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Author: Ulrik Kihlbom
Publisher: Routledge
ISBN: 100022516X
Category : Medical
Languages : en
Pages : 288
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Book Description
This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesizing the results of a five-year interdisciplinary project, it explores the unsolved ethical and social questions around the sharing of this data, such as: What is best practice in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for ones’ health? And how does one deal with the gap between the knowledge of risk and the lack of therapeutic options which often exist for complex diseases, such as dementia or some types of cancer? Drawing on contributions from over 20 experts in the field, this collection examines these questions from a liberal bioethics’ perspective, advocating for contextual and cultural-sensitive ethical discussions. This book will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk, as well as professionals in clinical genetics.
Author: Ulrik Kihlbom
Publisher: Routledge
ISBN: 100022516X
Category : Medical
Languages : en
Pages : 288
Get Book Here
Book Description
This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesizing the results of a five-year interdisciplinary project, it explores the unsolved ethical and social questions around the sharing of this data, such as: What is best practice in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for ones’ health? And how does one deal with the gap between the knowledge of risk and the lack of therapeutic options which often exist for complex diseases, such as dementia or some types of cancer? Drawing on contributions from over 20 experts in the field, this collection examines these questions from a liberal bioethics’ perspective, advocating for contextual and cultural-sensitive ethical discussions. This book will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk, as well as professionals in clinical genetics.
Author: Ulrik Kihlbom
Publisher: Routledge
ISBN: 1000225143
Category : Medical
Languages : en
Pages : 191
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Book Description
This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesizing the results of a five-year interdisciplinary project, it explores the unsolved ethical and social questions around the sharing of this data, such as: What is best practice in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for ones’ health? And how does one deal with the gap between the knowledge of risk and the lack of therapeutic options which often exist for complex diseases, such as dementia or some types of cancer? Drawing on contributions from over 20 experts in the field, this collection examines these questions from a liberal bioethics’ perspective, advocating for contextual and cultural-sensitive ethical discussions. This book will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk, as well as professionals in clinical genetics.
Author: Antoinette Fage-Butler
Publisher: Taylor & Francis
ISBN: 1000987175
Category : Business & Economics
Languages : en
Pages : 166
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Book Description
This book explores the connections between risk and responsibilisation in official communication to the public about the global risks of the pandemic and climate change. Our media spheres in the 2020s have been saturated with information about what we should or should not be doing to meet the challenges of the COVID-19 pandemic and climate change. Although the ability of risk communication to ‘responsibilise’ the public is central to its functioning in our societies, this aspect has so far been under-investigated in academia. To address this lacuna, Antoinette Fage-Butler develops a discursive approach to risk communication that focuses on the values that are communicated in risk messages. Examples of official risk communication about the pandemic and climate change from national and transnational contexts are analysed and compared, leading to new empirical findings and theoretical insights about the nature of risk and responsibilisation. Fage-Butler also builds on recent stirrings in the evolving field of risk communication that highlight the importance of cultural and value-related factors. Overall, this book will equip researchers with an approach to risk communication that reflects the complexity of today’s global risk challenges. Risk and Responsibilisation in Public Communication will be of great interest to students and scholars of risk communication, public health and environmental studies.
Author: Ulrik Kihlbom
Publisher:
ISBN:
Category : Philosophy
Languages : en
Pages : 168
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Book Description
This is a PhD dissertation. Ethical particularism claims that any non-moral feature that in one situation is a reason why something is, for example, morally wrong, may in another situation be morally irrelevant or have an opposite moral valence. Ethical particularism entails, in other words, the non-existence of true or sound moral principles. Actions, persons, and situations acquire their moral features contextually in a way that escapes codification in principled terms. Particularism comes in this way in conflict with a classical approach to moral philosophy
Author: Andreas Klinke
Publisher: Taylor & Francis
ISBN: 1040102735
Category : Business & Economics
Languages : en
Pages : 283
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Book Description
Using sources from classical to modern that broach the phenomenon of uncertainty and its relation to risk, this book creates a novel approach to the recognized but theoretically often unattended issue of uncertainty. Andreas Klinke develops a new, general theory of uncertainty that provides a taxonomy of categories which are deduced from a critical inventory in philosophy, social and natural sciences, and risk research. Comprising six parts, the philosophical grounding of uncertainty sets the stage for the following philosophical and social scientific accounts and explanation of four distinctive guises of uncertainty that form a taxonomic notion and rationale: ontological, epistemological, linguistic-communicative, and teleological uncertainty. The theoretical-conceptual rumination provides a complex, differentiated view of the anatomy of uncertainty and an understanding that can be used in further theoretical and empirical research, as well as socio-political practice. The latter is delineated in the final part addressing the societal domestication of uncertainty. This book will be of great interest to scholars and students in philosophy, social and natural sciences, risk research, as well as inter- and transdisciplinary science fields.
Author: Nurit Guttman
Publisher: SAGE
ISBN: 0761902600
Category : Language Arts & Disciplines
Languages : en
Pages : 305
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Book Description
The ethical dimensions of health communicators' interventions and campaigns are brought into question in this thought-provoking book. Examining the efforts to effect behavior change, the author questions how far health communication can and should go in changing people's values. The author broadens the current analysis of interventions and presents conceptual frameworks that help identify values and justifications that are embedded in health communication goals, strategies, and evaluation criteria. This critical approach helps explain how and why choices are made in design and implementation, and provides constructs and frameworks to examine them. It also widens the criteria for program evaluation and policymaking, and provides practitioners, planners, policy-makers, researchers, and students with practice-oriented questions.
Author: David Karp
Publisher: Frontiers Media SA
ISBN: 2889768422
Category : Medical
Languages : en
Pages : 187
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Book Description
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309096073
Category : Medical
Languages : en
Pages : 98
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Book Description
Genomics is the study of the entire human genome. Genomics explores not only the actions of single genes, but also the interactions of multiple genes with each other and with the environment. As a result, genomics has great potential for improving the health of the public. However, realizing the benefits of genomics requires a systematic evaluation of its potential contributions and an understanding of the information necessary to facilitate the translation of research findings into public health strategies. In October 2004, the Institute of Medicine convened a workshop to discuss major scientific and policy issues related to genomics and public health, examine major supports for and challenges to the translation of genetic research into population health benefits, and suggest approaches for the integration of genomic information into strategies for promoting health and preventing disease. Implications of Genomics for Public Health summarizes the discussions and presentations from this workshop.
Author: National Research Council
Publisher: National Academies Press
ISBN: 0309162165
Category : Medical
Languages : en
Pages : 106
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Book Description
Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.
Author: Kenneth P. Tercyak
Publisher: Springer Science & Business Media
ISBN: 1441958002
Category : Medical
Languages : en
Pages : 616
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Book Description
This book introduces readers to the study of how genes, singly and in combination with each other and the environment, affect health and behavior. It provides family-focused perspectives relating to genetic counseling and education.
