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Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 638
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Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 638
Get Book
Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
Author: Karen Whitley Bell
Publisher: Union Square & Co.
ISBN: 145492845X
Category : Family & Relationships
Languages : en
Pages : 209
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Book Description
An updated edition of the most respected book on hospice care—for both patients and caregivers. This warm and informative resource on hospice and other end-of-life care options now gets an update. It receives a new preface and revised guidance on elders who need more long-term care and support, recommendations on pain medications, and advice for those living extended lives with treatable, but not curable, diseases. Written by a hospice nurse, Living at the End of Life reassures us that this difficult time also offers an opportunity to explore and rediscover a richer meaning in life. Drawing on her years of experience, Bell has created a comprehensive, insightful guide to every aspect of hospice care and the final stages of life. For people in hospice, as well as their friends and families, this is an indispensable and trustworthy source of comfort and spiritual healing.
Author: U.S. Department of Health and Human Services
Publisher: Lulu.com
ISBN: 0359588239
Category : Reference
Languages : en
Pages : 78
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Book Description
At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually fading. For some older people, the body weakens while the mind stays alert. Others remain physically strong, but cognitive losses take a huge toll. Although everyone dies, each loss is personally felt by those close to the one who has died. End-of-life care is the term used to describe the support and medical care given during the time surrounding death. Such care does not happen only in the moments before breathing ceases and the heart stops beating. Older people often live with one or more chronic illnesses and need a lot of care for days, weeks, and even months before death. The goal of End of Life: Helping with Comfort and Care is to provide guidance and help in understanding the unfamiliar territory of death. This information is based on research, such as that supported by the National Institute on Aging (NIA), along with other parts of the National Institutes of Health.
Author: Roi Livne
Publisher:
ISBN: 0674545176
Category : Medical
Languages : en
Pages : 361
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Book Description
Once defiant of death--or even in denial--many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.
Author: Committee on Care at the End of Life
Publisher: National Academies Press
ISBN: 0309518253
Category : Medical
Languages : en
Pages : 425
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Book Description
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Author: Dona J. Reese
Publisher: Columbia University Press
ISBN: 0231508735
Category : Social Science
Languages : en
Pages : 520
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Book Description
The first text to explore the history, characteristics, and challenges of hospice social work, this volume weaves leading research into an underlying framework for practice and care. A longtime practitioner, Dona J. Reese describes the hospice social work role in assessment and intervention with individuals, families, groups, organizations, and the community, while honestly confronting the personal and professional difficulties of such life-changing work. She introduces a well-tested model of psychosocial and spiritual variables that predict hospice client outcomes, and she advances a social work assessment tool to document their occurrence. Operating at the center of national leaders' coordinated efforts to develop and advance professional organizations and guidelines for end-of-life care, Reese reaches out with support and practice information, helping social workers understand their significance in treating the whole person, contributing to the cultural competence of hospice settings, and claiming a definitive place within the hospice team.
Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309084377
Category : Medical
Languages : en
Pages : 713
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Book Description
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Author: Allan Kellehear
Publisher:
ISBN: 9780231182140
Category :
Languages : en
Pages : 224
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Book Description
This book is about how, when, and why our dead visit us. Allan Kellehear--a medical sociologist and expert on death, dying, and palliative care--has gathered data and conducted studies on deathbed visions across cultures.
Author: Fran Smith
Publisher: Simon and Schuster
ISBN: 1936740605
Category : Health & Fitness
Languages : en
Pages : 288
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Book Description
There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care—nearly 44 percent of all deaths—and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape, through gripping stories of real patients, families, and doctors, as well as the corporate giants that increasingly own the market. Changing the Way We Die is a vital resource for anyone who wants to be prepared to face life’s most challenging and universal event. You will learn: — Hospice use is soaring, yet most people come too late to get the full benefits. — With the age tsunami, it becomes even more critical for families and patients to choose end-of-life care wisely. — Hospice at its best is much more than a way to relieve the suffering of dying. It is a way to live.
Author: Steve Nolan
Publisher: Jessica Kingsley Publishers
ISBN: 1849051992
Category : Body, Mind & Spirit
Languages : en
Pages : 162
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Book Description
This book examines the services that chaplains provide to dying patients and the unique relationship that palliative care staff construct with people at the end of life. It explores the nature of hope when faced with the inevitable and develops a theory of spiritual care rooted in relationship that has implications for all healthcare professionals.
