Author: Joseph D. Stern
Publisher: Central Recovery Press
ISBN: 1949481522
Category : Biography & Autobiography
Languages : en
Pages : 245
Book Description
In his exceptionally thought-provoking and moving memoir, neurosurgeon Joseph D. Stern explores how personal loss influences the way physicians relate to patients and their families. How does a doctor who deals with the death of patients on a regular basis confront his own loss when his beloved sister is living out her last days? Despite a career as a neurosurgeon, Joseph Stern learned more about the nature of illness and death after his younger sister, Victoria, developed leukemia than his formal medical training ever taught him. Her death broke down the self-protective barriers he had built to perform his job and led to a profound shift in his approach to medicine. During the year of his sister’s illness, Dr. Stern developed a greater awareness of the needs of patients and their families; of the burdens they carry; of the importance of connection, communication, and gratitude; and of what it means to ask the right questions. Grief Connects Us bridges the gap between patients and doctors, providing a window into their shared concerns. Interspersing reflections from Victoria's journal, stories of patients and colleagues, and insights from experts, Dr. Stern has orchestrated a symphony of voices guiding us toward greater mutual understanding and appreciation of the beauty and fragility of life. No matter which side of the patient-doctor relationship you find yourself on, listening with empathy, a willingness to be vulnerable, and emotional agility are skills we can all develop to improve how we meet difficult, unavoidable challenges.
Grief Connects Us
Author: Joseph D. Stern
Publisher: Central Recovery Press
ISBN: 1949481522
Category : Biography & Autobiography
Languages : en
Pages : 245
Book Description
In his exceptionally thought-provoking and moving memoir, neurosurgeon Joseph D. Stern explores how personal loss influences the way physicians relate to patients and their families. How does a doctor who deals with the death of patients on a regular basis confront his own loss when his beloved sister is living out her last days? Despite a career as a neurosurgeon, Joseph Stern learned more about the nature of illness and death after his younger sister, Victoria, developed leukemia than his formal medical training ever taught him. Her death broke down the self-protective barriers he had built to perform his job and led to a profound shift in his approach to medicine. During the year of his sister’s illness, Dr. Stern developed a greater awareness of the needs of patients and their families; of the burdens they carry; of the importance of connection, communication, and gratitude; and of what it means to ask the right questions. Grief Connects Us bridges the gap between patients and doctors, providing a window into their shared concerns. Interspersing reflections from Victoria's journal, stories of patients and colleagues, and insights from experts, Dr. Stern has orchestrated a symphony of voices guiding us toward greater mutual understanding and appreciation of the beauty and fragility of life. No matter which side of the patient-doctor relationship you find yourself on, listening with empathy, a willingness to be vulnerable, and emotional agility are skills we can all develop to improve how we meet difficult, unavoidable challenges.
Publisher: Central Recovery Press
ISBN: 1949481522
Category : Biography & Autobiography
Languages : en
Pages : 245
Book Description
In his exceptionally thought-provoking and moving memoir, neurosurgeon Joseph D. Stern explores how personal loss influences the way physicians relate to patients and their families. How does a doctor who deals with the death of patients on a regular basis confront his own loss when his beloved sister is living out her last days? Despite a career as a neurosurgeon, Joseph Stern learned more about the nature of illness and death after his younger sister, Victoria, developed leukemia than his formal medical training ever taught him. Her death broke down the self-protective barriers he had built to perform his job and led to a profound shift in his approach to medicine. During the year of his sister’s illness, Dr. Stern developed a greater awareness of the needs of patients and their families; of the burdens they carry; of the importance of connection, communication, and gratitude; and of what it means to ask the right questions. Grief Connects Us bridges the gap between patients and doctors, providing a window into their shared concerns. Interspersing reflections from Victoria's journal, stories of patients and colleagues, and insights from experts, Dr. Stern has orchestrated a symphony of voices guiding us toward greater mutual understanding and appreciation of the beauty and fragility of life. No matter which side of the patient-doctor relationship you find yourself on, listening with empathy, a willingness to be vulnerable, and emotional agility are skills we can all develop to improve how we meet difficult, unavoidable challenges.
Closure
Author: Nancy Berns
Publisher: Temple University Press
ISBN: 9781439905760
Category : Social Science
Languages : en
Pages : 228
Book Description
When it comes to the end of a relationship, the loss of a loved one, or even a national tragedy, we are often told we need “closure.” But while some people do find closure for their pain and grief, many more feel closure does not exist and believe the notion only promises false hopes. Sociologist Nancy Berns explores these ideas and their ramifications in her timely book, Closure. Berns uncovers the various interpretations and contradictory meanings of closure. She identifies six types of “closure talk,” revealing closure as a socially constructed concept—a “new emotion.” Berns also explores how closure has been applied widely in popular media and how the idea has been appropriated as a political tool and to sell products and services. This book explains how the push for closure—whether we find it helpful, engaging, or enraging—is changing our society.
Publisher: Temple University Press
ISBN: 9781439905760
Category : Social Science
Languages : en
Pages : 228
Book Description
When it comes to the end of a relationship, the loss of a loved one, or even a national tragedy, we are often told we need “closure.” But while some people do find closure for their pain and grief, many more feel closure does not exist and believe the notion only promises false hopes. Sociologist Nancy Berns explores these ideas and their ramifications in her timely book, Closure. Berns uncovers the various interpretations and contradictory meanings of closure. She identifies six types of “closure talk,” revealing closure as a socially constructed concept—a “new emotion.” Berns also explores how closure has been applied widely in popular media and how the idea has been appropriated as a political tool and to sell products and services. This book explains how the push for closure—whether we find it helpful, engaging, or enraging—is changing our society.
Grief Is the Thing with Feathers
Author: Max Porter
Publisher: Graywolf Press
ISBN: 1555979378
Category : Fiction
Languages : en
Pages : 129
Book Description
Here he is, husband and father, scruffy romantic, a shambolic scholar--a man adrift in the wake of his wife's sudden, accidental death. And there are his two sons who like him struggle in their London apartment to face the unbearable sadness that has engulfed them. The father imagines a future of well-meaning visitors and emptiness, while the boys wander, savage and unsupervised. In this moment of violent despair they are visited by Crow--antagonist, trickster, goad, protector, therapist, and babysitter. This self-described "sentimental bird," at once wild and tender, who "finds humans dull except in grief," threatens to stay with the wounded family until they no longer need him. As weeks turn to months and the pain of loss lessens with the balm of memories, Crow's efforts are rewarded and the little unit of three begins to recover: Dad resumes his book about the poet Ted Hughes; the boys get on with it, grow up. Part novella, part polyphonic fable, part essay on grief, Max Porter's extraordinary debut combines compassion and bravura style to dazzling effect. Full of angular wit and profound truths, Grief Is the Thing with Feathers is a startlingly original and haunting debut by a significant new talent.
Publisher: Graywolf Press
ISBN: 1555979378
Category : Fiction
Languages : en
Pages : 129
Book Description
Here he is, husband and father, scruffy romantic, a shambolic scholar--a man adrift in the wake of his wife's sudden, accidental death. And there are his two sons who like him struggle in their London apartment to face the unbearable sadness that has engulfed them. The father imagines a future of well-meaning visitors and emptiness, while the boys wander, savage and unsupervised. In this moment of violent despair they are visited by Crow--antagonist, trickster, goad, protector, therapist, and babysitter. This self-described "sentimental bird," at once wild and tender, who "finds humans dull except in grief," threatens to stay with the wounded family until they no longer need him. As weeks turn to months and the pain of loss lessens with the balm of memories, Crow's efforts are rewarded and the little unit of three begins to recover: Dad resumes his book about the poet Ted Hughes; the boys get on with it, grow up. Part novella, part polyphonic fable, part essay on grief, Max Porter's extraordinary debut combines compassion and bravura style to dazzling effect. Full of angular wit and profound truths, Grief Is the Thing with Feathers is a startlingly original and haunting debut by a significant new talent.
Surviving Sibling Loss: The Invisible Thread that Connects Us Through Life and Death
Author: Dawn DiRaimondo, Psy.D.
Publisher: Outskirts Press
ISBN: 1977228836
Category : Self-Help
Languages : en
Pages : 116
Book Description
In a world that doesn’t understand or want to talk much about grief, losing a sibling changes someone forever. Grieving siblings often feel very alone, as much of the focus and support is geared toward their parents. With limited vocabulary to express grief, people can be left with the feeling that a piece of them has died too.
In 2004, clinical psychologist, Dawn DiRaimondo, suddenly lost her 22-year-old brother, Michael, who was serving as a flight medic in Iraq when his helicopter was shot down. This life-altering event compelled Dr. DiRaimondo to build a practice specializing in helping her clients through the most difficult of losses: children, young parents, siblings, and spouses. Surviving Sibling Loss interweaves both her story of losing her own brother with clinical insights into the impact of significant grief and loss in one’s life. This book will help surviving siblings feel validated and understood, as well as provide a number of ways to both cope, and honor their sibling. Surviving Sibling Loss is powerful, raw and heartfelt. It’s a must-have resource for anyone who has lost a sibling and for the people in their life—partners, friends, parents, even clinicians—who want to better support them.
Publisher: Outskirts Press
ISBN: 1977228836
Category : Self-Help
Languages : en
Pages : 116
Book Description
In a world that doesn’t understand or want to talk much about grief, losing a sibling changes someone forever. Grieving siblings often feel very alone, as much of the focus and support is geared toward their parents. With limited vocabulary to express grief, people can be left with the feeling that a piece of them has died too.
In 2004, clinical psychologist, Dawn DiRaimondo, suddenly lost her 22-year-old brother, Michael, who was serving as a flight medic in Iraq when his helicopter was shot down. This life-altering event compelled Dr. DiRaimondo to build a practice specializing in helping her clients through the most difficult of losses: children, young parents, siblings, and spouses. Surviving Sibling Loss interweaves both her story of losing her own brother with clinical insights into the impact of significant grief and loss in one’s life. This book will help surviving siblings feel validated and understood, as well as provide a number of ways to both cope, and honor their sibling. Surviving Sibling Loss is powerful, raw and heartfelt. It’s a must-have resource for anyone who has lost a sibling and for the people in their life—partners, friends, parents, even clinicians—who want to better support them.
The Invisible String
Author: Patrice Karst
Publisher: Little, Brown Books for Young Readers
ISBN: 0316590657
Category : Juvenile Fiction
Languages : en
Pages : 44
Book Description
With over 1.5 million copies sold, this accessible, bestselling picture book phenomenon about the unbreakable connections between loved ones has healed generations of children and adults alike. A Spanish edition (El hilo invisible by Patrice Karst and Joanne Lew-Vriethoff) and a companion workbook are also available (The Invisible String Workbook). Parents, educators, therapists, and social workers alike have declared The Invisible String the perfect tool for coping with all kinds of separation anxiety, loss, and grief. It's also been joyfully embraced as a year-round celebration of love--gifted at births, graduations, weddings, Valentine's Day, and beyond. In this relatable and reassuring contemporary classic, a mother tells her two children that they're all connected by an invisible string. "That's impossible!" the children insist, but still they want to know more: "What kind of string?" The answer is the simple truth that binds us all: An Invisible String made of love. Even though you can't see it with your eyes, you can feel it deep in your heart, and know that you are always connected to the ones you love. Does everybody have an Invisible String? How far does it reach? Does it ever go away? This heartwarming picture book for all ages explores questions about the intangible yet unbreakable connections between us, and opens up deeper conversations about love. Recommended and adopted by parenting blogs, bereavement support groups, hospice centers, foster care and social service agencies, military library services, church groups, and educators, The Invisible String offers a very simple approach to overcoming loneliness, separation, or loss with an imaginative twist that children easily understand and embrace, and delivers a particularly compelling message in today's uncertain times. This special paperback edition includes vibrant new illustrations and an introduction from the author. Recommended by Oprah Daily! • A Good Housekeeping Best Children’s Book of All Time "This book is a beautiful way to begin to try, as parents, to instill in children the impenetrable power of the heart, the energy of love, and the flow that can be felt from the grace in every moment." —Tony Robbins Read all the books in The Invisible String series: The Invisible String Backpack: Your very own tool kit for school—and life! The Invisible String Workbook: Creative Activities to Comfort, Calm, and Connect The Invisible Leash: An Invisible String Story About the Loss of a Pet The Invisible Web: An Invisible String Story Celebrating Love and Universal Connection You Are Never Alone: An Invisible String Lullaby
Publisher: Little, Brown Books for Young Readers
ISBN: 0316590657
Category : Juvenile Fiction
Languages : en
Pages : 44
Book Description
With over 1.5 million copies sold, this accessible, bestselling picture book phenomenon about the unbreakable connections between loved ones has healed generations of children and adults alike. A Spanish edition (El hilo invisible by Patrice Karst and Joanne Lew-Vriethoff) and a companion workbook are also available (The Invisible String Workbook). Parents, educators, therapists, and social workers alike have declared The Invisible String the perfect tool for coping with all kinds of separation anxiety, loss, and grief. It's also been joyfully embraced as a year-round celebration of love--gifted at births, graduations, weddings, Valentine's Day, and beyond. In this relatable and reassuring contemporary classic, a mother tells her two children that they're all connected by an invisible string. "That's impossible!" the children insist, but still they want to know more: "What kind of string?" The answer is the simple truth that binds us all: An Invisible String made of love. Even though you can't see it with your eyes, you can feel it deep in your heart, and know that you are always connected to the ones you love. Does everybody have an Invisible String? How far does it reach? Does it ever go away? This heartwarming picture book for all ages explores questions about the intangible yet unbreakable connections between us, and opens up deeper conversations about love. Recommended and adopted by parenting blogs, bereavement support groups, hospice centers, foster care and social service agencies, military library services, church groups, and educators, The Invisible String offers a very simple approach to overcoming loneliness, separation, or loss with an imaginative twist that children easily understand and embrace, and delivers a particularly compelling message in today's uncertain times. This special paperback edition includes vibrant new illustrations and an introduction from the author. Recommended by Oprah Daily! • A Good Housekeeping Best Children’s Book of All Time "This book is a beautiful way to begin to try, as parents, to instill in children the impenetrable power of the heart, the energy of love, and the flow that can be felt from the grace in every moment." —Tony Robbins Read all the books in The Invisible String series: The Invisible String Backpack: Your very own tool kit for school—and life! The Invisible String Workbook: Creative Activities to Comfort, Calm, and Connect The Invisible Leash: An Invisible String Story About the Loss of a Pet The Invisible Web: An Invisible String Story Celebrating Love and Universal Connection You Are Never Alone: An Invisible String Lullaby
Finding Meaning
Author: David Kessler
Publisher: Scribner
ISBN: 1501192744
Category : Self-Help
Languages : en
Pages : 272
Book Description
In this groundbreaking and “poignant” (Los Angeles Times) book, David Kessler—praised for his work by Maria Shriver, Marianne Williamson, and Mother Teresa—journeys beyond the classic five stages to discover a sixth stage: meaning. In 1969, Elisabeth Kübler-Ross first identified the stages of dying in her transformative book On Death and Dying. Decades later, she and David Kessler wrote the classic On Grief and Grieving, introducing the stages of grief with the same transformative pragmatism and compassion. Now, based on hard-earned personal experiences, as well as knowledge and wisdom gained through decades of work with the grieving, Kessler introduces a critical sixth stage: meaning. Kessler’s insight is both professional and intensely personal. His journey with grief began when, as a child, he witnessed a mass shooting at the same time his mother was dying. For most of his life, Kessler taught physicians, nurses, counselors, police, and first responders about end of life, trauma, and grief, as well as leading talks and retreats for those experiencing grief. Despite his knowledge, his life was upended by the sudden death of his twenty-one-year-old son. How does the grief expert handle such a tragic loss? He knew he had to find a way through this unexpected, devastating loss, a way that would honor his son. That, ultimately, was the sixth stage of grief—meaning. In Finding Meaning, Kessler shares the insights, collective wisdom, and powerful tools that will help those experiencing loss. “Beautiful, tender, and wise” (Katy Butler, author of The Art of Dying Well), Finding Meaning is “an excellent addition to grief literature that helps pave the way for steps toward healing” (School Library Journal).
Publisher: Scribner
ISBN: 1501192744
Category : Self-Help
Languages : en
Pages : 272
Book Description
In this groundbreaking and “poignant” (Los Angeles Times) book, David Kessler—praised for his work by Maria Shriver, Marianne Williamson, and Mother Teresa—journeys beyond the classic five stages to discover a sixth stage: meaning. In 1969, Elisabeth Kübler-Ross first identified the stages of dying in her transformative book On Death and Dying. Decades later, she and David Kessler wrote the classic On Grief and Grieving, introducing the stages of grief with the same transformative pragmatism and compassion. Now, based on hard-earned personal experiences, as well as knowledge and wisdom gained through decades of work with the grieving, Kessler introduces a critical sixth stage: meaning. Kessler’s insight is both professional and intensely personal. His journey with grief began when, as a child, he witnessed a mass shooting at the same time his mother was dying. For most of his life, Kessler taught physicians, nurses, counselors, police, and first responders about end of life, trauma, and grief, as well as leading talks and retreats for those experiencing grief. Despite his knowledge, his life was upended by the sudden death of his twenty-one-year-old son. How does the grief expert handle such a tragic loss? He knew he had to find a way through this unexpected, devastating loss, a way that would honor his son. That, ultimately, was the sixth stage of grief—meaning. In Finding Meaning, Kessler shares the insights, collective wisdom, and powerful tools that will help those experiencing loss. “Beautiful, tender, and wise” (Katy Butler, author of The Art of Dying Well), Finding Meaning is “an excellent addition to grief literature that helps pave the way for steps toward healing” (School Library Journal).
And Still She Laughs
Author: Kate Merrick
Publisher: Thomas Nelson
ISBN: 0718093097
Category : Religion
Languages : en
Pages : 225
Book Description
Kate Merrick examines the Bible’s gritty stories of resilient women as well as her own experience losing a child—a journey followed by more than a million on prayfordaisy.com—to reveal the reality of surprising joy and deep hope even in the midst of heartache. Is it possible live fully—even joyfully—in the middle of overwhelming pain? In the excruciating aftermath of her young daughter’s death from cancer, Kate Merrick struggled to find a way to live. Not just to survive or go through the motions, but to live fully. Faithfully. With real joy amid inevitable tears. To discover how, Kate delved into the stories in the Bible of real women who suffered deeply and emerged somehow joyful. How did Sarah, after twenty-five years of achingly empty arms, learn to laugh without bitterness? How did Bathsheba, defiled by the king who then had her husband killed, come to walk in strength and dignity, to smile without fear of the future? In her encounters with these heroines of the faith, Kate discovered how to have contentment—and even joy—whatever the circumstances. By turns heartbreaking and humorous, And Still She Laughs reveals the secret to finding hope in the midst of devastation. In the end, no matter what hardships we face, we can smile, cry, and come away full—laughing without fear and eagerly looking for what is to come. “And Still She Laughs is the terrifying, tearful, heartbreaking, heart healing and humorous, definitive true story of survival and triumph.” —Kathy Ireland, chair of Kathy Ireland Worldwide “Kate Merrick is one of those women that I always wish I had more time with—her honesty, sincerity, and messy straightforwardness are different, in the very best way. Her book, And Still She Laughs, is the same way. It’s one of those books I will keep coming back to it for truth and inspiration.” —Lindsey Nobles, COO of the IF:Gathering
Publisher: Thomas Nelson
ISBN: 0718093097
Category : Religion
Languages : en
Pages : 225
Book Description
Kate Merrick examines the Bible’s gritty stories of resilient women as well as her own experience losing a child—a journey followed by more than a million on prayfordaisy.com—to reveal the reality of surprising joy and deep hope even in the midst of heartache. Is it possible live fully—even joyfully—in the middle of overwhelming pain? In the excruciating aftermath of her young daughter’s death from cancer, Kate Merrick struggled to find a way to live. Not just to survive or go through the motions, but to live fully. Faithfully. With real joy amid inevitable tears. To discover how, Kate delved into the stories in the Bible of real women who suffered deeply and emerged somehow joyful. How did Sarah, after twenty-five years of achingly empty arms, learn to laugh without bitterness? How did Bathsheba, defiled by the king who then had her husband killed, come to walk in strength and dignity, to smile without fear of the future? In her encounters with these heroines of the faith, Kate discovered how to have contentment—and even joy—whatever the circumstances. By turns heartbreaking and humorous, And Still She Laughs reveals the secret to finding hope in the midst of devastation. In the end, no matter what hardships we face, we can smile, cry, and come away full—laughing without fear and eagerly looking for what is to come. “And Still She Laughs is the terrifying, tearful, heartbreaking, heart healing and humorous, definitive true story of survival and triumph.” —Kathy Ireland, chair of Kathy Ireland Worldwide “Kate Merrick is one of those women that I always wish I had more time with—her honesty, sincerity, and messy straightforwardness are different, in the very best way. Her book, And Still She Laughs, is the same way. It’s one of those books I will keep coming back to it for truth and inspiration.” —Lindsey Nobles, COO of the IF:Gathering
Spectacle of Grief
Author: Sarah J. Purcell
Publisher: UNC Press Books
ISBN: 1469668343
Category : History
Languages : en
Pages : 353
Book Description
This illuminating book examines how the public funerals of major figures from the Civil War era shaped public memories of the war and allowed a diverse set of people to contribute to changing American national identities. These funerals featured lengthy processions that sometimes crossed multiple state lines, burial ceremonies open to the public, and other cultural productions of commemoration such as oration and song. As Sarah J. Purcell reveals, Americans’ participation in these funeral rites led to contemplation and contestation over the political and social meanings of the war and the roles played by the honored dead. Public mourning for military heroes, reformers, and politicians distilled political and social anxieties as the country coped with the aftermath of mass death and casualties. Purcell shows how large-scale funerals for figures such as Henry Clay and Thomas J. “Stonewall” Jackson set patterns for mourning culture and Civil War commemoration; after 1865, public funerals for figures such as Robert E. Lee, Charles Sumner, Frederick Douglass, and Winnie Davis elaborated on these patterns and fostered public debate about the meanings of the war, Reconstruction, race, and gender.
Publisher: UNC Press Books
ISBN: 1469668343
Category : History
Languages : en
Pages : 353
Book Description
This illuminating book examines how the public funerals of major figures from the Civil War era shaped public memories of the war and allowed a diverse set of people to contribute to changing American national identities. These funerals featured lengthy processions that sometimes crossed multiple state lines, burial ceremonies open to the public, and other cultural productions of commemoration such as oration and song. As Sarah J. Purcell reveals, Americans’ participation in these funeral rites led to contemplation and contestation over the political and social meanings of the war and the roles played by the honored dead. Public mourning for military heroes, reformers, and politicians distilled political and social anxieties as the country coped with the aftermath of mass death and casualties. Purcell shows how large-scale funerals for figures such as Henry Clay and Thomas J. “Stonewall” Jackson set patterns for mourning culture and Civil War commemoration; after 1865, public funerals for figures such as Robert E. Lee, Charles Sumner, Frederick Douglass, and Winnie Davis elaborated on these patterns and fostered public debate about the meanings of the war, Reconstruction, race, and gender.
Harnessing Grief
Author: Maria J. Kefalas
Publisher: Beacon Press
ISBN: 0807040266
Category : Biography & Autobiography
Languages : en
Pages : 202
Book Description
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
Publisher: Beacon Press
ISBN: 0807040266
Category : Biography & Autobiography
Languages : en
Pages : 202
Book Description
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others. When Maria Kefalas’s daughter Calliope was diagnosed with a degenerative, uncurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity—poignant and funny all at once. This superpower of grief also revealed a miracle—not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ’s words, could “find a cure for Cal’s disease.” They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD. Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50 thousand cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation. A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
Second Firsts
Author: Christina Rasmussen
Publisher:
ISBN: 1401940838
Category : Family & Relationships
Languages : en
Pages : 217
Book Description
Presents a guide for dealing with grief and loss, detailing five steps of healing that can lead to a lifestyle alignment with personal values and new possibilities for a re-engaged life. --Publisher's description.
Publisher:
ISBN: 1401940838
Category : Family & Relationships
Languages : en
Pages : 217
Book Description
Presents a guide for dealing with grief and loss, detailing five steps of healing that can lead to a lifestyle alignment with personal values and new possibilities for a re-engaged life. --Publisher's description.