have studied and practiced to perfect this strategy. "Living Well With Sickle Cell Anemia: One Doctor's Story" is a description of how you too can perfect it to enhance your health. Soon after you get your hands on this book, the insights contained in it will ensure that you too start to live healthy and pain-free. In the book, you get the advantage of over a decade's worth of study and practice. Before too long, you (or your loved one, if you are also getting them a copy) will almost forget that you have sickle cell disease.When asked how you are coping with sickle cell anemia, your response will be "What sickle cell?" Enjoy your life!I am enjoying mine, sickle cell notwithstanding.
Author: Samir K. Ballas
Publisher: Lippincott Williams & Wilkins
ISBN: 1496331834
Category : Medical
Languages : en
Pages : 1004
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Book Description
Sickle Cell Pain is a panoramic, in-depth exploration of every scientific, human, and social dimension of this cruel disease. This comprehensive, definitive work is unique in that it is the only book devoted to sickle cell pain, as opposed to general aspects of the disease. The 752-page book links sickle cell pain to basic, clinical, and translational research, addressing various aspects of sickle pain from molecular biology to the psychosocial aspects of the disease. Supplemented with patient narratives, case studies, and visual art, Sickle Cell Pain’s scientific rigor extends through its discussion of analgesic pharmacology, including abuse-deterrent formulations. The book also addresses in great detail inequities in access to care, stereotyping and stigmatization of patients, the implications of rapidly evolving models of care, and recent legislation and litigation and their consequences.
Author: James Griffin
Publisher: CreateSpace
ISBN: 9781500858001
Category :
Languages : en
Pages : 146
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Book Description
This powerful book gives you a behind the scenes look at what it's like to live with the chronic illness, Sickle Cell Anemia. Diagnosed at the tender age of two James faced many daily obstacles and challenges because of his condition but stayed determined not to let it define him. Out of the fear of being judged and looked upon negatively by others, James worked diligently to keep his health a secret and chose never to discuss it openly with anyone. Now with his first published book Breaking Silence: Living With Sickle Cell Anemia, he's done the unthinkable by opening up and revealing all about his illness. As you read this book you will be taken on a personal journey through the life of James as he brings you closer to him by giving you candid stories of his childhood, relationships, and how he's dealt with having sickle cell anemia. His unique style of writing along with the raw and uncut message that he delivers will keep you engaged as a reader. This book is highly recommended for anyone going through their own battles with sickle cell anemia, anyone who knows someone with sickle cell anemia, or anyone who's ever heard of it and wants to learn more about the condition.
Author: Alexia Tennent
Publisher: Tennflex Wellness
ISBN: 9781951844004
Category : Health & Fitness
Languages : en
Pages : 44
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Book Description
Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.
Author: Shirley Hill
Publisher: Temple University Press
ISBN: 1439904251
Category : Health & Fitness
Languages : en
Pages : 240
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Book Description
Hill examines how low-income, African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.
