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Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
ISBN: 1587634333
Category : Medical
Languages : en
Pages : 385
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Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
ISBN: 1587634333
Category : Medical
Languages : en
Pages : 385
Get Book Here
Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author: Kathleen Burlingame
Publisher: Library Juice Press
ISBN: 9781634001335
Category :
Languages : en
Pages : 0
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Book Description
Author: Lester J. Pourciau
Publisher: Purdue University Press
ISBN: 9781557531384
Category : Computers
Languages : en
Pages : 360
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Book Description
A compilation of the proceedings from a symposium of the same name as the book. Topics include: access to information; Internet ethics and free speech; the ethics of electronic information in China today; privacy and the Internet; copyright; and regulation of information and Internet commerce.
Author: Barbara Rockenbach
Publisher: McFarland
ISBN: 0786484209
Category : Language Arts & Disciplines
Languages : en
Pages : 222
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Book Description
Stephen Almagno’s career as a professor of library science began at the University of Pittsburgh in 1971. In 1990, he became the first professor in the United States to teach an information ethics course in a library and information science program. Almagno’s work in the area of information ethics was recognized at the 2001 “Ethics of Electronic Information in the 21st Century” symposium held at the University of Memphis on October 18–21, 2001, upon the occasion of his retirement from the University of Pittsburgh. The essays in this book were presented at the symposium honoring Almagno. The first section of the book features papers that pay special tribute to Almagno. The second contains papers on library issues and ethics, such as the ethics of electronic information in China and eastern Europe, the organizations that represent information professionals, the ethics of user privacy in the digital library, and ethical implications of e-commerce, to name just a few. The third section covers topical issues, such as Internet plagiarism, ethical hacking and the security justification, social democracy and information media policy, and the ethics of dialogue, among others.
Author: Joseph M. Kizza
Publisher: Springer Science & Business Media
ISBN: 0387224661
Category : Computers
Languages : en
Pages : 375
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Book Description
This textbook provides an introduction to the social and policy issues which have arisen as a result of information technology. Whilst it assumes a modest familiarity with computers, its aim is to provide a guide to the issues suitable for undergraduates. In doing so, the author prompts the students to consider questions such as: "What are the moral codes of cyberspace?" Throughout, the book shows how in many ways the technological development is outpacing the ability of our legal systems to keep up, and how different paradigms applied to ethical questions may often offer conflicting conclusions. As a result students will find this to be a thought-provoking and valuable survey.
Author: George Walter Reynolds
Publisher: Course Technology
ISBN:
Category : Business ethics
Languages : en
Pages : 372
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Book Description
Ethics in Information Technology, Second Edition is a timely offering with updated and brand new coverage of topical issues that we encounter in the news every day such as file sharing, infringement of intellectual property, security risks, Internet crime, identity theft, employee surveillance, privacy, and compliance.
Author: Carlo Leget
Publisher:
ISBN: 9789042924598
Category : Compassion
Languages : en
Pages : 0
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Book Description
Since Carol Gilligan's In a Different Voice (1982) the ethics of care has developed as a movement of allied thinkers, in different continents, who have a shared concern and who reflect on similar topics. This shared concern is that care can only be revalued and take its societal place if existing asymmetrical power relations are unveiled, and if the dignity of care givers and care receivers is better guaranteed, socially, politically and personally. In this first volume of a new series leading care ethicists from Europe and the United States focus on the moral significance of two concepts in the debate that ask for further reflection. In discussion with the work of Axel Honneth on recognition and the work of Emmanuel Housset on compassion a contribution is made to a reconsideration of recognition and compassion from an ethics of care perspective. This volume contains contributions by Andries Baart, Estelle Ferrarese, Chris Gastmans, Mieke Grypdonck, Emmanuel Housset, Carlo Leget, Hilde Lindemann, Axel Liegeois, Christa Schnabl, Joan C. Tronto, Annelies van Heijst, Linus Vanlaere, Frans Vosman and Margaret Urban Walker.
Author: Brent Daniel Mittelstadt
Publisher: Springer
ISBN: 3319335251
Category : Philosophy
Languages : en
Pages : 478
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Book Description
This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
Author: National Research Council
Publisher: National Academies Press
ISBN: 0309071801
Category : Social Science
Languages : en
Pages : 75
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Book Description
Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risksâ€"both absolute and relativeâ€"created by researchers and research data, as well as by other data users and other types of data.
Author: Eike-Henner W. Kluge
Publisher: Academic Press
ISBN: 0128220457
Category : Medical
Languages : en
Pages : 168
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Book Description
The Electronic Health Record: Ethical Considerations analyses the ethical issues that surround the construction, maintenance, storage, use, linkage, manipulation and communication of electronic health records. Its purpose is to provide ethical guidance to formulate and implement policies at the local, national and global level, and to provide the basis for global certification in health information ethics. Electronic health records (EHRs) are increasingly replacing the use of paper-based records in the delivery of health care. They are integral to providing eHealth, telehealth, mHealth and pHealth - all of which are increasingly replacing direct and personal physician-patient interaction - as well as in the developing field of artificial intelligence and expert systems in health care. The book supplements considerations that are raised by national and international regulations dealing with electronic records in general, for instance the General Data Protection Regulation of the European Union. This book is a valuable resource for physicians, health care administrators and workers, IT service providers and several members of biomedical field who are interested in learning more about how to ethically manage health data.
