Taking Cystic Fibrosis to School PDF Download
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Author: Cynthia S. Henry
Publisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
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Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Author: Cynthia S. Henry
Publisher: Jayjo Books
ISBN: 9781891383090
Category : Cystic fibrosis in children
Languages : en
Pages : 0
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Book Description
Illustrations and simple text help children learn what cystic fibrosis is and how it is dealt with.
Author: Kelsey M Finn
Publisher:
ISBN:
Category :
Languages : en
Pages : 28
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Book Description
This book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.
Author: Tim Sweeney
Publisher: Independently Published
ISBN:
Category :
Languages : en
Pages : 225
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Book Description
Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.
Author: Rachael Lippincott
Publisher: Simon & Schuster Books for Young Readers
ISBN: 1534451560
Category : Young Adult Fiction
Languages : en
Pages : 288
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Book Description
Also a major motion picture starring Cole Sprouse and Haley Lu Richardson! Goodreads Choice Winner, Best Young Adult Fiction of 2019 In this #1 New York Times bestselling novel that’s perfect for fans of John Green’s The Fault in Our Stars, two teens fall in love with just one minor complication—they can’t get within a few feet of each other without risking their lives. Can you love someone you can never touch? Stella Grant likes to be in control—even though her totally out of control lungs have sent her in and out of the hospital most of her life. At this point, what Stella needs to control most is keeping herself away from anyone or anything that might pass along an infection and jeopardize the possibility of a lung transplant. Six feet apart. No exceptions. The only thing Will Newman wants to be in control of is getting out of this hospital. He couldn’t care less about his treatments, or a fancy new clinical drug trial. Soon, he’ll turn eighteen and then he’ll be able to unplug all these machines and actually go see the world, not just its hospitals. Will’s exactly what Stella needs to stay away from. If he so much as breathes on Stella, she could lose her spot on the transplant list. Either one of them could die. The only way to stay alive is to stay apart. But suddenly six feet doesn’t feel like safety. It feels like punishment. What if they could steal back just a little bit of the space their broken lungs have stolen from them? Would five feet apart really be so dangerous if it stops their hearts from breaking too?
Author: Diane Shader Smith
Publisher:
ISBN: 9780970035301
Category : Cystic fibrosis
Languages : en
Pages : 24
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Book Description
Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."
Author: Andy C. Lipman
Publisher: Booklogix
ISBN: 9781610059558
Category : Health & Fitness
Languages : en
Pages : 216
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Book Description
"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox
Author: Alison Gervais
Publisher: Blink
ISBN: 0310766303
Category : Young Adult Fiction
Languages : en
Pages : 321
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Book Description
Faced with the challenges of transitioning from a Hard of Hearing School to a Hearing high school, Maya has more than a learning curve. But what if she has more to learn about herself and how far she is willing to push for what she believes in? Perfect for contemporary fiction fans, The Silence Between Us is a novel that doesn’t shy away from the real-life struggles of high school, heart break, and d/Deaf culture. Schneider Family Book Award, Best Teen Honor Book 2020 Torn from her Hard of Hearing school when her mother's job takes them across the country, Deaf teen Maya must attend a hearing school for the first time since her hearing loss. As if that wasn’t hard enough, she also has to adjust to the hearing culture, which she finds frustrating. When her new friends and classmates start pushing into Maya’s thoughts about what it means to be Deaf, it clashes with her idea of self-worth and values. Looking past graduation towards a future medical career, Maya knows nothing, not even an unexpected romance, will derail her pursuits or cause her to question her integrity. Wattpad sensation Alison Gervais writes a stunning portrayal of the Deaf and Hard of Hearing culture in this clean YA contemporary romance. Drawing from her own deaf experience and relationship with the HoH community, Gervais provides a personal interview and commentary on cochlear implants. The Silence Between Us mixes lighthearted romance with deeper social issues facing minority groups. “The Silence Between Us?is eminently un-put-down-able.” (NPR) “Gervais deftly renders both the nuanced, everyday realities of life with disability and Maya’s fierce pride in her Deafness, delivering a vibrant story that will resonate with Deaf and hearing audiences alike.” –?Booklist “A solid addition to middle/high school fiction that allows for deep discussion about stereotypes concerning disabilities.”?School Library Journal “This is a great YA contemporary (clean) romance that follows Maya as she navigates a new school and plans for her future. The addition of representation by a Deaf character was really beautifully done. Highly recommend for people looking for a sweet, engaging, and educational romantic read.” (YA and Kids Book Central)
Author: Nicholas Kelly
Publisher:
ISBN: 9781736159514
Category :
Languages : en
Pages : 47
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Book Description
Meet Miss Messy Suzie McGoo, a delightful little girl who lives for adventure. Follow her as she embarks on her latest adventure - a trip through the jungle - where she and you will meet beautiful animals, see fantastic sights, and learn a thing or two about her and just how extraordinary and brave she is.This book will delight parents and children alike and will teach both about what it's like to live and thrive with cystic fibrosis and the special lung therapy that makes her life easier and helps her remain healthy and strong.Subject matter ?Teaching children with Cystic Fibrosis how to complete the lung therapy, the "Huff Cough". We have renamed it the "Cuff" Cough as the "C" alliteration more easily achieves the desired results, without in person training. Theme?A lighthearted and whimsical book, designed to act as an educational tool, while also helping normalize having to complete lung therapy. Target audience?Families affected by Cystic Fibrosis?Families affected by lung disease ?Children age 5 -10Main character?Miss Messy Suzie McGooProblem it will solve or lesson it will teach?The "Cuff Cough" lung therapy
Author: Sarah J. Maas
Publisher: Ember
ISBN: 0399549722
Category : Young Adult Fiction
Languages : en
Pages : 402
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Book Description
Sizzling with action and suspense, #1 New York Times bestselling author SARAH J. MAAS delivers with this DC Icons coming-of-age Selina Kyle who will steal readers' hearts in the YA blockbuster: CATWOMAN! DC ICONS IS NOW A NEW YORK TIMES BESTSELLING SERIES! "A Catwoman story with Maas' signature touch. . . . Devilish." --Entertainment Weekly When the Bat's away, the Cat will play. It's time to see how many lives this cat really has. Two years after escaping Gotham City's slums, Selina Kyle returns as the mysterious and wealthy Holly Vanderhees. She quickly discovers that with Batman off on a vital mission, the city looks ripe for the taking. Meanwhile, Luke Fox wants to prove that as Batwing he has what it takes to help people. He targets a new thief on the prowl who has teamed up with Poison Ivy and Harley Quinn. Together, they are wreaking havoc. This Catwoman is clever—she may be Batwing's undoing. In this third DC Icons book, Selina is playing a desperate game of cat and mouse, forming unexpected friendships and entangling herself with Batwing by night and her devilishly handsome neighbor Luke Fox by day. But with a dangerous threat from the past on her tail, will she be able to pull off the heist that's closest to her heart? "Maas has a gift for crafting fierce female protagonists. . . . An epic shoutout to all the bad girls who know how to have fun." —Kirkus Reviews, STARRED REVIEW "A Catwoman story unlike anything you've seen before." --Nerdist Don't miss the rest of the DC Icons series! Powerful reads in any order you choose: Wonder Woman: Warbringer by Leigh Bardugo Batman: Nightwalker by Marie Lu Superman: Dawnbreaker by Matt de la Peña
Author: Bijal P. Trivedi
Publisher: BenBella Books
ISBN: 1948836629
Category : Medical
Languages : en
Pages : 744
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Book Description
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
