Lessons from a Disabled Caregiver

Lessons from a Disabled Caregiver PDF Author: William G. Reed
Publisher: McFarland
ISBN: 1476645213
Category : Medical
Languages : en
Pages : 262

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Book Description
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.

Lessons from a Disabled Caregiver

Lessons from a Disabled Caregiver PDF Author: William G. Reed
Publisher: McFarland
ISBN: 1476645213
Category : Medical
Languages : en
Pages : 262

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Book Description
Progressive, untreatable nerve and muscle diseases transformed the author's life from having been a college athlete to needing a wheelchair and special equipment for day-to-day activities. While dealing with his own conditions, he was faced with the unique challenge of being the sole caregiver for his wife who suffers from Alzheimer's disease. He has written this experience-based book to help people with life-altering medical conditions and those dealing with challenging caregiving responsibilities. Comprehensive in scope, it covers topics including grief, finances, safety and end-of-life planning. This is a resource book containing many references aimed at helping the reader overcome their challenges, maintain their independence and have happy, fulfilling lives.

Essential Strategies for the Dementia Caregiver

Essential Strategies for the Dementia Caregiver PDF Author: Tami Anastasia
Publisher:
ISBN:
Category :
Languages : en
Pages :

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Book Description
ESSENTIAL STRATEGIES FOR THE DEMENTIA CAREGIVER offers a fresh and practical approach to the challenges faced by wives, husbands, and adult children who care for loved ones with dementia. Using the 4 D's of Dementia Care - detach, document, diffuse, distract - caregivers can find solutions for behaviors ranging from shadowing to wandering to medication refusal. The PACE model emphasizes the importance of prioritizing the caregiver's well-being while navigating the dementia journey: P = Permission for Trial and Error, A = Acknowledge Their Reality, C = Compassionate Care, E = Empower Yourself.

The Caregiver Helpbook

The Caregiver Helpbook PDF Author: Vicki L. Schmall
Publisher:
ISBN:
Category : Aging
Languages : en
Pages : 328

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Book Description


Life Planning for Adults with Developmental Disabilities

Life Planning for Adults with Developmental Disabilities PDF Author: Judith Greenbaum
Publisher: New Harbinger Publications
ISBN: 1572244518
Category : Developmentally disabled
Languages : en
Pages : 214

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Book Description
A Comprehensive Guide for Parents and Caregivers As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life is certainly possible. But government and private support for parents and disabled individualsis scattered and difficult to negotiate. This book is a comprehensive guide to resources you can use to help an adult child or other individual with developmental disabilities for whom you care. The book begins by assessing the quality of life of the adult with a disability. It offers a wealth of suggestions for making that person's life even better. The book then focuses on long-term planning for the individual with a disability and helps answer the question, Who will take care of my child after I'm gone? Learn effective ways to: Assess a disabled individual's strengths and need for support services Develop a plan to for building a busy and productive life Locate good housing and employment opportunities Gather a supportive team of caregivers Advocate for a disabled individual with community agencies

Positioning in a Wheelchair

Positioning in a Wheelchair PDF Author: Jan K. Mayall
Publisher: Slack
ISBN:
Category : Health & Fitness
Languages : en
Pages : 180

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Book Description
This manual helps the therapist to identify a positioning problem and perform a thorough assessment of the client to determine the cause of the problem. It also enables the therapist to assess available appliances and techniques to determine the most effective solution. It is intended to assist with clients who have mild to moderate positioning problems. A listing of manufacturers and distributors of existing and new equipment is included. This second edition assures optimal quality of life for the disabled adult by meeting the following objectives: Maximization of participation and independence in performing activities of daily living. Promoting the ability to interact with the environment. Prevention of pressure sores and alleviation of pain. Prevention of deformities. Provision of comfort. Facilitation of transfers and mobility. Assurance of safety.

Hope for the Caregiver

Hope for the Caregiver PDF Author: Peter Rosenberger
Publisher: Worthy Inspired
ISBN: 161795750X
Category : Religion
Languages : en
Pages : 202

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Book Description
There are 65.7 million caregivers in America, making up 29 percent of the U.S. adult population. Where does the caregiver turn when dealing with their own need for encouragement and renewal?

A Catholic Guide to Caring for Your Aging Parent

A Catholic Guide to Caring for Your Aging Parent PDF Author: Monica Dodd
Publisher: Loyola Press
ISBN: 0829431144
Category : Religion
Languages : en
Pages : 362

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Book Description
Monica Dodds understands the pressures that millions of middle-aged Americans endure as they become caregivers to aging parents. Her professional work with the elderly has exposed her to the complex medical, financial, and legal problems that entangle older people. Her personal experience helping ailing family members has given her deep insight into the difficulties caregivers face in dealing with these problems. A Catholic Guide to Caring for Your Aging Parent is a comprehensive guide for caregivers. Dodds insists that faith is a fundamental part of caregiving, and her approach is deeply rooted in Catholic spirituality. She shows adult children how they can love and serve their aging parents better by deepening their own spiritual lives. "Caregiving", she says, "is a time of many grace-filled moments." Dodds explains how to properly assess the needs of a failing older person, and she writes in detail about the physical, mental, emotional, interpersonal, and spiritual dimensions of care. Three extensive appendices provide checklists for assessing needs, a compilation of resources, and an anthology of prayers.

Learning from My Daughter

Learning from My Daughter PDF Author: Eva Feder Kittay
Publisher: Oxford University Press
ISBN: 0190844620
Category : Philosophy
Languages : en
Pages : 435

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Book Description
Does life have meaning? What is flourishing? How do we attain the good life? Philosophers, and many others of us, have explored these questions for centuries. As Eva Feder Kittay points out, however, there is a flaw in the essential premise of these questions: they seem oblivious to the very nature of the ways in which humans live, omitting a world of co-dependency, and of the fact that we live in and through our bodies, whether they are fully abled or disabled. Our dependent, vulnerable, messy, changeable, and embodied experience colors everything about our lives both on the surface and when it comes to deeper concepts, but we tend to leave aside the body for the mind when it comes to philosophical matters. Disability offers a powerful challenge to long-held philosophical views about the nature of the good life, what provides meaning in our lives, and the centrality of reason, as well as questions of justice, dignity, and personhood. These concepts need not be distant and idealized; the answers are right before us, in the way humans interact with one another, care for one another, and need one another--whether they possess full mental capacities or have cognitive limitations. We need to revise our concepts of things like dignity and personhood in light of this important correction, Kittay argues. This is the first of two books in which Kittay will grapple with just how we need to revisit core philosophical ideas in light of disabled people's experience and way of being in the world. Kittay, an award-winning philosopher who is also the mother to a multiply-disabled daughter, interweaves the personal voice with the philosophical as a critical method of philosophical investigation. Here, she addresses why cognitive disability can reorient us to what truly matters, and questions the centrality of normalcy as part of a good life. With profound sensitivity and insight, Kittay examines other difficult topics: How can we look at the ethical questions regarding prenatal testing in light of a new appreciation of the personhood of disabled people? What do new possibilities in genetic testing imply for understanding disability, the family, and bioethics? How can we reconsider the importance of care, and how does it work best? In the process of pursuing these questions, Kittay articulates an ethic of care, which is the ethical theory most useful for claiming full rights for disabled people and providing the opportunities for everyone to live joyful and fulfilling lives. She applies the lessons of care to the controversial alteration of severely cognitively disabled children known as the Ashley Treatment, whereby a child's growth is halted with extensive estrogen treatment and related bodily interventions are justified. This book both imparts lessons that advocate on behalf of those with significant disabilities, and constructs a moral theory grounded on our ability to give, receive, and share care and love. Above all, it aims to adjust social attitudes and misconceptions about life with disability.

Already Toast

Already Toast PDF Author: Kate Washington
Publisher: Beacon Press
ISBN: 0807011754
Category : Medical
Languages : en
Pages : 226

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Book Description
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Patient Safety and Quality

Patient Safety and Quality PDF Author: Ronda Hughes
Publisher: Department of Health and Human Services
ISBN:
Category : Medical
Languages : en
Pages : 592

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Book Description
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/